Guest guest Posted December 8, 2002 Report Share Posted December 8, 2002 Hi Gang Just wanted say I feel Fan-Tas-Tic ! I haven't felt this good on a day to day basis in years. I can tell from certain things that I still have some way to go ( BM's aren't quite right yet, but getting better, my face still sometimes has that " drawn " look which tells me something is out of balance somewhere) but overall I'm MUCH better. Lots more energy, no more nightmares and anxiety and I'm actually starting to eye my husband with genuine interest, if you get my drift I'm really starting to shed the extra weight now and I have a clear head about 98% of the time. I've gone onto Milk Thistle to help the liver deal with all the supplements, and am taking B Complex etc. The real proof came yesterday when i got so busy teaching my horse riding students that I forgot to have lunch. I suddenly realised that it is 6 pm and I feel fine ! No shakiness, or moodiness, none of the usual low blood sugar symptoms that used to keep me sick for 5 or 6 hours after I'd missed a meal, even when I ate. That tells me my adrenals are doing their job of stabilising the blood sugar even when I don't eat. WhoooHooo !!! I can't wait to hear from you all on this list as you start feeling better. I hope everyone here finds the exact formula/protocol that works for them soon. Fiona Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2002 Report Share Posted December 8, 2002 Fiona, I'm so glad you're feeling such an improvement!!! Mic > Hi Gang > >. WhoooHooo !!! I can't wait to hear from you all on this list as you >start feeling better. I hope everyone here finds the exact >formula/protocol that works for them soon. > >Fiona Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2002 Report Share Posted December 9, 2002 GREAT NEWS FIONA!!!!!!!!! What program where you on again? Russ's? in CA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2002 Report Share Posted December 9, 2002 Nope, my homeopath was giving me anti- fungal jabs, along with anti-allergy jabs i have to give myself and the basic candida diet plus some supplements. Fiona Re: Recovery GREAT NEWS FIONA!!!!!!!!! What program where you on again? Russ's? in CA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 10, 2002 Report Share Posted December 10, 2002 << my homeopath was giving me anti- fungal jabs, along with anti-allergy jabs i have to give myself and the >> That sounds painful! What kind of " jabs " ? In any case GOOD FOR YOU! I'm so glad you're feeling better! ) in CA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2002 Report Share Posted December 14, 2002 Hi Fiona - Congratulations on your recovery! When you say anti-fungal jabs, do you mean shots or intravenous drip? And what ant-fungal did your homeopath use? And what supplements do you think helped do the trick? Connie > Nope, my homeopath was giving me anti- fungal jabs, along with anti- allergy jabs i have to give myself and the basic candida diet plus some supplements. > > Fiona > Re: Recovery > > > GREAT NEWS FIONA!!!!!!!!! > > What program where you on again? Russ's? > > in CA > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2002 Report Share Posted December 17, 2002 Hi Connie I meant shots, and i think they're actually " dead " candida, to wake up my own immune system, kind of like chiken pox innoculations. I speaking to the Dr this pm, and will find out for you, OK ? Supplements that really are working for me: L-Glutamine to stop carb/sugar cravings] LTyrosine to jazz up my adrenal glands and help my thyroid Vit C for helping my immune system DHEA helps my hormones and adrenals Vit B gives me energy AB Flora helps replace friendly bacteria Ans sticking to the diet has helped most of all ! Fiona Re: Recovery > > > GREAT NEWS FIONA!!!!!!!!! > > What program where you on again? Russ's? > > in CA > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2005 Report Share Posted July 24, 2005 My son was 11, and is now 14. He is doing quite well. He is much healthier, but has a long way to go before his brain is normalized. He also has a lot of catching up to do. Baby steps. Sometime it is hard to tell that there is improvement because it happens so slowly, but when you look back, you know things are getting better. --- drac1017 <larsin@...> wrote: > Has there been anyone who started their child with > Dr. Goldberg at a > later age and been considered recovered? > TIA, > Diane > > > > Barb Katsaros barbkatsaros@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2005 Report Share Posted August 1, 2005 : I would like to know more about what your Homeopathic doctor did for you. I too had antibiotics first, then Homeopathic plus other things and am much better. If you want to - you can mail me privately at: mailto:wolfsen@... Thanks - Glen form New Jersey. At 06:49 PM 8/1/2005 +0000, you wrote: >It has been a very long time since I posted. (almost 1 year ago)When >I joined this group, I was having severe difficulties in several >areas. The " brain fog " was awful. I got lost in parking lots because >I forgot where my car was. I was having difficulty with speech, >swallowing and walking. I had insomnia, anxiety and panic attacks. I >spent time talking to " regular Doctor's), Lyme Dr's and did not like >the idea of long or short term antibiotics. It has been a year now >and during this time, I have seen a Homeopathic Dr. I have been >taking a remedy and I would say I am 90% symptom free. If I have more >stress, some mild symptoms come back. I cannot say enough about my >treatment and encourage all who have this disease to RESEARCH every >aspect of the disease and the treatments available. My life is once >again my own and I can function daily with no symptoms. Thanks for >your time. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2005 Report Share Posted August 2, 2005 Congratulations , I'm glad you have beat this ugly disease. Enjoy your life again! Connieknwnj Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2005 Report Share Posted August 5, 2005 , That is wonderful! I would like to hear about how you got to this point of recovery. What direction of treatment did you take? Suzy [ ] Recovery It has been a very long time since I posted. (almost 1 year ago)When I joined this group, I was having severe difficulties in several areas. The " brain fog " was awful. I got lost in parking lots because I forgot where my car was. I was having difficulty with speech, swallowing and walking. I had insomnia, anxiety and panic attacks. I spent time talking to " regular Doctor's), Lyme Dr's and did not like the idea of long or short term antibiotics. It has been a year now and during this time, I have seen a Homeopathic Dr. I have been taking a remedy and I would say I am 90% symptom free. If I have more stress, some mild symptoms come back. I cannot say enough about my treatment and encourage all who have this disease to RESEARCH every aspect of the disease and the treatments available. My life is once again my own and I can function daily with no symptoms. Thanks for your time. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2006 Report Share Posted January 7, 2006 Have you tried submitting the story to The Autism Perspective Magazine? Recovery Recovery is very possible. My son is recovered!!! The number of children treated and recovered with Dr. Goldberg's protocol probably would surprise many. Although these kids are not cured, because most (not all) still need medication to maintain normalcy. The following is a story I hope to have published in a mainstream magazine. It is my son's story. I want it published so people will realize that recovery is possible for many kids afflicted with Autism. We have to keep kids who can be helped from ending up in group homes or institutions. Sorry for the length, but it took some time to tell our story. If anyone has any connections and can help me get this published, it would help all our children. Thanks, Marcia What Our Pediatrician Never Told Us My son's recovery from Autism By Marcia pulled into the driveway totally clueless about the mailbox he almost demolished and the two parked cars that had nearly lost their side mirrors. The only thing that saved us from the woman who turned left in front of us was me frantically yelling, " STOP! " Nonetheless, at the conclusion of yet another white-knuckle driving session, had a huge smile on his face. My blood pressure slowly returned to normal when he stopped the car and unfastened his seatbelt. The " click " of the seatbelt sent me back to a day thirteen years earlier. I was doing thirty when I heard that same " click. " I glanced in the rearview mirror to see my three-year-old missing from the seat behind me. When I turned around, there stood in front of the open sliding door of our minivan. I reached across the car and grabbed 's jacket just in time to keep him from jumping out the moving van. wasn't ready to leave my friend's house, so he decided to go back. And it didn't matter that the car was moving at a speed that would probably kill him. . From birth to four months, cried most of the time. There was little his dad or I could do to calm him. Most of our day was spent trying to figure out what he wanted or needed. It was like we were contestants on a game show where only knew the rules and the answers. Our older child, , had been different. She smiled when I fed her, cuddled with stuffed animals, and gazed at me with eyes that absorbed everything I said or did. Occasionally, would cuddle and smile, but most of the time I was not sure he was aware of me at all. seemed to prefer things to people. He would pick out an object in the house - - a hook in his closet, for example, and spend ten minutes cooing to it. Some of his other best friends were the living room clock and the shower nozzle. We laughed because it was cute, and he was cute. When we took out of the familiar surroundings of our home, he would either scream or stare blankly. When we went to places like the grocery store, he did not smile, make eye contact, or indicate that he cared one way or another about the world around him. People in the store did not talk to or smile at him because he did not respond. They either acted as if he did not exist, or they expressed their disapproval of a child they knew was spoiled and out of control. When these things occurred, I worried that something might be wrong with . He confused me. At two, he would spend hours playing math computer games. He knew all his letters and numbers, and could operate any piece of electronics in our house. His level of concentration and ability to figure things out was phenomenal. To alleviate our concerns, we convinced ourselves that he was going to grow up to be another Albert Einstein or Edison. We wanted to believe that the reason he behaved differently was that he was a genius. Another sign we ignored was 's need for sameness. One particular fascination he had was with a small portable radio. loved to go around the house plugging it in and out each of the electrical outlets. He would have been content to do this all day long if we let him. easily removed the safety covers, and after awhile I just gave up trying to replace them... We could not leave with a babysitter. If we did, he screamed inconsolably the entire time we were gone. Needless to say, his babysitters never returned for a second attempt. To make matters worse, didn't want to go anywhere without me; not even with his dad. My only respite from was when my husband asked, " Hey, , do you want to go to the hardware store? " loved the electrical department! Before the boys went to do errands, they would stop at the local store to check out all the outlets, extension cords and plugs. was certainly difficult at home, but was worse when we went out. We used to pick our restaurants by how loud we could be. One of our favorites was a local buffet, not because we loved the food, but because we rated it as a " Five-Screamer. " When had