Guest guest Posted February 9, 2006 Report Share Posted February 9, 2006 Hello. I haven't been able to read messages and have no idea whats new, but did notice many new names. I just want to say welcome, and have hope! I am 8 months post-op after having implants for 11 years. I was nearly totally disabled one year ago. Now I have started my own dance company, am able to teach dance classes 4-6 times a week, and have a totally new life. This month I will bring in more income than I have brought in in a single month since I became ill 10 years ago. Its surreal, and I have to keep pinching myself! I'm so glad to see more women have found this group and will receive the information they need to get healthy again. You too can have amazing results if you listen to the sage advice on this board. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2006 Report Share Posted February 9, 2006 Hi , I'm so glad to hear from you, I've missed you! Also haven't seen Melinda or Jenna in a little while - if they're reading but not posting, I just wanted to say hello. Wondering about a, she had surgery last week, I think. Also, haven't seen anything from Audrey. I'm just mentioning who I haven't heard from in a while, but everyone on this site holds a special place in my heart. I'm happy to hear that your business is going well, and that you're feeling much better. I'm 3 months post op and am still not well, but I know it takes time, and I think I recall you noticed a major change at about 5 months post op, so I'm keeping that faith that I will be well again, too. Best wishes to you, Sis > > Hello. I haven't been able to read messages and have no idea whats > new, but did notice many new names. I just want to say welcome, and > have hope! I am 8 months post-op after having implants for 11 years. I > was nearly totally disabled one year ago. Now I have started my own > dance company, am able to teach dance classes 4-6 times a week, and > have a totally new life. This month I will bring in more income than I > have brought in in a single month since I became ill 10 years ago. Its > surreal, and I have to keep pinching myself! I'm so glad to see more > women have found this group and will receive the information they need > to get healthy again. You too can have amazing results if you listen > to the sage advice on this board. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2006 Report Share Posted February 9, 2006 that's wonderful news! I'm glad to hear from you again. Cherie > > Hello. I haven't been able to read messages and have no idea whats > new, but did notice many new names. I just want to say welcome, and > have hope! I am 8 months post-op after having implants for 11 years. I > was nearly totally disabled one year ago. Now I have started my own > dance company, am able to teach dance classes 4-6 times a week, and > have a totally new life. This month I will bring in more income than I > have brought in in a single month since I became ill 10 years ago. Its > surreal, and I have to keep pinching myself! I'm so glad to see more > women have found this group and will receive the information they need > to get healthy again. You too can have amazing results if you listen > to the sage advice on this board. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2006 Report Share Posted February 9, 2006 what do you attribute to getting well? medications? detox? what were your symptoms and how did you attribute them to your implants? Re: Hello new members that's wonderful news! I'm glad to hear from you again.Cherie>> Hello. I haven't been able to read messages and have no idea whats > new, but did notice many new names. I just want to say welcome, and > have hope! I am 8 months post-op after having implants for 11 years. I > was nearly totally disabled one year ago. Now I have started my own > dance company, am able to teach dance classes 4-6 times a week, and > have a totally new life. This month I will bring in more income than I > have brought in in a single month since I became ill 10 years ago. Its > surreal, and I have to keep pinching myself! I'm so glad to see more > women have found this group and will receive the information they need > to get healthy again. You too can have amazing results if you listen > to the sage advice on this board.> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2006 Report Share Posted February 10, 2006 I think the first thing I did to get better was to will myself to be healthy again. I practice self hypnosis, meditation, and guided imagery regularly. I'm too young, and I lost too much to feel this way anymore! I do not take any medications, I have MCS, but I do take supplemets and detox. I have switched to a mostly organic diet, and have started exercising regularly. I have only taken Olive leaf extract, Fungal, and Primal defense, and recently Pascalite, all to help with detoxing. I drink tons of water!! But the main thing that has helped me is the mental attitude. If you want to learn more on how to develop your own way of creating your health there are many books on the subject, but the movie " What the Bleep Do We Know " also explains it rather well. > > > > Hello. I haven't been able to read messages and have no idea whats > > new, but did notice many new names. I just want to say welcome, > and > > have hope! I am 8 months post-op after having implants for 11 > years. I > > was nearly totally disabled one year ago. Now I have started my > own > > dance company, am able to teach dance classes 4-6 times a week, > and > > have a totally new life. This month I will bring in more income > than I > > have brought in in a single month since I became ill 10 years ago. > Its > > surreal, and I have to keep pinching myself! I'm so glad to see > more > > women have found this group and will receive the information