Re: possible explant on march 20th...scared, full of questions........

[Guest guest]

Kathie,

I've been wondering about you! . .. I had planned to

be in Mesa by now, and had hoped to see you! . . . I

was diagnosed with breast cancer this week. So, I'm

sticking around for tests and further directions.

I'd suggest gathering all the information you can

about the necessity for removing ALL the capsule. .

..Even some docs who don't think it's necessary with

salines will remove all when they are silicone.

It sounds like you're stuck with this doctor . . . As

I see it, the thing to do is to educate her. The best

surgeons can get all the capsule out. . . You can get

much, much better even with some capsule left in, BUT,

your chances of getting well are much greater if they

are completely removed. If you'll search for

information by Dr. Blais in Canada, you'll have what

you need.

As for using prostheses, two suggestions. . . One is

to fashion your own bra with fiberfill held in place

by a fabric panel. . . Or, put the silicone prostheses

in a fabric pouch. Just don't put it next to your

skin.

I'm so glad you have an end in sight! . . . The time

will pass sooner than you realize. You should be ready

to go back to work by the time break is over! Great

timing!

In the meantime, pay close attention to eating a

healthy diet, drinking plenty of pure, non-chlorinated

water, getting rest and avoiding stress and anger to

the extent possible.

One reason women sometimes want their implants is so

the implant (and the capsule) can be sent to Dr. Blais

in Canada. He can analyze them and tell you if there

were any defects in the implant and which organisms

are in your implants and capsules. If you are

considering any legal action, the implants must be

sent directly to Dr. Blais . . . not going through

your hands.

Do you know if they removed any muscle when you had

your mastectomy?

Wouldn't it be nice if these possiblities were part

of the " Informed Consent " given to you before surgery?

Hugs and prayers,

Rogene

[Guest guest]

Rogene, Do you have Dr. Blais' contact information? I was wondering what to do with my implants after my surgery. I may want to send them to Dr. Blais' for evaluaiton. Rogene S <saxony01@...> wrote: Kathie,I've been wondering about you! . .. I had planned tobe in Mesa by now, and had hoped to see you! . . . Iwas diagnosed with breast cancer this week. So, I'msticking around for tests and further directions.I'd suggest gathering all the information you canabout the necessity for removing ALL the capsule. ..Even some docs who don't think it's necessary withsalines will remove all when they are silicone.It sounds like you're stuck with this doctor . . . AsI see it, the thing to do is to educate her. The

bestsurgeons can get all the capsule out. . . You can getmuch, much better even with some capsule left in, BUT,your chances of getting well are much greater if theyare completely removed. If you'll search forinformation by Dr. Blais in Canada, you'll have whatyou need.As for using prostheses, two suggestions. . . One isto fashion your own bra with fiberfill held in placeby a fabric panel. . . Or, put the silicone prosthesesin a fabric pouch. Just don't put it next to yourskin.I'm so glad you have an end in sight! . . . The timewill pass sooner than you realize. You should be readyto go back to work by the time break is over! Greattiming!In the meantime, pay close attention to eating ahealthy diet, drinking plenty of pure, non-chlorinatedwater, getting rest and avoiding stress and anger tothe extent possible.One reason women sometimes want their implants is sothe implant (and the

capsule) can be sent to Dr. Blaisin Canada. He can analyze them and tell you if therewere any defects in the implant and which organismsare in your implants and capsules. If you areconsidering any legal action, the implants must besent directly to Dr. Blais . . . not going throughyour hands. Do you know if they removed any muscle when you hadyour mastectomy? Wouldn't it be nice if these possiblities were partof the "Informed Consent" given to you before surgery?Hugs and prayers,Rogene

What are the most popular cars? Find out at Autos

[Guest guest]

oh no, rogene!!!!!!! i am so sorry for yur diagnosis!!!!! you are in

my prayers......i hope you will let us all know how/what is going

on...i have walked the breast cancer road, if i can help in ANY way,

let me know.......

blessings, prayers,

kathie

>

> Kathie,

>

> I've been wondering about you! . .. I had planned to

> be in Mesa by now, and had hoped to see you! . . . I

> was diagnosed with breast cancer this week. So, I'm

> sticking around for tests and further directions.

