Re: Visit to a doctor today

[Guest guest]

Sis,

Your doctor sounds like a winner! . . . So seldom do

rheumatologists admit to implant illnesses! . . .

Her willingness to do test to determine if your

problems are implant related is incredible! . . .

Would you please let us know which tests she orders? .

.. .

Did she say if she testified for, or against DOW? . .

.. (She could have had her eyes opened!)

I'd love to hear anything she has to say! . . . And

how she explains the problems.

In the meantime, don't post her name publically! . . .

She might become the subject of harrassment, or worse.

Some doctors who have tried to help us ended up dead!

If you share her name, please do so in private

messages - unless she gives you permission.

Hugs and prayers,

Rogene

[Guest guest]

Thanks, Rogene. Good point, I won't post her name.

She testified AGAINST Dow.

Sis

>

> Sis,

>

> Your doctor sounds like a winner! . . . So seldom do

> rheumatologists admit to implant illnesses! . . .

>

> Her willingness to do test to determine if your

> problems are implant related is incredible! . . .

> Would you please let us know which tests she orders? .

> . .

>

> Did she say if she testified for, or against DOW? . .

> . (She could have had her eyes opened!)

>

> I'd love to hear anything she has to say! . . . And

> how she explains the problems.

>

> In the meantime, don't post her name publically! . . .

> She might become the subject of harrassment, or worse.

> Some doctors who have tried to help us ended up dead!

>

> If you share her name, please do so in private

> messages - unless she gives you permission.

>

>

> Hugs and prayers,

>

> Rogene

>

[Guest guest]

Sis,

That is great news about your rheumy! Wow, that one's a keeper! It

is so rare that they admit to implants causing illness.

I'd be very interested in hearing about those specific tests. Let us

know.

Hugs,

Patty

--- In , " auntsisnj " <auntsisnj@...>

wrote:

>

> Hi All,

>

> I went to visit a Rheumatologist today. I wanted to make sure

that

> Lyme wasn't a contributor to my illness - although I started

getting

> sick a few weeks after I got the implants, which was about a month

> before I noticed the bite. I told her my story, that I got

implants

> in May of 2005, and had them explanted in November of 2005. I

told

> her everything about my health history that I could think of, and

> also explained the symptoms I've been having. I figured I would

go

> in there just stating the facts, without saying that the implants

> made me sick, and I was pleasantly surprised to hear that she

fully

> believes that implants make women sick, and has even testified in

> the Dow hearings. I wasn't looking for validation from her on

this

> front, but I wanted to make sure that Lyme wasn't making things

> worse. She said she's had many patients who got sick after

getting

> implants, who were in perfect health before, and who were sick

> after. Not all of them were explanted, but she was glad to hear

> that I did explant. So, she's running Lyme tests that my regular

MD

> didn't run (there are more comprehensive tests that should be

done,

> but often aren't) and she's also running some tests that she says

> would help confirm if implants are to blame. I'm not sure what

> those tests are, but she's contacting me in two weeks with the

> results, so I'll ask her exactly what types of tests were run at

> that time.

>

> Sis

>

[Guest guest]

Wow

That's unusual for a rheumy. I have found most of them to be

completely worthless. I am happy that you found her, she sounds

like she is openminded and thinks for herself.

Hugs, Kathy

--- In , " auntsisnj " <auntsisnj@...>

wrote:

>

> Hi All,

>

> I went to visit a Rheumatologist today. I wanted to make sure

that

> Lyme wasn't a contributor to my illness - although I started

getting

> sick a few weeks after I got the implants, which was about a month

> before I noticed the bite. I told her my story, that I got

implants

> in May of 2005, and had them explanted in November of 2005. I

told

> her everything about my health history that I could think of, and

> also explained the symptoms I've been having. I figured I would

go

> in there just stating the facts, without saying that the implants

> made me sick, and I was pleasantly surprised to hear that she

fully

> believes that implants make women sick, and has even testified in

> the Dow hearings. I wasn't looking for validation from her on

this

> front, but I wanted to make sure that Lyme wasn't making things

> worse. She said she's had many patients who got sick after

getting

> implants, who were in perfect health before, and who were sick

> after. Not all of them were explanted, but she was glad to hear

> that I did explant. So, she's running Lyme tests that my regular

MD

> didn't run (there are more comprehensive tests that should be

done,

> but often aren't) and she's also running some tests that she says

> would help confirm if implants are to blame. I'm not sure what

> those tests are, but she's contacting me in two weeks with the

> results, so I'll ask her exactly what types of tests were run at

> that time.

