Re: Test results on celiac for me

[Guest guest]

Ouch!

Lynda

At 02:26 PM 6/5/2006, you wrote:

>

>I just received by email my test results from

>EnteroLab <http://www.enterolab.com>www.enterolab.com

>regarding my gluten sensitivity.

>

>Results show I have celiac disease. Okay, new chapter in my life starts now.

>Patty

>

>A) Gluten Sensitivity Stool and Gene Panel Complete *Best test/best value

>Fecal Antigliadin IgA 13.5 (Normal Range <10 Units)

>

>Fecal Antitissue Transglutaminase IgA 9 Units (Normal Range <10 Units)

>

>Quantitative Microscopic Fecal Fat Score 120 Units (Normal

>Range <300 Units)

>

>Fecal anti-casein (cow's milk) IgA antibody 8 Units (Normal

>Range <10 Units)

>

>HLA-DQB1 Molecular analysis, Allele 1 0201

>

>HLA-DQB1 Molecular analysis, Allele 2 0303

>

>Serologic equivalent: HLA-DQ 2,3 (Subtype 2,9)

>

>Interpretation of Fecal Antigliadin IgA: Intestinal antigliadin IgA

>antibody was elevated, indicating that you have active dietary

>gluten sensitivity. For optimal health, resolution of symptoms (if

>you have them), and prevention of small intestinal damage and

>malnutrition, osteoporosis, and damage to other tissues (like

>nerves, brain, joints, muscles, thyroid, pancreas, other glands,

>skin, liver, spleen, among others), it is recommended that you

>follow a strict and permanent gluten free diet. As gluten

>sensitivity is a genetic syndrome, you may want to have your

>relatives screened as well.

>

>Interpretation of Fecal Antitissue Transglutaminase IgA: The level

>of intestinal IgA antibodies to the human enzyme tissue

>transglutaminase was below the upper limit of normal, and hence,

>there is no evidence of a gluten-induced autoimmune reaction.

>

>Interpretation of Quantitative Microscopic Fecal Fat Score: A fecal

>fat score less than 300 indicates there is no malabsorbed dietary

>fat in stool indicating that digestion and absorption of nutrients

>is currently normal.

>

>Interpretation of Fecal anti-casein (cow's milk) IgA

>antibody: Levels of fecal IgA antibody to a food antigen greater

>than or equal to 10 are indicative of an immune reaction, and hence

>immunologic " sensitivity " to that food. For any elevated fecal

>antibody level, it is recommended to remove that food from your

>diet. Values less than 10 indicate there currently is minimal or no

>reaction to that food and hence, no direct evidence of food

>sensitivity to that specific food. However, because 1 in 500 people

>cannot make IgA at all, and rarely, some people can still have

>clinically significant reactions to a food antigen despite the lack

>of a significant antibody reaction (because the reactions primarily

>involve T cells), if you have an immune syndrome or symptoms

>associated with food sensitivity, it is recommended that you try a

>strict removal of suspect foods from your diet for up to 12 months

>despite a negative test.

>

>Interpretation Of HLA-DQ Testing: HLA gene analysis reveals that

>you have one of the main genes that predisposes to gluten

>sensitivity and celiac sprue, HLA-DQ2 or HLA-DQ8. Each of your

>offspring has a 50% chance of receiving this gene from you, and at

>least one of your parents passed it to you. You also have a

>non-celiac gene predisposing to gluten sensitivity (DQ1 or DQ3 not

>subtype 8). Having one celiac gene and one gluten sensitive gene,

>means that each of your parents, and all of your children (if you

>have them) will possess at least one copy of a gluten sensitive

>gene. Having two copies also means there is an even stronger

>predisposition to gluten sensitivity than having one gene and the

>resultant immunologic gluten sensitivity or celiac disease may be more severe.

>

>__________________________________________________

>

[Guest guest]

Patty Sorry you have to got through this also. Could you give me info on how you had this test? Was it on your own, or through a doctor? How much does it cost? Thanks, Tricia Trish <glory2glory1401@...> wrote: I just received by email my test results from EnteroLab www.enterolab.com regarding my gluten sensitivity. Results show I have

celiac disease. Okay, new chapter in my life starts now. Patty A) Gluten Sensitivity Stool and Gene Panel Complete *Best test/best valueFecal Antigliadin IgA 13.5 (Normal Range <10 Units)Fecal Antitissue Transglutaminase IgA 9 Units (Normal Range <10 Units)Quantitative Microscopic Fecal Fat Score 120 Units (Normal Range <300 Units)Fecal anti-casein (cow’s milk) IgA antibody 8 Units (Normal Range <10 Units)HLA-DQB1 Molecular analysis, Allele 1 0201 HLA-DQB1 Molecular analysis, Allele 2 0303 Serologic equivalent: HLA-DQ

