My first Post

January 1, 2006

Hi all!

Here is my story. For one year I have been dealing with unexplained

pain, numbness, and weakness in all my extremeties. I have chronic

fatigue, and have recently started experiencing very dry eyes. I

have been seeing many doctors and all my test turn out normal. I

even had one neurologist say that I needed to see a shrink. I used

to be a full time nursing student and worked part-time as a nursing

assistant. Now I have a handicap parking permit. I know this isn't

in my head. I am a busy mother of five. Now, I cannot even keep up

with any of them. I even have a speaking program just to type on my

computer without pain. I have been seeing a Kinesiologist and with

herbs and diet changes, I have seen only an increase in energy and

some strength in my legs. I went to a family event and couldn't

even hold my cousin's new baby without pain in my shoulder. I still

have my implants, they have been in for 5 years. My husband and I

are in the process of finding out if my implants are the root cause

to my pain. And if so, a good doctor to take them out.

It would be nice to hear from any of you.

January 2, 2006

Welcome to the group - I am so sorry you are going through such

pain. Your story is so familiar to me! I had explant in October

after years of doctors and different possibilities for my illness

and " fibromyalgia?? " I felt relieved when I found this group to see

that I wasn't alone. I found the women in this group to be so

helpful and so experienced with just about every aspect of my

illness. Overall I am feeling much better - most days I have so

much more energy and less pain - but I do still have set backs like,

unfortunately right now. I think it will just take time. I'll be

praying for you to find the right answers for your health.

Cherie

>

> Hi all!

>

> Here is my story. For one year I have been dealing with

unexplained

> pain, numbness, and weakness in all my extremeties. I have

chronic

> fatigue, and have recently started experiencing very dry eyes. I

> have been seeing many doctors and all my test turn out normal. I

> even had one neurologist say that I needed to see a shrink. I

used

> to be a full time nursing student and worked part-time as a

nursing

> assistant. Now I have a handicap parking permit. I know this

isn't

> in my head. I am a busy mother of five. Now, I cannot even keep

up

> with any of them. I even have a speaking program just to type on

my

> computer without pain. I have been seeing a Kinesiologist and

with

> herbs and diet changes, I have seen only an increase in energy and

> some strength in my legs. I went to a family event and couldn't

> even hold my cousin's new baby without pain in my shoulder. I

still

> have my implants, they have been in for 5 years. My husband and I

> are in the process of finding out if my implants are the root

cause

> to my pain. And if so, a good doctor to take them out.

>

> It would be nice to hear from any of you.

>

January 3, 2006

I called Dr. Lu-Feng's office today and talked with . She called me back later so my husband could ask questions. She truely believes my symptoms are caused by my implants. She was shocked by the severity of my symptoms. I am only 32 and shouldn't be labled "handicapped". She was hopeful that after an explant surgery that I can get back to work and help my husband pay off all my medical bills. We have been looking at about $1000. per month of un-insured medical bills for the past year. Now, we are looking at another $6,700-$1100 for the explant surgery. It is frustrating that I have lost a year of my life from these things. To be honest, in these five years I have loved my implants for the first 4. I never regreted my decision to get them. However, this past year and what I have lost so far (my job, and school) especially my dream of finishing my

Nursing degree, I have 5 years of regret now. I go to the my family doctor tomorrow for help with my eye pain. I cannot sleep and I have to keep putting saline drops in a few times per night. I am going to give him a mouthful. He could have spotted this coming almost a year ago, when I first started having my symptoms. He should have thought about it when I lost my ability to climb stairs. Instead, he just kept "fishing" for everything BUT! I scheduled my surgery with Dr. Feng for February 3. It will be a 7 hour drive, maybe longer if my IC acts up. I am almost as excited for this explant as I was for my implant surgery. Thanks for listening to my rambling. Fote: ,Many of the women who have come to this site have gone to Dr. Lu-Feng for explantation, myself included. Dr. Feng absolutely believes that implants make some women sick, and she will make sure to perform the en bloc procedure, and remove the capsule completely. En bloc means that the implant is removed whole so that the contents do not spill into the body, and she removes the capsule as well because it absorbs chemicals from the implants, and if it's left in your body, it can continue to make you sick. My husband drove me there, it was about a 6 hour drive from New Jersey. Dr. Feng puts drains in, which do not hurt, but are a little bulky, and they have to be changed. It kept me from swelling and I had minimal pain. I stayed in a hotel about 2 miles from Dr. Feng's office, and I stayed until the drains were ready to be removed. Sis ---

