Guest guest Posted June 25, 2003 Report Share Posted June 25, 2003 Hi ! You should tell the ped. that he may as well refer you to a neuro today vs after his CTscan because there's often a lenghty wait to get into a neuro office (often a month or more!). What's the big deal ped? Right? Do you have insurance? If so, have they denied coverage of a band and why? I hope his amnio acid tests come back ok, how stressful for you right now!! Hang in there, things will all work out Debbie Abby's mom DOCGradTraTreeMac@... wrote: It's me again....We took our 9-½ month old son to his pediatrician on Monday. We demanded to see a neurosurgeon and they said they need to take CT Scan first? He will have that done in two weeks...then what? I told them we want Dr. in Sacto to see my son since he is a very reputable pediatric neurosurgeon in the area. I also found out that the cost of the StarBand helmet is $2,200 up front, which we can't afford now and know we can't wait much longer due to his age. This is so stressful, plus he had his amino acids checked because his sweat smells like vinegar/dirty socks! We won’t know the results on that until next week. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2003 Report Share Posted June 26, 2003 Hi, I second what Debbie said. Try to get in now. > It's me again.... > > We took our 9-½ month old son to his pediatrician on Monday. We demanded to see a neurosurgeon and they said they need to take CT Scan first? He will have that done in two weeks...then what? I told them we want Dr. in Sacto to see my son since he is a very reputable pediatric neurosurgeon in the area. I also found out that the cost of the StarBand helmet is $2,200 up front, which we can't afford now and know we can't wait much longer due to his age. This is so stressful, plus he had his amino acids checked because his sweat smells like vinegar/dirty socks! We won’t know the results on that until next week. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2003 Report Share Posted June 27, 2003 - They may want to do a CT scan to rule out cranio, which is pretty normal for most of this process, although not always typical (we didn't have that done, but many have and it was not cranio, just more of a ruling out procedure). I hope that you will have already gotten that referral to the nuero you want, get that and the appt. all taken care of so that the ball is rolling, some have had to wait a month or two just to get in. From there, either go with his recommendation or if your not satisfied, you can ask your ped directly for a rx for the STARband- esp. as time is becoming a factor the older your little one gets. Some peds may want the nuero to do that, but it really depends on your Doctor, ours did it with our pushing as many others have had to do as well. Good luck to you and please keep us posted on your journey. ' mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2005 Report Share Posted March 18, 2005 Hi , So sorry to hear you have to through this difficult time of wondering what's going on with your health. I'm glad you're seeing a rheumatologist so soon. I'm sure that he or she will be able to help you feel better--whatever it is you're dealing with. Take care. Sierra > > > I got a call from my doctor yesterday. She had ordered a blood panel > to rule out arthritis as the cause for my fatigue, joint and muscle > pain. It came back with high RF and ESR levels, and she has referred > me to a rheumatologist. I go in April 8th. > > I've done some online research, and I'm trying to stay upbeat about > this, but I'm nervous. The doctor's assistant (who I spoke to over > the phone) refused to give me any information, including the levels, > but said the RF is high and ESR " elevated " . What can cause this? > I've been in quite a bit of pain lately, and it does come and go (the > last few months have been the worst, though). > > I'm 37 and have a toddler. I assumed the pain was due to my age and > having to chase my daughter around, combined with stress. I have had > some heart issues in the past that are, for the most part, > undiagnosed, and did suffer kidney failure during my pregnancy > (preeclampsia). I just haven't been " right " since then. I also have > been getting a rash on my face, worse on the right than the left, > that is worse in summer and starts on the inside of my cheeks and up > the side of my nose, sometimes meeting and then going up to my > forehead. This began about 7 years ago, when a lot of my off and on > health " issues " began, and in the last year has gotten progressively > worse. So, of course I'm worried about lupus now, too. > > Am I freaking out about nothing? > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2005 Report Share Posted March 18, 2005 Hi , I'm sorry that you are so nervous about what disease you might have. A high RF and elevated ESR are not specific to any one rheumatic disease, so you can't begin to guess what your problem is. But you do have a right to see your lab results. I always get a copy of mine, and if there's something on there that I don't know about, I look it up on the Internet. Of course having the results is not going to easy your worry any. At least you don't have long to see a rheumatologist. Sometimes the wait is six months to see one, so you're lucky in that respect. If lupus is suspected, I think they do a blood test called ANA. When and a, our moderators, see your message, they will point you to some good research about RA and other rheumatic diseases. I certainly did not expect to get a diagnosis of rheumatoid arthritis five years ago. I didn't even know it was in my family, but later found out that my mother's sister had it. I thought that she had osteoarthritis, which is bad enough, but it was RA. She just didn't talk about it much, and she wore long sleeves to hide the nodules on her elbows. But today there are better medications than in the past. I am on Enbrel, one of the biologics, and it's working very well for me. This is a very supportive group, and we know what you're going through. We understand your concerns. Hang in there until you see the rheumatologist, and you're sure to get some answers then. Sue On Friday, March 18, 2005, at 09:11 PM, tandarat wrote: > > I got a call from my doctor yesterday. She had ordered a blood panel > to rule out arthritis as the cause for my fatigue, joint and muscle > pain. It came back with high RF and ESR levels, and she has referred > me to a rheumatologist. I go in April 8th. