Re: H

[Guest guest]

Hi

Just thought I would let you know - Mitch is already off Aropax we are going

to trial resperidol - aropax made him very happy which was lovely BUT he was

much busier and inattentive - such a shame - he literally jumped for four days

off everything - steps, beds chairs! (actually I made the mistake of letting

him watch the winter olympics) so after two more days of chasing him around for

meds, food, clothes everything I phoned Dr .

Hes very cute but I am very tired and am hoping he will sleep for four days to

make up for it - yea I know fat chance!

Regards

Terri NZ

[Guest guest]

Terri, let me know how it works out - we have dropped Dales dose to .125

and its doing the job - truely does seem like the enzymes have healed his

gut and he is absorbing everything well - now his gut is so healed for the

first time ever he is gettting constipated? Any clues, I thought of adding

in fish oil as that sure works with me - has anyone any other ideas, or did

anyone notice this as their childs diaherra etc cleared up - colour and

everything is very normal its just now instead of going everyday he's

starting to go less often and have more trouble going - prehaps Devin might

be able to add in something as well. Opps this is now a message to lots of

folk -

Cheers H

Re: [ ] H

Hi

Just thought I would let you know - Mitch is already off Aropax we are

going to trial resperidol - aropax made him very happy which was lovely BUT

he was much busier and inattentive - such a shame - he literally jumped for

four days off everything - steps, beds chairs! (actually I made the

mistake of letting him watch the winter olympics) so after two more days of

chasing him around for meds, food, clothes everything I phoned Dr .

Hes very cute but I am very tired and am hoping he will sleep for four

days to make up for it - yea I know fat chance!

Regards

Terri NZ

[Guest guest]

Yes I have much experience with Mitch in this area - if he doesn't go everyday

he gets very uncomfortable. We have trailed a few natural things - but we

always go back to Lactulose Syrup from the chemist - clear syrup - I just give

it straight followed by water supposedly harmless stuff doesn't cause grippe

pains like brans can do. It is derived from sugar - but has no effect on my

little ones tums - (sugar really hurts) so must be ok.

Regards

Terri

Re: [ ] H

Hi

Just thought I would let you know - Mitch is already off Aropax we are

going to trial resperidol - aropax made him very happy which was lovely BUT

he was much busier and inattentive - such a shame - he literally jumped for

four days off everything - steps, beds chairs! (actually I made the

mistake of letting him watch the winter olympics) so after two more days of

chasing him around for meds, food, clothes everything I phoned Dr .

Hes very cute but I am very tired and am hoping he will sleep for four

days to make up for it - yea I know fat chance!

Regards

Terri NZ

[Guest guest]

Also just a thought - if your little guy has had diaherra for a long time it may

just take a while for all his poop/ bowel muscles to get strong enough to do the

job - so after using lactulose for a while maybe just wean him off it really

really slowly??? just a thought. I know Mitch has low muscle tone even though

the no 2's aren't that firm/hard his muscles just aren't strong getting better

with time though.

Terri

Re: [ ] H

Hi

Just thought I would let you know - Mitch is already off Aropax we are

going to trial resperidol - aropax made him very happy which was lovely BUT

he was much busier and inattentive - such a shame - he literally jumped for

four days off everything - steps, beds chairs! (actually I made the

mistake of letting him watch the winter olympics) so after two more days of

chasing him around for meds, food, clothes everything I phoned Dr .

Hes very cute but I am very tired and am hoping he will sleep for four

days to make up for it - yea I know fat chance!

Regards

Terri NZ

[Guest guest]

Dear ,

Has the dr. checked the fluid in your lung? It may not be infection but acites fluid that can get infected if left in there. I've had to have my lungs drained twice for this - they took a liter of fluid out of the lung the first time and I could breathe and sleep much easier! I didn't notice if you were on diruetics? They increased my quite a bit and I haven't had the problem since. Good luck getting to the answer on this!

Amy

[Guest guest]

Dear ,

I'm pretty new to the support, but I'm sorry too, about your mother. It's never

easy. May you find peace and comfort, knowing she will always be a part of you,

and that she lives in you, that which she imparted.

Jefersea

Re: [ ] Re: Tawny ~ still not feeling any better

> Tawny,

> Sorry to hear you are still feeling bad. Just wanted to let you

know my

> Mom passed away on June 2nd with ovarian cancer. Tell everyone to

insist on

> the CA125 test. It could save their lives.