In , Lamse <wannabe_proverbs31@y...> wrote:>> Thank you all for responding to my first post. I appreciate the support, especially because I still have along way to go. I live in West Michigan and I cannot find a good doctor in our area or even in our state for that matter. None of them advertise explant surgeries. If they don't list it they must not specialize in it. I want someone who is the best. I did however, find the website for Dr. Lu-Feng in Clevland, Ohio. My husband is willing to drive me there if she is a good doctor. Does anyone have any other suggestions?> > Thanks again,> > > > > glory2glory1401 <glory2glory1401@y...> wrote:> Hi friend (and Proverbs 31 wannabe! Me too!! You've

made my heart > smile!),> > I am so sorry to hear of the suffering you have gone through over > the past year. It all sounds so familiar, unfortunately. You are > right, this is NOT in your head. What you are suffering from is a > very real and far too common reaction to your implants that many, > many other women have experienced as well. It is tragic that your > life can come to such a screeching halt once the immune system > suffers and the symptoms start to manifest one after another. And > yet, the tests come out normal! It is so crazy....yet it happens to > so many. That was why we formed this group. We needed help, and > together we have been able to help each other, because, as you have > found, the medical community seems clueless to our plight.> > The lack of specific testing to prove implants are making you

sick > is what makes it so hard to determine beyond a shadow of a doubt > that they are the cause. There is no single test that will confirm > that for you, and that is why there is such a controversy over this > issue.> > What almost all of us have had to do is make the leap of faith that > what we know in our heart is true...that we were healthy before > implants, and got sick after them, and we have all been struggling > with too many of the common complaints for it to be coincidence and > not related to our implants. And what's more, is that so many, many > women get better once the implants are removed properly. We can say > with a high degree of certainty that some women react poorly to > implants and their hope of recovery lies in proper removal.> > We can help you with that....please let us know where you are and > what kind of

assistance you would like. > We've all been there, so you don't have to feel alone as you go > through this. We know how hard this road is, so feel free to lean on > us in whatever way you need to.> Of course, God will be your best source of guidance of all, and I am > sure He will give you peace about the choices you have to make.> God bless,> Patty> > > >> > Hi all!> > > > Here is my story. For one year I have been dealing with > unexplained > > pain, numbness, and weakness in all my extremeties. I have > chronic > > fatigue, and have recently started experiencing very dry eyes. I > > have been seeing many doctors and all my test turn out normal. I > > even had one neurologist

say that I needed to see a shrink. I > used > > to be a full time nursing student and worked part-time as a > nursing > > assistant. Now I have a handicap parking permit. I know this > isn't > > in my head. I am a busy mother of five. Now, I cannot even keep > up > > with any of them. I even have a speaking program just to type on > my > > computer without pain. I have been seeing a Kinesiologist and > with > > herbs and diet changes, I have seen only an increase in energy and > > some strength in my legs. I went to a family event and couldn't > > even hold my cousin's new baby without pain in my shoulder. I > still > > have my implants, they have been in for 5 years. My husband and I > > are in the process of finding out if my implants are the root >