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2005 Report Share Posted March 19, 2005 ----- Original Message ----- From: " tandarat " <mflinder@...> > I got a call from my doctor yesterday. She had ordered a blood panel to rule out arthritis as the cause for my fatigue, joint and muscle pain. It came back with high RF and ESR levels, and she has referred me to a rheumatologist. I go in April 8th. You are lucky to get an appointment so soon. > I've done some online research, and I'm trying to stay upbeat about this, but I'm nervous. The doctor's assistant (who I spoke to over the phone) refused to give me any information, including the levels, but said the RF is high and ESR " elevated " . What can cause this? I've been in quite a bit of pain lately, and it does come and go (the last few months have been the worst, though). Few doctors' offices will give out any info on the phone anymore because of the HIPPA laws. > I'm 37 and have a toddler. I assumed the pain was due to my age and having to chase my daughter around, combined with stress. 37 is pretty young for having so many problems. I'm sorry you're having to deal with that. > Am I freaking out about nothing? It's natural to freak out, but try not to. Easier said than done, I know! Stress will just make you feel worse. And it won't get you the answers any faster. I suggest you just keep researching and write down any questions you have for the doc at your time of visit (if I don't write them down, I tend to stress out and forget to ask them). Please ask here if you have questions you think we might be able to answer and please do keep us posted on what the doc says. Nina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2006 Report Share Posted March 23, 2006 I've made an appointment with Dr. Melmed here in Dallas for 4/4 and now wondering what's next! Do I do a detox before I go for consultation or get more antibiotics or just try to stay alive till then. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2006 Report Share Posted March 23, 2006 , Anything you can do now to start detoxing should help you recover after explant . . . Following an excellent diet is very, very important . . . Eliminate sugar and processed foods for starters! . . . This can be tough at first, so I'd suggest taking a look at your diet and deciding what you can change, one food item at a time until you're on a really healthy diet. The Maker's Diet is an excellent book. Hugs and prayers, Rogene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2006 Report Share Posted March 23, 2006 Rogene, It's funny...I've been a blood-hound for the past few yrs on finding what works well for my body. I started all the "good" diet stuff many yrs ago. No sugar, no alcohal, no processed food, very little meat, no bread mainly fruits and vegys. I drink soy protein in the mornings and faithful with all my supplemental vitamins. Probably would have gotten sicker sooner had I not changed my diet several years ago. But having done all that....I still feel sick. After finding all the info about these implants I am blown away at just how sick I may REALLY be and not even know it. I haven't had problems with my implants, I just haven't felt good, tired, depressed, bla, bla, bla...for several YEARS! Good Grief! They never told me nor did I ever imagine I'd ever have to have them replaced/removed! gees...."if I'd known then..." About 5 months ago I went to the health food store and bought a 7-day detox/clease and felt Great for about a week, then I started feeling bad again. I knew then...something "within" is making me sick. Thanks, Rogene S <saxony01@...> wrote: ,Anything you can do now to start detoxing should helpyou recover after explant . . . Following an excellentdiet is very, very important . . . Eliminate sugar andprocessed foods for starters! . . . This can be toughat first, so I'd suggest taking a look at your dietand deciding what you can change, one food item at atime until you're on a really healthy diet. The Maker's Diet is an excellent book.Hugs and prayers,Rogene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2006 Report Share Posted March 23, 2006 , Are you taking any probiotics? . . . Most of the women we see have a systemic fungal/yeast/Candida problem. . .. Whether from a suppressed immune system, the medications they've taken while ill, or stuff coming from the implants. . . There is a unscientific test for fungus/yeast/Candida. .. . First thing in the morning, before putting anything in your mouth, spit in a glass of water. Check it after 15 minutes. If it's clear, you pass. If there's a milky blob with tendrils hanging down, particles floating, or a milky blob at the bottom of the glass, you could have a problem. I've found this test tracks very well with how closely I follow a sugar-free diet and take probiotics. I'd suggest one bottle of Fungal Defense followed by Primal Defense indefinitely. . . The best prices can be had by faxing, phoning or emailing the folks at www.appleadayandbeyond.com. Also good are naturally fermented foods and acidopholis. I posted a recipe for organic sauerkraut the other day. It's really good! Rubin suggests eating a tablespoon of raw kraut a day. Since you've been following a healthy diet for some time, chances are good you'll bounce back soon after explant. Until those toxic bags are out though, you'll do well just to keep your head above water! Another sign that it's the implants that are making you sick! There is some thought that soy has become a bad food though . . . They have genetically altered natural soy until it's not the same product. Whole grains are fine . . . In fact, you need them! - just skip the refined grains. Hugs and prayers, Rogene --- allen <linallentx@...