>

[Guest guest]

, Let me add my condolences to everyone elses. I know this is a

very tough time for you but I want you to know that you are in my

prayers. I hope that time will ease your pain and that you have a

wonderful support group to hold you and help you through this. God

bless, Althea

> Dear ,

>

> I'm pretty new to the support, but I'm sorry too, about your

mother. It's never easy. May you find peace and comfort, knowing

she will always be a part of you, and that she lives in you, that

which she imparted.

>

> Jefersea

>

> Re: [ ] Re: Tawny ~ still not feeling any

better

>

>

> > Tawny,

> > Sorry to hear you are still feeling bad. Just wanted to

let you

> know my

> > Mom passed away on June 2nd with ovarian cancer. Tell

everyone to

> insist on

> > the CA125 test. It could save their lives.

> >

>

>

>

[Guest guest]

Yes, her oncologist said ovarian cancer is easily treated if caught in early

stages. It is almost never caught early because the symptoms of constipation

and bloating are ignored or misdiagnosed as " women's complaints " and a simple

blood test called the CA 125 can be a great tool to early diagnosis. My Mom

had to go to nine doctors and then the emergency room being treated for

constipation when she could even feel growths in three areas. She was blown off

over

and over. The emergency room doctor finally did an ultra sound and the CA

125. She was stage three when diagnosed. Our only hope was to extend quality

of life as long as possible with treatment. It was nine months. Many don't

even get that much time after diagnosis.

[Guest guest]

, I send my condolences along with everybody else's. It is such a

shame that doctors did not get at the root of her problem for so long.

You have performed a valuable service by making us aware that a simple

blood test can help diagnose ovarian cancer. I most definitely will ask

my PCP about it the next time I see her. Thank you very much.

Sue

On Wednesday, June 30, 2004, at 09:11 PM, Mhynes123@... wrote:

> Yes, her oncologist said ovarian cancer is easily treated if caught in

> early

> stages. It is almost never caught early because the symptoms of

> constipation

> and bloating are ignored or misdiagnosed as " women's complaints " and a

> simple

> blood test called the CA 125 can be a great tool to early diagnosis.

> My Mom

> had to go to nine doctors and then the emergency room being treated for

> constipation when she could even feel growths in three areas. She was

> blown off over

> and over. The emergency room doctor finally did an ultra sound and

> the CA

> 125. She was stage three when diagnosed. Our only hope was to extend

> quality

> of life as long as possible with treatment. It was nine months. Many

> don't

> even get that much time after diagnosis.

[Guest guest]

I have to give the lab perspective on CA125. Even though it is usually elevated

with ovarian cancer, it is not considered a screening test for ovarian cancer.

It is used after the diagnosis to determine the status of the tumor before and

after treatment.

Because it is not considered a screening test, most insurances and medicare will

not pay for it unless the person already has a diagnosis of ovarian cancer.

Most doctors will order it, but the patient will have to sign a form stating

they will pay for the test themselves.

Not always nice, but that's how insurances work.

Noreen

Re: [ ] H

, I send my condolences along with everybody else's. It is such a

shame that doctors did not get at the root of her problem for so long.

You have performed a valuable service by making us aware that a simple

blood test can help diagnose ovarian cancer. I most definitely will ask

my PCP about it the next time I see her. Thank you very much.

Sue

On Wednesday, June 30, 2004, at 09:11 PM, Mhynes123@... wrote:

> Yes, her oncologist said ovarian cancer is easily treated if caught in

> early

> stages. It is almost never caught early because the symptoms of

> constipation

> and bloating are ignored or misdiagnosed as " women's complaints " and a

> simple

> blood test called the CA 125 can be a great tool to early diagnosis.

> My Mom

> had to go to nine doctors and then the emergency room being treated for

> constipation when she could even feel growths in three areas. She was

> blown off over

> and over. The emergency room doctor finally did an ultra sound and

> the CA

> 125. She was stage three when diagnosed. Our only hope was to extend

> quality

> of life as long as possible with treatment. It was nine months. Many

> don't

> even get that much time after diagnosis.

[Guest guest]

- My Condolences on the loss of your mom. You and your family are held in

prayer .

Love and Peace,

>

> > Re: [ ] H

>

>

> , I send my condolences along with everybody else's. It is such a

> shame that doctors did not get at the root of her problem for so long.