an outburst there, it wasn't so bad. Who could hear it? But we were almost always embarrassed by his behavior. He made loud noises and was hard to control in busy surroundings. When was three, he went to preschool. At conference time, his teacher told us she thought something was wrong; he was neither interested in, nor interacting with other kids. The preschool conference was our wake-up call. We asked our pediatrician for a referral to an expert. To our surprise, he sent us to a psychiatrist. Our doctor didn't tell us that the psychiatrist was the leading local authority on Autism in the Twin Cities area. After she did some tests, the psychiatrist diagnosed with PDD (Pervasive Development Disorder). She told us that not much had been written about PDD. It took us several months to figure out that PDD was the same as Autism. I think doctors probably use this label because they know the " A-Word " (Autism) is more than parents can deal with emotionally. Most people's knowledge of Autism comes from the movie Rain Man, but Autism includes a whole spectrum of kids, from very severe to mildly affected. was officially diagnosed when he was four. The psychiatrist told us he would never be okay; the best prognosis we could hope for would be that one day he would be running a computer in the basement of some company and never have to deal with people. This psychiatrist went on to tell us that most of these kids end up in prison or mental institutions, and we would just have to wait and see how he turned out. On the way home from the psychiatrists office, I started screaming and cursing at the top of my lungs. This doctor confirmed our worst fears. We could no longer pretend that our child was just eccentric. My husband and I decided that we could not accept the life sentence the doctor had handed . We were not about to wait and see. We began looking elsewhere for a doctor who could help him. But most of the time we knew more about Autism than the so-called " experts " we went to see. The only thing doctors agreed upon was that Autism was on the rise. What was once a very rare disease was becoming quite common; virtually everyone knew a family who had been affected by Autism. Instead of the previous statistics of one in ten thousand births, Autism now affected one in two hundred and fifty children. Although things were rapidly changing, most psychiatrists and doctors still saw Autism as a bizarre and incurable mental disorder. Today, doctors have started looking into other possibilities: genetic predisposition, neurological damage, environmental factors and vaccine side effects. The common thread still is that these are disorders, meaning they are untreatable. After a long frustrating search that caused us to be severely disappointed in most of the medical profession, we found a pediatrician who believed Autism is the result of a dysregulated immune system. In other words, the immune system is sometimes not reacting enough and other times is working overtime, reacting when it is not supposed to. The first thing he did for was run comprehensive blood tests. The blood tests indicated that had a viral infection and some type of immune-related problem. was also quite deficient in iron. His food allergy tests while significant for more common allergies like dairy products included some odd allergies like garlic. Next, our doctor sent for a Neurospect. This test measures the blood flow to different areas of the brain. The spect revealed a decreased blood flow to the temporal (and parietal) areas of the brain. These areas of the brain are responsible for cognition, speech, and social skills. By reading Neurospects, doctors can tell whether a child will have a learning disability in math or reading. They can also tell if a child has an immune-related disease like ADD/ADHD or Autism. The first goal was to cool down 's immune system. Our doctor was very scientific in his approach and used only definitive lab results to determine his course of action with . He tried only one medical treatment at a time so he could judge what was working. This was done by the selective use of antiviral, anti-fungal, and Selective Serotonin Reuptake Inhibitors (SSRI's). Eliminating foods that put stress on 's immune system were a factor too. It took time for 's body to repair and regulate itself. But by following the doctor's recommendations, we saw major changes in 's lab results and behavior. When we repeated the Neurospect a few years after regulating 's immune system, it showed increased blood flow to the affected brain areas. His second allergy tests indicated that was non-reactive to almost everything. My husband and I were happy, yet confused by the improvements. It was hard to understand how eliminating foods that caused allergic reactions and improving the blood flow to different areas of his brain could change 's behavior. His doctor explained that increased blood flow means increased function in those areas of the brain that were previously not working properly. As for the improvement in allergies, he said most Autistic kids appear to be allergic to a large number of things. Kids with Autism or other auto-immune related diseases have immune systems that react to everything. It is like standing on one foot. It is easy to knock over someone who doesn't have both feet firmly on the ground or an immune system that is not working properly. Although we always had people working with , after medical treatment he was actually able to learn. , like all children, learns best when he is healthy. Almost immediately after we began treatment, his teachers noticed the improvements, even though we had not told them what we were doing for medically. His eye contact improved. He was able to do things that had not been possible before, such as riding a bike, socializing in a group, and answering questions from his teachers. He started to notice more of the world around him. He even said " Hi " to the librarian and other school staff as he passed