> wrote: > Rogene, > It's funny...I've been a blood-hound for the past > few yrs on finding what works well for my body. I > started all the " good " diet stuff many yrs ago. No > sugar, no alcohal, no processed food, very little > meat, no bread mainly fruits and vegys. I drink soy > protein in the mornings and faithful with all my > supplemental vitamins. Probably would have gotten > sicker sooner had I not changed my diet several > years ago. > But having done all that....I still feel sick. > After finding all the info about these implants I am > blown away at just how sick I may REALLY be and not > even know it. > I haven't had problems with my implants, I just > haven't felt good, tired, depressed, bla, bla, > bla...for several YEARS! Good Grief! They never > told me nor did I ever imagine I'd ever have to have > them replaced/removed! gees.... " if I'd known > then... " > About 5 months ago I went to the health food > store and bought a 7-day detox/clease and felt Great > for about a week, then I started feeling bad again. > I knew then...something " within " is making me sick. > Thanks, > > Rogene S <saxony01@...> wrote: > , > > Anything you can do now to start detoxing should > help > you recover after explant . . . Following an > excellent > diet is very, very important . . . Eliminate sugar > and > processed foods for starters! . . . This can be > tough > at first, so I'd suggest taking a look at your diet > and deciding what you can change, one food item at a > time until you're on a really healthy diet. > > The Maker's Diet is an excellent book. > > Hugs and prayers, > > Rogene > > > > Opinions expressed are NOT meant to take the place > of advice given by licensed health care > professionals. Consult your physician or licensed > health care professional before commencing any > medical treatment. > > " Do not let either the medical authorities or the > politicians mislead you. Find out what the facts > are, and make your own decisions about how to live a > happy life and how to work for a better world. " - > Linus ing, two-time Nobel Prize Winner (1954, > Chemistry; 1963, Peace) > > See our photos website! Enter " implants " for access > at this link: > http://.shutterfly.com/action/ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2006 Report Share Posted March 23, 2006 Ok...It's the GNC soy protein I mix with my coffee in the mornings, but it looks like that has to stop too. Thanks, I'll start tomarrow!glory2glory1401 <glory2glory1401@...> wrote: ,Are you still drinking soy milk or taking soy protein?I used to drink soy milk until I realized it was one of the culprits in making me feel so poorly! I had always read about the wonderful benefits of soy, so I never suspected it....until I realized I had a thyroid issue...and then I got educated about how bad soy is for those with thyroid issues!I would highly recomnmend that you do a trial period and stop ALL soy products completely. Focus on eating healthy (no sugars, no processed junk foods, no soda, caffeine, alcohol, etc.) and see if you feel any better. Soy is depressive of thyroid function, so even if you are not diagnosed with hypothyroidism or Hashimoto's, soy could still be affecting your thyroid in a negative manner and can make you feel sick or lethargic.I avoid soy like the plague now!If I do eat it, I notice that I feel lethargic pretty quick, so it is not worth it to me to even bother with it.Patty> ,> > Anything you can do now to start detoxing should help> you recover after explant . . . Following an excellent> diet is very, very important . . . Eliminate sugar and> processed foods for starters! . . . This can be tough> at first, so I'd suggest taking a look at your diet> and deciding what you can change, one food item at a> time until you're on a really healthy diet. > > The Maker's Diet is an excellent book.> > Hugs and prayers,> > Rogene> > > > Opinions expressed are NOT meant to take the place of advice given by licensed health care professionals. Consult your physician or licensed health care professional before commencing any medical treatment. > > "Do not let either the medical authorities or the politicians mislead you. Find out what the facts are, and make your own decisions about how to live a happy life and how to work for a better world." - Linus ing, two-time Nobel Prize Winner (1954, Chemistry; 1963, Peace)> > See our photos website! Enter "implants" for access at this link:> http://.shutterfly.com/action/> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2006 Report Share Posted March 23, 2006 , You are far from alone, brain fog seems to be quite common among implanted women. It took about four months post implant for it to hit me, and when it did, it hit hard. It seemed like my symptoms progressed very quickly. My brain in much clearer these days. One noticable difference is that last semester, I had a hard time comprehending just about all of the lessons I was learning in school (I'm 45 and have been attending full-time college since June). I had the implants out in November, and this semester I am getting 93%, 100%, even 109% on my tests. Last semester I got a 65 on my mid-term in Accounting I. This semester I got a 93 on my mid-term in Accounting II. Somehow I still managed to make the Deans list, but last semester I had to work extremely hard for it, where this semester it is so much easier. So, even though at this point my body is still struggling, my brain is much clearer. Sis > > , > > > > Anything you can do now to start detoxing should help > > you recover after explant . . . Following an excellent > > diet is very, very important . . . Eliminate sugar and > > processed foods for starters! . . . This can be tough > > at first, so I'd suggest taking a look at your diet > > and deciding what you can change, one food item at a > > time until you're on a really healthy diet. > > > > The Maker's Diet is an excellent book. > > > > Hugs and prayers, > > > > Rogene > > > > > > > > Opinions expressed are NOT meant to take the place of advice given > by licensed health care professionals. Consult your physician or > licensed health care professional before commencing any medical > treatment. > > > > " Do not let either the medical authorities or the politicians > mislead you. Find out what the facts are, and make your own > decisions about how to live a happy life and how to work for a > better world. " - Linus ing, two-time Nobel Prize Winner (1954, > Chemistry; 1963, Peace) > > > > See our photos website! Enter " implants " for access at this link: > > http://.shutterfly.com/action/ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2006 Report Share Posted March 23, 2006 , Rubin recommends goat milk . . . I found a Walmart that carries it . . . It's wonderful! . . . very rich tasting without the calories of milk. Hugs, Rogene --- allen <linallentx@...