Re: Disability/venting

[Guest guest]

Thanks Everybody, I guess I am just tired of waiting. When the physical ailments first hit over a year ago I never thought I would be still unable to work or even loose my classes. I can remember my bio-chem professor saying last year, "Go find out what is wrong with you, even if it means taking time off your classes." I thought at the time, I would only be taking one semester off. Then it turned to two, now three. I waited to go to college for my kids to be older. Now, I must wait again, this time I see no real starting point to "re-start" again. I did start some online classes for holistic nutrition but I find it hard to concentrate on that, my arm pain even makes that difficult. I used to learn by writing and re-writing. Now, I can't even write out three checks without having to stop. It is also hard describing the pain when I look completely "normal" on the outside. I

am also tired of staying home most days, treating each day like I am fragile, not being able to take my girls skating. The other day, I helped my girls for one hour rake our elderly neighbors yard. I had nothing left to spend with them doing things they enjoy. If I cant even work in a yard for an hour, I have no hope to get back to caring for patients anytime soon. Believe me, I am trying to find things I can do. I help the ederly couple next door twice a week with chores, some days that is it for the day. I have also started Hospice volunteer training. That is hard, they pass out questionaires to fill out and discuss. The last class I almost started to cry after filling mine out. I hate using this stupid computer typing/speaking program, I want to type for myself. I want to be me again. I am trying to accept my illness and I know I am going through this for a purpose. God does have a plan for me, I

just wish the plan was easier. In the scheme of things, I know I am lucky. I have read some real sad stories here and I pray for each and every one of you wonderful ladies. Yes, some of my symptoms have gotten better. The pain in my chest is better, my heart doesn't palpitate as much, my eyes don't dry out as much, my hair stopped falling out, and my mental confusion has lessoned greatly. I'm driving much better. (not getting lost in my own town and not causing anymore accidents) Thanks for letting me vent, L auntsisnj <auntsisnj@...> wrote: ,I'm sorry you're feeling down. I can certainly relate, and I know you were hit quite hard with this illness, much harder than I was. I

just want to give you hope of recovery, though, because there have been so many women who have gotten better in time. You are doing all the right things, so please don't give up - and I know your doctor has been so helpful to you, but sometimes they say things that carry so much weight that we take it totally to heart. I don't think going on disability would defeat what you're trying to do, it would just give you some additional income which might help with the stress, and it might help to pay for some of the products that you need to use. You have very strong faith and I know your faith will get you through, but it's being tested right now. If I remember correctly, some of your symptoms were easing up, but I know how defeated you must feel because you can't write, and can't attend classes. Going to school is one of the things that helped get me through the last year, and it sounds like you

are like me - goal oriented, trying to improve yourself, and it's really hard to do when your health isn't cooperating. You can still keep those goals, but categorize them as a future goal. Your current goal can be to continue taking good care of your body, and feeding your spiritual soul as well. I think if you don't let go of your dream to finish school, it will help you through these difficult times. If you go on disability, it is a stepping stone, it is not a sign of giving up on your dream.Love,Sis >> Good day Ladies,> > > I am feeling quite down today. Yesterday, I went to my doctor for some more LLLT treatments. He hit just about every meridian. He spent a good hour zapping me

with his laser pen. Anyway, he asked me if I ever considered going on disability due to the fact I am about 30% the person I used to be. He is not sure if I will ever regain my stength. I am frustrated also. I still cannot write or type much without extreme pain. I am also disappointed that my nurse aide certification is expireing next month. I cannot work the 8 hour shift required to keep it active. I am finding the only job I am trained to do, I cant anymore. I can not yet go back to my classes due to my inability to write, plus the fatigue is horrendous. I talked it over with my husband, and he wants me to check into disability. I don't want to, how can I have hope for a full recovery if I am on disability. I even try not to use my handicap parking permit unless it is a bad day. Plus I think my> hubby makes too much money for me to

qualify. Just thinking about looking into disability seems like way too much work for me. I get tired thinking about it. What is a girl to do? I still plan on starting my fast on Monday. My hubby is going to do it with me. > > L> > __________________________________________________>

[Guest guest]

,

Those small improvements are really BIG improvements in the scheme

of things, so take very positive change as a step towards better

health. I've noticed that I don't have to take digestive enzymes

every single day anymore, now I do well for a few weeks and then

might need to take one. I can't take them all the time now or I get

constipated, so I take them only when I need them, but before I took

them every single day or I'd have just the opposite problem. I'd be

upset if I couldn't use my arms, too, because I write everything

down in order to remember it, plus my homework is all handwritten.