them in the hall. The noises he made and his inappropriate behaviors decreased substantially and in time were eliminated. After 's diagnosis, therapists worked with him to teach him what other kids learn on their own. We began to fill in gaps in 's speech and social skills. However, recovery would not have been possible if 's medical treatment had not been combined with an intensive learning program to teach him what he missed when he was ill. had been in the third percentile for speech and language when he started Kindergarten. When he was tested again in the third grade, he was in the eighty-fifth percentile. When entered middle school, I was terrified, but on his sixth grade report card he got all " A's. " And more importantly, had friends. For someone who had to be taught almost every social skill, hung with a great group of guys. He wasn't the most popular kid in the school and was a little nerdy, but he was virtually indistinguishable from his peers. finally got his driver's license shortly after we moved to California, although I still hold my breath every time he takes the car. On the night passed his driver's test, my husband went into his room to yell at him for talking on the phone after the lights should have been out. When his dad came back to our room he asked me, " Would you ever had believed we would be yelling at our son to get off the phone with his friends and he would get his driver's license all in one day? " is a pretty typical high school kid now. He stays up too late, plays too many computer games, likes to instant message with his friends, but still works hard and gets mostly " A's. " When we first received 's diagnosis, we never believed would ever be " normal. " But 's successful treatment and the treatment of others like him have shown that the physicians trying to correct the immune systems of autistic children are correct in their theories. These doctors are working to give children with Autism, ADHD, and neuro-immune diseases a future. I know they will be successful, but we're running out of time. Kids are not getting better every day. Sidebar--The Epidemic and New Hope for Children Autism is far more prevalent today than it was in the early 1980s when one in 10,000 children were afflicted with the disorder. Today, the National Institutes of Health (NIH) estimates that one in 250 children is diagnosed as autistic. Treatment of these children and others with similar disorders cost more than $60,000 per child, per year, according to parents whose children have the disorder. The number of children with ADD and ADHD disorder has increased dramatically in the past two decades, with estimates now topping two million, according to the NIH. " Autism has migrated from a rare disorder to one that is now 10 to 20 times more likely to be diagnosed. " according to Dr. Goldberg of Tarzana, California. " Without a doubt, this is a disease process masquerading, or being misinterpreted, as a " developmental " disorder. We need to stop assuming that the symptoms are a result of birth or genetic defects or psychological problems and start looking at the immune connection. " Dr. Bruce of Corpus Christi, Texas agrees that not only are these disease states treatable, but also over time, children's symptoms are reduced and they recover significant cognitive function. According to Dr. , " There are medical treatments available for Autistic children that will help them learn better and increase their quality of life. Parents shouldn't be paralyzed into inaction by the lack of consensus in the medical community. They know their children have great potential and with medical and educational intervention, it is within their grasp. Currently, we are spending millions of dollars on education. That investment will yield much larger returns if we can, through medical intervention, improve their ability to learn. " SIDE BAR-Common Symptoms of Autism Autism is no longer a rare disease. The current estimate is it affects 1/150 children. Boys are affected at a 3:1 ratio to girls. Some children appear normal in the first 15-18 months. Others display symptoms right away. Some of the symptoms are: a.. Disturbances in the progress of physical, social and language skills b.. Abnormal response to sensations (increased sensitivity to noise, smell, taste or touch) c.. Abnormal ways to relate to people, objects, and events d.. Delay in or absence of speech and language e.. Abnormal speech patterns like echolalia* can be present f.. Poor non-verbal communication skills g.. Abnormal social play or inability to make friends h.. Lack of empathy i.. Repetitive body movements (arm flapping, toe walking, etc.) j.. A marked need for sameness k.. Change of hand or becomes ambidextrous l.. Very narrow interests (frequently music, science, math, or art related) m.. Many children suffer from sleep disturbances *Echolalia is when a child copies what is said, but does not use language for communication. For example: If asked the question, " How are you ny? " the child would repeat, " How are you, ny? " instead of answering. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2006 Report Share Posted January 8, 2006 Marcia, Well written! You should submit this to every conceivable magazine - from Parenting, to Time, to Reader's Digest, and to every newspaper, both major and local. I'm glad that I have had the opportunity to meet you and your family and especially your son. The last conversation I had with him was about the American war of independence and the significance that that event had on the sending of British prisoners to Australia instead of to Virginia and Georgia! Best Recovery Recovery is very possible. My son is recovered!!! The number of children treated and recovered with Dr. Goldberg's protocol probably would surprise many. Although these kids are not cured, because most (not all) still need medication to maintain normalcy. The following is a story I hope to have published in a mainstream magazine. It is my