Guest guest Posted May 12, 2006 Report Share Posted May 12, 2006 Sherry, I know that Dr. Kolb takes insurance. I pray you get these your implants out of your body. I bet you will improve after that. I know the cost of going from Dr. to Dr. for me has been exhausting and I am going Bankrupt. I have no medical insurance at all, I really never went to the Dr. before my implants. I have had Saline Implants for one year and 3 months and I am totally sick. I have the joint pain and muscle weakness like you are describing here. I get my implants out May 24th and I will let you know if that helps me. I do know that there is a lot of women with implants silicone/saline that have the same symptoms. I know my right arm and my neck feel like its gonna break in half at times. I know it's the implants because I talked to another lady with the same implants as I have and we have the exact same symptoms to the tee. Symptoms we never had before implants. I wonder how me and her could become twins after implants. I have a clone and she make me want these things out even faster than May 24th. I simply can't wait til the surgery and being on my way to recovery. I am so sick of being sick and I am 37 with all these 33 symptoms I have are driving me crazy with aches and pains and muscle twitches. I am sick of being sick. Please get your implants out. Call Dr. Kolb's office and see if she takes your insurance. It's worth a try. If you wait til 2007 your symptoms could triple if not more quad drupel. I know I have 33 symptoms within a little over a year. I can't imagine how sick I would be if I wait another year. Sincerely, Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2006 Report Share Posted May 12, 2006 Patty, Thanks so much for the letter. I know you are so right about this implant illness. The only thing that keeps me going is that I will get well. I have to think like this in order to survive. I know it will be a long road and that is sad to say or hear. I really hope that I can get these out and know that one day with a lot of work and struggling I will get well. It might take years but the only way anyone could live day to day with this sickness is to think, I did the right thing by getting these toxic bags out. I am going to be devastated alone by my appearance I have always been compulsive about myself. I am going to be sick for a long time and that is true. However, I won't have to worry about the devastation these implants might have caused if I keep listening to all the DR's and PS who told me they are safe and not killing me slowly. I will survive this, I hope with determination alone. I am weak but hope to be strong and healthy as I once was before BA. I am just trying to simply think when I get ex plant I will live a longer and healthy life. I know right now I feel like I will die soon, so that is a better way to look at ex plant for me is that I will become healthy some day soon. I can say that having implants for a little over a year has been the worse thing I have ever had to experience. I can only hope that after surgery with the thought of just getting well someday is a relief. I know I sound like its gonna be easy, but the relief of just getting these toxic bags out will be less stressful.. I will no longer have to think, I hope these things are not gonna kill me today. I am sick of being sick and I will with determination be well again and strong. I hope to be well enough someday to just be able to do things I normally did. I don't think it will be overnight, but what is another year or two of being sick versus the rest of my life. I am only 37 years old. I appreciate your letter and plan to keep it close to me to read for encouragement that I will get well maybe after several years ahead. I would rather think like that then let these things make me any sicker than I already am I just can't imagine what they would do to my body if I let them remain in me. Thanks for the support I do appreciate it. Sincerely, Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2006 Report Share Posted May 12, 2006 Sherry, I know a rheumatologist who is experienced in this field!! I don't know if I should mention her name in an open forum or not, but she was involved in the original Dow lawsuits. She is in New Jersey. Send me an e-mail at auntsisnj@... and I'll give you her name. Sis --- In , _00_ <5678@...> wrote: > > Osteoarthritis in the thumb joint is the most common form of arthritis in women over the age of 40, affecting one of every 4 women. I have been suffering debilitating arthritis in both thumbs and have had my left thumb, the one that is more advanced, injected with steroids twice this year with no improvement. > > My orthopedic surgeon is a young highly skilled surgeon who operated on my leg and ankle two years ago when I incurred a serious fracture and almost lost my foot. > > On Monday, I banged my left hand into the shower door accidentally and the pain was severe enough to leave me almost faint. Three days later, the pain was intolerable and caused me to actually vomit, something I have not done in more than forty years. I spent yesterday in bed with ice packs and two Oxycontin while