they > need > > to get healthy again. You too can have amazing results if you > listen > > to the sage advice on this board. > > > > > > > > > > > > > Opinions expressed are NOT meant to take the place of advice given by licensed health care professionals. Consult your physician or licensed health care professional before commencing any medical treatment. > > " Do not let either the medical authorities or the politicians mislead you. Find out what the facts are, and make your own decisions about how to live a happy life and how to work for a better world. " - Linus ing, two-time Nobel Prize Winner (1954, Chemistry; 1963, Peace) > > See our photos website! Enter " implants " for access at this link: > http://.shutterfly.com/action/<http://.shut terfly.com/action/> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2006 Report Share Posted February 10, 2006 what dr. did you go to, to oversee our detox? have you heard anything about Dr. Kolb and Dr. Hanagood? Re: Hello new members I think the first thing I did to get better was to will myself to be healthy again. I practice self hypnosis, meditation, and guided imagery regularly. I'm too young, and I lost too much to feel this way anymore!I do not take any medications, I have MCS, but I do take supplemets and detox. I have switched to a mostly organic diet, and have started exercising regularly. I have only taken Olive leaf extract, Fungal, and Primal defense, and recently Pascalite, all to help with detoxing. I drink tons of water!! But the main thing that has helped me is the mental attitude. If you want to learn more on how to develop your own way of creating your health there are many books on the subject, but the movie "What the Bleep Do We Know" also explains it rather well. > >> > Hello. I haven't been able to read messages and have no idea whats > > new, but did notice many new names. I just want to say welcome, > and > > have hope! I am 8 months post-op after having implants for 11 > years. I > > was nearly totally disabled one year ago. Now I have started my > own > > dance company, am able to teach dance classes 4-6 times a week, > and > > have a totally new life. This month I will bring in more income > than I > > have brought in in a single month since I became ill 10 years ago. > Its > > surreal, and I have to keep pinching myself! I'm so glad to see > more > > women have found this group and will receive the information they > need > > to get healthy again. You too can have amazing results if you > listen > > to the sage advice on this board.> > > > > >> > > > > > > Opinions expressed are NOT meant to take the place of advice given by licensed health care professionals. Consult your physician or licensed health care professional before commencing any medical treatment. > > "Do not let either the medical authorities or the politicians mislead you. Find out what the facts are, and make your own decisions about how to live a happy life and how to work for a better world." - Linus ing, two-time Nobel Prize Winner (1954, Chemistry; 1963, Peace)> > See our photos website! Enter "implants" for access at this link:> http://shutterfly.com/action/<http://.shutterfly.com/action/>> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2006 Report Share Posted February 10, 2006 Many of the women on this site use Dr. Kolb for explant. She provides her protocol on her website, and I think Dr. Hanagood is an MD in her practice. I contacted Dr. Kolb for help in detoxing (I didn't use her, I used Dr. Feng), and she recommended Dr. Hanagood, but I called the office and never heard back, and then I ended up going with Dr. Leu. I don't remember if Dr. Hanagood does phone consultations, there were two doctors that Dr. Kolb recommended in her practice and one didn't do phone consults, and the other didn't call me back. You might want to call the office and inquire - maybe you live close enough to where you can visit in person, or maybe one of the doctors would do a phone consult with you. Sis > > > > > > Hello. I haven't been able to read messages and have no idea > whats > > > new, but did notice many new names. I just want to say > welcome, > > and > > > have hope! I am 8 months post-op after having implants for 11 > > years. I > > > was nearly totally disabled one year ago. Now I have started > my > > own > > > dance company, am able to teach dance classes 4-6 times a > week, > > and > > > have a totally new life. This month I will bring in more > income > > than I > > > have brought in in a single month since I became ill 10 years > ago. > > Its > > > surreal, and I have to keep pinching myself! I'm so glad to > see > > more > > > women have found this group and will receive the information > they > > need > > > to get healthy again. You too can have amazing results if you > > listen > > > to the sage advice on this board. > > > > > > > > > > > > > > > > > > > > > > > Opinions expressed are NOT meant to take the place of advice > given by licensed health care professionals. Consult your physician > or licensed health care professional before commencing any medical > treatment. > > > > " Do not let either the medical authorities or the politicians > mislead you. Find out what the facts are, and make your own > decisions about how to live a happy life and how to work for a > better world. " - Linus ing, two-time Nobel Prize Winner (1954, > Chemistry; 1963, Peace) > > > > See our photos website! Enter " implants " for access at this link: > > > http://.shutterfly.com/action/<http://.shut terfly.com/action/><http://.shut<http://.sh ut/> > terfly.com/action/> > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2006 Report Share Posted February 10, 2006 I don't use doctors at all if I can help it! Detoxing is not something that has to be monitored by a professional... just listen to your body and obey it as you go through the process. If you become sick then stop what you are doing or at least slow down. Many women on this group have gone to Dr. Kolb and have loved her. I can't see spending the money that it would take to buy all of the supplements she reccomends when all you need to do is ask for advice on here and you can use little or no supplements. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2006 Report Share Posted February 10, 2006 , I have to disagree with you on this one. A lot of people never know they are toxic without testing from their doc. I felt absolutely fine and started a detox program last month. I shocked both my doc and myself with swollen glands and migraines for 10 days -- it's a 2-month detox program. I have taken liver supplements for three years so neither of us expected any reaction. How I felt gave absolutely no indication of my toxic state, I felt great. A doctor's assistance can only help while detoxing. There are different types of detoxing, liver, gallbladder, pathways. Personally, I wouldn't attempt it without guidance. I see an ND for all of my healthcare needs. Without his help, I would never know about the genetic differences or absorption problems my body has. No amount of supplementation on my own would have ever been enough to make a difference. I know I am different that most, but most everyone on this list is as well. I think the reason most women here don't improve with supplementation on their own is that they aren't taking the correct supplements for their bodies. Kenda > I don't use doctors at all if I can help it! Detoxing is not something > that has to be monitored by a professional... just listen to your body > and obey it as you go through the process. If you become sick then > stop what you are doing or at least slow down. > > Many women on this group have gone to Dr. Kolb and have loved her. I > can't see spending the money that it would take to buy all of the > supplements she reccomends when all you need to do is ask for advice > on here and you can use little or no supplements. > > > > > > > > Opinions expressed are NOT meant to take the place of advice given by licensed > health care professionals. Consult your physician or licensed health care > professional before commencing any medical treatment. > > " Do not let either the medical authorities or the politicians mislead you. > Find out what the facts are, and make your own decisions about how to live a > happy life and how to work for a better world. " - Linus ing, two-time > Nobel Prize Winner (1954, Chemistry; 1963, Peace) > > See our photos website! Enter " implants " for access at this link: > http://.shutterfly.com/action/ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2006 Report Share Posted February 10, 2006 kenda I appreciated your comment and am starting the whole detox process and have no idea where to begin or how to test. who do you go to and what do you recommend? Re: Re: Hello new members , I have to disagree with you on this one. A lot of people neverknow they are toxic without testing from their doc. I felt absolutely fineand started a detox program last month. I shocked both my doc and myselfwith swollen glands and migraines for 10 days -- it's a 2-month detoxprogram. I have taken liver supplements for three years so neither of usexpected any reaction. How I felt gave absolutely no indication of my toxicstate, I felt great. A doctor's assistance can only help while detoxing.There are different types of detoxing, liver, gallbladder, pathways.Personally, I wouldn't attempt it without guidance.I see an ND for all of my healthcare needs. Without his help, I wouldnever know about the genetic differences or absorption problems my body has.No amount of supplementation on my own would have ever been enough to make adifference. I know I am different that most, but most everyone on this listis as well. I think the reason most women here don't improve withsupplementation on their own is that they aren't taking the correctsupplements for their bodies.Kenda> I don't use doctors at all if I can help it! Detoxing is not something> that has to be monitored by a professional... just listen to your body> and obey it as you go through the process. If you become sick then> stop what you are doing or at least slow down.> > Many women on this group have gone to Dr. Kolb and have loved her. I> can't see spending the money that it would take to buy all of the> supplements she reccomends when all you need to do is ask for advice> on here and you can use little or no supplements.> > > > > > > > Opinions expressed are NOT meant to take the place of advice given by licensed> health care professionals. Consult your physician or licensed health care> professional before commencing any medical treatment.> > "Do not let either the medical authorities or the politicians mislead you.> Find out what the facts are, and make your own decisions about how to live a> happy life and how to work for a better world." - Linus ing, two-time> Nobel Prize Winner (1954, Chemistry; 1963, Peace)> > See our photos website! Enter "implants" for access at this link:> http://shutterfly.com/action/> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2006 Report Share Posted February 10, 2006 I see Leu in Tulsa, OK. A few women on this list also treat with him. He does take phone patients, if you aren't able to travel to Tulsa. I have been treating with him for 3 or 4 years and have a tremendous amount of respect for him and feel I owe him my health. I was never implanted, this list stopped me dead in my tracks a year ago, but have similar health problems to those of you who have been. A good liver supplement is a place to start but it is impossible to know what vitamin and mineral deficiencies you may have and which areas you need to detox. I