> You have performed a valuable service by making us aware that a simple

> blood test can help diagnose ovarian cancer. I most definitely will ask

> my PCP about it the next time I see her. Thank you very much.

>

> Sue

>

> On Wednesday, June 30, 2004, at 09:11 PM, Mhynes123@... wrote:

>

> > Yes, her oncologist said ovarian cancer is easily treated if caught in

> > early

> > stages. It is almost never caught early because the symptoms of

> > constipation

> > and bloating are ignored or misdiagnosed as " women's complaints " and a

> > simple

> > blood test called the CA 125 can be a great tool to early diagnosis.

> > My Mom

> > had to go to nine doctors and then the emergency room being treated for

> > constipation when she could even feel growths in three areas. She was

> > blown off over

> > and over. The emergency room doctor finally did an ultra sound and

> > the CA

> > 125. She was stage three when diagnosed. Our only hope was to extend

> > quality

> > of life as long as possible with treatment. It was nine months. Many

> > don't

> > even get that much time after diagnosis.

>

>

>

>

[Guest guest]

,

My thoughts and prayers go with you during your time of loss.

k.j.choate@... wrote:

- My Condolences on the loss of your mom. You and your family are held in

prayer .

Love and Peace,

>

> > Re: [ ] H

>

>

> , I send my condolences along with everybody else's. It is such a

> shame that doctors did not get at the root of her problem for so long.

> You have performed a valuable service by making us aware that a simple

> blood test can help diagnose ovarian cancer. I most definitely will ask

> my PCP about it the next time I see her. Thank you very much.

>

> Sue

>

> On Wednesday, June 30, 2004, at 09:11 PM, Mhynes123@... wrote:

>

> > Yes, her oncologist said ovarian cancer is easily treated if caught in

> > early

> > stages. It is almost never caught early because the symptoms of

> > constipation

> > and bloating are ignored or misdiagnosed as " women's complaints " and a

> > simple

> > blood test called the CA 125 can be a great tool to early diagnosis.

> > My Mom

> > had to go to nine doctors and then the emergency room being treated for

> > constipation when she could even feel growths in three areas. She was

> > blown off over

> > and over. The emergency room doctor finally did an ultra sound and

> > the CA

> > 125. She was stage three when diagnosed. Our only hope was to extend

> > quality

> > of life as long as possible with treatment. It was nine months. Many

> > don't

> > even get that much time after diagnosis.

>

>

>

>

[Guest guest]

Hi ,

The past couple of nights with Sophie have been great. She is sleeping like nothing has changed in her life!!! That makes me so happy for her and me. She loves to sleep. That is great that Jake is sleeping 11 hours. I really can't imagine sleeping with a helmet on my head but it just shows how adaptable these little babies really are!

We go tomorrow for Sophie's one week check up. Her eye is a little poochy if that's what you call it so I am anxious to see what he thinks. When I take the helmet off there are no red spots near that eye.

It is so encouraging to hear we have similar feelings about this whole helmet thing. Mike and I both have wanted to give up and take it off. I keep telling myself and him, we need time. I know once we see some change it will be easier to deal with.

I too worry about the ears! I agree if it's not one thing it's another that you worry about. Has your pediatrican been supportive or did you really have to push for the helmet? Just curious.

I am happy to hear that you are seeing some improvement and that it is getting easier to have Jakes helmet on.

Sophie's ped called and left a message at our house, he is not going to approve her CST anymore. So we cannot go to that Dr. It was the CST Dr. who referred her to MFB. So now we have to go to Dr. Foody and he will do the follow up visit to make sure the head is improving. It was a rough day for me.

I am so looking forward to seeing a little round head and holding her helmet free for more than 1 hour!!! I hope you are having a great week!