>

> I'd suggest gathering all the information you can

> about the necessity for removing ALL the capsule. .

> .Even some docs who don't think it's necessary with

> salines will remove all when they are silicone.

>

> It sounds like you're stuck with this doctor . . . As

> I see it, the thing to do is to educate her. The best

> surgeons can get all the capsule out. . . You can get

> much, much better even with some capsule left in, BUT,

> your chances of getting well are much greater if they

> are completely removed. If you'll search for

> information by Dr. Blais in Canada, you'll have what

> you need.

>

> As for using prostheses, two suggestions. . . One is

> to fashion your own bra with fiberfill held in place

> by a fabric panel. . . Or, put the silicone prostheses

> in a fabric pouch. Just don't put it next to your

> skin.

>

> I'm so glad you have an end in sight! . . . The time

> will pass sooner than you realize. You should be ready

> to go back to work by the time break is over! Great

> timing!

>

> In the meantime, pay close attention to eating a

> healthy diet, drinking plenty of pure, non-chlorinated

> water, getting rest and avoiding stress and anger to

> the extent possible.

>

> One reason women sometimes want their implants is so

> the implant (and the capsule) can be sent to Dr. Blais

> in Canada. He can analyze them and tell you if there

> were any defects in the implant and which organisms

> are in your implants and capsules. If you are

> considering any legal action, the implants must be

> sent directly to Dr. Blais . . . not going through

> your hands.

>

> Do you know if they removed any muscle when you had

> your mastectomy?

>

> Wouldn't it be nice if these possiblities were part

> of the " Informed Consent " given to you before surgery?

>

> Hugs and prayers,

>

> Rogene

>

[Guest guest]

Hi Kathie,

I just posted a message and I am dealing with a lot of the same

questions and also I am scared. Your PS appointment sounds a lot

like my appointment. Everything from having a hard time finding a

PS to the comment about the chest wall and doing the best to remove

the tissue. I too got the totally flat comment and the PS even

suggested to put in new implants. Several times the PS said you do

realize you will be a small droopy A. What part of take them OUT

didn't he get!! I too am scared that my symptoms will not go away.

I hear what you are saying and my thoughts are with you. I hope you

can find some comfort in knowing that you aren't alone.

Hugs, MK

--- In , " kathie " <Kathie.Larsyn@r...>

wrote:

>

> out of the 56 PSs, the one who would see me was nice, though not

> really good at answering questions/dialoging.....she immediately

> offered to take them out, saying she OCCASIONALLY sees a

> reconstruction patient who " never adjusts " to implants....she

can't

> guarantee that explanting will solve my pain/nerve damage issues,

but

> she feels it is worth a try......she then went on and on about how

i

> will be " totally flat " ....as though that may be a reason to not do

> this, in spite of two years of pain.....anyway, when i said " en

bloc "

> she said, well, it is different with reconstruction patients, that

> she will take out the entire implants, give them to me (she

offered,

> but what in the heck should i do with them? i don't know if i

want

> them!).........then she said she will take out as much scar tissue

as

> she can, but the implants (silicone, remember) are actually under

my

> chest wall, sitting right on my ribs, (no wonder they hurt!) and

so

> she doesn't want to damage anything anymore than it already is!

> sooooo, i am waiting to hear that the surgery is approved through

> aetna......and that the date is set for my first day of spring

> break..........i am scared, though......she ran through all the

> possible complications, yadda yadda.........i am hoping this IS

the

> right choice, only cause, what if my depression gets worse when i

> have no shape at all????? i guess i'll figure out some sort of

> prostectic (sp?) solution.....but did you know that those are

often

> made of silicone, too???? so why would i put it against my skin,

> which absorbs everything????????????? sigh.........any info,

> support, whatever, would help........i know i haven't been around,

i

> have been really sick, lots of pain that i can't drug myself out

> of........hope all is well with all of you!