son's story. I want it published so people will realize that recovery is possible for many kids afflicted with Autism. We have to keep kids who can be helped from ending up in group homes or institutions. Sorry for the length, but it took some time to tell our story. If anyone has any connections and can help me get this published, it would help all our children. Thanks, Marcia What Our Pediatrician Never Told Us My son's recovery from Autism By Marcia pulled into the driveway totally clueless about the mailbox he almost demolished and the two parked cars that had nearly lost their side mirrors. The only thing that saved us from the woman who turned left in front of us was me frantically yelling, " STOP! " Nonetheless, at the conclusion of yet another white-knuckle driving session, had a huge smile on his face. My blood pressure slowly returned to normal when he stopped the car and unfastened his seatbelt. The " click " of the seatbelt sent me back to a day thirteen years earlier. I was doing thirty when I heard that same " click. " I glanced in the rearview mirror to see my three-year-old missing from the seat behind me. When I turned around, there stood in front of the open sliding door of our minivan. I reached across the car and grabbed 's jacket just in time to keep him from jumping out the moving van. wasn't ready to leave my friend's house, so he decided to go back. And it didn't matter that the car was moving at a speed that would probably kill him. . From birth to four months, cried most of the time. There was little his dad or I could do to calm him. Most of our day was spent trying to figure out what he wanted or needed. It was like we were contestants on a game show where only knew the rules and the answers. Our older child, , had been different. She smiled when I fed her, cuddled with stuffed animals, and gazed at me with eyes that absorbed everything I said or did. Occasionally, would cuddle and smile, but most of the time I was not sure he was aware of me at all. seemed to prefer things to people. He would pick out an object in the house - - a hook in his closet, for example, and spend ten minutes cooing to it. Some of his other best friends were the living room clock and the shower nozzle. We laughed because it was cute, and he was cute. When we took out of the familiar surroundings of our home, he would either scream or stare blankly. When we went to places like the grocery store, he did not smile, make eye contact, or indicate that he cared one way or another about the world around him. People in the store did not talk to or smile at him because he did not respond. They either acted as if he did not exist, or they expressed their disapproval of a child they knew was spoiled and out of control. When these things occurred, I worried that something might be wrong with . He confused me. At two, he would spend hours playing math computer games. He knew all his letters and numbers, and could operate any piece of electronics in our house. His level of concentration and ability to figure things out was phenomenal. To alleviate our concerns, we convinced ourselves that he was going to grow up to be another Albert Einstein or Edison. We wanted to believe that the reason he behaved differently was that he was a genius. Another sign we ignored was 's need for sameness. One particular fascination he had was with a small portable radio. loved to go around the house plugging it in and out each of the electrical outlets. He would have been content to do this all day long if we let him. easily removed the safety covers, and after awhile I just gave up trying to replace them... We could not leave with a babysitter. If we did, he screamed inconsolably the entire time we were gone. Needless to say, his babysitters never returned for a second attempt. To make matters worse, didn't want to go anywhere without me; not even with his dad. My only respite from was when my husband asked, " Hey, , do you want to go to the hardware store? " loved the electrical department! Before the boys went to do errands, they would stop at the local store to check out all the outlets, extension cords and plugs. was certainly difficult at home, but was worse when we went out. We used to pick our restaurants by how loud we could be. One of our favorites was a local buffet, not because we loved the food, but because we rated it as a " Five-Screamer. " When had an outburst there, it wasn't so bad. Who could hear it? But we were almost always embarrassed by his behavior. He made loud noises and was hard to control in busy surroundings. When was three, he went to preschool. At conference time, his teacher told us she thought something was wrong; he was neither interested in, nor interacting with other kids. The preschool conference was our wake-up call. We asked our pediatrician for a referral to an expert. To our surprise, he sent us to a psychiatrist. Our doctor didn't tell us that the psychiatrist was the leading local authority on Autism in the Twin Cities area. After she did some tests, the psychiatrist diagnosed with PDD (Pervasive Development Disorder). She told us that not much had been written about PDD. It took us several months to figure out that PDD was the same as Autism. I think doctors probably use this label because they know the " A-Word " (Autism) is more than parents can deal with emotionally. Most people's knowledge of Autism comes from the movie Rain Man, but Autism includes a whole spectrum of kids, from very severe to mildly affected. was officially diagnosed when he was four. The psychiatrist told us he would never be okay; the best prognosis we could hope for would be that one day he would be running a computer in the basement of some company and never have to deal with people. This psychiatrist went on to tell us that most of these kids end up in prison or mental institutions, and we would just have to wait and see how he turned out. On the way home from the psychiatrists office, I started screaming and