You've been through alot in the past year and I have nothing but

compassion for you. It is very isolating to have to stay in the

house all day. When the summertime comes, I hope you are able to at

least set up a chair in the yard and take in a little sunshine. I

heard that 20 mins of sunshine a day is a great immune system

booster.

Good luck and God Bless,

Sis

> >

> > Good day Ladies,

> >

> >

> > I am feeling quite down today. Yesterday, I went to my doctor

> for some more LLLT treatments. He hit just about every meridian.

> He spent a good hour zapping me with his laser pen. Anyway, he

> asked me if I ever considered going on disability due to the fact

I

> am about 30% the person I used to be. He is not sure if I will

ever

> regain my stength. I am frustrated also. I still cannot write or

> type much without extreme pain. I am also disappointed that my

> nurse aide certification is expireing next month. I cannot work

the

> 8 hour shift required to keep it active. I am finding the only

job

> I am trained to do, I cant anymore. I can not yet go back to my

> classes due to my inability to write, plus the fatigue is

> horrendous. I talked it over with my husband, and he wants me to

> check into disability. I don't want to, how can I have hope for a

> full recovery if I am on disability. I even try not to use my

> handicap parking permit unless it is a bad day. Plus I think my

> > hubby makes too much money for me to qualify. Just thinking

> about looking into disability seems like way too much work for

me.

> I get tired thinking about it. What is a girl to do? I still

plan

> on starting my fast on Monday. My hubby is going to do it with

me.

> >

> > L

> >

> > __________________________________________________

> >

[Guest guest]

-- Hi , I am sending you a great, big hug and affectionate cheek kisses this a.m.! I can SO relate to your plight of not being able to do what you're used to...when I put my hands on people to do my work, which I can only do for family and friends right now, tears come to my eyes. I just want ME back. Waiting for my plastic surgeon appointment, knowing I'll probably have to go to another one, who I know will do a proper job, is a little testy for me right now.

Thank God for this support group and being able to relate to other women...I was very isolated and felt ashamed of my past decision to implant. It just wasn't me...I'm into natural foods, natural living, etc. but I succumbed to negative manipulation at a time when my self-esteem was zip and my sexual abuse issues were still ugly and inside of me. Oh well, some wonderful healing lady I met told me to honor the decision I made at the time and let it go. Honor it? Yeah, right!

Well, I have accepted it and don't beat myself up anymore. Yay!

Sending lots of love, heartfelt health wishes, and God's blessings,

Sunny and sometimes

In , Lamse <wannabe_proverbs31@...> wrote:>> Thanks Everybody,> > I guess I am just tired of waiting. When the physical ailments first hit over a year ago I never thought I would be still unable to work or even loose my classes. I can remember my bio-chem professor saying last year, "Go find out what is wrong with you, even if it means taking time off your classes." I thought at the time, I would only be taking one semester off. Then it turned to two, now three. I waited to go to college for my kids to be older. Now, I must wait again, this time I see no real starting point to "re-start" again. I did start some online classes for holistic nutrition but I find it hard to concentrate on that, my arm pain even makes that difficult. I used to learn by writing and re-writing. Now, I can't even write out three checks without having to stop. It is also hard describing the pain when I look completely "normal" on the outside. I am also tired of staying home most days, treating each day like I am fragile, not being able to take my> girls skating. The other day, I helped my girls for one hour rake our elderly neighbors yard. I had nothing left to spend with them doing things they enjoy. If I cant even work in a yard for an hour, I have no hope to get back to caring for patients anytime soon. Believe me, I am trying to find things I can do. I help the ederly couple next door twice a week with chores, some days that is it for the day. I have also started Hospice volunteer training. That is hard, they pass out questionaires to fill out and discuss. The last class I almost started to cry after filling mine out. I hate using this stupid computer typing/speaking program, I want to type for myself. I want to be me again. I am trying to accept my illness and I know I am going through this for a purpose. God does have a plan for me, I just wish the plan was easier. In the scheme of things, I know I am lucky. I have read some real sad stories here and I pray for each and every one of you wonderful> ladies. Yes, some of my symptoms have gotten better. The pain in my chest is better, my heart doesn't palpitate as much, my eyes don't dry out as much, my hair stopped falling out, and my mental confusion has lessoned greatly. I'm driving much better. (not getting lost in my own town and not causing anymore accidents) > > Thanks for letting me vent,> > L > > auntsisnj auntsisnj@... wrote:> ,> > I'm sorry you're feeling down. I can certainly relate, and I know > you were hit quite hard with this illness, much harder than I was. > I just want to give you hope of recovery, though, because there have > been so many women who have gotten better in time. You are doing > all the right things, so please don't give up - and I know your > doctor has been so helpful to you, but sometimes they say things > that carry so much weight that we take it totally to heart. I don't > think going on disability would defeat what you're trying to do, it > would just give you some additional income which might help with the > stress, and it might help to pay for some of the products that you > need to use. You have very strong faith and I know your faith will > get you through, but it's being tested right now. If I remember > correctly, some of your symptoms were easing up, but I know how > defeated you must feel because you can't write, and can't attend > classes. Going to school is one of the things that helped get me > through the last year, and it sounds like you are like me - goal > oriented, trying to improve yourself, and it's really hard to do > when your health isn't cooperating. You can still keep those goals, > but categorize them as a future goal. Your current goal can be to > continue taking good care of your body, and feeding your spiritual > soul as well. I think if you don't let go of your dream to finish > school, it will help you through these difficult times. If you go > on disability, it is a stepping stone, it is not a sign of giving up > on your dream.> > Love,> > Sis> > > > >> > Good day Ladies,> > > > > > I am feeling quite down today. Yesterday, I went to my doctor > for some more LLLT treatments. He hit just about every meridian. > He spent a good hour zapping me with his laser pen. Anyway, he > asked me if I ever considered going on disability due to the fact I > am about 30% the person I used to be. He is not sure if I will ever > regain my stength. I am frustrated also. I still cannot write or > type much without extreme pain. I am also disappointed that my > nurse aide certification is expireing next month. I cannot work the > 8 hour shift required to keep it active. I am finding the only job > I am trained to do, I cant anymore. I can not yet go back to my > classes due to my inability to write, plus the fatigue is > horrendous. I talked it over with my husband, and he wants me to > check into disability. I don't want to, how can I have hope for a > full recovery if I am on disability. I even try not to use my > handicap parking permit unless it is a bad day. Plus I think my> > hubby makes too much money for me to qualify. Just thinking > about looking into disability seems like way too much work for me. > I get tired thinking about it. What is a girl to do? I still plan > on starting my fast on Monday. My hubby is going to do it with me. > > > > L> > > > __________________________________________________> >