I waited until today when my surgeon had office hours. > > In his office, I explained to him that I have silicone implants implanted since 1974 and have recently learned that there is a real possibility that my arthritis is directly related to the silicone. He was open-minded and said that he has done no reading on this and, thus, has no opinion but is aware that the issue is controversial. We agreed that this arthritis is very common in women my age. He said that without a biopsy whereby silicone would be found, it is difficult to know whether my arthritis is caused by my implants. He agreed with my intention to pursue a rheumatologist who is experienced in this field. > > I had intended to have my thumbs repaired surgically prior to my developing this theory that my implants are at cause. My orthopedic surgeon agreed with my plan to delve further. > > Regrettably, my crime victim status leaves me in a position where explantation is simply not a possibility until the end of 2007 unless entirely reimbursable by Medicare and my secondary provider. Despite my unsatisfactory response from Dr. Melmed, I prefer his surgical technique and am most inclined at this early juncture to favor him. > > I will have my hand injected with steroids again once the current inflammation subsides. Until then, I will be taking Percoset and hoping for a reduction in the nearly unbearable pain, inflammation and swelling. I am currently without any use of my left hand at all. > > I had him take some films today because I wanted to see the extent of the joint deterioration. I do not believe that to be reversible even if migrated silicone is at cause. > > My very wonderful dermatologist very much wants me to see highly regarded , MD, the NYC rheumatologist who has extensive experience in the correlation between implants and illness. Unfortunately, his consult fee is $550 and he accepts no insurance. My dermatologist wants me to see him anyway. It's just not a possibility. I will search for another rheumatologist who may have some experience. > > I'd like to hear anyone's experience who knowledge of others with OSTEOarthritis. Having had my implants longer than most, I feel like an aberration. > Sherry > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2006 Report Share Posted May 12, 2006 Few doctors take Medicaid, but I do think Huang in Denver does, at least she did when she operated on my daughter, who was then on Medicaid. Lynda At 05:34 PM 5/12/2006, you wrote: >Sherry, > >I know that Dr. Kolb takes insurance. I pray you get these your >implants out of your body. I bet you will improve after that. I >know the cost of going from Dr. to Dr. for me has been exhausting >and I am going Bankrupt. I have no medical insurance at all, I >really never went to the Dr. before my implants. I have had Saline >Implants for one year and 3 months and I am totally sick. I have >the joint pain and muscle weakness like you are describing here. I >get my implants out May 24th and I will let you know if that helps >me. I do know that there is a lot of women with implants >silicone/saline that have the same symptoms. I know my right arm >and my neck feel like its gonna break in half at times. I know it's >the implants because I talked to another lady with the same implants >as I have and we have the exact same symptoms to the tee. Symptoms >we never had before implants. I wonder how me and her could become >twins after implants. I have a clone and she make me want these >things out even faster than May 24th. I simply can't wait til the >surgery and being on my way to recovery. I am so sick of being sick >and I am 37 with all these 33 symptoms I have are driving me crazy >with aches and pains and muscle twitches. I am sick of being >sick. Please get your implants out. Call Dr. Kolb's office and see >if she takes your insurance. It's worth a try. If you wait til >2007 your symptoms could triple if not more quad drupel. I know I >have 33 symptoms within a little over a year. I can't imagine how >sick I would be if I wait another year. > >Sincerely, > >Donna > > >Opinions expressed are NOT meant to take the place of advice given >by licensed health care professionals. Consult your physician or >licensed health care professional before commencing any medical treatment. > > " Do not let either the medical authorities or the politicians >mislead you. Find out what the facts are, and make your own >decisions about how to live a happy life and how to work for a >better world. " - Linus ing, two-time Nobel Prize Winner (1954, >Chemistry; 1963, Peace) > >See our photos website! Enter " implants " for access at this link: ><http://.shutterfly.com/action/>http://.shutterfly.co\ m/action/ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2006 Report Share Posted May 12, 2006 Sis, If you have a rheumy you recommend, then I am interested in hearing about it, and I am sure Dr. Zuckerman in Washington DC would be too. We are always looking for good doctors who understand our issues. I agree, you may not want to post their name on the group, but if she was already involved in the Dow lawsuit, then my guess is that she is already targeted or known for her position. That seems to be the most pressing risk for them. Just one question about the rheumy? (I think I already know....) Do they subscribe to the drug/bandaid theory of treatment, or are they open to alternative treatments that lead toward more long lasting remission? Pattyauntsisnj <auntsisnj@...