Re: Diet Frustration - THANK YOU DANA!!!

[Guest guest]

Oh my gosh Dana - thank you!  I just called & talked to Judy Converse & she's going to help me with this!  She is excellent - you are so right.  My poor little guy is at school right now feeling like crap - I can't wait til he gets home so I can give him a big hug & get him off that damn diet.  Oh - to answer your question - yes - we did IgG test - I"m looking at it right now & he is eating multiple things he shouldn't on SCD.  These diets can be so dangerous; I can't thank you enough for the info on Judy!  THank you!MarisaTo: mb12 valtrex Sent: Tuesday, December 9, 2008 12:25:24 PMSubject: RE: Diet Frustration

I understand how frustrating dietary interventions can be.  Have you had his IGGs tested?  He could be intolerant to something he is eating.  Also, does he get plenty of healthy fat - i.e., avacado, coconut oil, olive oil, nut butters, omega 3s, etc...?  Fats are necessary for growth and development, the brain, good skin, etc.  What do you do, if anything, for constipation?  Extra vitamin C and magnesium work well for us.  Others have had luck with pure aloe juice and oxypowder or oxy-C.  In my house, too many bananas or too high a dose of probiotics can cause constipation w/my boys.  There are other natural rememdies for constipation also.  Just some things to think about. 

 

Judy Converse is an excellent DAN nutritionist:

http://www.nutritio ncare.net/ pages.php? id=25

Diet Frustration

Hi All -

Just curious on what to do about my son's diet. He is on the Specific Carbohydrate Diet (for about 3 months now) and it doesn't seem to be helping him. In fact, he looks very pale & thin - he looks sick to me. Maybe he looks sick because of the anti-viral/anti- fungals? He's not in ketosis, buy the way - we make sure he gets plenty of carbs. I'm so tired of guessing. I'd like to take him off this crazy diet, since me & my husband don't think it's helped him one bit (not even with his constipation) , but don't know where to go from here, as far as what foods can I add back in.

We did GFCF for years too without any real gains - so we're not dying to put him back on that either. Our child (who is now 7) doesn't seem to respond to dietary intervention. I just want to do the right thing for him.

Does anyone know a great dietician that is well-versed in this autism-dietary maze?

[Guest guest]

Marisa,

Just an FYI, we are SCD with potato, no goat yogurt. It's the only way we can do it because my kids have a lot of phenol sensitivities (therefore, that eliminates a lot of carb choices), plus they are very active little guys and are hungry! I know I couldn't survive on meat, veggies and fruit alone. I tried to w/them but they were starving. Rice and rice products are definitely a no-no for them. I always think it's okay in the beginning, then I look at where they were 2 weeks before I started adding back in rice products (or grains) and there is a real difference. I know every child is different but I thought I would share our experience.

- Dana

Diet Frustration

Hi All -

Just curious on what to do about my son's diet. He is on the Specific Carbohydrate Diet (for about 3 months now) and it doesn't seem to be helping him. In fact, he looks very pale & thin - he looks sick to me. Maybe he looks sick because of the anti-viral/anti- fungals? He's not in ketosis, buy the way - we make sure he gets plenty of carbs. I'm so tired of guessing. I'd like to take him off this crazy diet, since me & my husband don't think it's helped him one bit (not even with his constipation) , but don't know where to go from here, as far as what foods can I add back in.

We did GFCF for years too without any real gains - so we're not dying to put him back on that either. Our child (who is now 7) doesn't seem to respond to dietary intervention. I just want to do the right thing for him.

Does anyone know a great dietician that is well-versed in this autism-dietary maze?

