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Re: Surgery....

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GIGI,

She is even better in person, you won't regret going. Dr. Kolb is a hero if you ask me and the whole staff you will love. So much passion for this cause its remarkable. Can't wait for you GiGi you are in the best of hands honey.

Donna

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Dr. Kolb is so great you won't regret that decision. She knew I was infected before she cut me open. Then she cut me open and poof right side had stuff floating in the implant, I will keep you all updated on the report from Dr. Blias.

Donna

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Congratulations!! June 14th will be here before you know it.

Sis

>

> Just to let you guys know, I authorized the scheduling deposit

with

> Dr.Kolb...and confirmed surgery for June 14th. My holistic

internal

> medicine Doctor is also on board...and I gave her all of Dr. Kolbs

> info today.

> I have thought long and hard about this and have canceled consults

> with 2 other plastic surgeons...because I know it is better to

have

> someone that believes we are sick from this stuff.

>

> In fact my doctor prescibed diflucan today and put me on the first

> phase of detox as described in Dr. Kolbs newsletter. Also trying

a

> Vit C flush.....

>

> I had my doctor the picture on shutterfly of the rash.....and

while

> mine is not as bad....it looks like it ...only smaller red spots

and

> it is also on my outer arms.......etc.

>

> I have learned a wealth of information from this site in a short

> period of time.....

> Thanks to all of you!!

>

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Donna,

I'm so happy for you! How long was your surgery? You are home so

soon! Are you having your drains removed at home? Wow, I am so glad

that you are finally rid of those toxic things.

Great BIG hugs to you Donna!

Gigi

>

> GIGI,

>

> She is even better in person, you won't regret going. Dr. Kolb is

a hero if

> you ask me and the whole staff you will love. So much passion for

this cause

> its remarkable. Can't wait for you GiGi you are in the best of

hands honey.

>

> Donna

>

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  • 1 month later...
Guest guest

Thank you for your input, I appriciate it very much. She spent a

week at Loma Childrens Hospital in January. They are the ones

who diagnosed her. She has not had any genetic testing at all. The

Dr who diagnosed her was pretty familiar with Marshall's Syndrome

and was confident with the diagnosis.

>

>

>

> Hi Jeanette,

>

> Life is hectic for most of us with kids.. family . pets and all of

the

> unexpected!

>

> As for your questions.

>

>

>

> When mouth sores are discussed SPECIFICALLY for the sores

come WITH

> the fever and LEAVE when fever leaves. Not saying these may be NON-

> mouth sores.

>

> Sore throats too. They come with the ONSET of fever and leave once

the fever

> leaves.

>

> These are the " CARDINAL SYMPTOMS " of . fever, mouth sores,

pharyngitis,

> swollen lymph nodes. Usually a child gets some of them however

some children

> get all of them. They ALL have onset WITH the fever and should

disappear

> when the fever leaves.

>

>

>

> I gather your child had all the genetic testing done as well as

other

> disorders ruled out.

>

>

>

> My son had his tonsils out when he was 2. It is scary. Make sure

you

> hydrate her well before the day of surgery. Our ENT doctors

recommended

> beginning 3- 4 days before surgery. encourage drinking.

>

>

>

> Beyond that make sure you get the prescription for codeine filled

BEFORE you

> take her home. Ask your ENT to give you the script on your pre-op

visit (if

> you did that and did not get the medication script, get it the day

of

> surgery and send someone to the pharmacy so it is at home) Give

the medicine

> around the clock. Encourage drinking. do not worry about eating

up to 2

> weeks. HYDRATION is critical especially during day 3-7 when the

scabs are

> forming in the throat. You do NOT want them to dry up and come off

early. We

> have had MULTIPLE kids here at this site who BLED after the

surgery and had

> to return for another surgery. Be it water. watered down Gatorade

or clear

> juices. she needs to drink. Ice pops and jello are great.

>

>

>

> If she chooses to eat make sure nothing scratchy.

>

>

>

>

>

> Fran A Bulone

> Mom to ph 7 yrs old

> Waxhaw, NC

>

> Owner & Moderator Group

> <>

>

>

>

>

>

>

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