> wrote: Sherry,I know a rheumatologist who is experienced in this field!! I don't know if I should mention her name in an open forum or not, but she was involved in the original Dow lawsuits. She is in New Jersey. Send me an e-mail at auntsisnj@... and I'll give you her name.Sis>> Osteoarthritis in the thumb joint is the most common form of arthritis in women over the age of 40, affecting one of every 4 women. I have been suffering debilitating arthritis in both thumbs and have had my left thumb, the one that is more advanced, injected with steroids twice this year with no improvement.> > My orthopedic surgeon is a young highly skilled surgeon who operated on my leg and ankle two years ago when I incurred a serious fracture and almost lost my foot.> > On Monday, I banged my left hand into the shower door accidentally and the pain was severe enough to leave me almost faint. Three days later, the pain was intolerable and caused me to actually vomit, something I have not done in more than forty years. I spent yesterday in bed with ice packs and two Oxycontin while I waited until today when my surgeon had office hours.> > In his office, I explained to him that I have silicone implants implanted since 1974 and have recently learned that there is a real possibility that my arthritis is directly related to the silicone. He was open-minded and said that he has done no reading on this and, thus, has no opinion but is aware that the issue is controversial. We agreed that this arthritis is very common in women my age. He said that without a biopsy whereby silicone would be found, it is difficult to know whether my arthritis is caused by my implants. He agreed with my intention to pursue a rheumatologist who is experienced in this field.> > I had intended to have my thumbs repaired surgically prior to my developing this theory that my implants are at cause. My orthopedic surgeon agreed with my plan to delve further.> > Regrettably, my crime victim status leaves me in a position where explantation is simply not a possibility until the end of 2007 unless entirely reimbursable by Medicare and my secondary provider. Despite my unsatisfactory response from Dr. Melmed, I prefer his surgical technique and am most inclined at this early juncture to favor him.> > I will have my hand injected with steroids again once the current inflammation subsides. Until then, I will be taking Percoset and hoping for a reduction in the nearly unbearable pain, inflammation and swelling. I am currently without any use of my left hand at all.> > I had him take some films today because I wanted to see the extent of the joint deterioration. I do not believe that to be reversible even if migrated silicone is at cause.> > My very wonderful dermatologist very much wants me to see highly regarded , MD, the NYC rheumatologist who has extensive experience in the correlation between implants and illness. Unfortunately, his consult fee is $550 and he accepts no insurance. My dermatologist wants me to see him anyway. It's just not a possibility. I will search for another rheumatologist who may have some experience.> > I'd like to hear anyone's experience who knowledge of others with OSTEOarthritis. Having had my implants longer than most, I feel like an aberration. > Sherry> Get amazing travel prices for air and hotel in one click on FareChase Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2006 Report Share Posted May 12, 2006 Donna, I was the same age as you when I got sick from my implants. I only had them 9 months too. I know how much you want to get better. I was there! I was desperate to get my health back, because like you, I was a totally healthy person before I got my implants. Never had to go to the doctor at all. Getting sick was a tragedy, a total devastation to me. And I wanted my health back more than anything in the world. The reason I am writing this is to make sure you won't get your hopes up too high. I mean, I want you to have hope....that is what this group is about! We have hope of healing and getting our life back! But what I want to caution you about is having expectation of recovery so high that you get disappointed if it doesn't happen right away. One thing I have learned to stress over and over again with women going through explant is to remind them that healing is a long process. I was told that since I had my implants such a short time, I would heal right away. I couldn't wait for the blasted brain fog to go away and leave me alone. But the reality of my healing is that it took over 2 years to feel normal again. I was expecting to feel good right away and so when it didn't happen, I got really depressed. In fact, I would say that there were several times when I was despondent enough about my healing that I wanted to commit suicide. But God always stopped me...I knew that wasn't the answer. Now