PS. Are Jakes pics posted under Jake R? If so he is so cute!!! s_rad1 <s_radlinski@...> wrote:

Hi ,I'm glad to hear that Sophie is doing well in her helmet. Sounds like she did good her first night sleeping in it. How have the past couple of nights been? Hopefully good!!! 3.5 weeks into this and Jake is sleeping 11 hours at night again! We are so thankful. We were getting so tired. It is still hard to decide how to dress him for bed, etc....We do keep our house a little cooler and that seems to help.I'm not sure when Jake will have another scan. The orthotist said that with "older" babies he usually waits at least 2 months, often 3. I wish they would do one at every appt!!!I totally understand what you are going through! That first week was so hard for me. There were several times when my husband and I would take the helmet off and say

"that's it"......"i don't care if his head isn't round"! BUT, we do care and it has gotten easier! We have also come across people who frown on the helmet....they look at you like you're doing something terrible to your child! However, most people are supportive. Especially when I tell them that I want the best for my son, the helmet doesn't bother him, and that I wouldn't want a 10 year old getting picked on at school and wondering why I hadn't helped him when I could have! You are doing the right thing for your daughter! I look back at pictures of Jake and now it is so obvious that he had tort, etc.... In every photo his head was tilted to the right. We didn't really pick up on it until he was 4 months and then we did stretches and repo aggressively at home. His tort is resolved, but the damage was done to his head! I have gone through feeling guilty and then angry with

our ped, etc, etc.... But I've come to the realization that there isn't anything I can do about that now and now we are doing everything that we can to help Jake!My neighbor's son just got a helmet last week-maybe it's something in the water in my neighborhood??? ha! My cousin's son had tort and plagio, but they caught it really early and he did pretty good with PT and repo......at 5 years old his head is still a little flat though and that also reassures me that I am doing the right thing. But other than that I do not know anyone else that is or has dealt with this. But it seems that many of my friends and family know of someone else who has.....Hang in there! It is going to get easier! I constantly remind myself that this is short term! Soon it will all be behind us. I'm encouraged that Jake's head will round out, but I still often worry about his little ears lining

up....it's always something! :)Talk with you later,> > > > > Hi everyone,> > > > > Thank you so much for all your encouragement and support! > We > > > went > > > > to > > > > > Sophie's appt at 8 am today and she now has her pretty > > > > StarBand!!! She > >

> > > did very well with the fitting. The first time the > orthotist > > put > > > > it on > > > > > she cried really hard, I almost lost it at that point. > After > > > that > > > > > first time on she did really well! I just took it off of > her > > for > > > > her > > > > > nap and I didn't see any red spots for now!!! So I am > praying > > > > this is > > > > > a good fit! Sophie goes today for her cranial therapy, so > her > > > Dr. > > > > will > > > > > check it out too. I am so relieved that this part is over > > with! > > > > Now > > > > > we go out in public! Those who have already been to that > step > > > > know

> > > > > that fear! We'll be fine. I am so glad that we are doing > > this > > > > and the > > > > > orthotist said he thinks 3 months if we get some good > growing > > in > > > > > there. Hopefully she'll grow like a weed!!! Just wanted to > > let > > > > > everyone know we are home and doing good! > > > > > > > > > > Sophie-8months StarBand 5/11 > > > > > MI> > > > > > > > > > For more plagio info

[Guest guest]

Hi Rogene, Thanks for your well wishes. My 2 year E-Day anniversary is coming up next month! I have made great strides and have also had a few setbacks. Still yet, the best thing I ever did was to remove my old ruptured implants. I still have to work at my healing as everyone here can probably attest to that. I hope things are turning around for you as well. Please know that you have been in my thoughts and prayers throughout your ordeal.Rogene S <saxony01@...> wrote: . . . Welcome back . . . Please don't be so scarce! . . .Everyone is important to us!How are YOU doing?Hugs and prayers,Rogene

Bring photos to life! New PhotoMail makes sharing a breeze.

[Guest guest]

Current time: Friday, 2010/05/21, 17:28

Hello Bicyclenutmail-ldn,

Look mate I have absolutely no interest in a war of wits with anyone who

is coming from the position you are so obviously coming from.

Yet I cannot resist this one:

You talk of MY flawed logic and yet did I say anywhere that makes money

from anything ever?

No.

So that's that one.

Try reading first.

Here is another look out!

SOME studies are not scientific but, most and definitely most DRUG STUDIES ARE

SCIENTIFIC. If you wish to argue that fact then that is your own stupid problem.

Get over yourself.

I don't see your second point at all. Oh yeah that is because you don't actually

make one.

duh?

Is there anything else you would like to add?

Oh yes and very grown up, to post a thread with my name as the subject line.

What a moronic thing to do.

You see, it is very telling when faced with 'true believers of so called woo'.

Despite the fact that al I have condoned is proper, reasoned and scientifically

proven methods and yet that is somehow taken to be so wrong.