> wrote: > Ok...It's the GNC soy protein I mix with my coffee > in the mornings, but it looks like that has to stop > too. > Thanks, I'll start tomarrow! > > glory2glory1401 <glory2glory1401@...> wrote: > , > Are you still drinking soy milk or taking soy > protein? > > I used to drink soy milk until I realized it was one > of the culprits > in making me feel so poorly! I had always read > about the wonderful > benefits of soy, so I never suspected it....until I > realized I had a > thyroid issue...and then I got educated about how > bad soy is for > those with thyroid issues! > > I would highly recomnmend that you do a trial period > and stop ALL > soy products completely. Focus on eating healthy > (no sugars, no > processed junk foods, no soda, caffeine, alcohol, > etc.) and see if > you feel any better. > > Soy is depressive of thyroid function, so even if > you are not > diagnosed with hypothyroidism or Hashimoto's, soy > could still be > affecting your thyroid in a negative manner and can > make you feel > sick or lethargic. > > I avoid soy like the plague now! > If I do eat it, I notice that I feel lethargic > pretty quick, so it > is not worth it to me to even bother with it. > Patty > > > > , > > > > Anything you can do now to start detoxing should > help > > you recover after explant . . . Following an > excellent > > diet is very, very important . . . Eliminate sugar > and > > processed foods for starters! . . . This can be > tough > > at first, so I'd suggest taking a look at your > diet > > and deciding what you can change, one food item at > a > > time until you're on a really healthy diet. > > > > The Maker's Diet is an excellent book. > > > > Hugs and prayers, > > > > Rogene > > > > > > > > Opinions expressed are NOT meant to take the place > of advice given > by licensed health care professionals. Consult your > physician or > licensed health care professional before commencing > any medical > treatment. > > > > " Do not let either the medical authorities or the > politicians > mislead you. Find out what the facts are, and make > your own > decisions about how to live a happy life and how to > work for a > better world. " - Linus ing, two-time Nobel Prize > Winner (1954, > Chemistry; 1963, Peace) > > > > See our photos website! Enter " implants " for > access at this link: > > http://.shutterfly.com/action/ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2006 Report Share Posted March 23, 2006 I definitely think soy made my thyroid problems worse, and I was so unsuspecting for so long. Lynda At 05:34 PM 3/23/2006, you wrote: >, >Are you still drinking soy milk or taking soy protein? > >I used to drink soy milk until I realized it was one of the culprits >in making me feel so poorly! I had always read about the wonderful >benefits of soy, so I never suspected it....until I realized I had a >thyroid issue...and then I got educated about how bad soy is for >those with thyroid issues! > >I would highly recomnmend that you do a trial period and stop ALL >soy products completely. Focus on eating healthy (no sugars, no >processed junk foods, no soda, caffeine, alcohol, etc.) and see if >you feel any better. > >Soy is depressive of thyroid function, so even if you are not >diagnosed with hypothyroidism or Hashimoto's, soy could still be >affecting your thyroid in a negative manner and can make you feel >sick or lethargic. > >I avoid soy like the plague now! >If I do eat it, I notice that I feel lethargic pretty quick, so it >is not worth it to me to even bother with it. >Patty > > > > , > > > > Anything you can do now to start detoxing should help > > you recover after explant . . . Following an excellent > > diet is very, very important . . . Eliminate sugar and > > processed foods for starters! . . . This can be tough > > at first, so I'd suggest taking a look at your diet > > and deciding what you can change, one food item at a > > time until you're on a really healthy diet. > > > > The Maker's Diet is an excellent book. > > > > Hugs and prayers, > > > > Rogene > > > > > > > > Opinions expressed are NOT meant to take the place of advice given >by licensed health care professionals. Consult your physician or >licensed health care professional before commencing any medical >treatment. > > > > " Do not let either the medical authorities or the politicians >mislead you. Find out what the facts are, and make your own >decisions about how to live a happy life and how to work for a >better world. " - Linus ing, two-time Nobel Prize Winner (1954, >Chemistry; 1963, Peace) > > > > See our photos website! Enter " implants " for access at this link: > > > <http://.shutterfly.com/action/>http://.shutterfly.com\ /action/ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2006 Report Share Posted March 24, 2006 Patty that's interesting - I was eating soybeans last week and feeling horrible. I do have thyroid problems and recently started taking Westhroid. I'll have to do a test. thanks - by the way, I don't think my messages ever posted when we were talking about my adding my doc. I will give him a call and ask some more questions before giving you his info. Do you have suggestions for questions? My main question I guess would be whether or not he would RECOMMEND or INSIST on a total capsulectomy for all explant patients. Would you suggest I ask him to check out our group? Or do you think that would not be a good thing? Cherie > > > , > > > > > > Anything you can do now to start detoxing should help > > > you recover after explant . . . Following an excellent > > > diet is very, very important . . . Eliminate sugar and > > > processed foods for starters! . . . This can be tough > > > at first, so I'd suggest taking a look at your diet > > > and deciding what you can change, one food item at a > > > time until you're on a really healthy diet. > > > > > > The Maker's Diet is an excellent book. > > > > > > Hugs and prayers, > > > > > > Rogene > > > > > > > > > > > > Opinions expressed are NOT meant to take the place of advice given > >by licensed health care professionals. Consult your physician or > >licensed health care professional before commencing any medical > >treatment. > > > > > > " Do not let either the medical authorities or the politicians > >mislead you. Find out what the facts are, and make your own > >decisions about how to live a happy life and how to work for a > >better world. " - Linus ing, two-time Nobel Prize Winner (1954, > >Chemistry; 1963, Peace) > > > > > > See our photos website! Enter " implants " for access at this link: > > > > > <http://.shutterfly.com/action/>http://.shu tterfly.com/action/ > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2006 Report Share Posted March 24, 2006 Rogene, Here is a warning, that my husband pointed out to me with the goat's milk I have been buying. Periwinkle Swiss Goat's Milk has a aluminum foil lined container. I never thought much about that until one day I mentioned to him that it tasted metallic. He is an observant man sometimes. Anyway I will be looking for another brand. LRogene S <saxony01@...