you may have a totally different healing experience than me. I hope so. But what we see happen often is that right after the explant surgery there is a time what I call the "honeymoon period." It is where you are feeling really good after explant and it feels like that was it! That was exactly what you needed to do and you're home free. Then 6 weeks later you are sent reeling when those symptoms come back again and sometimes even worse than before. You wonder what the heck you did wrong. The answer is nothing...your body is just trying to find its balance and the immune system is still going though upheaval as it tries to deal with everything. Sometimes that programming of our immune system takes months to years to settle down. I just wanted to forewarn you. I don't want to burst your bubble or anything like that. You can still be excited for the explant process knowing that you are taking all the right steps to get your health back closer to normal. You can still have lots of hope for a future that is free from most of these alarming symptoms. But just remember that it will take alot of patience, some tenacity in detoxification, fortitude to keep facing another day when you go through those ups and downs....because you will have good days and bad days....that is just the way autoimmune type symptoms go. It's kinda like a rollercoaster and you never know when you are going on a downward bend. But gradually those good days get closer and closer together and they stay around longer and longer as those bad days start fading away. You'll notice a gradual improvement over time. I am excited for you. Dr. Kolb knows her stuff...she will tell you more than I can about it all and I know you will be in good hands. We will keep you in our prayers as you head into surgery! You'll be free from those things pretty soon and you'll be on your way to better health. Hugs, Patty BSBanshee1@... wrote: Sherry, I know that Dr. Kolb takes insurance. I pray you get these your implants out of your body. I bet you will improve after that. I know the cost of going from Dr. to Dr. for me has been exhausting and I am going Bankrupt. I have no medical insurance at all, I really never went to the Dr. before my implants. I have had Saline Implants for one year and 3 months and I am totally sick. I have the joint pain and muscle weakness like you are describing here. I get my implants out May 24th and I will let you know if that helps me. I do know that there is a lot of women with implants silicone/saline that have the same symptoms. I know my right arm and my neck feel like its gonna break in half at times. I know it's the implants because I talked to another lady with the same implants as I have and we have the exact same symptoms to the tee. Symptoms we never had before implants. I wonder how me and her could become twins after implants. I have a clone and she make me want these things out even faster than May 24th. I simply can't wait til the surgery and being on my way to recovery. I am so sick of being sick and I am 37 with all these 33 symptoms I have are driving me crazy with aches and pains and muscle twitches. I am sick of being sick. Please get your implants out. Call Dr. Kolb's office and see if she takes your insurance. It's worth a try. If you wait til 2007 your symptoms could triple if not more quad drupel. I know I have 33 symptoms within a little over a year. I can't imagine how sick I would be if I wait another year. Sincerely, DonnaOpinions expressed are NOT meant to take the place of advice given by licensed health care professionals. Consult your physician or licensed health care professional before commencing any medical treatment. "Do not let either the medical authorities or the politicians mislead you. Find out what the facts are, and make your own decisions about how to live a happy life and how to work for a better world." - Linus ing, two-time Nobel Prize Winner (1954, Chemistry; 1963, Peace)See our photos website! Enter "implants" for access at this link:http://.shutterfly.com/action/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2006 Report Share Posted May 12, 2006 Lynda, To my knowledge, Medicaid is a STATE program. . . You have to be a resident of the state where the services are performed to get coverage. Hugs, Rogene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2006 Report Share Posted May 12, 2006 There is state medicaid, but when one has SSD, one has Medicaid. I am unsure, but I do know out of state women have used it. Lynda At 06:57 PM 5/12/2006, you wrote: >Lynda, > >To my knowledge, Medicaid is a STATE program. . . You >have to be a resident of the state where the services >are performed to get coverage. > >Hugs, > >Rogene > > > > >Opinions expressed are NOT meant to take the place of advice given >by licensed health care professionals. Consult your physician or >licensed health care professional before commencing any medical treatment. > > " Do not let either the medical authorities or the politicians >mislead you. Find out what the facts are, and make your own >decisions about how to live a happy life and how to work for a >better world. " - Linus ing, two-time