[Guest guest]

Not all children respond to diet.  My son has never responded to diet in any shape or form.  So after 2 years of dealing with diet, we've simply stopped.  Now we just give him healthy options, organic, dye free, etc.  But he is not gfcf, scd or any other diet.  His diet is still very limited but it was limited before diet interventions, during diet interventions and now after diet interventions.Don't beat yourself up if you go off the diet.  I chose to stop wasting my money on something that wasn't producing results and put it where it will. Cheryl~Check out my blog:  http://www.gryffins-tail.blogspot.com/ Oh my gosh Dana - thank you!  I just called & talked to Judy Converse & she's going to help me with this!  She is excellent - you are so right.  My poor little guy is at school right now feeling like crap - I can't wait til he gets home so I can give him a big hug & get him off that damn diet.  Oh - to answer your question - yes - we did IgG test - I"m looking at it right now & he is eating multiple things he shouldn't on SCD.  These diets can be so dangerous; I can't thank you enough for the info on Judy!  THank you!MarisaFrom: Dana Read To: mb12 valtrex Sent: Tuesday, December 9, 2008 12:25:24 PMSubject: RE: Diet FrustrationI understand how frustrating dietary interventions can be.  Have you had his IGGs tested?  He could be intolerant to something he is eating.  Also, does he get plenty of healthy fat - i.e., avacado, coconut oil, olive oil, nut butters, omega 3s, etc...?  Fats are necessary for growth and development, the brain, good skin, etc.  What do you do, if anything, for constipation?  Extra vitamin C and magnesium work well for us.  Others have had luck with pure aloe juice and oxypowder or oxy-C.  In my house, too many bananas or too high a dose of probiotics can cause constipation w/my boys.  There are other natural rememdies for constipation also.  Just some things to think about.  Judy Converse is an excellent DAN nutritionist:http://www.nutritio ncare.net/ pages.php? id=25  Diet FrustrationHi All -Just curious on what to do about my son's diet. He is on the Specific Carbohydrate Diet (for about 3 months now) and it doesn't seem to be helping him. In fact, he looks very pale & thin - he looks sick to me. Maybe he looks sick because of the anti-viral/anti- fungals? He's not in ketosis, buy the way - we make sure he gets plenty of carbs. I'm so tired of guessing. I'd like to take him off this crazy diet, since me & my husband don't think it's helped him one bit (not even with his constipation) , but don't know where to go from here, as far as what foods can I add back in.We did GFCF for years too without any real gains - so we're not dying to put him back on that either. Our child (who is now 7) doesn't seem to respond to dietary intervention. I just want to do the right thing for him.Does anyone know a great dietician that is well-versed in this autism-dietary maze?

[Guest guest]

Ok - good to know; never considered doing SCD w/ potatoes.  Thanks for sharing.  know I can't survive for long on meat, veggies & fruit alone either. I bet he's either hungry or feels awful - poor guy can't communicate his feelings other than "sad."Our appt. w/ Judy is Thurs - I am looking forward to her recommendations for a customized food plan for our son.  To:

mb12 valtrex Sent: Tuesday, December 9, 2008 4:18:49 PMSubject: RE: Diet Frustration - THANK YOU DANA!!!

Marisa,

 

Just an FYI, we are SCD with potato, no goat yogurt.  It's the only way we can do it because my kids have a lot of phenol sensitivities (therefore, that eliminates a lot of carb choices), plus they are very active little guys and are hungry!  I know I couldn't survive on meat, veggies and fruit alone.  I tried to w/them but they were starving.  Rice and rice products are definitely a no-no for them.  I always think it's okay in the beginning, then I look at where they were 2 weeks before I started adding back in rice products (or grains) and there is a real difference.  I know every child is different but I thought I would share our experience. 

 

- Dana

Diet Frustration

Hi All -

Just curious on what to do about my son's diet. He is on the Specific Carbohydrate Diet (for about 3 months now) and it doesn't seem to be helping him. In fact, he looks very pale & thin - he looks sick to me. Maybe he looks sick because of the anti-viral/anti- fungals? He's not in ketosis, buy the way - we make sure he gets plenty of carbs. I'm so tired of guessing. I'd like to take him off this crazy diet, since me & my husband don't think it's helped him one bit (not even with his constipation) , but don't know where to go from here, as far as what foods can I add back in.

We did GFCF for years too without any real gains - so we're not dying to put him back on that either.. Our child (who is now 7) doesn't seem to respond to dietary intervention. I just want to do the right thing for him.

Does anyone know a great dietician that is well-versed in this autism-dietary maze?