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------- Forwarded Message Follows -------

From: Sclee127@...

Date sent: Wed, 28 Apr 1999 19:06:36 EDT

Subject: (no subject)

To: charge@...

Send reply to: Sclee127@...

hello: I'm a nurse taking care of a 13 month old little girl with " Charge " .

I'm writing on behalf of her family, we are interested in learning as much

as we can about " Charge " . Especially on feeding since that's one of our

biggest problems right now. Maeve had a T.E.F.repair and now has terrible

reflux. Any advise or comments would be appreciated

Thank-You : Lee(Maeves Nurse)

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Lee,

My CHARGER also had a TEF repair. Unfortunately he had several

aspiration pneumonias which were severe and as a result was feed with a

duodenal feeding tube. He also had a g tube. We were unable to g tube feed

him due to reflux. He did end up having a Nissen fundal plycation (stomach

wrap) he then began to tolerate feeding better but was on continuos feeding

with a feeding pump for quite some time.

You will definitely need some guidelines to follow with this situation.

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