cursing at the top of my lungs. This doctor confirmed our worst fears. We could no longer pretend that our child was just eccentric. My husband and I decided that we could not accept the life sentence the doctor had handed . We were not about to wait and see. We began looking elsewhere for a doctor who could help him. But most of the time we knew more about Autism than the so-called " experts " we went to see. The only thing doctors agreed upon was that Autism was on the rise. What was once a very rare disease was becoming quite common; virtually everyone knew a family who had been affected by Autism. Instead of the previous statistics of one in ten thousand births, Autism now affected one in two hundred and fifty children. Although things were rapidly changing, most psychiatrists and doctors still saw Autism as a bizarre and incurable mental disorder. Today, doctors have started looking into other possibilities: genetic predisposition, neurological damage, environmental factors and vaccine side effects. The common thread still is that these are disorders, meaning they are untreatable. After a long frustrating search that caused us to be severely disappointed in most of the medical profession, we found a pediatrician who believed Autism is the result of a dysregulated immune system. In other words, the immune system is sometimes not reacting enough and other times is working overtime, reacting when it is not supposed to. The first thing he did for was run comprehensive blood tests. The blood tests indicated that had a viral infection and some type of immune-related problem. was also quite deficient in iron. His food allergy tests while significant for more common allergies like dairy products included some odd allergies like garlic. Next, our doctor sent for a Neurospect. This test measures the blood flow to different areas of the brain. The spect revealed a decreased blood flow to the temporal (and parietal) areas of the brain. These areas of the brain are responsible for cognition, speech, and social skills. By reading Neurospects, doctors can tell whether a child will have a learning disability in math or reading. They can also tell if a child has an immune-related disease like ADD/ADHD or Autism. The first goal was to cool down 's immune system. Our doctor was very scientific in his approach and used only definitive lab results to determine his course of action with . He tried only one medical treatment at a time so he could judge what was working. This was done by the selective use of antiviral, anti-fungal, and Selective Serotonin Reuptake Inhibitors (SSRI's). Eliminating foods that put stress on 's immune system were a factor too. It took time for 's body to repair and regulate itself. But by following the doctor's recommendations, we saw major changes in 's lab results and behavior. When we repeated the Neurospect a few years after regulating 's immune system, it showed increased blood flow to the affected brain areas. His second allergy tests indicated that was non-reactive to almost everything. My husband and I were happy, yet confused by the improvements. It was hard to understand how eliminating foods that caused allergic reactions and improving the blood flow to different areas of his brain could change 's behavior. His doctor explained that increased blood flow means increased function in those areas of the brain that were previously not working properly. As for the improvement in allergies, he said most Autistic kids appear to be allergic to a large number of things. Kids with Autism or other auto-immune related diseases have immune systems that react to everything. It is like standing on one foot. It is easy to knock over someone who doesn't have both feet firmly on the ground or an immune system that is not working properly. Although we always had people working with , after medical treatment he was actually able to learn. , like all children, learns best when he is healthy. Almost immediately after we began treatment, his teachers noticed the improvements, even though we had not told them what we were doing for medically. His eye contact improved. He was able to do things that had not been possible before, such as riding a bike, socializing in a group, and answering questions from his teachers. He started to notice more of the world around him. He even said " Hi " to the librarian and other school staff as he passed them in the hall. The noises he made and his inappropriate behaviors decreased substantially and in time were eliminated. After 's diagnosis, therapists worked with him to teach him what other kids learn on their own. We began to fill in gaps in 's speech and social skills. However, recovery would not have been possible if 's medical treatment had not been combined with an intensive learning program to teach him what he missed when he was ill. had been in the third percentile for speech and language when he started Kindergarten. When he was tested again in the third grade, he was in the eighty-fifth percentile. When entered middle school, I was terrified, but on his sixth grade report card he got all " A's. " And more importantly, had friends. For someone who had to be taught almost every social skill, hung with a great group of guys. He wasn't the most popular kid in the school and was a little nerdy, but he was virtually indistinguishable from his peers. finally got his driver's license shortly after we moved to California, although I still hold my breath every time he takes the car. On the night passed his driver's test, my husband went into his room to yell at him for talking on the phone after the lights should have been out. When his dad came back to our room he asked me, " Would you ever had believed we would be yelling at our son to get off the phone with his friends and he would get his driver's license all in one day? " is a pretty typical high school kid now. He stays up too late, plays too many computer games, likes to instant message with his friends, but