[Guest guest]

,

Is it possible you could continue your classes with

some adaptive help? . . i.e. tape recording the

lectures and using your voice recognition program for

notes? Having an assistant fill out forms for you? . .

.. Please talk to the professors and school to see what

can be done. I'm sure, when they see how much you want

to continue and how hard you are working to get

better, they will find a way to accomodate you.

The junior college I attend has assistents assigned to

handicapped students who do everything from taking

notes to feeding them. Surely there is something your

school can do to help you.

This is temporary . . . you will continue to get

better! It just takes time and patience. Allowing

yourself to stress over your progress will delay

healing!

Hugs and prayers,

Rogene

[Guest guest]

Yes Rogene, I have thought of the help that school offers for handicapped students, however, I would be asked to change my major. There are physical requirements for Nursing students. I don't know what I would like to change my major to. As long as I have been alive, I have known I wanted nursing. The fatigue is also an obsticle I have to find away around. Most outings for me are 10 min from home in case I get tired. The university I attend is a 40 min drive. I guess what I am saying is I will have to wait until I know how to deal with my physical limitations. I have been hoping for a faster recovery, I guess it may take a long time for me to be back to normal. It at all. LRogene S <saxony01@...> wrote: ,Is it possible you could continue your classes withsome adaptive help? . . i.e. tape recording thelectures and using your voice recognition program fornotes? Having an assistant fill out forms for you? . .. Please talk to the professors and school to see whatcan be done. I'm sure, when they see how much you wantto continue and how hard you are working to getbetter, they will find a way to accomodate you.The junior college I attend has assistents assigned tohandicapped students who do everything from takingnotes to feeding them. Surely there is something yourschool can do to help you.This is temporary . . . you will continue to getbetter! It just takes time and patience. Allowingyourself to stress over your progress will delayhealing!Hugs and prayers,Rogene

Messenger with Voice. PC-to-Phone calls for ridiculously low rates.

[Guest guest]

. . . Could you approach them as this being a

temporary disability? . . . Let them check our list

and see how women routinely get better.

There are jobs for nurses that aren't very taxing

physically . . . But not the patient care you yearn

for!

Please don't begin seeing yourself as " disabled " . . .

This too will pass!

Love,

Rogene

--- Lamse <wannabe_proverbs31@...>

wrote:

> Yes Rogene,

>

> I have thought of the help that school offers for

> handicapped students, however, I would be asked to

> change my major. There are physical requirements

> for Nursing students. I don't know what I would

> like to change my major to. As long as I have been

> alive, I have known I wanted nursing. The fatigue

> is also an obsticle I have to find away around.