>

> blessings,

>

> kathie

>

[Guest guest]

, so happy to hear that you had a successful explant, and that

the nerve pain went away. That is awesome!! I really love being

flat again, too, I hated having fake boobs!! After I had the

implant surgery, I thought " this is the most barberic thing in the

world " .

Sis

out of the 56 PSs, the one

who would see me was nice, though not

> really good at answering questions/dialoging.....she immediately

> offered to take them out, saying she OCCASIONALLY sees a

> reconstruction patient who " never adjusts " to implants....she

can't

> guarantee that explanting will solve my pain/nerve damage issues,

but

> she feels it is worth a try......she then went on and on about how

i

> will be " totally flat " ....as though that may be a reason to not do

> this, in spite of two years of pain.....anyway, when i said " en

bloc "

> she said, well, it is different with reconstruction patients, that

> she will take out the entire implants, give them to me (she

offered,

> but what in the heck should i do with them? i don't know if i

want

> them!).........then she said she will take out as much scar tissue

as

> she can, but the implants (silicone, remember) are actually under

my

> chest wall, sitting right on my ribs, (no wonder they hurt!) and

so

> she doesn't want to damage anything anymore than it already is!

> sooooo, i am waiting to hear that the surgery is approved through

> aetna......and that the date is set for my first day of spring

> break..........i am scared, though......she ran through all the

> possible complications, yadda yadda.........i am hoping this IS

the

> right choice, only cause, what if my depression gets worse when i

> have no shape at all????? i guess i'll figure out some sort of

> prostectic (sp?) solution.....but did you know that those are

often

> made of silicone, too???? so why would i put it against my skin,

> which absorbs everything????????????? sigh.........any info,

> support, whatever, would help........i know i haven't been around,

i

> have been really sick, lots of pain that i can't drug myself out

> of........hope all is well with all of you!

>

> blessings,

>

> kathie

>

>

>

>

>

>

> Opinions expressed are NOT meant to take the place of advice given

by licensed health care professionals. Consult your physician or

licensed health care professional before commencing any medical

treatment.

>

> " Do not let either the medical authorities or the politicians

mislead you. Find out what the facts are, and make your own

decisions about how to live a happy life and how to work for a

better world. " - Linus ing, two-time Nobel Prize Winner (1954,

Chemistry; 1963, Peace)

>

> See our photos website! Enter " implants " for access at this link:

> http://.shutterfly.com/action/

>

>

[Guest guest]

Hi Sis! I am very pleased with the results as well. I had very high hopes that the pain would go away, but I couldn't know for sure until I had the surgery, talk about instant gratification! I agree with you about feeling barbaric with the implants in, just knowing how the procedure is done makes me feel crazy for ever wanting them! I am so much happier with my small boobs too. I am a small girl, 5'2 100lbs - D's just don't look right on a girl that frame! I had modeling photos taken about 6 months ago, and the bikini shots are crazy - I had BALLOON BOOBS!! I feel so much more comfortable in my own skin now!auntsisnj <auntsisnj@...> wrote: , so happy to hear that you had a successful explant, and that the nerve pain went away. That is awesome!! I really love being flat

again, too, I hated having fake boobs!! After I had the implant surgery, I thought "this is the most barberic thing in the world". Sis out of the 56 PSs, the one who would see me was nice, though not > really good at answering questions/dialoging.....she immediately > offered to take them out, saying she OCCASIONALLY sees a > reconstruction patient who "never adjusts" to implants....she can't > guarantee that explanting will solve my pain/nerve damage issues, but > she feels it is worth a try......she then went on and on about how i > will be "totally flat"....as though that may be a reason to not do > this, in spite of two years of pain.....anyway, when i said "en bloc" > she said, well, it is different with reconstruction patients, that > she will take

out the entire implants, give them to me (she offered, > but what in the heck should i do with them? i don't know if i want > them!).........then she said she will take out as much scar tissue as > she can, but the implants (silicone, remember) are actually under my > chest wall, sitting right on my ribs, (no wonder they hurt!) and so > she doesn't want to damage anything anymore than it already is! > sooooo, i am waiting to hear that the surgery is approved through > aetna......and that the date is set for my first day of spring > break..........i am scared, though......she ran through all the > possible complications, yadda yadda.........i am hoping this IS the > right choice, only cause, what if my depression gets worse when i > have no shape at all????? i guess i'll figure out some sort of > prostectic (sp?) solution.....but did you know that those are