Nobel Prize Winner (1954, >Chemistry; 1963, Peace) > >See our photos website! Enter " implants " for access at this link: ><http://.shutterfly.com/action/>http://.shutterfly.co\ m/action/ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2006 Report Share Posted May 12, 2006 With SSDI (Social Security Disability Insurance), one is offered Medicare. SSI (Supplemental Security Income) is a program of payments for people of low income. It's managed by Social Security by not paid for by them. Sherry Re: POSTED TO EXPLANTATION.COM TODAY There is state medicaid, but when one has SSD, one has Medicaid. I am unsure, but I do know out of state women have used it.LyndaAt 06:57 PM 5/12/2006, you wrote:>Lynda,>>To my knowledge, Medicaid is a STATE program. . . You>have to be a resident of the state where the services>are performed to get coverage.>>Hugs,>>Rogene>>>>>Opinions expressed are NOT meant to take the place of advice given >by licensed health care professionals. Consult your physician or >licensed health care professional before commencing any medical treatment.>>"Do not let either the medical authorities or the politicians >mislead you. Find out what the facts are, and make your own >decisions about how to live a happy life and how to work for a >better world." - Linus ing, two-time Nobel Prize Winner (1954, >Chemistry; 1963, Peace)>>See our photos website! Enter "implants" for access at this link:><http://.shutterfly.com/action/>http://.shutterfly.com/action/>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2006 Report Share Posted May 12, 2006 Don't you get Medicare after 2 years on SSD? That is what has happened to people I know. Lynda At 08:40 PM 5/12/2006, you wrote: >With SSDI (Social Security Disability Insurance), one is offered Medicare. > >SSI (Supplemental Security Income) is a program of payments for >people of low income. It's managed by Social Security by not paid for by them. > Sherry > Re: POSTED TO EXPLANTATION.COM TODAY > >There is state medicaid, but when one has SSD, one has Medicaid. I >am unsure, but I do know out of state women have used it. > >Lynda > > >At 06:57 PM 5/12/2006, you wrote: > >Lynda, > > > >To my knowledge, Medicaid is a STATE program. . . You > >have to be a resident of the state where the services > >are performed to get coverage. > > > >Hugs, > > > >Rogene > > > > > > > > > >Opinions expressed are NOT meant to take the place of advice given > >by licensed health care professionals. Consult your physician or > >licensed health care professional before commencing any medical treatment. > > > > " Do not let either the medical authorities or the politicians > >mislead you. Find out what the facts are, and make your own > >decisions about how to live a happy life and how to work for a > >better world. " - Linus ing, two-time Nobel Prize Winner (1954, > >Chemistry; 1963, Peace) > > > >See our photos website! Enter " implants " for access at this link: > ><<http://.shutterfly.com/action/>http://. > shutterfly.com/action/>http://.shutterfly.com/action/ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2006 Report Share Posted May 12, 2006 Yes, on SSDI but not on SSI. Sherry Re: POSTED TO EXPLANTATION.COM TODAY>>There is state medicaid, but when one has SSD, one has Medicaid. I>am unsure, but I do know out of state women have used it.>>Lynda>>>At 06:57 PM 5/12/2006, you wrote:> >Lynda,> >> >To my knowledge, Medicaid is a STATE program. . . You> >have to be a resident of the state where the services> >are performed to get coverage.> >> >Hugs,> >> >Rogene> >> >> >> >> >Opinions expressed are NOT meant to take the place of advice given> >by licensed health care professionals. Consult your physician or> >licensed health care professional before commencing any medical treatment.> >> >"Do not let either the medical authorities or the politicians> >mislead you. Find out what the facts are, and make your own> >decisions about how to live a happy life and how to work for a> >better world." - Linus ing, two-time Nobel Prize Winner (1954,> >Chemistry; 1963, Peace)> >> >See our photos website! Enter "implants" for access at this link:> ><<http://.shutterfly.com/action/>http://. > shutterfly.com/action/>http://.shutterfly.com/action/> >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2006 Report Share Posted May 12, 2006 Medicaid is a program for low income and indigent people. Yes, it's a state ADMINISTERED program. Sherry Re: POSTED TO EXPLANTATION.COM TODAY Lynda,To my knowledge, Medicaid is a STATE program. . . Youhave to be a resident of the state where the servicesare performed to get coverage.Hugs,Rogene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2006 Report Share Posted May 12, 2006 Ok, right now I have Federal Medicaid, two years ago I had State Medicaid. It may be state administered, but it is a Federal Program. In two weeks I will have Medicare. And Medicaid is not just for low income and indigent people, it is for people with disabilities as well, until they can get Medicare. Lynda At 08:50 PM 5/12/2006, you wrote: >Medicaid is a program for low income and indigent people. Yes, it's >a state ADMINISTERED program. > Sherry > Re: POSTED TO