>

> Sis

>

[Guest guest]

Sis - that's great - you must have been pleasantly surprised!

Please let us know about the test results.

I was still thinking about Friday - now another storm is supposed to

be coming tomorrow. If you are still up for meeting, let's see what

the weather holds tomorrow night?

Cherie

> >

> > Hi All,

> >

> > I went to visit a Rheumatologist today. I wanted to make sure

> that

> > Lyme wasn't a contributor to my illness - although I started

> getting

> > sick a few weeks after I got the implants, which was about a

month

> > before I noticed the bite. I told her my story, that I got

> implants

> > in May of 2005, and had them explanted in November of 2005. I

> told

> > her everything about my health history that I could think of,

and

> > also explained the symptoms I've been having. I figured I would

> go

> > in there just stating the facts, without saying that the

implants

> > made me sick, and I was pleasantly surprised to hear that she

> fully

> > believes that implants make women sick, and has even testified

in

> > the Dow hearings. I wasn't looking for validation from her on

> this

> > front, but I wanted to make sure that Lyme wasn't making things

> > worse. She said she's had many patients who got sick after

> getting

> > implants, who were in perfect health before, and who were sick

> > after. Not all of them were explanted, but she was glad to hear

> > that I did explant. So, she's running Lyme tests that my

regular

> MD

> > didn't run (there are more comprehensive tests that should be

> done,

> > but often aren't) and she's also running some tests that she

says

> > would help confirm if implants are to blame. I'm not sure what

> > those tests are, but she's contacting me in two weeks with the

> > results, so I'll ask her exactly what types of tests were run at

> > that time.

> >

> > Sis

> >

>

[Guest guest]

Cherie, yes - let's play it by ear as far as the weather goes.

I was talking to my sister today and she said " maybe the doctor is

testing for an antibody? " and it dawned on me that the doctor did

say that, she was testing for an antibody to silicone. There was

just so much discussion going on, that I didn't remember that piece

of information. If it does in fact come back with an antibody to

silicone, I'm curious to see what she recommends, if anything. I

told her I belonged to an online support group and she thought that

was really great.

Sis

> > >

> > > Hi All,

> > >

> > > I went to visit a Rheumatologist today. I wanted to make sure

> > that

> > > Lyme wasn't a contributor to my illness - although I started

> > getting

> > > sick a few weeks after I got the implants, which was about a

> month

> > > before I noticed the bite. I told her my story, that I got

> > implants

> > > in May of 2005, and had them explanted in November of 2005. I

> > told

> > > her everything about my health history that I could think of,

> and

> > > also explained the symptoms I've been having. I figured I

would

> > go

> > > in there just stating the facts, without saying that the

> implants

> > > made me sick, and I was pleasantly surprised to hear that she

> > fully

> > > believes that implants make women sick, and has even testified

> in

> > > the Dow hearings. I wasn't looking for validation from her on

> > this

> > > front, but I wanted to make sure that Lyme wasn't making

things

> > > worse. She said she's had many patients who got sick after

> > getting

> > > implants, who were in perfect health before, and who were sick

> > > after. Not all of them were explanted, but she was glad to

hear

> > > that I did explant. So, she's running Lyme tests that my

> regular

> > MD

> > > didn't run (there are more comprehensive tests that should be

> > done,

> > > but often aren't) and she's also running some tests that she

> says

> > > would help confirm if implants are to blame. I'm not sure

what

> > > those tests are, but she's contacting me in two weeks with the

> > > results, so I'll ask her exactly what types of tests were run

at

> > > that time.

> > >

> > > Sis

> > >

> >

>

[Guest guest]

Sis,

One silicone gel implanted lady is trying NCD . . .

Right after starting it, she began coughing up little

jelly balls that look like K-Y jelly. . . She said

she's breathing better with the gunk coming up.

Would you ask your doctor to check out NCD - Natural

Cellular Defense? There's a bunch of stuff about it

online, or I can send you info.

Hugs,

Rogene

[Guest guest]

Sure, I'll ask the doctor to check it out. I had salines, but even so

I know the shell is made of silicone. I should have asked her to have

my blood checked for platinum as well, although maybe that's one of

the tests she's running - not sure.

Sis

>

> Sis,

>

> One silicone gel implanted lady is trying NCD . . .

> Right after starting it, she began coughing up little

> jelly balls that look like K-Y jelly. . . She said

> she's breathing better with the gunk coming up.

>

> Would you ask your doctor to check out NCD - Natural

> Cellular Defense? There's a bunch of stuff about it

> online, or I can send you info.

>

> Hugs,

>

> Rogene

>

[Guest guest]

-

Now that's weird!

Hugs,Kathy

-- In , Rogene S <saxony01@...> wrote:

>

> Sis,

>

> One silicone gel implanted lady is trying NCD . . .

> Right after starting it, she began coughing up little

> jelly balls that look like K-Y jelly. . . She said

> she's breathing better with the gunk coming up.

>

> Would you ask your doctor to check out NCD - Natural

> Cellular Defense? There's a bunch of stuff about it

> online, or I can send you info.

>

> Hugs,

>

> Rogene

>

[Guest guest]

I wonder what a silicone antibody would imply - wouldn't anyone who

had implants have that? I wonder if only us that got sick have the

antibody? Hmmm I'm curious to see how that turns out. Did she

have a plan for you, or just waiting for test results? Most

rheumatologists want to put you on toxic drugs - but this one may be

different.

Cherie

> > > >

> > > > Hi All,

> > > >

> > > > I went to visit a Rheumatologist today. I wanted to make

sure

> > > that

> > > > Lyme wasn't a contributor to my illness - although I started

> > > getting

> > > > sick a few weeks after I got the implants, which was about a

> > month

> > > > before I noticed the bite. I told her my story, that I got

> > > implants

> > > > in May of 2005, and had them explanted in November of 2005.

I

> > > told

> > > > her everything about my health history that I could think

of,

> > and

> > > > also explained the symptoms I've been having. I figured I

> would

> > > go

> > > > in there just stating the facts, without saying that the

> > implants

> > > > made me sick, and I was pleasantly surprised to hear that

she

> > > fully

> > > > believes that implants make women sick, and has even

testified

> > in

> > > > the Dow hearings. I wasn't looking for validation from her

on

> > > this

> > > > front, but I wanted to make sure that Lyme wasn't making

> things

> > > > worse. She said she's had many patients who got sick after

> > > getting

> > > > implants, who were in perfect health before, and who were

sick

> > > > after. Not all of them were explanted, but she was glad to

> hear

> > > > that I did explant. So, she's running Lyme tests that my

> > regular

> > > MD

> > > > didn't run (there are more comprehensive tests that should

be

> > > done,

> > > > but often aren't) and she's also running some tests that she

> > says

> > > > would help confirm if implants are to blame. I'm not sure

> what

> > > > those tests are, but she's contacting me in two weeks with

the

> > > > results, so I'll ask her exactly what types of tests were

run

> at

> > > > that time.

> > > >

> > > > Sis

> > > >

> > >

> >

>

[Guest guest]

Sis,

I think Dr. Lykssi (maybe spelled wrong - he's in the

Houston area) is the only one who tests for platinum .

.. . Most labs are owned, or in beholdence to DOW . . .

there are certain tests they just won't run - like

platinum and silicone hypersensitivety.

Something you might ask her to test you for is a

mycoplasma bacterial infection. . .

Hugs and prayers,

Rogene

--- auntsisnj <auntsisnj@...> wrote:

> Sure, I'll ask the doctor to check it out. I had

> salines, but even so

> I know the shell is made of silicone. I should have

> asked her to have

> my blood checked for platinum as well, although

> maybe that's one of

> the tests she's running - not sure.

>

> Sis

>

>

>

> >

> > Sis,

> >

> > One silicone gel implanted lady is trying NCD . .

> .

> > Right after starting it, she began coughing up

> little

> > jelly balls that look like K-Y jelly. . . She said

> > she's breathing better with the gunk coming up.

> >

> > Would you ask your doctor to check out NCD -

> Natural

> > Cellular Defense? There's a bunch of stuff about

> it

> > online, or I can send you info.

> >

> > Hugs,

> >

> > Rogene

> >

>

>

>

>

>

[Guest guest]

Cherie, I don't really know what it would imply, but when she calls

with the results I'll be armed with alot of questions. Since she's

apparently studied patients who had implant illness, perhaps she

noticed a pattern when it came to the silicone antibody. She hasn't

discussed next steps with me, I think it depends on the results of

the bloodwork. I'm not one to take alot of medication, and if she

suggested anything that would further impair my immune system I'd be

against taking it. I don't know if testing negative for the

antibody means anything, either - I wonder if it's possible to be

sick from implants but not test positive for an antibody. I wonder

if the presence of an antibody would imply that the body is fighting

the implants - and maybe those who don't get sick never produce an

antibody? She definitely seems different because she said there is

no doubt in her mind that implants make women sick. She also noted

that other types of implants (including medical devices such as

shunts) make people sick as well, so I think she's a keeper. I told

her I considered myself quite lucky, because my gynecologist

believes implants made me sick, my psychologist believes it, and now

she does, too. I consider myself lucky to have found this group,

too.

Sis

> > > > >

> > > > > Hi All,

> > > > >

> > > > > I went to visit a Rheumatologist today. I wanted to make

> sure

> > > > that

> > > > > Lyme wasn't a contributor to my illness - although I

started

> > > > getting

> > > > > sick a few weeks after I got the implants, which was about

a

> > > month

> > > > > before I noticed the bite. I told her my story, that I

got

> > > > implants

> > > > > in May of 2005, and had them explanted in November of

2005.

> I

> > > > told

> > > > > her everything about my health history that I could think

> of,

> > > and

> > > > > also explained the symptoms I've been having. I figured I

> > would

> > > > go

> > > > > in there just stating the facts, without saying that the

> > > implants

> > > > > made me sick, and I was pleasantly surprised to hear that

> she

> > > > fully

> > > > > believes that implants make women sick, and has even

> testified

> > > in

> > > > > the Dow hearings. I wasn't looking for validation from

her

> on

> > > > this

> > > > > front, but I wanted to make sure that Lyme wasn't making

> > things

> > > > > worse. She said she's had many patients who got sick

after

> > > > getting

> > > > > implants, who were in perfect health before, and who were

> sick

> > > > > after. Not all of them were explanted, but she was glad

to

> > hear

> > > > > that I did explant. So, she's running Lyme tests that my

> > > regular

> > > > MD

> > > > > didn't run (there are more comprehensive tests that should

> be

> > > > done,

> > > > > but often aren't) and she's also running some tests that

she

> > > says

> > > > > would help confirm if implants are to blame. I'm not sure

> > what

> > > > > those tests are, but she's contacting me in two weeks with

> the

> > > > > results, so I'll ask her exactly what types of tests were

> run

> > at

> > > > > that time.

> > > > >

> > > > > Sis

> > > > >

> > > >

> > >

> >

>

[Guest guest]

Thanks, Rogene. I'll add that to my list. She said it takes two

weeks to get the results.

> > >

> > > Sis,

> > >

> > > One silicone gel implanted lady is trying NCD . .

> > .

> > > Right after starting it, she began coughing up

> > little

> > > jelly balls that look like K-Y jelly. . . She said

> > > she's breathing better with the gunk coming up.

> > >

> > > Would you ask your doctor to check out NCD -

> > Natural

> > > Cellular Defense? There's a bunch of stuff about

> > it

> > > online, or I can send you info.

> > >

> > > Hugs,

> > >

> > > Rogene

> > >

> >

> >

> >

> >

> >

>

[Guest guest]

Cherie

I think the finding is significant but don't think anyone acually

knows what it means and most probably don't care. I found the

following article that shows a large percentage of women with fms

tested positive despite the fact that they excluded anyone with

breast implants. That is scary because to me it says that we are

picking up silicone toxicity from skincare products, etc. Anyway,

here is the article.

