Lynn

[Guest guest]

My dear Saline Sister,

You are so precious, and I know you are here for a reason. Just

like the rest of us. My heart aches for your suffering, and I want

you to know, I am where you are. Your story word for word describes

me, even in the same progression. My first symptoms started around

the first of last year. It hit my right arm first, the thought it

was carple tunnel or " over-use syndrom " . I was a full time mother,

nursing student, and part-time nursing assistant. Then it moved to

my left arm, then legs. They put me on a muscle relaxer (with

already weak mucscles) I became wheelchair bound after that. I had

a bad reaction to neurotin. So, I decided to ban any and all

prescription medication.I had every symptom you mentioned, including

on and off abnormal paps. I was even diagnosed with a bladder

condition called interstitial cystitis (an auto-immune disorder)

All my tests turned out normal. Then after a very painful test by a

neurologist, he suggested the only doctor I should see is a

psychiatrist. I literally gave up for some time after that. My

symptoms got worse so I decided to go with a kineseiologist, who

suggested detoxing. I ded lots of detoxing, juicing, and even the

Maker's diet. My chronic fatigue and my mental clearity got better,

but the pain did not. I researched every symptom and desease and

nothing quite fit. Then more symptomes came on. My eyes dried out,

my hair started to fall out, my heart started showing signs of

stress, and I had difficulty breathing. I knew I was getting worse.

I have been officially diagnosed with fibromyalgia, glossophayngeal

neurolgia, IC, and chronic fatigue. Mostly by the process of

eminating all major diseases. I miraculously found Kacey's website

and knew within minuets this must also be my problem. Then I joined

this group. Days later, I had my explant surgery scheduled with Dr.

Feng. Today, they were removed. My husband and I are relieved. I

am so glad to have found a doctor who believes these are making me

sick. Her staff is wonderful and they all have stated how they have

seen hundreds of women like us. You will be so encouraged after

talking with one of these great doctors on the list.

I just wanted to let you know, you are not alone...anymore! You

have a new family now. I will keep you in my prayers.

God Bless,