still works hard and gets mostly " A's. " When we first received 's diagnosis, we never believed would ever be " normal. " But 's successful treatment and the treatment of others like him have shown that the physicians trying to correct the immune systems of autistic children are correct in their theories. These doctors are working to give children with Autism, ADHD, and neuro-immune diseases a future. I know they will be successful, but we're running out of time. Kids are not getting better every day. Sidebar--The Epidemic and New Hope for Children Autism is far more prevalent today than it was in the early 1980s when one in 10,000 children were afflicted with the disorder. Today, the National Institutes of Health (NIH) estimates that one in 250 children is diagnosed as autistic. Treatment of these children and others with similar disorders cost more than $60,000 per child, per year, according to parents whose children have the disorder. The number of children with ADD and ADHD disorder has increased dramatically in the past two decades, with estimates now topping two million, according to the NIH. " Autism has migrated from a rare disorder to one that is now 10 to 20 times more likely to be diagnosed. " according to Dr. Goldberg of Tarzana, California. " Without a doubt, this is a disease process masquerading, or being misinterpreted, as a " developmental " disorder. We need to stop assuming that the symptoms are a result of birth or genetic defects or psychological problems and start looking at the immune connection. " Dr. Bruce of Corpus Christi, Texas agrees that not only are these disease states treatable, but also over time, children's symptoms are reduced and they recover significant cognitive function. According to Dr. , " There are medical treatments available for Autistic children that will help them learn better and increase their quality of life. Parents shouldn't be paralyzed into inaction by the lack of consensus in the medical community. They know their children have great potential and with medical and educational intervention, it is within their grasp. Currently, we are spending millions of dollars on education. That investment will yield much larger returns if we can, through medical intervention, improve their ability to learn. " SIDE BAR-Common Symptoms of Autism Autism is no longer a rare disease. The current estimate is it affects 1/150 children. Boys are affected at a 3:1 ratio to girls. Some children appear normal in the first 15-18 months. Others display symptoms right away. Some of the symptoms are: a.. Disturbances in the progress of physical, social and language skills b.. Abnormal response to sensations (increased sensitivity to noise, smell, taste or touch) c.. Abnormal ways to relate to people, objects, and events d.. Delay in or absence of speech and language e.. Abnormal speech patterns like echolalia* can be present f.. Poor non-verbal communication skills g.. Abnormal social play or inability to make friends h.. Lack of empathy i.. Repetitive body movements (arm flapping, toe walking, etc.) j.. A marked need for sameness k.. Change of hand or becomes ambidextrous l.. Very narrow interests (frequently music, science, math, or art related) m.. Many children suffer from sleep disturbances *Echolalia is when a child copies what is said, but does not use language for communication. For example: If asked the question, " How are you ny? " the child would repeat, " How are you, ny? " instead of answering. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2006 Report Share Posted February 17, 2006 I was reading all the e mails this morning ( I am 10 hrs in front of US so each morning I have lots of e mails!!) its not always possible to digest it all as I have to go to work but I find myself totally obsessed with it all now. So many things are going round in my head and its difficult to try and make sense of it all. There are so many things I want to do to fight this and take those responsible to task. I am thinking of ringing the local newspaper, Island Connections to see if they are interested in my story. The newspaper covers all the Canary Islands so it would at least make interesting reading and perhaps get some response. What do you think. I am also very scared after reading one of the e mails when the Nurse told a patient that many are dying. I am having awful nagging pains in my lung area and palpitations. I am going to see the Doctor on Monday to ask for a chest Xray and an ECG. I don't want an operation if I have a heart problem and I am scared about lung cancer. (unfortunately, I smoke!!) but that brings me to another fact, the government ban smoking and make a huge fuss about it but I actually think that silicone can do even more damage. The day I go into hospital for my explantation will be my last cigarette as I don't want anymore health issues but right now, I am not in the right frame of mind to try and stop though I am not a heavy smoker and I have never been a drinker. Rogenne, I have e mailed about Cellular Defense, waiting now to hear from her. Christene, I understand what you are saying about vanity in women but I don't really think this is the main issue. Yes, everyone likes to look their best and I don't think there is anything wrong in that. We also have our husbands/partners we want to please but at the end of the day, if we do something to enhance our bodies that we consider SAFE I don't think its vanity especially as we now want them out, no matter how bad they look. People say to me, "what will you have instead", I say, nothing and they look at me gone out but I really don't mind. I will wear padded bras etc if necessary but if I am not accepted with a flat chest then so be it. Our society is a strange one, there are so many beautiful women out there and many with lots of money who are able to improve their looks. We have this thrown in our faces all the time but there will always be someone more beautiful so we just have to make the best with