Re: hopefully final update on leg to Tommie

[Guest guest]

Hi ,

WOW I had no idea that a cat bite could result in all of this. My goodness. That

is just so strange. Man o man, some of the things we come up with. lol Amazing.

You sure have been through the ringer, I hope they can find the ultimate

treatment for you so you can at least be comfortable. Hugs, I'm so sorry

The treatment for PH is either in pill form, there are a few different meds out

now. And then there is continuous IV meds, diuretics, blood thinners and some

other stuff. Usually it's a combination of the IV meds and pills, always to

include the diuretics and blood thinners. Viagra is even a form of treatment for

it, in combination with the other stuff. Strange huh? If it is Primary, I think

it has to genetic or it could be Idiopathic and would be treated the same as

Primary. Secondary, could be caused from but not limited to, Sleep Apnea, other

heart conditions, COPD and Emphysema. I do have sleep apnea, but it is well

controlled and that would be the one they think would have caused mine. I've had

it for 13 yrs. The PH I was dx'd with last July, but I didn't seek treatment

until December, as I was denied treatment in the hospital last year, so I didn't

think it was a big deal. Then I didn't have the nerve to look it up until

December and about freaked out. So I've been seeking treatment since January

when I first saw my PCP for it. I had no idea it wasn't a matter of just writing

a prescription. The treatment costs over $4000 a month but Medicare pays for it,

I don't have to worry about that. My co-pay would only be $5 just for the first

month, then free the rest of the year and that is just for the IV Med. Not

including anything else. Mine could also be Idiopathic if they don't find what

caused it, then that's what it will be. If it is due to something with the left

side of the heart, then they can't use the same treatment as they do for IPH and

PPH. So, I'm praying for IPH at least, if this is truly what I have. The only

true test to dx it is the Right Heart Catherization. Which, as I said was done

on 7/7 and it was inconclusive due to me having water built up around my lungs

and heart that we weren't aware of and my Blood Pressure being too high. So he

added another med for the BP and water retention and we will redo the Right

Heart Cath in Oct. They either go in through the neck or groin into a main

artery, he went in through my neck, into the juggler vein. This was much better

than through the groin. I've had the left heart cath done that way twice and

this was much better. The test they do to see if you possibly have PH is the

Echo, done with dies and in a special way, by a special Tech. I had that done

last year, and that is how I was initially dx'd. The RHC will confirm the dx and

give them more accurate numbers of my pulmonary pressures. I hope I told this in

a way that it is understandable. I'm still learning about it, so it sounds more

complicated even to me. lol

Hope you are feeling better tomorrow. Let us know what the doc says on Monday!

Hugs

~Tommie~

www.myspace.com/tommiejj

PH, CFS, FMS, Diabetes, Sleep Apnea, Restless Leg Syndrome

Don't waste energy second-guessing what you're missing or

what can go awry. If you put enough energy into doubt,

something will undoubtedly go wrong.

Instead, focus on the positive possibilities with a hopeful attitude.

RE: hopefully final update on leg to Tommie

Yes this is due to a cat bite. I am a vet tech and I was working at a

local emergency clinic. I was also teaching in the vet tech program at

the time. After I got bit, I felt bad for the cat. And actually five

minutes after it bit me, it passed away. I felt HORRIBLE for the owner

as she was so close to her cat and loved him dearly. I did not want her

to know that he bit me. She didn't need to deal with that on top of

hearing her cat passed away. After I washed out the bite at the clinic,

I went directly to the emergency room A number of years ago I was bit

by another cat while working and had it cleaned out, put on antibiotics,

but within 12 hours, it became completely infected. So I had to have

surgery with that one as well since the infection was in my joint. But

I healed from that with no lasting effects.

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