cause > > to my pain. And if so, a good doctor to take them out.> > > > It would be nice to hear from any of you.> >> > > > > > > > Opinions expressed are NOT meant to take the place of advice given by licensed health care professionals. Consult your physician or licensed health care professional before commencing any medical treatment. > > "Do not let either the medical authorities or the politicians mislead you. Find out what the facts are, and make your own decisions about how to live a happy life and how to work for a better world." - Linus ing, two-time Nobel Prize Winner (1954, Chemistry; 1963, Peace)> > See our photos website! Enter "implants" for access at this link:> http://.shutterfly.com/action/> > For Healing Therapies

and Detox info, and to view Testimonies of Victims, and Studies of harm by implants, go to:> /files/> > To view links to related websites on breast implants, go to:> /links > > > >

January 3, 2006

Hi ,

I'm glad that you scheduled your explant. I can't tell you how

relieved I am to have them out of my body. I am sure I would have

progressively gotten worse if I kept them in, I was deteriorating

quickly. Dr. Feng has a wonderful staff. They have seen thousands

of women like us, so they have no doubt as to the harm implants can

cause. I stayed in Beachwood, which is about two miles from her

office. Very nice location. I visited her twice, the first time I

stayed at the Hilton, and the second time I stayed at the Hampton.

If you need to know anything about either location, please let me

know.

Sis

> > >

> > > Hi all!

> > >

> > > Here is my story. For one year I have been dealing with

> > unexplained

> > > pain, numbness, and weakness in all my extremeties. I have

> > chronic

> > > fatigue, and have recently started experiencing very dry

eyes.

> I

> > > have been seeing many doctors and all my test turn out

normal.

> I

> > > even had one neurologist say that I needed to see a shrink. I

> > used

> > > to be a full time nursing student and worked part-time as a

> > nursing

> > > assistant. Now I have a handicap parking permit. I know this

> > isn't

> > > in my head. I am a busy mother of five. Now, I cannot even

> keep

> > up

> > > with any of them. I even have a speaking program just to type

> on

> > my

> > > computer without pain. I have been seeing a Kinesiologist and

> > with

> > > herbs and diet changes, I have seen only an increase in energy

> and

> > > some strength in my legs. I went to a family event and

couldn't

> > > even hold my cousin's new baby without pain in my shoulder. I

> > still

> > > have my implants, they have been in for 5 years. My husband

and

> I

> > > are in the process of finding out if my implants are the root

> > cause

> > > to my pain. And if so, a good doctor to take them out.

> > >

> > > It would be nice to hear from any of you.

> > >

> >

> > Opinions expressed are NOT meant to take the place of advice

given

> by licensed health care professionals. Consult your physician or

> licensed health care professional before commencing any medical

> treatment.

> >

> > " Do not let either the medical authorities or the politicians

> mislead you. Find out what the facts are, and make your own

> decisions about how to live a happy life and how to work for a

> better world. " - Linus ing, two-time Nobel Prize Winner (1954,

> Chemistry; 1963, Peace)

> >

> > See our photos website! Enter " implants " for access at this link:

> > http://.shutterfly.com/action/

> >

January 3, 2006

,

I'm so happy you are already making decisions! . . .

I had eye problems too . . . Something that helped me

get through was an ointment Lacralub (sp?) . .. It

comes in a tiny tube. You squeeze a line about 1/4

inch into your eye before bedtime. It will last all

night!

I just copied a message to the group I sent to Mrs.

Leonard with the FDA . . . It has her contact

numbers on it. Please take the time to call or write

her. . . You may find more personal satisfaction

talking to her, but if you write, it becomes a

permanent record!

I've been sending her messages (without

identification) from women who come to the group

desperate for help. . . I don't think the FDA has any

idea how bad it is!

We'll keep praying that you get through this smoothly

and can go back to work soon! . . . If you have a lot

of time, read through the archives. You'll see woman

after woman who has gotten their lives back after

being explanted!