can't stress enough the importance of physician guidance if you truly want your health back to the greatest extent possible. I was sick for many years unnecessarily because I was trying to self treat, it just doesn't work for most of us. Kenda > kenda > I appreciated your comment and am starting the whole detox process and have no > idea where to begin or how to test. who do you go to and what do you > recommend? > Re: Re: Hello new members > > > , I have to disagree with you on this one. A lot of people never > know they are toxic without testing from their doc. I felt absolutely fine > and started a detox program last month. I shocked both my doc and myself > with swollen glands and migraines for 10 days -- it's a 2-month detox > program. I have taken liver supplements for three years so neither of us > expected any reaction. How I felt gave absolutely no indication of my toxic > state, I felt great. A doctor's assistance can only help while detoxing. > There are different types of detoxing, liver, gallbladder, pathways. > Personally, I wouldn't attempt it without guidance. > > I see an ND for all of my healthcare needs. Without his help, I would > never know about the genetic differences or absorption problems my body has. > No amount of supplementation on my own would have ever been enough to make a > difference. I know I am different that most, but most everyone on this list > is as well. I think the reason most women here don't improve with > supplementation on their own is that they aren't taking the correct > supplements for their bodies. > > Kenda > >> I don't use doctors at all if I can help it! Detoxing is not something >> that has to be monitored by a professional... just listen to your body >> and obey it as you go through the process. If you become sick then >> stop what you are doing or at least slow down. >> >> Many women on this group have gone to Dr. Kolb and have loved her. I >> can't see spending the money that it would take to buy all of the >> supplements she reccomends when all you need to do is ask for advice >> on here and you can use little or no supplements. >> >> >> >> >> >> >> >> Opinions expressed are NOT meant to take the place of advice given by >> licensed >> health care professionals. Consult your physician or licensed health care >> professional before commencing any medical treatment. >> >> " Do not let either the medical authorities or the politicians mislead you. >> Find out what the facts are, and make your own decisions about how to live a >> happy life and how to work for a better world. " - Linus ing, two-time >> Nobel Prize Winner (1954, Chemistry; 1963, Peace) >> >> See our photos website! Enter " implants " for access at this link: >> http://.shutterfly.com/action/<http://.shutterfly.c >> om/action/> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2006 Report Share Posted February 10, 2006 Yeah, I think that's my problem, too - I really want to see what's going on in my body, because I have no idea what I need. I have to stress to Dr. Leu that my financial resources are low, so I have to keep it as simple as possible, plus I'm not great at taking tons of supplements. I'm worried about trying anything, though, so instead I'm trying nothing, and since I've got messed up hormones as well (and certain things I take mess up my hormones even worse) then I'm going in circles. I don't like doctors, especially after this implant episode, but in my case I think I need help. If I could take things without it causing a new problem, I'd do it, but when I experiment it seems I stir up something else. Sis > > kenda > I appreciated your comment and am starting the whole detox process and have no idea where to begin or how to test. who do you go to and what do you recommend? > Re: Re: Hello new members > > > , I have to disagree with you on this one. A lot of people never > know they are toxic without testing from their doc. I felt absolutely fine > and started a detox program last month. I shocked both my doc and myself > with swollen glands and migraines for 10 days -- it's a 2-month detox > program. I have taken liver supplements for three years so neither of us > expected any reaction. How I felt gave absolutely no indication of my toxic > state, I felt great. A doctor's assistance can only help while detoxing. > There are different types of detoxing, liver, gallbladder, pathways. > Personally, I wouldn't attempt it without guidance. > > I see an ND for all of my healthcare needs. Without his help, I would > never know about the genetic differences or absorption problems my body has. > No amount of supplementation on my own would have ever been enough to make a > difference. I know I am different that most, but most everyone on this list > is as well. I think the reason most women here don't improve with > supplementation on their own is that they aren't taking the correct > supplements for their bodies. > > Kenda > > > I don't use doctors at all if I can help it! Detoxing is not something > > that has to be monitored by a professional... just listen to your body > > and obey it as you go through the process. If you become sick then > > stop what you are doing or at least slow down. > > > > Many women on this group have gone to Dr. Kolb and have loved her. I > > can't see spending the money that it would take to buy all of the > > supplements she reccomends when all you need to do is ask for advice > > on here and you can use little or no supplements. > > > > > > > > > > > > > > > > Opinions expressed are NOT meant to take the place of advice given by licensed > > health care professionals. Consult your physician or licensed health care > > professional before commencing any medical treatment. > > > > " Do not let either the medical authorities or the politicians mislead you. > > Find out what the facts are, and make your own decisions about how to live a > > happy life and how to work for a better world. " - Linus ing, two-time > > Nobel Prize Winner (1954, Chemistry; 1963, Peace) > > > > See our photos website! Enter " implants " for access at this link: > > http://.shutterfly.com/action/<http://.shut terfly.com/action/> > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2006 Report Share Posted February 10, 2006 I think what we have to allow for is the fact that most women are so financially strapped through all of this implant disaster that there is no money for going to doctors and getting scads of tests. You can go deeply into debt with alternative doctors and not see immediate results for all the bills laying on the table. It can be emotionally as well as financially devastating to have expectations that are not fulfilled with all of the money being spent. That is why I think our group is so helpful. We share ideas of what can be done from home and for doing things that are lifestyle changes that can be implemented without alot of burden. Yes, in a perfect world, it would be nice if all of this was covered by insurance and it was cheap and we had an endless supply of money available from the manufacturers to fix what ails us. But that's not the case. For many women going to doctors and having tests done takes money away from a mortgage payment or food on the table. I'm all for having tests to help us, don't get me wrong. But for those who are disability and can't afford the best in health care, we do provide options for detoxing that can be done cheaply at home and are very effective. I do appreciate your input Kenda. I'd love to have a bunch of tests right now! Patty --- In , Kenda Skaggs <skaggs@...> wrote: > > , I have to disagree with you on this one. A lot of people never > know they are toxic without testing from their doc. I felt absolutely fine > and started a detox program last month. I shocked both my doc and myself > with swollen glands and migraines for 10 days -- it's a 2-month detox > program. I have taken liver supplements for three years so neither of us > expected any reaction. How I felt gave absolutely no indication of my toxic > state, I felt great. A doctor's assistance can only help while detoxing. > There are different types of detoxing, liver, gallbladder, pathways. > Personally, I wouldn't attempt it without guidance. > > I see an ND for all of my healthcare needs. Without his help, I would > never know about the genetic differences or absorption problems my body has. > No amount of supplementation on my own would have ever been enough to make a > difference. I know I am different that most, but most everyone on this list > is as well. I think the reason most women here don't improve with > supplementation on their own is that they aren't taking the correct > supplements for their bodies. > > Kenda > > > I don't use doctors at all if I can help it! Detoxing is not something > > that has to be monitored by a professional... just listen to your body > > and obey it as you go through the process. If you become sick then > > stop what you are doing or at least slow down. > > > > Many women on this group have gone to Dr. Kolb and have loved her. I > > can't see spending the money that it would take to buy all of the > > supplements she reccomends when all you need to do is ask for advice > > on here and you can use little or no supplements. > > > > > > > > > > > > > > > > Opinions expressed are NOT meant to take the place of advice given by licensed > > health care professionals. Consult your physician or licensed health care > > professional before commencing any medical treatment. > > > > " Do not let either the medical authorities or the politicians mislead you. > > Find out what the facts are, and make your own decisions about how to live a > > happy life and how to work for a better world. " - Linus ing, two-time > > Nobel Prize Winner (1954, Chemistry; 1963, Peace) > > > > See our photos website! Enter " implants " for access at this link: > > http://.shutterfly.com/action/ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2006 Report Share Posted February 10, 2006 Hi Patty, I understand your point but I wasn't speaking to the financial output at all, I realize not everyone can afford to spend a fortune on supplements or tests. I think it is important to at least have a baseline that will dictate what will help you. Too many women spend money unnecessarily on supplements that will never help them because the supplements aren't correct for their particular needs. We all stress the importance of detoxing but so many women don't know where to start and honestly, what works for you or me, may not work for them. Ideally, a consult with an ND they trust, should be done if at all possible, to get headed in the right direction. Kenda > I think what we have to allow for is the fact that most women are so > financially strapped through all of this implant disaster that there > is no money for going to doctors and getting scads of tests. You > can go deeply into debt with alternative doctors and not see > immediate results for all the bills laying on the table. It can be > emotionally as well as financially devastating to have expectations > that are not fulfilled with all of the money being spent. > > That is why I think our group is so helpful. We share ideas of what > can be done from home and for doing things that are lifestyle > changes that can be implemented without alot of burden. > > Yes, in a perfect world, it would be nice if all of this was covered > by insurance and it was cheap and we had an endless supply of money > available from the manufacturers to fix what ails us. But that's not > the case. For many women going to doctors and having tests done > takes money away from a mortgage payment or food on the table. > > I'm all for having tests to help us, don't get me wrong. But for > those who are disability and can't afford the best in health care, > we do provide options for detoxing that can be done cheaply at home > and are very effective. > > I do appreciate your input Kenda. I'd love to have a bunch of tests > right now! > Patty > > >> >> , I have to disagree with you on this one. A lot of people > never >> know they are toxic without testing from their doc. I felt > absolutely fine >> and started a detox program last month. I shocked both my doc and > myself >> with swollen glands and migraines for 10 days -- it's a 2-month > detox >> program. I have taken liver supplements for three years so > neither of us >> expected any reaction. How I felt gave absolutely no indication > of my toxic >> state, I felt great. A doctor's assistance can only help while > detoxing. >> There are different types of detoxing, liver, gallbladder, > pathways. >> Personally, I wouldn't attempt it without guidance. >> >> I see an ND for all of my healthcare needs. Without his help, I > would >> never know about the genetic differences or absorption problems my > body has. >> No amount of supplementation on my own would have ever been enough > to make a >> difference. I know I am different that most, but most everyone on > this list >> is as well. I think the reason most women here don't improve with >> supplementation on their own is that they aren't taking the correct >> supplements for their bodies. >> >> Kenda >> >>> I don't use doctors at all if I can help it! Detoxing is not > something >>> that has to be monitored by a professional... just listen to > your body >>> and obey it as you go through the process. If you become sick > then >>> stop what you are doing or at least slow down. >>> >>> Many women on this group have gone to Dr. Kolb and have loved > her. I >>> can't see spending the money that it would take to buy all of the >>> supplements she reccomends when all you need to do is ask for > advice >>> on here and you can use little or no supplements. >>> >>> >>> >>> >>> >>> >>> >>> Opinions expressed are NOT meant to take the place of advice > given by licensed >>> health care professionals. Consult your physician or licensed > health care >>> professional before commencing any medical treatment. >>> >>> " Do not let either the medical authorities or the politicians > mislead you. >>> Find out what the facts are, and make your own decisions about > how to live a >>> happy life and how to work for a better world. " - Linus ing, > two-time >>> Nobel Prize Winner (1954, Chemistry; 1963, Peace) >>> >>> See our photos website! Enter " implants " for access at this link: >>> http://.shutterfly.com/action/ >>> >>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2006 Report Share Posted February 10, 2006 What would a baseline involve? I had a bunch of tests done early on. I think some of them helped, but there were quite a few that I think were a waste of money. And the supplements I took as a result didn't do much either! Patty --- In , Kenda Skaggs <skaggs@...> wrote: > > Hi Patty, > > I understand your point but I wasn't speaking to the financial output at > all, I realize not everyone can afford to spend a fortune on supplements or > tests. I think it is important to at least have a baseline that will > dictate what will help you. Too many women spend money unnecessarily on > supplements that will never help them because the supplements aren't correct > for their particular needs. We all stress the importance of detoxing but so > many women don't know where to start and honestly, what works for you or me, > may not work for them. Ideally, a consult with an ND they trust, should be > done if at all possible, to get headed in the right direction. > > Kenda > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2006 Report Share Posted February 10, 2006 By the way, I agree with you about perhaps having some initial tests to see if there is anything glaring or outstanding in terms of being abnormal. There's a heck of alot of tests to choose from though. Heavy metals, minerals, food allergies (there's a boatload of tests there), and so on. I am sure the alternative doctors know probably where to start, but it can still get into $$$. I know with a regular MD, they would do just basic blood tests. I have to tell you about my experience with my first and only rheumatologist. It almost makes me laugh, if it weren't so maddening how ignorant these doctors can be about implants. My first tests came out showing abnormal rheumatoid factor...it was elevated, showing an autoimmune response of some kind in my body. I also had abnormal cells...(macrocytosis was the name.) So, obviously something was wrong. He also did tests for the complements...with the C3 complement ending up being low. (Usually associated with lupus.) Do you know what he said about those results? " LAB ERROR! " I couldn't believe my ears. He refused to even acknowledge that something could really be wrong with me! If that was lab error, then what good is the test? Then I had a brain MRI that he told me came out normal. But when I got a copy of the report myself, that is not what it said! I figured I'd quit wasting my time with these doctors, and quit wasting my money too. Hopefully these naturopathic tests will be more valuable. I agree, it would be nice to know all the answers through tests. I am not so sure they give a good return for the money though. I can honestly say I am thankful that I didn't run up huge bills chasing after some pieces of paper. I got better anyway. Patty > > > > Hi Patty, > > > > I understand your point but I wasn't speaking to the financial > output at > > all, I realize not everyone can afford to spend a fortune on > supplements or > > tests. I think