often > made of silicone, too???? so why would i put it against my skin, > which absorbs everything????????????? sigh.........any info, > support, whatever, would help........i know i haven't been around, i > have been really sick, lots of pain that i can't drug myself out > of........hope all is well with all of you!> > blessings,> > kathie> > > > > > > Opinions expressed are NOT meant to take the place of advice given by licensed health care professionals. Consult your physician or licensed health care professional before commencing any medical treatment. > > "Do not let either the medical authorities or the politicians mislead you. Find out what the facts are, and make your own decisions about how to live a happy life and how to work for a better world." - Linus ing, two-time Nobel Prize Winner (1954,

Chemistry; 1963, Peace)> > See our photos website! Enter "implants" for access at this link:> http://.shutterfly.com/action/> >

[Guest guest]

thanks for your encouragement....i am hoping i have the same

experience as your's! i have heard, since i had a double mastectomy,

that my chest will now be concave, but as you said, if i woke up and

this CONSTANT nerve pain was gone, i would be happy!

kathie

out of the 56 PSs, the one who

would see me was nice, though not

> really good at answering questions/dialoging.....she immediately

> offered to take them out, saying she OCCASIONALLY sees a

> reconstruction patient who " never adjusts " to implants....she can't

> guarantee that explanting will solve my pain/nerve damage issues,

but

> she feels it is worth a try......she then went on and on about how

i

> will be " totally flat " ....as though that may be a reason to not do

> this, in spite of two years of pain.....anyway, when i said " en

bloc "

> she said, well, it is different with reconstruction patients, that

> she will take out the entire implants, give them to me (she

offered,

> but what in the heck should i do with them? i don't know if i want

> them!).........then she said she will take out as much scar tissue

as

> she can, but the implants (silicone, remember) are actually under

my

> chest wall, sitting right on my ribs, (no wonder they hurt!) and so

> she doesn't want to damage anything anymore than it already is!

> sooooo, i am waiting to hear that the surgery is approved through

> aetna......and that the date is set for my first day of spring

> break..........i am scared, though......she ran through all the

> possible complications, yadda yadda.........i am hoping this IS the

> right choice, only cause, what if my depression gets worse when i

> have no shape at all????? i guess i'll figure out some sort of

> prostectic (sp?) solution.....but did you know that those are often

> made of silicone, too???? so why would i put it against my skin,

> which absorbs everything????????????? sigh.........any info,

> support, whatever, would help........i know i haven't been around,

i

> have been really sick, lots of pain that i can't drug myself out

> of........hope all is well with all of you!

>

> blessings,

>

> kathie

>

>

>

>

>

>

> Opinions expressed are NOT meant to take the place of advice given

by licensed health care professionals. Consult your physician or

licensed health care professional before commencing any medical

treatment.

>

> " Do not let either the medical authorities or the politicians

mislead you. Find out what the facts are, and make your own decisions

about how to live a happy life and how to work for a better world. " -

Linus ing, two-time Nobel Prize Winner (1954, Chemistry; 1963,

Peace)

>

> See our photos website! Enter " implants " for access at this link:

> http://.shutterfly.com/action/

>

>

[Guest guest]

thank you so much for sharing your experience with me....why is it

that PSs are so, well, cold???? anyway, i will not even be an A, i

will probably be a minus B, but as others have said, just get them

OUT, and then woryy about the rest....i just want the pain to go

away, still, surgery is scary....though i should just remember it

cannot be as scary as having my breasts chopped off!

blessings,

kathie

> >

> > out of the 56 PSs, the one who would see me was nice, though not

> > really good at answering questions/dialoging.....she immediately

> > offered to take them out, saying she OCCASIONALLY sees a

> > reconstruction patient who " never adjusts " to implants....she

> can't

> > guarantee that explanting will solve my pain/nerve damage issues,

> but

> > she feels it is worth a try......she then went on and on about

how

> i

> > will be " totally flat " ....as though that may be a reason to not

do

> > this, in spite of two years of pain.....anyway, when i said " en

> bloc "