> wrote: ,Rubin recommends goat milk . . . I found a Walmartthat carries it . . . It's wonderful! . . . very richtasting without the calories of milk.Hugs,Rogene--- allen <linallentx@...> wrote:> Ok...It's the GNC soy protein I mix with my coffee> in the mornings, but it looks like that has to stop> too.> Thanks, I'll start tomarrow!> > glory2glory1401 <glory2glory1401@...> wrote:> ,> Are you still drinking soy milk or taking soy> protein?> > I used to drink soy milk until I realized it was one> of the culprits > in making me feel so poorly! I had always read> about the wonderful > benefits of soy, so I never suspected it....until I> realized I had a > thyroid issue...and then I got educated about how> bad soy is for > those with thyroid issues!> > I would highly recomnmend that you do a trial period> and stop ALL > soy products completely. Focus on eating healthy> (no sugars, no > processed junk foods, no soda, caffeine, alcohol,> etc.) and see if > you feel any better. > > Soy is depressive of thyroid function, so even if> you are not > diagnosed with hypothyroidism or Hashimoto's, soy> could still be > affecting your thyroid in a negative manner and can> make you feel > sick or lethargic.> > I avoid soy like the plague now!> If I do eat it, I notice that I feel lethargic> pretty quick, so it > is not worth it to me to even bother with it.> Patty> > > > ,> > > > Anything you can do now to start detoxing should> help> > you recover after explant . . . Following an> excellent> > diet is very, very important . . . Eliminate sugar> and> > processed foods for starters! . . . This can be> tough> > at first, so I'd suggest taking a look at your> diet> > and deciding what you can change, one food item at> a> > time until you're on a really healthy diet. > > > > The Maker's Diet is an excellent book.> > > > Hugs and prayers,> > > > Rogene> > > > > > > > Opinions expressed are NOT meant to take the place> of advice given > by licensed health care professionals. Consult your> physician or > licensed health care professional before commencing> any medical > treatment. > > > > "Do not let either the medical authorities or the> politicians > mislead you. Find out what the facts are, and make> your own > decisions about how to live a happy life and how to> work for a > better world." - Linus ing, two-time Nobel Prize> Winner (1954, > Chemistry; 1963, Peace)> > > > See our photos website! Enter "implants" for> access at this link:> > http://.shutterfly.com/action/> > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2006 Report Share Posted March 24, 2006 Interesting . . . the brand I bought was in a carton like half-gallon milk! . . . I wonder why they would use aluminum? Rogene ------------------------------------- --- Lamse <wannabe_proverbs31@...> wrote: > Rogene, > > Here is a warning, that my husband pointed out to > me with the goat's milk I have been buying. > Periwinkle Swiss Goat's Milk has a aluminum foil > lined container. I never thought much about that > until one day I mentioned to him that it tasted > metallic. He is an observant man sometimes. Anyway > I will be looking for another brand. > > L > > Rogene S <saxony01@...> wrote: > , > > Rubin recommends goat milk . . . I found a Walmart > that carries it . . . It's wonderful! . . . very > rich > tasting without the calories of milk. > > Hugs, > > Rogene > > --- allen <linallentx@...> wrote: > > > Ok...It's the GNC soy protein I mix with my coffee > > in the mornings, but it looks like that has to > stop > > too. > > Thanks, I'll start tomarrow! > > > > glory2glory1401 <glory2glory1401@...> wrote: > > , > > Are you still drinking soy milk or taking soy > > protein? > > > > I used to drink soy milk until I realized it was > one > > of the culprits > > in making me feel so poorly! I had always read > > about the wonderful > > benefits of soy, so I never suspected it....until > I > > realized I had a > > thyroid issue...and then I got educated about how > > bad soy is for > > those with thyroid issues! > > > > I would highly recomnmend that you do a trial > period > > and stop ALL > > soy products completely. Focus on eating healthy > > (no sugars, no > > processed junk foods, no soda, caffeine, alcohol, > > etc.) and see if > > you feel any better. > > > > Soy is depressive of thyroid function, so even if > > you are not > > diagnosed with hypothyroidism or Hashimoto's, soy > > could still be > > affecting your thyroid in a negative manner and > can > > make you feel > > sick or lethargic. > > > > I avoid soy like the plague now! > > If I do eat it, I notice that I feel lethargic > > pretty quick, so it > > is not worth it to me to even bother with it. > > Patty > > > > > > > , > > > > > > Anything you can do now to start detoxing should > > help > > > you recover after explant . . . Following an > > excellent > > > diet is very, very important . . . Eliminate > sugar > > and > > > processed foods for starters! . . . This can be > > tough > > > at first, so I'd suggest taking a look at your > > diet > > > and deciding what you can change, one food item > at > > a > > > time until you're on a really healthy diet. > > > > > > The Maker's Diet is an excellent book. > > > > > > Hugs and prayers, > > > > > > Rogene > > > > > > > > > > > > Opinions expressed are NOT meant to take the > place > > of advice given > > by licensed health care