it is important to at least have a baseline that > will > > dictate what will help you. Too many women spend money > unnecessarily on > > supplements that will never help them because the supplements > aren't correct > > for their particular needs. We all stress the importance of > detoxing but so > > many women don't know where to start and honestly, what works for > you or me, > > may not work for them. Ideally, a consult with an ND they trust, > should be > > done if at all possible, to get headed in the right direction. > > > > Kenda > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2006 Report Share Posted February 10, 2006 Hi Patty, What a nightmare! Yes, Patty, it can get expensive, that's why one needs to explain to their ND that have limited funds and to get the most bang for the buck. You may not get all of the answers you are looking for but there's always time and hopefully more money as time goes on. I certainly didn't have all of my labs done at one time. You are very lucky to have gotten better on your own, I sure wasn't able to. Kenda > By the way, I agree with you about perhaps having some initial tests > to see if there is anything glaring or outstanding in terms of being > abnormal. There's a heck of alot of tests to choose from though. > Heavy metals, minerals, food allergies (there's a boatload of tests > there), and so on. I am sure the alternative doctors know probably > where to start, but it can still get into $$$. > > I know with a regular MD, they would do just basic blood tests. > > I have to tell you about my experience with my first and only > rheumatologist. It almost makes me laugh, if it weren't so maddening > how ignorant these doctors can be about implants. > > My first tests came out showing abnormal rheumatoid factor...it was > elevated, showing an autoimmune response of some kind in my body. I > also had abnormal cells...(macrocytosis was the name.) So, obviously > something was wrong. He also did tests for the complements...with > the C3 complement ending up being low. (Usually associated with > lupus.) > > Do you know what he said about those results? > > " LAB ERROR! " > > I couldn't believe my ears. He refused to even acknowledge that > something could really be wrong with me! If that was lab error, > then what good is the test? > > Then I had a brain MRI that he told me came out normal. But when I > got a copy of the report myself, that is not what it said! > > I figured I'd quit wasting my time with these doctors, and quit > wasting my money too. > > Hopefully these naturopathic tests will be more valuable. I agree, > it would be nice to know all the answers through tests. I am not so > sure they give a good return for the money though. I can honestly > say I am thankful that I didn't run up huge bills chasing after some > pieces of paper. I got better anyway. > > Patty > > > > >>> >>> Hi Patty, >>> >>> I understand your point but I wasn't speaking to the financial >> output at >>> all, I realize not everyone can afford to spend a fortune on >> supplements or >>> tests. I think it is important to at least have a baseline that >> will >>> dictate what will help you. Too many women spend money >> unnecessarily on >>> supplements that will never help them because the supplements >> aren't correct >>> for their particular needs. We all stress the importance of >> detoxing but so >>> many women don't know where to start and honestly, what works > for >> you or me, >>> may not work for them. Ideally, a consult with an ND they > trust, >> should be >>> done if at all possible, to get headed in the right direction. >>> >>> Kenda >>> >> > > > > > > > Opinions expressed are NOT meant to take the place of advice given by licensed > health care professionals. Consult your physician or licensed health care > professional before commencing any medical treatment. > > " Do not let either the medical authorities or the politicians mislead you. > Find out what the facts are, and make your own decisions about how to live a > happy life and how to work for a better world. " - Linus ing, two-time > Nobel Prize Winner (1954, Chemistry; 1963, Peace) > > See our photos website! Enter " implants " for access at this link: > http://.shutterfly.com/action/ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2006 Report Share Posted February 10, 2006 That's a good question and would probably depend on the doctor, the next time I see Dr. Leu, I'll ask him his opinion. I'm sure he has certain tests he likes to order routinely. Kenda > What would a baseline involve? I had a bunch of tests done early > on. I think some of them helped, but there were quite a few that I > think were a waste of money. And the supplements I took as a result > didn't do much either! > Patty > > >> >> Hi Patty, >> >> I understand your point but I wasn't speaking to the financial > output at >> all, I realize not everyone can afford to spend a fortune on > supplements or >> tests. I think it is important to at least have a baseline that > will >> dictate what will help you. Too many women spend money > unnecessarily on >> supplements that will never help them because the supplements > aren't correct >> for their particular needs. We all stress the importance of > detoxing but so >> many women don't know where to start and honestly, what works for > you or me, >> may not work for them. Ideally, a consult with an ND they trust, > should be >> done if at all possible, to get headed in the right direction. >> >> Kenda >> > > > > > > > > Opinions expressed are NOT meant to take the place of advice given by licensed > health care professionals. Consult your physician or licensed health care > professional before commencing any medical treatment. > > " Do not let either the medical authorities or the politicians mislead you. > Find out what the facts