EXPLANTATION.COM TODAY > >Lynda, > >To my knowledge, Medicaid is a STATE program. . . You >have to be a resident of the state where the services >are performed to get coverage. > >Hugs, > >Rogene > > > > >Opinions expressed are NOT meant to take the place of advice given >by licensed health care professionals. Consult your physician or >licensed health care professional before commencing any medical treatment. > > " Do not let either the medical authorities or the politicians >mislead you. Find out what the facts are, and make your own >decisions about how to live a happy life and how to work for a >better world. " - Linus ing, two-time Nobel Prize Winner (1954, >Chemistry; 1963, Peace) > >See our photos website! Enter " implants " for access at this link: ><http://.shutterfly.com/action/>http://.shutterfly.co\ m/action/ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2006 Report Share Posted May 13, 2006 Patty, I'm not quite sure what treatments she uses, because unfortunately since she didn't find antibodies for silicone in my body, she didn't treat me for anything. I know she didn't push any medication on me for the joint swelling, though, and she seems cautious about prescribing medications. So, I think she's open minded about implants causing illness, but I think she's probably the type of doctor who relies on test results and likely conventional treatment, and I doubt if everyone who is sick from implants has antibodies to silicone. It's possible that those who have had implants for a long time would have antibodies to it, but otherwise I don't think that's an exact science. Personally I like Dr. Kolb's approach to this, even though I didn't use her - she uses a mix of science and nature to help her patients get well. I don't know of any rheumatologists like that (but sure wish I did). However, the fact that she is a rheumatologist and fought the implant battle is definitely in this doctor's favor. On Monday night I'll be visiting my holistic practitioner and I'm interested in seeing the results of the 11 tubes of blood and the OAT test (Organic Acid Test - it's a urine test that gets sent to a lab, and I know it tests for Candida and maybe some metals, but I'm not completely sure what else). Sis > > > > Osteoarthritis in the thumb joint is the most common form of > arthritis in women over the age of 40, affecting one of every 4 > women. I have been suffering debilitating arthritis in both thumbs > and have had my left thumb, the one that is more advanced, injected > with steroids twice this year with no improvement. > > > > My orthopedic surgeon is a young highly skilled surgeon who > operated on my leg and ankle two years ago when I incurred a serious > fracture and almost lost my foot. > > > > On Monday, I banged my left hand into the shower door accidentally > and the pain was severe enough to leave me almost faint. Three days > later, the pain was intolerable and caused me to actually vomit, > something I have not done in more than forty years. I spent > yesterday in bed with ice packs and two Oxycontin while I waited > until today when my surgeon had office hours. > > > > In his office, I explained to him that I have silicone implants > implanted since 1974 and have recently learned that there is a real > possibility that my arthritis is directly related to the silicone. > He was open-minded and said that he has done no reading on this and, > thus, has no opinion but is aware that the issue is controversial. > We agreed that this arthritis is very common in women my age. He > said that without a biopsy whereby silicone would be found, it is > difficult to know whether my arthritis is caused by my implants. He > agreed with my intention to pursue a rheumatologist who is > experienced in this field. > > > > I had intended to have my thumbs repaired surgically prior to my > developing this theory that my implants are at cause. My orthopedic > surgeon agreed with my plan to delve further. > > > > Regrettably, my crime victim status leaves me in a position where > explantation is simply not a possibility until the end of 2007 > unless entirely reimbursable by Medicare and my secondary provider. > Despite my unsatisfactory response from Dr. Melmed, I prefer his > surgical technique and am most inclined at this early juncture to > favor him. > > > > I will have my hand injected with steroids again once the current > inflammation subsides. Until then, I will be taking Percoset and > hoping for a reduction in the nearly unbearable pain, inflammation > and swelling. I am currently without any use of my left hand at all. > > > > I had him take some films today because I wanted to see the extent > of the joint deterioration. I do not believe that to be reversible > even if migrated silicone is at cause. > > > > My very wonderful dermatologist very much wants me to see highly > regarded , MD, the NYC rheumatologist who has extensive > experience in the correlation between implants and illness. > Unfortunately, his consult fee is $550 and he accepts no insurance. > My dermatologist wants me to see him anyway. It's just not a > possibility. I will search for another rheumatologist who