what we have and we have only done that, believing that it would be safe. We cannot knock ourselves for that. I was interested in the information about sending the explanted implants to a particular doctor for analisis. I will be following that up. Better go, have go to work. Love to you all, x Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2008 Report Share Posted April 1, 2008 Hi . . good to hear from you again! . . . Whether or not you can work will depend on a number of factors - most you really won't know until after you've had your surgery. However, if your drains are out, you'll probably be ready for easy duty. . . No lifting, running, long hours, or intense mental work. I started an 8 hour a day computer class about five days after explant. . . It was obvious to a pschologist taking the class that I was having some concentration problems. He thought I had adult ADD. I hope you've found a doctor you can count on to remove your implants properly. That's key to recovery. I'd suggest telling your supervisors that you're going to be having breast reduction surgery and that you'll need easy duty for a few weeks. Hugs, Rogene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2008 Report Share Posted April 1, 2008 Hi - I can tell you that the explant surgery was MUCH easier for me. I was honestly doing alot of my normal things a few days afterwards ( I have 2 very small kids). However, I did rest alot more and I tried not to lift anything for a few weeks if I did not have to. I did not want to chance post-operative bleeding. Everyone is different and it all depends on the surgery itself and how much they need to do to get the capsule removed. I was never in pain though from this surgery and right after I left my surgery, I made the trip back home (about 2 hrs) and then lightly assisted giving my kids a bath..... I would recommend getting plenty of rest and I would expect you could go back to normal activities within a few weeks!!!! I will also say that at 2 months, things really seemed to get better...and everyday since. Best wished for a speedy recovery!!!!! Love, Beth recovery hello everyone, i plan to have an explant in may. how long were any of you off work? i am a nurse and was wondering if i could return to work after one week, you think? Create a Home Theater Like the Pros. Watch the video on AOL Home. You rock. That's why Blockbuster's offering you one month of Blockbuster Total Access, No Cost. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2008 Report Share Posted April 1, 2008 Hi there, I had surgery on a Friday and I think I was back to work that following Tuesday or for sure Wednesday. I had to take it slow, but I did okay. Hugs, Lynn > > Hi - I can tell you that the explant surgery was MUCH easier for me. I was honestly doing alot of my normal things a few days afterwards ( I have 2 very small kids). However, I did rest alot more and I tried not to lift anything for a few weeks if I did not have to. I did not want to chance post-operative bleeding. > > Everyone is different and it all depends on the surgery itself and how much they need to do to get the capsule removed. I was never in pain though from this surgery and right after I left my surgery, I made the trip back home (about 2 hrs) and then lightly assisted giving my kids a bath..... > > I would recommend getting plenty of rest and I would expect you could go back to normal activities within a few weeks!!!! > I will also say that at 2 months, things really seemed to get better...and everyday since. > > Best wished for a speedy recovery!!!!! > > Love, > Beth > > > > recovery > > hello everyone, i plan to have an explant in may. how long were any of you off work? i am a nurse and was wondering if i could return to work after one week, you think? > > > > > > > Create a Home Theater Like the Pros. Watch the video on AOL Home. > > > > ______________________________________________________________________ ______________ > You rock. That's why Blockbuster's offering you one month of Blockbuster Total Access, No Cost. > http://tc.deals./tc/blockbuster/text5.com > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2008 Report Share Posted April 1, 2008 I had surgery on a Monday and was back in the groove the following Monday. Two weeks after surgery I hosted Thanksgiving for 14 people (and I was nuts for doing it), but I did ok. Sis > > > > Hi - I can tell you that the explant surgery was MUCH easier for > me. I was honestly doing alot of my normal things a few days > afterwards ( I have 2 very small kids). However, I did rest alot > more and I tried not to lift anything for a few weeks if I did not > have to. I did not want to chance post-operative bleeding. > > > > Everyone is different and it all depends on the surgery itself and > how much they need to do to get the capsule removed. I was never in > pain though from this surgery and right after I left my surgery, I > made the trip back home (about 2 hrs) and then lightly assisted > giving my kids a bath..... > > > > I would recommend getting plenty of rest and I would expect you > could go back to normal activities within a few weeks!!!! > > I will also say that at 2 months, things really seemed to get > better...and everyday since. > > > > Best wished for a speedy recovery!!!!! > > > > Love, > > Beth > > > > > > > > recovery > > > > hello everyone, i plan to have an explant in may. how long were any > of you off work? i am a nurse and was wondering if i could return to > work after one week, you think? > > > > > > > > > > > > > > Create a Home Theater Like the Pros. Watch the video on AOL Home. > > > > > > > > > _____________________________________________________________________ _ > ______________ > > You rock. That's why Blockbuster's offering you one month of > Blockbuster Total Access, No Cost. > > http://tc.deals./tc/blockbuster/text5.com > > > Quote Link to comment Share on other sites More sharing options...
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