professionals. Consult > your > > physician or > > licensed health care professional before > commencing > > any medical > > treatment. > > > > > > " Do not let either the medical authorities or > the > > politicians > > mislead you. Find out what the facts are, and make > > your own > > decisions about how to live a happy life and how > to > > work for a > > better world. " - Linus ing, two-time Nobel > Prize > > Winner (1954, > > Chemistry; 1963, Peace) > > > > > > See our photos website! Enter " implants " for > > access at this link: > > > http://.shutterfly.com/action/ > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2006 Report Share Posted March 24, 2006 Cherie, I'm for every doctor reading this group! . . . Then perhaps they would begin to see how widespread the problems are! . . . And figure out how to help rather than recommending psychiatrists! Dr. Feng has some criteria for recommending en bloc/total capsulectomy. One of those is that, if a woman is symptomatic, everything must come out! That covers almost 100% of the women who find their way here. Rogene --- Cherie <funhome2@...> wrote: > Patty > that's interesting - I was eating soybeans last week > and feeling > horrible. I do have thyroid problems and recently > started taking > Westhroid. I'll have to do a test. thanks - > by the way, I don't think my messages ever posted > when we were > talking about my adding my doc. I will give him a > call and ask some > more questions before giving you his info. Do you > have suggestions > for questions? My main question I guess would be > whether or not he > would RECOMMEND or INSIST on a total capsulectomy > for all explant > patients. Would you suggest I ask him to check out > our group? Or > do you think that would not be a good thing? > Cherie > > > > > > , > > > > > > > > Anything you can do now to start detoxing > should help > > > > you recover after explant . . . Following an > excellent > > > > diet is very, very important . . . Eliminate > sugar and > > > > processed foods for starters! . . . This can > be tough > > > > at first, so I'd suggest taking a look at your > diet > > > > and deciding what you can change, one food > item at a > > > > time until you're on a really healthy diet. > > > > > > > > The Maker's Diet is an excellent book. > > > > > > > > Hugs and prayers, > > > > > > > > Rogene > > > > > > > > > > > > > > > > Opinions expressed are NOT meant to take the > place of advice > given > > >by licensed health care professionals. Consult > your physician or > > >licensed health care professional before > commencing any medical > > >treatment. > > > > > > > > " Do not let either the medical authorities or > the politicians > > >mislead you. Find out what the facts are, and > make your own > > >decisions about how to live a happy life and how > to work for a > > >better world. " - Linus ing, two-time Nobel > Prize Winner (1954, > > >Chemistry; 1963, Peace) > > > > > > > > See our photos website! Enter " implants " for > access at this > link: > > > > > > > > <http://.shutterfly.com/action/>http://.shu > tterfly.com/action/ > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2006 Report Share Posted March 24, 2006 Cherie, I am glad we had the soy discussion on the group....there are so many little things that we just are not fully aware of that can affect how we feel! Who would have thought soy??? I sure didn't, and I was buying it in place of dairy thinking I was doing something good for myself. How wrong I was! I urge all implanted women to give up soy--our thyroid is already struggling from implants....let's not add more ammunition against it! As for your doctor....I hesitate to scare him away, but you may want to politely ask him how he would feel if you occasionally sent women his way for explant? Ask him if he would be willing to work with women when asking for a total capsulectomy and drains. Let him know about our group and the healing we see....you can offer him the address and let him know that there are always new women coming to get help with implant related problems. Tell him we just need to be able to refer women to doctors who have the health of the woman in mind, like he did for you. My explanting surgeon seemed so nice and willing to work with me. I really thought he was sincere, but later I found out that he had become a little more unwilling to take a stance about the dangers of implants to the women I sent his way. (His nurse was certainly willing to admit that implants were causing horrible problems for women). I think he just didn't like having a reputation as admitting implants make women sick. It just isn't the politically correct thing for them to do, and they run when they get scared. You know him better than me, so use your best judgement Cherie. I trust your decision! Patty > > > > , > > > > > > > > Anything you can do now to start detoxing should help > > > > you recover after explant . . . Following an excellent > > > > diet is very, very important . . . Eliminate sugar and > > > > processed foods for starters! . . . This can be tough > > > > at first, so I'd suggest taking a look at your diet > > > > and deciding what you can change, one food item at a > > > > time until you're on a really healthy diet. > > > > > > > > The Maker's Diet is an excellent book. > > > > > > > > Hugs and prayers, > > > > > > > > Rogene > > > > > > > > > > > > > > > > Opinions expressed are NOT meant to take the place of advice > given > > >by licensed health care professionals. Consult your physician or > > >licensed health care professional before commencing any medical > > >treatment. > > > > > > > > " Do not let either the medical authorities or the politicians > > >mislead you. Find out what the facts are, and make your own > > >decisions about how to live a happy life and how to work for a > > >better world. " - Linus ing, two-time Nobel Prize Winner (1954, > > >Chemistry; 1963, Peace) > > > > > > > > See our photos website! Enter " implants " for access at this > link: > > > > > > > > <http://.shutterfly.com/action/>http://.shu > tterfly.com/action/ > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2006 Report Share Posted August 28, 2006 Hi, This is why I said in my earlier email not to worry about labels. So many of them don't know what the heck they are doing