Guest guest Posted June 4, 1999 Report Share Posted June 4, 1999 Our thoughts and prayers will be with you and Jack on resolving his kidney issues soon! If increasing fluid intake is important for the resolution or prevention of the stones, a gastrostomy tube would help to ensure that he has good fluid intake. : ) Cheryl, , (5), (3, CHaRGE) MI Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 1999 Report Share Posted June 5, 1999 Elaine, Will be sending you and Jack good thoughts and prayers from over here. Hope everything gets resolved without too much on you and Jack. Casey charge@... minnow@... Mom to Dawn 20, Ken 9 ADHD, and 7 CHARGE. Cobb California ICQ UIN# 728514 AIM Buddy List: ZeeCasey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 1999 Report Share Posted June 5, 1999 Elaine, I will be thinking of poor little Jack, I can really sympathize with him as I have had surgery to remove kidney stones that were much too large to pass the regular way. Give him a big hug from me. Mom to Kennedy 15 mos old CHARGEr, 9, 8, and wife to Graeme New Brunswick, Canada Visit the " Weir's homepage " at: http://www.geocities.com/SunsetStrip/Palms/5716 ICQ #1426476 >From: JMurraybel@... > >Hi All, >We have been in Glasgow all week and are only home on pass for the weekend >but I have tried to read all your e-mails!! It's good to catch up with you >all. I was having withdrawal symptoms!! >Anyway, it was a bit of a wasted week as they have only done more blood/urine >tests and a further ultrasound of Jack's kidneys. The ultrasound showed that >he has lots of kidney stones in both kidneys but that the kidneys are not >swollen so that at least is one good thing. The stones seem to have >multiplied a fair bit in the last 3 months which is not so good. He is to >have a kidney scan on Monday where they inject dye into his hand and watch >the flow of urine from the kidneys. This should show up any blockages or >abnormalities with the kidneys and ureters and should give the surgeon an >idea of how large the stones are. The surgeon has said that because of Jack's >age and size they may not be able to treat them with lithotripsy as his >ureters will be 4mm wide at the most and the pulverised fragments of kidney >stone may not be able to pass safely through them. If this is the case he >will have to have surgery to remove them and I imagine that this will be >quite a major operation for someone of Jack's size. I really hope they can >use lithotripsy as I am really scared of him going through surgery. They also >need to catheterise him on Sunday night to get a true fasting urine sample >which hopefully will tell why the stones have occurred and if they are likely >to recur in the future. We met the nephrologist on Tuesday and she is a >lovely lady. She seemed very caring and took time to speak to Jack and answer >any questions we had. We discovered on Wednesday that she has won " Scotswoman >of the Year " for her work in setting up the renal unit at Yorkhill and the >care and attention she shows towards her young patients. >Another surgeon is going to discuss gastrostomy for Jack on Monday. I must >admit I'm still in two minds about it but he really is getting no better with >eating and I know that something has got to give. > >Elaine mum to Elise(7yrs) & Jack(22mths)CHaRGE >Dumfries,Scotland > >------------------------------------------------------------------------ >With more than 18 million e-mails exchanged daily... >http://www.onelist.com >...ONElist is THE place where the world talks! >------------------------------------------------------------------------ >4th International CHARGE Syndrome Conference, Houston, Texas, July >23-25, 1999. >For information about the CHARGE Syndrome Foundation or to become a member please contact marion@.... Quote Link to comment Share on other sites More sharing options...
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