Fwd: Support Group Messages 3.14.2006

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Dearest Support Group Friends ...

I was just watching "The Constant Gardener" again ... I highly recommend it.

It's haunting.

When it was first released, several of you wrote me because it seems to mirror our issue in so many ways.

May God protect all of us who speak out about and all harmed by the breast implant issue.

This statement too, sounded like it came from our cause:

"the trials were fixed ...

whenever we had a side-effect, they made us change the rules to exclude these patients ...

it became the test that could not fail ..."

How do they still get away with this? As many of you know, women in other breast implant so called studies, including Mentor's, were removed from the study when the removed their breast implants. Therefore, that data was totally skewed and unreliable.

It's still not over. The FDA has not 'ruled' and I truly believe we can still stop them from making an error of the magnitude the breast implant industry is lobbying for.

We have many new members and several requests ... please write them directly and feel free to copy me.

I've just had a moment to glance at this beautiful new Christian breast implant survivor website. I do not know the author.

What I read I found very inspiring. Best wishes to her on her new site.

http://mhtyministry.home.mindspring.com/

At the bottom on this message is very important information from a few of our members about the pharmaceutical/quackwatch industry working to get bioidentical hormones outlawed. I've watched the PR teams gearing up in harassing the doctors who support anything different that pharma industry hormones. Please take a moment to check this issue out.

I wanted to comment to that I am very, very behind on email and phone messages with a very complex schedule right now. I try to get back to all our 'new women' immediately, yet I realize some messages are going unanwered. Please bear with me ... I'm doing the best I can.

With love to all,

Ilena

www.BreastImplantAwareness.org

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From: Gail Hamilton

'Ilena Rose'

Sent: Tuesday, March 14, 2006 12:47 PM

Subject: what is a "booked" implant?

Hello Ilena,

Would you please post this to the group?

I am trying to cure a deficiency on my rupture claim. I had visited the surgeon twice in the two weeks prior to explant because of severe breast pain against the chest wall and underarm pain and pain shooting down my arms and legs. Her report on those visits only says, “I can’t see anything wrong, the implant may be booked, remind me to try and save the implants for her.”

The doctor says the “implant ruptured on removal & all silicone was copiously cleansed within the scar tissue and no significant silicone remained at the site.” The scar tissue was not removed at explant. She did not request a pathology report on the implants and discarded one implant in the o.r. She wrote to me, “it was a simple removal and pathology was not needed.” “One implant was too ruptured to be returned to you.”

I continued to have pain complaints. A different surgeon who took a “lets wait & see” attitude after reading “no silicone left at the site,” -two years after I first saw him about a lump in my breast, he removed a “large gelatinous lump consistent with silicone” along with the scar capsule. Pathology confirmed siliconoma.

I’m at my wit’s end trying to get this rupture claim approved. In order to qualify for the rupture claim the implant must be proven to be ruptured Prior to explant and not ‘ruptured during removal.”

My implants were 20 years old and had been subject to closed and open capsulotomies and mammograms before the final explant with no replacements.

The explant surgeon had a conflict of interest in writing a rupture report as she continued doing silicone implants after they were banned by using a clinic in the Cayman Islands where FDA laws aren’t in effect. I have a dated copy of a ½ page newspaper ad promoting her silicone implant clinic long after the ban.

My question to the group is- what is BOOKED? Is it folded? If so, is the crease a rupture? Help!

I look forward to any information anyone can send me.

Once again, thanks for your help Ilena! I couldn’t have survived this ordeal without you and the group.

Lots of love & warm hugs to all of you, Gail

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From: Cdulincarol@...

ilena@...

Sent: Sunday, February 26, 2006 4:27 PM

Has there ever been a settlement of the issue of breast implants? I have had implants for 30 years and would like to have them removed. Please help.

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HI, My name is Toni. I am 50 years old. I had breast implants over 15 years ago, they ruputured about 10 year ago, I had silicone put back in.. Some silicone had leaked under my arm, the surgeon said he had a hard time getting it out under my arm. FOr years it has just felt hard in that area. THe last 3 years, my skin was red although, no problem, the area is a about 1 inch by 4 inches. Well for the last several months it is acting like a foriegn body wanting to come out on its own. It is really gross, a area about the size of a dime, its definately silicone, I feel no pain in that area. I know I need to go to the doctor for surgery. Has any one else had this problem? THe doctor says he will do like a partial mastectomy to get all that out. I have had no other health problems, I don't feel it has leaked to other parts of my body. I guess I just wanted to talk to someone that maybe has had this happen to them. Thanks , My e-mail address is

toni.malguin@...

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From: dpettitt@...

Ilena and Rogene:

I am working on a class action with an attorney in New Orleans for saline breast implants patients. This is structured with both implant manufacturers in mind. The majority of the settlement will be for research and development.