> > she said, well, it is different with reconstruction patients,

that

> > she will take out the entire implants, give them to me (she

> offered,

> > but what in the heck should i do with them? i don't know if i

> want

> > them!).........then she said she will take out as much scar

tissue

> as

> > she can, but the implants (silicone, remember) are actually under

> my

> > chest wall, sitting right on my ribs, (no wonder they hurt!) and

> so

> > she doesn't want to damage anything anymore than it already is!

> > sooooo, i am waiting to hear that the surgery is approved through

> > aetna......and that the date is set for my first day of spring

> > break..........i am scared, though......she ran through all the

> > possible complications, yadda yadda.........i am hoping this IS

> the

> > right choice, only cause, what if my depression gets worse when i

> > have no shape at all????? i guess i'll figure out some sort of

> > prostectic (sp?) solution.....but did you know that those are

> often

> > made of silicone, too???? so why would i put it against my skin,

> > which absorbs everything????????????? sigh.........any info,

> > support, whatever, would help........i know i haven't been

around,

> i

> > have been really sick, lots of pain that i can't drug myself out

> > of........hope all is well with all of you!

> >

> > blessings,

> >

> > kathie

> >

>

[Guest guest]

Thanks so much Kathie,

They will do a PET scan Tuesday to see if there is

cancer at any other sites. . . . I'm kinda of nervous

about that. . . If it's just in my breast, I'm fine

with it - as long as I can get it out!

This old gal has a few tricks up her sleeve before

she's ready to let the big C get hold of her!

Hugs,

Rogene

[Guest guest]

Kathie

I am glad that you are back. I have wondered what was going on

with you and how you were doing. I am sorry that you are still

feeling so bad. Do you like this PS? Do you think that she can do

a good job for you? What do you know about her skills and

reputation? Is it possible that you would be able to see someone

that we recommend for being thorough and skilled at explants like

Dr. Huang or Dr Feng or Dr Kolb--just to get a second opinion?

Perhaps that would help you decide if you really felt you should go

to this PS or not--just a thought. I will keep you in my prayers

for direction and for feeling better with your pain. Keep in touch

about what you decide.

Hugs, Kathy

--- In , " kathie " <Kathie.Larsyn@r...>

wrote:

>

> out of the 56 PSs, the one who would see me was nice, though not

> really good at answering questions/dialoging.....she immediately

> offered to take them out, saying she OCCASIONALLY sees a

> reconstruction patient who " never adjusts " to implants....she

can't

> guarantee that explanting will solve my pain/nerve damage issues,

but

> she feels it is worth a try......she then went on and on about how

i

> will be " totally flat " ....as though that may be a reason to not do

> this, in spite of two years of pain.....anyway, when i said " en

bloc "

> she said, well, it is different with reconstruction patients, that

> she will take out the entire implants, give them to me (she

offered,

> but what in the heck should i do with them? i don't know if i

want

> them!).........then she said she will take out as much scar tissue

as

> she can, but the implants (silicone, remember) are actually under

my

> chest wall, sitting right on my ribs, (no wonder they hurt!) and

so

> she doesn't want to damage anything anymore than it already is!

> sooooo, i am waiting to hear that the surgery is approved through

> aetna......and that the date is set for my first day of spring

> break..........i am scared, though......she ran through all the

> possible complications, yadda yadda.........i am hoping this IS

the

> right choice, only cause, what if my depression gets worse when i

> have no shape at all????? i guess i'll figure out some sort of

> prostectic (sp?) solution.....but did you know that those are

often

> made of silicone, too???? so why would i put it against my skin,

> which absorbs everything????????????? sigh.........any info,

> support, whatever, would help........i know i haven't been around,

i

> have been really sick, lots of pain that i can't drug myself out

> of........hope all is well with all of you!

>

> blessings,

>

> kathie

>