> Most outings for me are 10 min from home in case I

> get tired. The university I attend is a 40 min

> drive. I guess what I am saying is I will have to

> wait until I know how to deal with my physical

> limitations. I have been hoping for a faster

> recovery, I guess it may take a long time for me to

> be back to normal. It at all.

>

> L

>

> Rogene S <saxony01@...> wrote:

> ,

>

> Is it possible you could continue your classes with

> some adaptive help? . . i.e. tape recording the

> lectures and using your voice recognition program

> for

> notes? Having an assistant fill out forms for you? .

> .

> . Please talk to the professors and school to see

> what

> can be done. I'm sure, when they see how much you

> want

> to continue and how hard you are working to get

> better, they will find a way to accomodate you.

>

> The junior college I attend has assistents assigned

> to

> handicapped students who do everything from taking

> notes to feeding them. Surely there is something

> your

> school can do to help you.

>

> This is temporary . . . you will continue to get

> better! It just takes time and patience. Allowing

> yourself to stress over your progress will delay

> healing!

>

> Hugs and prayers,

>

> Rogene

>

>

>

>

> Opinions expressed are NOT meant to take the place

> of advice given by licensed health care

> professionals. Consult your physician or licensed

> health care professional before commencing any

> medical treatment.

>

> " Do not let either the medical authorities or the

> politicians mislead you. Find out what the facts

> are, and make your own decisions about how to live a

> happy life and how to work for a better world. " -

> Linus ing, two-time Nobel Prize Winner (1954,

> Chemistry; 1963, Peace)

>

> See our photos website! Enter " implants " for access

> at this link:

> http://.shutterfly.com/action/

>

>

[Guest guest]

We can all relate to what you are feeling! I promise it will get

better. I remember not being able to do anything either. And being

so brainfogged that I could barely have a rational conversation with

anyone. Now I can go anywhere and do anything (except for this past

month where I have had a setback). Like you, I used to not even be

able to go shopping with my daughter for school clothes. Now I can

shop all day. But it didn't happen right away. And never in a

straight line. It is common to have improvements followed by

setbacks and then followed by improvements. We are all so

different. We have some women just take off and get better right

away, and others who it took a year or more before they saw any

improvement. One woman in particular I remember got explanted and

tried all kinds of detoxes, cleanses, etc and still was really

unwell. She left this group for awhile. She was very depressed.

Two years after explant she came back to share that she was doing

better, had a part time job and a boyfriend! She was no longer

bedridden and was going on her first vacation in years!

I admire you for still trying to help others while fighting your

battle to get better. You have a great sharing spirit and alot of

determination. You will be an inspiration to your daughter! Don't

think that because you can't rake for an hour that you won't be able

to help patients. Someday, without realizing it, you will improve

and have that kind of stamina. For now, though, perhaps you could

help others in ways that don't take so much physical energy.

Autoimmune illness has a way of really acting up when you exert too

much muscle. I know that to be true and have experienced it

firsthand with fms. Any exercise you get should be gentle and

slowly increasing. Like walking outside for short distances and

slowly increasing, or like yoga or other stretching gentle

exercise. Raking yards or doing hard physical chores for others

will definitely be counterproductive to your goal of feeling

better. And remember you can share your ups and downs anytime you

feel the need with this group. We care!

Love, Kathy

> >

> > Good day Ladies,

> >

> >

> > I am feeling quite down today. Yesterday, I went to my doctor

> for some more LLLT treatments. He hit just about every meridian.

> He spent a good hour zapping me with his laser pen. Anyway, he

> asked me if I ever considered going on disability due to the fact

I

> am about 30% the person I used to be. He is not sure if I will

ever

> regain my stength. I am frustrated also. I still cannot write or

> type much without extreme pain. I am also disappointed that my

> nurse aide certification is expireing next month. I cannot work

the

> 8 hour shift required to keep it active. I am finding the only

job

> I am trained to do, I cant anymore. I can not yet go back to my

> classes due to my inability to write, plus the fatigue is

> horrendous. I talked it over with my husband, and he wants me to

> check into disability. I don't want to, how can I have hope for a

> full recovery if I am on disability. I even try not to use my

> handicap parking permit unless it is a bad day. Plus I think my

> > hubby makes too much money for me to qualify. Just thinking

> about looking into disability seems like way too much work for

me.

> I get tired thinking about it. What is a girl to do? I still

plan

> on starting my fast on Monday. My hubby is going to do it with

me.

> >

> > L

> >

> > __________________________________________________

> >