may have > some experience. > > > > I'd like to hear anyone's experience who knowledge of others with > OSTEOarthritis. Having had my implants longer than most, I feel like > an aberration. > > Sherry > > > > > > > > > Opinions expressed are NOT meant to take the place of advice given by licensed health care professionals. Consult your physician or licensed health care professional before commencing any medical treatment. > > " Do not let either the medical authorities or the politicians mislead you. Find out what the facts are, and make your own decisions about how to live a happy life and how to work for a better world. " - Linus ing, two-time Nobel Prize Winner (1954, Chemistry; 1963, Peace) > > See our photos website! Enter " implants " for access at this link: > http://.shutterfly.com/action/ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2006 Report Share Posted May 13, 2006 Kathy, Thank you so much for the special thought in your letter. I am glad I found this site as well as others to get the advice I have gotten so far is remarkable. I appreciate you all so much I will always remember that you all might have just saved my life. I won't know this til explant but I have a good suspicion that you have. Thanks again so much. Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2006 Report Share Posted May 13, 2006 Donna You really do have the right attitude! Your perserverance and attitude will carry you far! Patty is right on about the healing process. It is very individualistic. And there are alot of steps forwards and backwards along the way. But the vast majority of explanted women recover a significant portion of their health--and that is something to be grateful for! I have had my implants out for four years and while some symptoms left right away, others took more time. But I knew that I was getting better, and before explant, I really felt like I was dying. I am glad that you have come to our group for advice and support. This is such a great, compassionate group. Whether sick from implants or not, I believe our health is constantly in a state of flux. I have become so much more aware of the toxins we are exposed to on a daily basis and have made a real effort to reduce those within my control. Health is a lifelong challenge. There is a constant battle going on inside of our bodies to neutralize pathogens and toxins. This was true before we got implants and it will be true after we are explanted. It isn't as simple as one day we were well and the next we were not. So actually to me it is encouraging to know that our health is on a continuum, and I hadn't actually lost it. It is now definitely swinging the other way! Stay encouraged! Hugs, Kathy > > Patty, > > Thanks so much for the letter. I know you are so right about this implant > illness. The only thing that keeps me going is that I will get well. I have to > think like this in order to survive. I know it will be a long road and that > is sad to say or hear. I really hope that I can get these out and know that > one day with a lot of work and struggling I will get well. It might take years > but the only way anyone could live day to day with this sickness is to think, > I did the right thing by getting these toxic bags out. I am going to be > devastated alone by my appearance I have always been compulsive about myself. I > am going to be sick for a long time and that is true. However, I won't have to > worry about the devastation these implants might have caused if I keep > listening to all the DR's and PS who told me they are safe and not killing me > slowly. I will survive this, I hope with determination alone. I am weak but hope > to be strong and healthy as I once was before BA. I am just trying to simply > think when I get ex plant I will live a longer and healthy life. I know right > now I feel like I will die soon, so that is a better way to look at ex plant > for me is that I will become healthy some day soon. I can say that having > implants for a little over a year has been the worse thing I have ever had to > experience. I can only hope that after surgery with the thought of just getting > well someday is a relief. I know I sound like its gonna be easy, but the > relief of just getting these toxic bags out will be less stressful.. I will no > longer have to think, I hope these things are not gonna kill me today. I am sick > of being sick and I will with determination be well again and strong. I hope > to be well enough someday to just be able to do things I normally did. I > don't think it will be overnight, but what is another year or two of being sick > versus the rest of my life. I am only 37 years old. I appreciate your letter > and plan to keep it close to me to read for encouragement that I will get > well maybe after several years ahead. I would rather think like that then let > these things make me any sicker than I already am I just can't imagine what they > would do to my body if I let them remain in me. Thanks for the support I do > appreciate it. > > Sincerely, > > Donna > Quote Link to comment Share on other sites More sharing options...
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