That tells me a lot.

Almost like religious zealots, the only thing that will make the believers of

pseudo-science actually believe, is when they are so damn unwell that they are

begging for medical doctors to help them.

If they are so stupid that they refuse even at that late stage, then they

unfortunately take the consequences which, in the majority of cases, are not

nice. If you want actual cases let me know, I can provide more than you can

read.

DON'T tell me any different, unless you are going to give me some factual

evidence. I asked for some but instead she chose to evade that and just

go on an attack and defense of her beliefs because I spoke of facts and not

holistic BS nothingness.

so! If you are just going to do the same, ignore fact and believe whatever

nonsense you lie then go for it.

I won't try to change you.

--

Best regards,

Friday, May 21, 2010, 4:44:33 PM, you wrote:

wrote

I think though, one of your most telling and nonsensical statements has to be

the following:

Thursday, May 20, 2010, 8:59:47 PM, you wrote:

>I have more trust for doctors' observations in practice than I do drug

> " studies " which are notoriously biased in a multitude of ways, from out and

>out lying about results to skewed questions about what to study in the

>first place (and there is plenty of information to Google on this).

wrote

" This IN NO WAY means that all scientific studies are flawed.!!! "

Where in 's quote is the word " scientific " ?

Studies and Science are different, yes, some studies are done scientifically,

meaning that they adhere to certain agreed to principles, but NOT all. The

studies that alluded to are those that are frequently done by people

who have a bias toward a given conclusion.

wrote

" You are using a similarly bad logical approach in the next thing you say too:

It was "

>doctors' observations that noticed thalidomide was bad for pregnant women,

>and it was doctors' observations that noticed that children born to women

>taking LDN are exceptionally vigorous. I trust this kind of " folk "

>knowledge more than the medical-industrial sort of knowledge.

just says that she trusts the observations of people on the ground

rather than those not in touch with patients.

wrote

" The amount of cash that is 'extracted' from scammers selling things like the

things you recommend, is abhorrent and I think we should be trying to STROP such

practises, not encourage them. "

Yeah, right, is selling and making lots of money with naltrexone

especially the low dose nalrexone which I buy for about 28 cents per day. Say,

, how much of that 28 cents do you get?

Sterling

[Guest guest]

Firstly, my post was to the group, sorry that it was sent directly to you, my mistake.Secondly, I do not recall dissing you in anyway nor do I recall any any name calling. I just wanted to explain what I thought that meant. Should you wish to make this personal help your self.The amount of cash that is 'extracted' from scammers selling things like

the things you recommend, is abhorrent and I think we should be trying to STROP such practises, not encourage them." Who makes money from what recommends???Should most drug studies be scientific then the results, good or bad, would be published or is it only scientific when the results are favorable?“We found that there was indeed a pattern that favorable studies were more likely to be published than unfavorable trials,†Ida Sim, associate

professor of internal medicine at UCSF and the lead author of the analysis, tells Bloomberg

News. “This is something that is essentially structural in the way clinical trial information is disseminated to the public.†Oh, by the way you forgot to answer the questions that I posed. Sterling>I have more trust for doctors' observations in practice than I do drug>"studies" which are notoriously biased in a multitude of ways, from out and>out lying about results to skewed questions about

what to study in the>first place (and there is plenty of information to Google on this). wrote"This IN NO WAY means that all scientific studies are flawed.!!!"Where in 's quote is the word "scientific"?Studies and Science are different, yes, some studies are done scientifically, meaning that they adhere to certain agreed to principles, but NOT all. The studies that alluded to are those that are frequently done by people who have a bias toward a given conclusion. wrote"You are using a similarly bad logical approach in the next thing you say too:It was">doctors' observations that noticed thalidomide was bad for pregnant women,>and it was doctors' observations that noticed that children born to women>taking LDN are exceptionally vigorous. I trust this kind of "folk">knowledge more than the medical-industrial sort of knowledge. just

says that she trusts the observations of people on the ground rather than those not in touch with patients. wrote"The amount of cash that is 'extracted' from scammers selling things like the things you recommend, is abhorrent and I think we should be trying to STROP such practises, not encourage them."Yeah, right, is selling and making lots of money with naltrexone especially the low dose nalrexone which I buy for about 28 cents per day. Say, , how much of that 28 cents do you get?Sterling