so don't trust they know it all. They are winging it. They give you a label and that lets them know which meds to write the script for. They don't always know this but they are. Don't let this guy mess with your head; you are going to be OK. But you do need to continue your quest to get the Minocin. If you can get the Minocin it will all change. So that's all I'd try to do .... get that Minocin. You may have to play along; i.e., take the piece of paper/RX for Plaquenil to placate him; don't fill it; call him in a week and tell him it makes you deathly ill; read about the side effects and tell him you got a couple of them .... and tell him to call in an RX for Minocin since you've tried all his meds and they don't work for you. And if he won't help you tell him you are going elsewhere ... and go to an internist to see if you get better results. ... another thought - do any of your kids have acne? See if you can get Mino for them and then take it yourself. Fight dirty. Do whatever you need to get the Mino. I'm not kidding. El rheumatic Now What? So I go to my new rheumy today. Well he says I don't have RA per say but I have mixed connective tissue disease. Ok so what does that mean for the AP? Every time I turn around they are telling me something different. I could just cry and don't know what to think anymore. I just want to throw all the meds in the trash and wait until I die. He agreed to let me off the Methotrexate since I think it isnt working but he wants to start me on Plaquenil. He isn't big on the AP. Just when I think I have RA now I am told all this. I don't know what to do now. To unsubscribe, email: rheumatic-unsubscribeegroups Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2006 Report Share Posted August 29, 2006 You guys are all great. I will be fine and I will get the Minocin sooner or later. I was really freaking out yesterday but feel better this morning. We did stop the Methotrexate and I am going to stay off of that for a few weeks before trying the Plaquenil. I really want to let my system clear out for a bit. I am also going to concentrate on my diet. I have an elimination diet I will start so that I can pin point which foods bother my condition. Those foods I will stay away from. Plaquenil I will give a shot and pray it doesn't cause me any problems however, the AP I will find a way to try. I just have to know if it will work for me. This group is great and so informative but most of all just having people to talk to about something that most people don't understand is really important to me. My husband doesn't understand why I don't just " move forward and not worry about it " . I am still newly diagnosed with whatever label they want to give (or should I say keep changing) and my counselor said I am in a grieving stage. DUH just wish my hubby would understand that and let me get through it without getting mad. Sorry to vent the personal stuff but that is part of why I am feeling so bad. I pray everyone a painfree and joyful day. > > With all due respect, regarding the below response is not necessarily > helpful advice. I have been corresponding w/ by personal email & she > is diagnosed w/a disease that has potential complications including > pulmonary hypertension & fibrosis. I believe her disease diagnosis to be > accurate based on her symptoms & labs. While I do advocate experimenting > w/Minocin, it is NOT prudent advice to tell this young woman that she should > throw away the Dr.'s script. Placquenil is a well tolerated drug w/a good > safety profile & provides enormous benefit which the pt. needs right now. I > would suggest that once she achieves stabilization w/the Placquenil, that > she then could take Minocin. Achieving a clinical remission within the 1st > 2 years after diagnosis is very important w/this disease & in my humble > opinion, Placquenil probably gives her the best shot. I realize that you're > just trying to calm her fears, but be careful about what advice you dispense > & she should not take a medication labeled for someone else. I'm glad you > have achieved such good results for whatever rheumatic disorder you have & I > definitely think the infectious theory needs explored. However, Minocin is > still not a proven treatment for MCTD, yet Placquenil is. Patrice > > > > _____ > > From: rheumatic [mailto:rheumatic ] On Behalf > Of ehgooding > Sent: Monday, August 28, 2006 7:42 PM > rheumatic > Subject: RE: rheumatic Now What? > > > > Hi, > > This is why I said in my earlier email not to worry about labels. So many > of them don't know what the heck they are doing so don't trust they know it > all. They are winging it. They give you a label and that lets them know > which meds to write the script for. They don't always know this but they > are. Don't let this guy mess with your head; you are going to be OK. But > you do need to continue your quest to get the Minocin. > > If you can get the Minocin it will all change. So that's all I'd try to do > ... get that Minocin. You may have to play along; i.e., take the piece of > paper/RX for Plaquenil to placate him; don't fill it; call him in a week and > tell him it makes you deathly ill; read about the side effects and tell him > you got a couple of them .... and tell him to call in an RX for Minocin > since you've tried all his meds and they don't work for you. And if he > won't help you tell him you are going elsewhere ... and go to an internist > to see if you get better results. ... another thought - do any of your kids > have acne? See if you can get Mino for them and then take it yourself. > Fight dirty. Do whatever you need to get the Mino. I'm not kidding. El > > rheumatic Now What? > > So I go to my new rheumy today. Well he says I don't have RA per say > but I have mixed connective tissue disease. Ok so what does that mean > for the AP? Every time I turn around they are telling me something > different. I could just cry and don't know what to think anymore. I > just want to throw all the meds in the trash and wait until I die. He > agreed to let me off the Methotrexate since I think it isnt working > but he wants to start me on Plaquenil. He isn't big on the AP. Just > when I think I have RA now I am told all this. I don't know what to > do now. > > > > To unsubscribe, email: rheumatic-unsubscri > <mailto:rheumatic-unsubscribe%40> beegroups > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2006 Report Share Posted August 29, 2006 Please note, , the antibiotic protocol detailed on www.rheumatic.org deals with the cause of your disease while the Plaquenil is used to only treat the symptoms. It may take several weeks to work, but then too, for some people it doesn't work at all. Some doctors prescribe Plaquenil to try and reduce the inflammation until the antibiotic therapy kicks in. The antibiotic therapy takes time - sometimes as much as 3 to 5 years, and for most is not an easy road. It may require more than swallowing pills. We call it the three steps forward, two steps backward protocol, but eventually you will see the light at the end of the tunnel. This group is here to help you on your road back to wellness. Ethel <rheumatic > Sent: Tuesday, August 29, 2006 9:00 AM Subject: rheumatic Re: Now What? > You guys are all great. I will be fine and I will get the Minocin > sooner or later. I was really freaking out yesterday but feel > better this morning. We did stop the Methotrexate and I am going to > stay off of that for a few weeks before trying the Plaquenil. I > really want to let my system clear out for a bit. I am also going > to concentrate on my diet. I have an elimination diet I will start > so that I can pin point which foods bother my condition. Those > foods I will stay away from. Plaquenil I will give a shot and pray > it doesn't cause me any problems however, the AP I will find a way > to try. I just have to know if it will work for me. > > This group is great and so informative but most of all just having > people to talk to about something that most people don't understand > is really important to me. My husband doesn't understand why I > don't just " move forward and not worry about it " . I am still newly > diagnosed with whatever label they want to give (or should I say > keep changing) and my counselor said I am in a grieving stage. DUH > just wish my hubby would understand that and let me get through it > without getting mad. Sorry to vent the personal stuff but that is > part of why I am feeling so bad. > > I pray everyone a painfree and joyful day. > > > > >> >> With all due respect, regarding the below response is not > necessarily >> helpful advice. I have been corresponding w/ by personal > email & she >> is diagnosed w/a disease that has potential complications including >> pulmonary hypertension & fibrosis. I believe her disease > diagnosis to be >> accurate based on her symptoms & labs. While I do advocate > experimenting >> w/Minocin, it is NOT prudent advice to tell this young woman that > she should >> throw away the Dr.'s script. Placquenil is a well tolerated drug > w/a good >> safety profile & provides enormous benefit which the pt. needs > right now. I >> would suggest that once she achieves stabilization w/the > Placquenil, that >> she then could take Minocin. Achieving a clinical remission > within the 1st >> 2 years after diagnosis is very important w/this disease & in my > humble >> opinion, Placquenil probably gives her the best shot. I realize > that you're >> just trying to calm her fears, but be careful about what advice > you dispense >> & she should not take a medication labeled for someone else. I'm > glad you >> have achieved such good results for whatever rheumatic disorder > you have & I >> definitely think the infectious theory needs explored. However, > Minocin is >> still not a proven treatment for MCTD, yet Placquenil is. Patrice >> >> >> >> _____ >> >> From: rheumatic [mailto:rheumatic ] > On Behalf >> Of ehgooding >> Sent: Monday, August 28, 2006 7:42 PM >> rheumatic >> Subject: RE: rheumatic Now What? >> >> >> >> Hi, >> >> This is why I said in my earlier email not to worry about labels. > So many >> of them don't know what the heck they are doing so don't trust > they know it >> all. They are winging it. They give you a label and that lets them > know >> which meds to write the script for. They don't always know this > but they >> are. Don't let this guy mess with your head; you are going to be > OK. But >> you do need to continue your quest to get the Minocin. >> >> If you can get the Minocin it will all change. So that's all I'd > try to do >> ... get that Minocin. You may have to play along; i.e., take the > piece of >> paper/RX for Plaquenil to placate him; don't fill it; call him in > a week and >> tell him it makes you deathly ill; read about the side effects and > tell him >> you got a couple of them .... and tell him to call in an RX for > Minocin >> since you've tried all his meds and they don't work for you. And > if he >> won't help you tell him you are going elsewhere ... and go to an > internist >> to see if you get better results. ... another thought - do any of > your kids >> have acne? See if you can get Mino for them and then take it > yourself. >> Fight dirty. Do whatever you need to get the Mino. I'm not > kidding. El >> >> rheumatic Now What? >> >> So I go to my new rheumy today. Well he says I don't have RA per > say >> but I have mixed connective tissue disease. Ok so what does that > mean >> for the AP? Every time I turn around they are telling me something >> different. I could just cry and don't know what to think anymore. > I >> just want to throw all the meds in the trash and wait until I die. > He >> agreed to let me off the Methotrexate since I think it isnt > working >> but he wants to start me on Plaquenil. He isn't big on the AP. > Just >> when I think I have RA now I am told all this. I don't know what > to >> do now. >> >> >> >> To unsubscribe, email: rheumatic-unsubscri >> <mailto:rheumatic-unsubscribe%40> beegroups >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2006 Report Share Posted August 29, 2006 >Hi, > >This is why I said in my earlier email not to worry about labels. So many >of them don't know what the heck they are doing so don't trust they know it > > , if you are having trouble getting a prescription for minocin, you may be able to get one from a naturalpath physician (ND). They can prescribe antibiotics, hormones, and other drugs. I believe osteopaths (DO) also can. ew Quote Link to comment Share on other sites More sharing options...
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