The research involves studying biomarkers in the blood of women who present with The Sick Silicone Syndrome and to develop a screening method before women get implants. We need all of the women we can find to participate in the class action to fund this much needed research. Women who become a part of this class action settlement will not personally gain financially. If the FDA and the NIH will not fund these essential studies we must create a way to perform this much needed research. We have the laboratories on board and the scientific panel. We just need funding.

This will change the way plastic surgeons inform their patients and a mandate for this essential screening test prior to implantation. With this much needed testing, patients will be well informed about the potential side effects relating to their operation and health consequences. This will also develop a much needed implant registry. Saline implants have little attention related to illness. Most of the research focuses on the silicone rupturing causing illness. In actual fact, as we are all aware, silicone is silicone. It is present in the shell regardless of the content inside.

We have started and will continue to inform women and change lives with all of these support groups. WOMEN HELPING WOMEN! I will email you with more information as it becomes available.

Please have women who are interested email LIZ. Her address is liz@....

www.everything-spiritual.com Deborah A. Pettitt, RN, BSN, CCRAYork Clinical ConsultingDirector Of Women's HealthWK: (504) 866-2060FX: (504) 866-0888CELL: 1-888-473-5273

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From our dear friend, Suz Ayers ... she added: Lee will appreciate any and all cards that she gets. They were married about 40 years. They were still in love, something very rare.

Group Leaders husband dies

Lee was the loving untiring caring group leader of Florida. Her territory also extended way beyond this. worked for the breast implant cause for years spending her own and her generous husbands money to help woman far and wide. I cannot tell you all they did but it included sponsoring conventions, making trips to DC, weekly meetings that hosted upward to sixty women. Not to mention counseling individually each and every person who asked for help. Sometimes this involved personally paying there living expenses doctor bills etc. Mark helped her and supported the cause every step of the way.

They retired a few years ago and moved from ville FL to Woodbine GA. where Mark continued to work .

Mark passed away unexpectedly on Mon. Feb. 20th.

Memorial services are Sat. Feb. 25th 2006 at 2:00 pm at Corey-Kerlin Funeral Home, 1426 Rowe Avenue, ville, Florida. (904) 768 2596. Reverend L. Ham of St. s Georgia will be offering the service.

contact info:

MARY LEE TAYLOR

333 LIGHTHOUSE CIRCLE

WOODBINE, GA 31569

HOME (912) 576 2525/ CELL (904) 859 4061/ FAX (912) 673 1531

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http://tortcomm.org/newsletter_060224.shtml

New Electronic Newsletter from Dow Bankruptcy ... important details and dates

http://www.capwiz.com/now/mail/oneclick_compose/?alertid=7661036

Current Petition to the FDA

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http://www.oudaily.com/vnews/display.v/ART/2006/03/08/440fa14ea2e8b

Excerpts:

Not once do I remember articles encouraging me to be who God created, not the ideal set by Hollywood and pageants. Eight years later, after graduating, I was implanted with D-cup boobs, which were huge on my tiny frame.

From the beginning I started to have weird rashes, mouth ulcers and chronic sinus infections. I suffered with chronic pain in my right breast and have permanently lost feeling on the same side.

After three years of misery, I had them taken out. The total of my surgeries (three to be exact: implanting, lift for pain, explant) is more than $13,000.

(there's a place for comments on the website)

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http://www.thedesertsun.com/apps/pbcs.dll/article?AID=/20060309/LIFESTYLES03/603090333/1006

EXCERPTS: The implants were "like a water bed," she recalled. "They ruptured and leaked."

A second set of implants also ruptured, and a year and a half ago, Hainline decided to go flat - with one final operation to remove as much scar tissue as possible.

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From: A. Mohr

healer@...

Sent: Friday, February 24, 2006 12:38 PM

Subject: Preserve Choice in Women's Health Care

I thought you might be interested in taking part in this campaign to protect and expand the rights of natural health consumers.Take action now at http://www.democracyinaction.org/Citizens/campaign.jsp?campaign_KEY=2705

FDA trying to stop bioidentical hormones for women, urgent action needed by April 4th. YOUR assistance is needed now! Inbox

Monday

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Feb 2

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Hi Everyone,

Here is my letter to the FDA. Please write in by email or snail mail. Follow the link from the article below. I have forwarded this to my attorney who I suspect will file suit should this go through, he is a very well known and has a track record of suing alphabet agencies and winning.

Please forward this to everyone on your email list. The drug companies and other big corporations are running our country, we need to stop them. Laying down and doing nothing will only take us one step closer to having no health care freedom and ulitmately NO freedom. We must fight to keep our rights or we will lose them. Do you choose to have the right to take the vitamins or drugs you need? Are you the owner of your own body?

http://drerikav2.metacanvas.com/EN/resource/wyeth_bioidentical_controversy.html

http://www.worldhealth.net/p/stop-wyeth-and-the-fda-from-denying-your-right-to-choose-bio-identical-hormones-2006-01-25.html

www.BreastImplantAwareness.org