Guest guest Posted April 16, 1999 Report Share Posted April 16, 1999 Elaine, We are just finding out about this. I will talk with Anita today and then get back to you. If it's lengthy I will use your email address of that's O.K.? Maureen At 02:33 AM 4/16/99 EDT, you wrote: >From: JMurraybel@... > >Hi Maureen, >I'm glad you have at last got some answers about . What exactly is >Carnitine deficiency? I ask because my son Jack is well below the 3rd >centile, in fact he doesn't even come onto the growth charts. He has his own >little line which runs along under the chart. The endo measured his >subcutaneous fat levels and they were fine. He is in proportion as he is also >small. He weighs around 16lbs1 10oz and is 70cms tall at age 21mths. What >height and weight is ? > >Elaine mum to Elise(6yrs) & Jack(21mths) CHaRGE >Dumfries,Scotland > >------------------------------------------------------------------------ >HOW YA FEELIN'? Find out with your free Personal Health Report. > It's easy, it's fun, it's confidential and it's free. > http://www.onelist.com/ad/ivillage1 >------------------------------------------------------------------------ >4th International CHARGE Syndrome Conference, Houston, Texas, July >23-25, 1999. >For information about the CHARGE Syndrome Foundation or to become a member please contact marion@.... > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 1999 Report Share Posted April 16, 1999 Maureen, Yes, please e-mail me privately if the reply is too long for the list. Elaine ( Jack's mum) JMurraybel@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 1999 Report Share Posted April 17, 1999 JMurraybel@... wrote: > > From: JMurraybel@... > > Maureen, > Yes, please e-mail me privately if the reply is too long for the list. > > Elaine ( Jack's mum) > JMurraybel@... Maureen, I also would be interested in any info you can gather about your grandsons condition. Elaine's son and my daughter have similiar things going on right now so I'm always on the look out for an answer. Thanks, Jeanie Colp mom to MacKenzie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 1999 Report Share Posted April 24, 1999 Maureen, it's http://www3.ncbi.nlm.nih.gov:80/htbin-post/Omim/dispmim?212140 I can't remember if you have to register with Omin or not.. that may be the case.. if you have and problems with it I can copy the info and send it to you Casey charge@... minnow@... Mom to Dawn 20, Ken 9 ADHD, and 7 CHARGE. Cobb California ICQ UIN# 728514 AIM Buddy List: ZeeCasey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2012 Report Share Posted September 1, 2012 hi all. Just wanted to let you know I am unsubscribing for a while. Tim is still on, and will forward to me anything that I need to see. If anyone wants to ask me a question directly, my email is at the top there. Hopefully, I will be back on in a few weeks. I have too much stuff on my plate right now, and I can't keep up. See ya soon! , mom to (9) ChArGE S. Hartshorne .Hartshorne@... 918 S. Brown St. Mount Pleasant, MI 48858 Quote Link to comment Share on other sites More sharing options...
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