Hugs and prayers,

Rogene

January 3, 2006

,

You've made an excellent choice for your explanting surgeon, so I

have every reason to believe that you are going to be well on your

way to healing very soon. I can completely identify with your

excitement about getting the implants out....I was definitely there

too when I was waiting for surgery. The day couldn't come fast

enough for me.

Just remember that healing from the immune system dysfunction is

going to take some time. One of the things I always want to caution

women about is not being too anxious about getting well fast. Often

it does not happen. Many times there can be what I call a

honeymoon period after the explant surgery, where you see a great

resolution of alot of symptoms and you feel pretty good. But about 6

weeks post explant, it is not uncommon for women to experience a

return of some of those symptoms, and even some new ones. I

experienced that. I was very anxious to heal and feel well again,

and I think I created alot of stress for myself because I wanted it

so bad. I was told by some other women (when I was on Ilena's list)

that since I had my saline implants for such a short time that my

healing would be pretty quick. NOT! It took me 4 years to really

get my health back to a great degree.

The last thing I want to do is discourage you...I truly believe you

can get better. I just don't want you to be too eager for that to

happen, and then be discouraged. Take time to rest, give yourself

alot of TLC, take some time to read up on detoxification and learn

some new things you can do at home to help healing, and have faith.

Good things will happen! You will get your nursing degree someday.

Congratulations on your upcoming explant! You are going to be in

great hands!

Patty

>

> I called Dr. Lu-Feng's office today and talked with .

She called me back later so my husband could ask questions. She

truely believes my symptoms are caused by my implants. She was

shocked by the severity of my symptoms. I am only 32 and shouldn't

be labled " handicapped " . She was hopeful that after an explant

surgery that I can get back to work and help my husband pay off all

my medical bills. We have been looking at about $1000. per month of

un-insured medical bills for the past year. Now, we are looking at

another $6,700-$1100 for the explant surgery. It is frustrating

that I have lost a year of my life from these things. To be honest,

in these five years I have loved my implants for the first 4. I

never regreted my decision to get them. However, this past year and

what I have lost so far (my job, and school) especially my dream of

finishing my Nursing degree, I have 5 years of regret now. I go to

the my family doctor tomorrow for help with my eye pain. I

> cannot sleep and I have to keep putting saline drops in a few

times per night. I am going to give him a mouthful. He could have

spotted this coming almost a year ago, when I first started having

my symptoms. He should have thought about it when I lost my ability

to climb stairs. Instead, he just kept " fishing " for everything

BUT! I scheduled my surgery with Dr. Feng for February 3. It will

be a 7 hour drive, maybe longer if my IC acts up. I am almost as

excited for this explant as I was for my implant surgery.

>

> Thanks for listening to my rambling.

>

January 4, 2006

-

I am so happy for you that you have your surgery scheduled already!

I agree with dr. Feng about your symptoms being due to the

implants. I also suffered dry eyes and that has gone away. MOre

importantly, I was developing lots of severe symptoms in a period of

weeks. As soon as I found out about this site I scheduled surgery

with Dr.Feng. Within a week or two of having my implants out, the

weird brain dysfunction, severe dizziness and drunk like feelings

left. Within that same time period I was all of a sudden able to

shop for the whole day! Before that I would just sit in the

dressing room waiting for my daughter to bring in clothes because my

heart beat so fast that I didn't want to stand up. I was skipping

hundreds of heartbeats a day also. That got better over a period of

months. My fibromyalgia symptoms even got alot better even though I

had fibromyalgia before I even got implants. I have done alot of

detoxing and cleansing and diet changing and also am on antibiotic

therapy. All of these things have impacted my health for the

better. But I truly believe that without getting explanted, I would

have seen little improvement. It is the biggest piece of the puzzle

to getting your health back. After explant, many if not most of us

have found that many cleansing and detoxing therapies have aided our

recovery. Best of luck to you

Hugs and best wishes

Kathy

-- In , Lamse

<wannabe_proverbs31@y...> wrote: