Guest guest Posted August 31, 2001 Report Share Posted August 31, 2001 Hello. I might've missed something, but what side effects does Medrol have? Are they like Prednisone? Did you find that it works just as good as the Prednisone?? I'm looking for ANYTHING but Prednisone!! Please let me know!! Thanks!! Philadelphia, PA >From: " Bozena Patin " <bpatin@...> >Reply- >< > >Subject: [ ] To Patty >Date: Fri, 31 Aug 2001 14:40:48 -0000 > >Hi Patty, > >Thanks for the input. I will certainly ask my doctor about the Medrol - >anything has to be better than the Prednisone. He just loooovees it when I >ask about stuff I've learnt from this group! BTW I would join you in that >bonfire anytime ......even from down under! > >Sounds like you're doing really well! > >Regards, Bozena _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2001 Report Share Posted November 1, 2001 Patty: I'm sorry to hear that you are not feeling well. You definitely need to go on with your life. I was recently diagnosed in June of this year and was 100% on the pity pot, could not stop thinking about the illness, was crying all the time etc. and was on prednisone for two weeks, when my GI called and said " you're levels are normal and by the way, you are pregnant, so stop taking the meds " . (My husband and I had tried for years to have a baby with no luck). I thought why now? I could only conclude that God was giving me a sign to get on and over it and off the pity pot! Now, at 5 months pregnant, I feel wonderful! and my levels have been normal! Who knows how I will feel later, but I'm going to remain upbeat and beat it! The point, if you can, try to think and focus on the positive..your mental definitely effects your physical...at least in my case. Good Luck and Congratulations on your future with . Toni P (AIH 6-01 and pregnant:) ) >>> pattyeady@... 11/01/01 03:40AM >>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2001 Report Share Posted November 1, 2001 Toni I am so happy for you on your wonderful news. Keep the faith. Gloria AIH 9/01 >From: " Antonia Ponder " <amp@...> >Reply- >< > >Subject: [ ] Re: To Patty >Date: Thu, 01 Nov 2001 11:01:34 -0600 > >Patty: > >I'm sorry to hear that you are not feeling well. You definitely need to go >on with your life. I was recently diagnosed in June of this year and was >100% on the pity pot, could not stop thinking about the illness, was crying >all the time etc. and was on prednisone for two weeks, when my GI called >and said " you're levels are normal and by the way, you are pregnant, so >stop taking the meds " . (My husband and I had tried for years to have a >baby with no luck). I thought why now? I could only conclude that God >was giving me a sign to get on and over it and off the pity pot! Now, at 5 >months pregnant, I feel wonderful! and my levels have been normal! Who >knows how I will feel later, but I'm going to remain upbeat and beat it! >The point, if you can, try to think and focus on the positive..your mental >definitely effects your physical...at least in my case. > >Good Luck and Congratulations on your future with . > > >Toni P (AIH 6-01 and pregnant:) ) > > >>> pattyeady@... 11/01/01 03:40AM >>> > > _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2002 Report Share Posted February 6, 2002 Patty, Yes BC is great for people who love nature !!!! " J. " <scott_p@...> wrote: , I live as far away fromCanada as is possible in the States I am in Miami. I did live in Port Huron Michigan back in 1977-1979 and worked in Sarnia Ontario, I also vacationed in toronto & montreal last year. Beautiful country if you skip no--april or don't mind freezing your shnuggilies off. I want to go hiking in Banft and skiing in BC! Patty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2002 Report Share Posted February 12, 2002 " J. " <scott_p@...> wrote: from Canada, I will respond even though you asked Gayle not me. I was on & off prednisone for almost 20 yrs when I had my transplant. Also I had chirrosis on my first biopsy in 1982. At the same time I think everyone is different. I have friends who were never dx prior to complete liver failure [the ICU type] and needed immediate tx. You have to accept the differences. They are prominent among us. To a our new member FATIGUE IS THE WORST heng in there this group is the place to be. Patty Miami Patty, Thank you for sharing this with me. Just the fact that you are telling me that you lived with cirrhoses for so long without a transplant is encouraging to me. For some reason it is less scarry to me, if it comes later... That means to me that I can go on with my life without being scared that it will happen tomorrow. What i'm saying might not make sense to you but to me it's like confirming what my doctor said; If the med goes well you could go on living with the cirrhoses... Thanks again and take care of yourself from Canada Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2003 Report Share Posted April 17, 2003 Bozena, At least your Dr has a sense of humor, replace your liver and everything will be OK. The transplant surgeons talk in a way that makes you feel like it's an oil change in a car. His explanation of the prednisone withdrawal makes sense to me. Hopefully they will lessen. So many things result in night sweats, they may go away and you'll never know. (Sounds good to me!) Hang in there! Patty RE: J, Jeanette, Anita, Patty and Celuch > > Bozena, > The hot flashes became night sweats as I got closer to transplant. In > the few weeks before I slammed into the ground with total liver > failure I was actually changing the sheets several times during the > night. It was bad. After the transplant nothing. Patty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2003 Report Share Posted December 11, 2003 Patty, Where in northern V irginia are you? We're in Fairfax County.Who do you see for rheumatology? Liz Re: First Posting/OT?/G. In a message dated 12/10/03 9:30:44 PM Eastern Standard Time, cpgarafalo@... writes:<< Hi, Patty - which part of the country are you in?I hope not Nebraska! >>Hi Chris:Nope, not Nebraska. We are in Northern VA. We were fortunate to find one so soon (after repeatedly calling them) and one so close.Take care.PattyTo leave this mailing list, send request to: -unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2004 Report Share Posted January 6, 2004 In a message dated 1/6/04 8:33:00 AM Eastern Standard Time, nikki228@... writes: << Patty Just to throw my 2 cents in here Patty. I understand completely how you feel; but, remember as these kids are having flare ups the arthritis is attacking their bodies too - obviously their joints. This can cause different damage to them down the line. So you want to remember that you need to stop the deterioration and progression of the disease as well. Tammy >> Exactly. I even mentioned the DMARDs today to her rheumy. He will use them if he thinks, but right now he doesn't want to start with them. We go again in 3 weeks and he will address it again. Thanks Tammy. Patty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2006 Report Share Posted February 21, 2006 Hi Patty, Sorry I took so long to answer your question about event monitors. " EventMonitors: Event monitors are small devices that are used by patients over a longer period (weeks to months, typically one month). Two stickky patches (electrodes) on the chest connect two wires to the event recorder. The monitor is always on but will only store the patient's rhythm when the patient or caregiver pushes the button. Most monitors will save the rhythm for several seconds of rhythm before the button is even pushed. The rhythm is also saved for a period after the button is pushed. A few specialized monitors are used only after the patient has symptoms. The intent is for most monitors to be worn as much as possible every day to increase the chances of recording the patient's rhythm when he/she has symptoms. " They " help to identify irregular beats, called arrhythmias to further evaluate arrhythmias noted on a resting EKG to evaluate other signs and symptoms which may be heart- related, such as fatigue, shortness of breath, dizziness, or fainting. " Mine was sent to my house, but I haven't started the proceedure yet. Patty, good luck on your fast...if you go from water to juice let me know and I will join you with a lemon juice fast. Love, Shirley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2006 Report Share Posted February 21, 2006 Hi Shirley, Thanks for the ansswer on event monitors. Let us know how you do with it. I have started the juices. Yesterday afternoon I had some fresh juiced pineapple juice. YUM! I also had 2 kiwi's and some broth, so I had a little more than I had planned, but I am determined to stay on an all plant diet. I'll be doing juices today and for as long as I can. That fresh pineapple juice is the best! I decided on that because of the anti- inflammatory enzymes it provides. I am glad you want to join me! Patty > > Hi Patty, > > Sorry I took so long to answer your question about event monitors. > > " EventMonitors: > > Event monitors are small devices that are used by patients over a > longer period (weeks to months, typically one month). Two stickky > patches (electrodes) on the chest connect two wires to the event > recorder. The monitor is always on but will only store the patient's > rhythm when the patient or caregiver pushes the button. Most > monitors will save the rhythm for several seconds of rhythm before > the button is even pushed. The rhythm is also saved for a period > after the button is pushed. A few specialized monitors are used > only after the patient has symptoms. The intent is for most monitors > to be worn as much as possible every day to increase the chances of > recording the patient's rhythm when he/she has symptoms. " > > They " help to identify irregular beats, called arrhythmias > to further evaluate arrhythmias noted on a resting EKG > to evaluate other signs and symptoms which may be heart- > related, such as fatigue, shortness of breath, dizziness, or > fainting. " > > Mine was sent to my house, but I haven't started the proceedure yet. > > Patty, good luck on your fast...if you go from water to juice let me > know and I will join you with a lemon juice fast. > > Love, Shirley > Quote Link to comment Share on other sites More sharing options...
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