Hugs, Kathy

NEW ANTIBODIES DISCOVERED

IN MANY FIBROMYALGIA PATIENTS

NEWS RELEASE

From: Autoimmune Technologies, LLC

(NEW ORLEANS, February 10, 1999) Autoimmune Technologies, LLC, a New

Orleans biotechnology company, today announced that scientists have

discovered a new antibody in the blood of many fibromyalgia

patients.

Using a patented blood test called the Anti-Polymer Antibody Assay,

or APA Assay, researchers found anti-polymer antibodies in

approximately one-half of all patients who were diagnosed with

fibromyalgia and in more than 60% of the fibromyalgia patients with

severe fibromyalgia symptoms. Patients with diseases frequently

confused with fibromyalgia, including rheumatoid arthritis, systemic

lupus erythematosus, and systemic sclerosis/scleroderma, had a much

lower incidence of these antibodies than did the fibromyalgia

patients.

" Our results show that there is a unique immunological response in

many fibromyalgia patients, " said B. , Ph.D.,

president of Autoimmune Technologies and lead investigator of the

published study. " We hope that these findings will lead to a better

understanding of the illness and to the development of treatments

for these patients. "

It is possible, Dr. pointed out, that anti-polymer antibodies

are associated with one of the several different causes of

fibromyalgia, perhaps the cause that tends to produce the most

severe symptoms. The published data indicate that this may be the

case, although more research will be needed. In addition to serving

as a marker for fibromyalgia, he noted, it is also possible that

these antibodies are directly involved in initiating or promoting

fibromyalgia.

M. , M.D., a physician and scientist who is chairman

of the Division of Arthritis and Rheumatic Disease of Oregon Health

Sciences University in Portland and a widely published and

internationally known expert on fibromyalgia syndrome, said " There

are two major problems for most physicians in accepting

fibromyalgia. The first is the lack of an easily performed

laboratory test. The second is its recalcitrance to therapy. The

promise of a potentially useful diagnostic marker is an exciting

development in this field. If the sensitivity and specificity of

this test can be confirmed by independent laboratories, it could

open up an important new research avenue for a condition that

compromises the quality of life of five million to ten million U.S.

women. "

Anti-polymer antibodies were discovered by researchers at Tulane

University Medical Center, where the APA Assay was developed.

Autoimmune Technologies has licensed the APA Assay from Tulane. An

APA Assay kit is not currently in commercial distribution in the

U.S., although the Assay is being performed by Autoimmune

Technologies as a service to physicians and researchers for

investigational use only. A kit form of the APA Assay will be

available in the near future in other countries.

The APA Assay is covered by U.S. and European patents, and patents

in other countries are pending.

A study of women that had silicone gel-containing breast implants

was done to detect the presence of serum antibodies directed against

polymeric substances. They were looking for the anti-polymer

antibody (APA). This study was done and the APA Assay was developed

by Garry Lab Silicone Research at Tulane University Medical Center.

The individuals with exposure to silicone breast implants were

placed in three categories by degree of signs and symptoms of non-

classical autoimmune disease. In the advanced category 68% tested

positive and 43% did in the moderate catergory, with only 3%

positive of those with limited symptoms.

How was a study done on people with Fibromyalgia?

Further testing was done as the symptoms of the people with silicone

breast implants were similiar to those with fibromyalgia. This time

patients with any kind of silicone breast implants or autoimmune

diseases such as lupus and scleroderma were excluded from the study.

The number of people in the study were 48 with fibromyalgia (as

determined by ACR criteria), 16 with osteoarthritis, and 14 with

rheumatoid arthritis. Reaction to ASA Assay was 48% for those with

fibromyalgia, 19% for osteoarthritis and 7% for rheumatoid

arthritis. " These results clearly suggest that serum antibodies to

polymeric substances as detected by the APA test may be a useful

marker in the diagnosis of fibromyalgia and other related

conditions. "

Further studies have been done and can be reviewed at

http://www.autoimmune.com/APASciSumHtml.html

How do I get the test?

The APA Assay is being performed by Autoimmune Technologies as a

service to physicians and researchers for investigational use only

and is not in commercial distribution in kit form within the United

States. The fee for performing the test is $145, and payment should

accompany the completed Requisition Form and the blood sample to be

tested.

See http://www.autoimmune.com/ForP & RIntro.html

> > > > >

> > > > > Hi All,

> > > > >

> > > > > I went to visit a Rheumatologist today. I wanted to make

> sure

> > > > that

> > > > > Lyme wasn't a contributor to my illness - although I

started

> > > > getting

> > > > > sick a few weeks after I got the implants, which was about

a

> > > month

> > > > > before I noticed the bite. I told her my story, that I

got

> > > > implants

> > > > > in May of 2005, and had them explanted in November of

2005.

> I

> > > > told

> > > > > her everything about my health history that I could think

> of,

> > > and

> > > > > also explained the symptoms I've been having. I figured I

> > would

> > > > go

> > > > > in there just stating the facts, without saying that the

> > > implants

> > > > > made me sick, and I was pleasantly surprised to hear that

> she

> > > > fully

> > > > > believes that implants make women sick, and has even

> testified

> > > in

> > > > > the Dow hearings. I wasn't looking for validation from

her

> on

> > > > this

> > > > > front, but I wanted to make sure that Lyme wasn't making

> > things

> > > > > worse. She said she's had many patients who got sick

after

> > > > getting

> > > > > implants, who were in perfect health before, and who were

> sick

> > > > > after. Not all of them were explanted, but she was glad

to

> > hear

> > > > > that I did explant. So, she's running Lyme tests that my

> > > regular

> > > > MD

> > > > > didn't run (there are more comprehensive tests that should

> be

> > > > done,

> > > > > but often aren't) and she's also running some tests that

she

> > > says

> > > > > would help confirm if implants are to blame. I'm not sure

> > what

> > > > > those tests are, but she's contacting me in two weeks with

> the

> > > > > results, so I'll ask her exactly what types of tests were

> run

> > at

> > > > > that time.

> > > > >

> > > > > Sis

> > > > >

> > > >

> > >

> >

>

[Guest guest]

Speaking of antibodies, I found this today (although it's amazing

that the report is over 10 years old and nothing's been done about

it):

http://record.wustl.edu/archive/1996/04-18-96/3152.html

Sis

> > > > > >

> > > > > > Hi All,

> > > > > >

> > > > > > I went to visit a Rheumatologist today. I wanted to

make

> > sure

> > > > > that

> > > > > > Lyme wasn't a contributor to my illness - although I

> started

> > > > > getting

> > > > > > sick a few weeks after I got the implants, which was

about

> a

> > > > month

> > > > > > before I noticed the bite. I told her my story, that I

> got

> > > > > implants

> > > > > > in May of 2005, and had them explanted in November of

> 2005.

> > I

> > > > > told

> > > > > > her everything about my health history that I could

think

> > of,

> > > > and

> > > > > > also explained the symptoms I've been having. I figured

I

> > > would

> > > > > go

> > > > > > in there just stating the facts, without saying that the

> > > > implants

> > > > > > made me sick, and I was pleasantly surprised to hear

that

> > she

> > > > > fully

> > > > > > believes that implants make women sick, and has even

> > testified

> > > > in

> > > > > > the Dow hearings. I wasn't looking for validation from

> her

> > on

> > > > > this

> > > > > > front, but I wanted to make sure that Lyme wasn't making

> > > things

> > > > > > worse. She said she's had many patients who got sick

> after

> > > > > getting

> > > > > > implants, who were in perfect health before, and who

were

> > sick

> > > > > > after. Not all of them were explanted, but she was glad

> to

> > > hear

> > > > > > that I did explant. So, she's running Lyme tests that

my

> > > > regular

> > > > > MD

> > > > > > didn't run (there are more comprehensive tests that

should

> > be

> > > > > done,

> > > > > > but often aren't) and she's also running some tests that

> she

> > > > says

> > > > > > would help confirm if implants are to blame. I'm not

sure

> > > what

> > > > > > those tests are, but she's contacting me in two weeks

with

> > the

> > > > > > results, so I'll ask her exactly what types of tests

were

> > run

> > > at

> > > > > > that time.

> > > > > >

> > > > > > Sis

> > > > > >

> > > > >

> > > >

> > >

> >

>