Entocort users please advise

[Guest guest]

Hi all,

My six year old son was put on Entocort by Dr. K and we are just finishing our

first month.

Dr. K has advised us to continue using for a total of three months. I have a

couple of

concerns and want to get opinions: First, how long before you saw results? My

son just

started having a formed bowel movement a few days ago but I can't assume it is

from the

Entocort and that it is going to continue. Second, I think we are experiencing

" moon face "

because my son looks very bloated in the face. Is anyone experiencing this? We

have been on

Pentasa for a year and just had our one year check up with Dr. K. He wants to

keep

everything the same and continue Entocort for three months before deciding if it

is not

helping. My mommy " gut " is telling me to stop the Entocort because most of my

son's gut

problems are bacteria related and I am not a fan of long term steroid use. I

really need to

know what others are experiencing with Entocort. Please feel free to e-mail me

off group.

Also, my son is hungry hungry hungry.

Thanks,

Dayna

[Guest guest]

Hi Dayna,

My 2 year old is on Entocort and we're just finishig our first month

too. For us, we saw an immediate reduction in her pain - she slept

through the night the first day we started it.

I'm a pharmacist as well, so I hope I can help you figure out what

might be happening with your son. What is the dose he's taking?

There are some medications and foods that can interact with

Entocort. Is he on any of the following: prescription antifungals,

cyclosporine, or erythromycin? Does he eat grapefruit or drink

grapefruit juice?

The Entocort isn't supposed to become systemic, as it is meant to

work locally within the gut and become processed by the liver in a

way that it doesn't get absorbed into the bloodstream very much. But

as we all know, these process don't always work like they're supposed

to in our kids. If you are seeing the moon-face, and he isn't on any

other steroid that could be causing it and isn't on the above

medications or eating grapefruit, then for some reason it sounds like

the Entocort is getting into his system in a much higher level than

it should be. Perhaps it's not being inactivated properly by the

liver? Have you had a liver function test or liver enzyme levels

done recently? Is he on any liver support, like milk thistle or

liverlife? Or perhaps he just has a really leaky gut and the

Entocort is getting through before being metabolized?

Hope I can help,

Sheri

>

> Hi all,

>

> My six year old son was put on Entocort by Dr. K and we are just

finishing our first month.

> Dr. K has advised us to continue using for a total of three months.

I have a couple of

> concerns and want to get opinions: First, how long before you saw

results? My son just

> started having a formed bowel movement a few days ago but I can't

assume it is from the

> Entocort and that it is going to continue. Second, I think we are

experiencing " moon face "

> because my son looks very bloated in the face. Is anyone

experiencing this? We have been on

> Pentasa for a year and just had our one year check up with Dr. K.

He wants to keep

> everything the same and continue Entocort for three months before

deciding if it is not

> helping. My mommy " gut " is telling me to stop the Entocort because

most of my son's gut

> problems are bacteria related and I am not a fan of long term

steroid use. I really need to

> know what others are experiencing with Entocort. Please feel free

to e-mail me off group.

> Also, my son is hungry hungry hungry.

>

> Thanks,

> Dayna