Guest guest Posted April 16, 1999 Report Share Posted April 16, 1999 , Kennedy is the same way, she is a barefoot mama!! I can't keep anything on her feet, and they are usually chilly too. I feel bad, but she loves it that way. I later found out from Jeanie, MacKenzie's mom that a medicine she is on has cold hands and feet as a side effect <Propranolol, sometimes known as Inderal - heart med>. Is Jillian on this? Mom to Kennedy 14 mos old CHARGEr, 9, 8, and wife to Graeme New Brunswick, Canada Visit the " Weir's homepage " at: http://www.geocities.com/SunsetStrip/Palms/5716 ICQ #1426476 >From: JFoley6163@... > >In a message dated 99-04-15 16:46:04 EDT, you write: > ><< Jack really hates being too warm and gets quite upset to be > indoors with a coat on. If he is somewhere that is hot his cheeks quickly >get > very flushed. They are forever checking his temp when he is in hospital as >he > looks feverish due to the heat in there!! >> > > >Elaine, > >Jillian hates wearing socks and people always feel her feet and say she's >freezing and I say " She likes it that way " ... They just think I'm a horrible >mommy. It's funny because even will run around outside in 60* weather >in just his underwear and my mom freaks and I say if he's comfy, I don't >care> When people say, " Aren't you afraid he'll catch cold? " I say<'Nope. >Colds are caused by bacteria and viruses, NOT cold weather!! " > > Foley > >------------------------------------------------------------------------ >Did you know that knowledge is power? >http://www.ONElist.com >Join a new ONElist e-mail community and strengthen your mind! >------------------------------------------------------------------------ >4th International CHARGE Syndrome Conference, Houston, Texas, July >23-25, 1999. >For information about the CHARGE Syndrome Foundation or to become a member please contact marion@.... > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 1999 Report Share Posted April 16, 1999 low body temp or....could it be adrenal functioning. Low temp. involved as well as blood pressure changes from laying to standing? or...could it involve the pineal gland, (metabolism, sleep/wake cycles, etc..)nerve endings for this edge on roof of mouth (Chinese medicine) and alot of CHARGE'rs have cleft palate....or....? >>During Caitlyn's first 2 years of life, her temp was often 97 degrees >and even much lower (between 95 and 96 degrees). This concerned me, >but the docs said that it wasn't hurting her and not too worry about >it. Her body would be so cold! > >Often, her temp would spike up to 102 or 103 and she didn't even seem >sick. Within 24 hrs she would be back down to 95 or 97 degrees and no >symptoms. > >It has been discussed on the listserv that temp is controlled by a >part of the brain called the hypothalmus (sp?) and that in CHARGErs >this doesn't work too well. > >Lately, Caitlyn's temp has remained more steady around 98-99 degrees. > >Jeanne mom to Caitlyn age 3 1/2yrs cHaRgEr Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 1999 Report Share Posted April 16, 1999 JFoley6163@... wrote: > From: JFoley6163@... > > When people say, " Aren't you afraid he'll catch cold? " I say<'Nope. > Colds are caused by bacteria and viruses, NOT cold weather!! " > > Foley > - I thought I was the only mom who thought that way! Now I feel much better about letting run around without a coat. If it's really uncomfortable out, he figures it out quick enough and comes in for a coat. Michele > > ------------------------------------------------------------------------ > Did you know that knowledge is power? > http://www.ONElist.com > Join a new ONElist e-mail community and strengthen your mind! > ------------------------------------------------------------------------ > 4th International CHARGE Syndrome Conference, Houston, Texas, July > 23-25, 1999. > For information about the CHARGE Syndrome Foundation or to become a member please contact marion@.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 1999 Report Share Posted April 18, 1999 , No, Austin is not orally fed during the night. He does get an overnight feed of about 36 oz. of Pediasure and water. I don't know if it is related to feeding or not but it is strange. He usually sleeps really good though and doesn't seem restless or in any p0a7i1100in. Sorry, Austin decided to help type!! Jacque Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.