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In a message dated 4/9/99 11:54:45 PM Eastern Daylight Time,

mndb@... writes:

<< I have gotten tired of telling them one is a prosthesis! I

just giggle inside! >>

sally

michael also wears a prostetic shell, and it is too funny when a medical

resident comments on being able to see the coloboma in the left eye...LOL!

they always get this trick question wrong, as do some actual doctors!

the prosthesis was a great choice for us. michael has a coloboma and a

cataract, and the eye itself is microopthalmic so we did it to help with

growth as well as for cosmetic reasons. michael seems way more comfortable

with it in, and wears it 24/7, including sleep. we take it out only to do an

enzyme cleaning.

does andrew have problems with discharge from the eye? does he do anything

special..drops, cream?

kris

mom to michael (6.5) CHaRGE and kolleen (1month)

long branch, nj

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Hi! I am very interested in learning about the prosthetic eye. My son also

has a smaller left eye with no vision and our first yearly doctors visits are

coming up in May so I'd like to be prepared with questions. There was mention

of a lens at one point but wasn't a priority. How old were your kiddoes?

When you say is more comfortable, was he uncomfortable before? Was

there pain? I don't notice any discomfort, I just would like his face to grow

proportionately and if the left eye would look exactly like the right one

that would be OK too. Any input would be great, Thanks a bunch.

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hi

michael got his eye when he was four, and in retrospect i WISH i had done it

much earlier! his doctor had encouraged us to do it, but i was kind of

squeamish and truthfully couldnt deal with another major " project " with

michael. but it really was no big deal...and our ocularist (whom you want to

be referred to, NOT an optometrist!) works on very young babies, so

age/size/ability is not a factor.

before we got the eye michael had more discharge from that eye and rubbed it

alot. it didnt seem painful, just uncomfortable. and of course his eye looked

different than the other. once he got the prostetic the difference was

dramatic! not only does he look better, but only rubs his eye under " normal "

circumstances...just woke up, something in it, etc. he has never attempted to

take it out (thank goodness!...i can envision it lost on the playground!) and

never gives me a hard time to put it in/take it out.

initially, a clear lens is made to make sure of the fit and to make sure a

child can tolerate it. i think we did that for a month or so. then you go

thru the process of having it painted to match the other eye (its AMAZING how

natural it looks!) i can tell you that these are LONG appointments--

several hours.

we go a few times a year for a professional cleaning and to check the fit,

but maintenance is simple...once a week i take it out and use an enzyme

cleaner...if it seems REAL dirty during the week i pop it out and wash it

with some baby shampoo.

it should not have to be remade for a few years, but this of course goes on

individual growth. at 6.5 michael is probably getting due to at least " build

it up " if not remake it.

sorry so long...feel free to email me if you need more info...

kris

mom to michael (6.5) CHaRGE and kolleen (1 month) NDA

long branch, NJ

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