are, and make your own decisions about how to live a > happy life and how to work for a better world. " - Linus ing, two-time > Nobel Prize Winner (1954, Chemistry; 1963, Peace) > > See our photos website! Enter " implants " for access at this link: > http://.shutterfly.com/action/ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2008 Report Share Posted May 18, 2008 Hello everyone, I am a 51-yr-old lady from Australia who was diagnosed with FMS (finally) 12 yrs ago. I saw many doctors, physical therapists, etc before being diagnosed by one of the physical therapists (we call them physiotherapists in Aus). In 1996 I was suffering from severe chronic pain, depression and anxiety disorder. I had some wonderful practitioners who took care of me but I still had to resign from my job and take 12 months off to get better. I was (and still am) a single mum at the time with a 9 yr old daughter. Over the last 12 yrs I have NOT relied wholly and solely on medical practitioners to make me better, but have done my own research and tried different treatments. I can offer this advice - the best treatment for FMS is to learn to manage your stress by relaxation techniques (I still do a relaxation exercise every night before going to sleep). 's book "Instant Calm" helped. Try to make your home a stress-free environment by using essential oils (lavender is really great for relaxation), oil burners and some nice relaxing music. Deep breathing really helps when you feel anxious. Learn to recognise the symptoms of stress and anxiety, and do deep breathing exercises to help control these. If you still find this difficult see a psychologist who specialises in relaxation techniques. Anti-depressants do help, especially with sleep and also assist in chronic pain management. I believe that research has shown the best type is amytriptiline which affects the serotonin uptake in the brain. Anti-inflammatories help when you have acute pain but I don't think should be taken for long periods as they have side effects. I only take Paracetamol for pain relief and don't really like taking stronger pain killers unless absolutely necessary. Massage is very beneficial (soft tissue) but only offers short-term relief. Acupuncture is also very beneficial and offers longer term relief. Swimming in a heated pool also helps a lot. I have seen naturopaths who have recommended a variety of supplements, but have found the following to be most beneficial through trial and error: 1) Blackmores Women's Vitality Multi-vitamins 2) Magnesium (helps with muscle cramps) 3) Activive (this is only available in the US and the website is http://www.micronutra.com/activive.html . I have been taking this supplement for several months now and it has been by far the most beneficial of ANY OTHER. I have had significant decrease in chronic and acute pain and increase in energy and concentration. I am currently working full-time and manage a medical practice. I find I can do this as long as a take care of myself. Unfortunately, I still am prone to catching viruses more than other people seem to, and this does get me down. People who live with FMS sufferers have to put up with a lot, my daughter gets depressed when she sees me tired and depressed and in pain. Because we don't look sick people don't realise how debilitating this disease is. Reading your emails has made me realise that my FMS isn't as bad as I think. Many of you have multiple health problems, which you have to contend with as well as the FMS. I do sympathise with you all and I hope some of my advice can help. Elsa From the Land Down Under From: Dominie Bush <dombush@...>Subject: Hello new membersdominie Date: Friday, May 16, 2008, 4:58 AM Can you tell us a little about your FMS/CFIDS/ME experience. When were you diagnosed? What is your worst symptom? What have you found to be helpful so far? Do you have any questions for the group? - Dom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2008 Report Share Posted May 19, 2008 Welcome Elsa; Wow everything you do amazes me. Our own Dom believes in essential oils too and has a great newsletter e-mail her and you can be put on her mailing list. I only take 2 meds for my fibro gabapention 300 milligrams 3-4 times a day.I am slowly weaning myself down to twice a day then hopefully only as needed. I am on elavil for sleep i get interrupted by alpha when I go into delta sleep too. I wake up some days so exhausted too.I use ear plugs will get an eye mask next. Have very senstiove hearing too. But yes need to get some oils a diffuser too. But will try some of your suggestions too stretching too.lately more good days then bad day's. still need to learn not to over do on my good day's. Heidi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2008 Report Share Posted May 19, 2008 Thanks Heidi, Definitely give some of the alternative treatments a go, they really do help. From: heidi <heidilhlokey@...>Subject: Re: Hello new membersdominie Date: Monday, May 19, 2008, 3:49 PM Welcome Elsa;Wow everything you do amazes me. Our own Dom believes in essential oils too and has a great newsletter e-mail her and you can be put on her mailing list. I only take 2 meds for my fibro gabapention 300 milligrams 3-4 times a day.I am slowly weaning myself down to twice a day then hopefully only as needed. I am on elavil for sleep i get interrupted by alpha when I go into delta sleep too. I wake up some days so exhausted too.I use ear plugs will get an eye mask next. Have very senstiove hearing too. But yes need to get some oils a diffuser too. But will try some of your suggestions too stretching too.lately more good days then bad day's. still need to learn not to over do on my good day's. Heidi Quote Link to comment Share on other sites More sharing options...
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