Re: herpes virus with incontinence and valtrex tolerqnce build up

[Guest guest]

,

I am curious whether you have tried any antifungal treatments in the

past and especially in conjunction with Valtrex -- antifungals are

critical for many on Valtrex, as is a low carb diet to prevent further

fungal i.e. yeast overgrowth. Yeast is damaging to our kids.

Others can chime in or please search this board for the words diflucan

or nizoral.

Also, you you have any knowledge of his Lyme Disease status or can you

obtain an Igenex test? Lyme is known to damage nerves that signal the

bladder.

Good luck.

>

> Hi All,

>

> I am new to this group. My son is 15 yrs old. he always broke out in

the herpes simplex 1 ( non sexual type) since he was 18 mths of age. we

do not know how he contacted it but was told it could have been

anywhere i.e. shopping cart at grocery store. he had it in his .....

[Guest guest]

The SCD (Specific Carbohydrate Diet) worked wonders in this area, for

my daughter.

>

> Hi All,

>

> I am new to this group. My son is 15 yrs old. he always broke out in

the herpes simplex 1 ( non sexual type) since he was 18 mths of age.

we do not know how he contacted it but was told it could have been

anywhere i.e. shopping cart at grocery store. he had it in his eye and

in cluster on lower back, face and neck. At 13 years old he had a

breakout then shortly became urinary incontinent. no bladder sensation

whatsover. millions of tests at childrens hospital and Mass General

nothing came out positve. they wanted it considered a psych case even

thoough the pschologists in the case did not view it as pschological.

Every time I manage to get an appt with a specialist my pedi primary

care doctor would go behind my back and cancel it. My son was out of

school for 5 months. Depends did not work. he would use the bathroom

on an hourly basis and still have an accident shortly after.. during

one hopital stay  I convinced the doctors to try iv steroids as I had

> seen in one case study. It seemed to reduce the symptoms  but they

returned shortly after the steroids were stopped. one adult urologist

said valtrex and iv steroids should have been tried so one attacked

the virus and the other attacked the inflammation. doctors would not

listen to this.I manage to sneak to see an infectious desease doctor

who prescribed valtrex. I monitored the number of accidents with the

3000mg per day and they slowly went away. but every time we reduce the

drug he becomes incontinent again. last year he was out of school 2

months. strangely last sept he broke out on 1850 mg of valtrex became

incontinent, introduce 60 mg per day of  prednisone  and raised the

valtrex back to 2750 mg per day and he regained bladder sensation in 5

days. but then  a month ago he broke out on 2750 mg of valtrex and is

now incontinent. redid the prednisone for 10 days which reduced the

number of accidents but did not regain bladder sensation. I am

> now told there is nothing else to do for my son. that he is

supposed to " deal " with it. He cant go to school. he has been gone to

another state for hypobaric oxygen therapy  which is supposed to  kill

the herpes virus. so far no luck - still no bladder sensation .i have

him on 5000mg of lysine per day plus other antioxidants.

>

> Sorry this is so long but has anyone else dealt with bladder

incontinence with herpes and building up a tolerance to valtrex which

it appears he is doing. I gereatly appreciate any thoughts or

experiences.I am so worried about my son getting very depressed with

this happening to him for the 4th time.

>

> thank you very much

> mary

>