2,3 (Subtype 2,9)Interpretation of Fecal Antigliadin IgA: Intestinal antigliadin IgA antibody was elevated, indicating that you have active dietary gluten sensitivity. For optimal health, resolution of symptoms (if you have them), and prevention of small intestinal damage and malnutrition, osteoporosis, and damage to other tissues (like nerves, brain, joints, muscles, thyroid, pancreas, other glands, skin, liver, spleen, among others), it is recommended that you follow a strict and permanent gluten free diet. As gluten sensitivity is a genetic syndrome, you may want to have your relatives screened as well.Interpretation of Fecal Antitissue Transglutaminase IgA: The level of intestinal IgA antibodies to the human enzyme tissue transglutaminase was below the upper limit of normal, and hence, there is no evidence of a gluten-induced autoimmune reaction.Interpretation of

Quantitative Microscopic Fecal Fat Score: A fecal fat score less than 300 indicates there is no malabsorbed dietary fat in stool indicating that digestion and absorption of nutrients is currently normal.Interpretation of Fecal anti-casein (cow’s milk) IgA antibody: Levels of fecal IgA antibody to a food antigen greater than or equal to 10 are indicative of an immune reaction, and hence immunologic “sensitivity” to that food. For any elevated fecal antibody level, it is recommended to remove that food from your diet. Values less than 10 indicate there currently is minimal or no reaction to that food and hence, no direct evidence of food sensitivity to that specific food. However, because 1 in 500 people cannot make IgA at all, and rarely, some people can still have clinically significant reactions to a food antigen despite the lack of a significant antibody reaction (because the reactions primarily involve T cells), if you

have an immune syndrome or symptoms associated with food sensitivity, it is recommended that you try a strict removal of suspect foods from your diet for up to 12 months despite a negative test.Interpretation Of HLA-DQ Testing: HLA gene analysis reveals that you have one of the main genes that predisposes to gluten sensitivity and celiac sprue, HLA-DQ2 or HLA-DQ8. Each of your offspring has a 50% chance of receiving this gene from you, and at least one of your parents passed it to you. You also have a non-celiac gene predisposing to gluten sensitivity (DQ1 or DQ3 not subtype 8). Having one celiac gene and one gluten sensitive gene, means that each of your parents, and all of your children (if you have them) will possess at least one copy of a gluten sensitive gene. Having two copies also means there is an even stronger predisposition to gluten sensitivity than having one gene and the resultant immunologic gluten sensitivity or celiac

disease may be more severe. __________________________________________________

[Guest guest]

Hi . I really wanted to cry when I saw those results! I know that a gluten free diet can be so difficult. I did this test right through the mail. It was very easy. I paid for the full panel from http://www.enterolab.com/ https://www.enterolab.com/StaticPages/Frame_TestInfo.htm#stool_gene_complete and it was about $369 or so. They sent me the testing kit in the mail, which included test swabs for the casein test (to swab my cheeks inside my mouth), and a container for the fecal test (which sits right on your toilet), along with the DHL packaging to have it sent back to them. You can order just a gluten sensitivity test for $99. I just wanted to get

the whole works so I would know what was going on. I specifically wanted to know if I had any casein sensitivity since I drink raw milk. I am really glad I spent the money to get this done. Now I know. Now I can proceed with the information to make my life better! I would encourage anyone who believes that they have any issues with food allergies to get tested. Patty Lamse <wannabe_proverbs31@...> wrote: Patty Sorry you have to got through this also. Could you give me info on how you had this test? Was it on your own, or through a doctor? How much does it cost? Thanks, Tricia Trish

<glory2glory1401@...> wrote: I just received by email my test results from EnteroLab www.enterolab.com regarding my gluten sensitivity. Results show I have celiac disease. Okay, new chapter in my life starts now. Patty A) Gluten Sensitivity Stool and Gene Panel Complete *Best test/best valueFecal Antigliadin

IgA 13.5 (Normal Range <10 Units)Fecal Antitissue Transglutaminase IgA 9 Units (Normal Range <10 Units)Quantitative Microscopic Fecal Fat Score 120 Units (Normal Range <300 Units)Fecal anti-casein (cow’s milk) IgA antibody 8 Units (Normal Range <10 Units)HLA-DQB1 Molecular analysis, Allele 1 0201 HLA-DQB1 Molecular analysis, Allele 2 0303 Serologic equivalent: HLA-DQ 2,3 (Subtype 2,9)Interpretation of Fecal Antigliadin IgA: Intestinal antigliadin IgA antibody was elevated, indicating that you have active dietary gluten sensitivity. For optimal health, resolution of symptoms (if you have them), and prevention of small

intestinal damage and malnutrition, osteoporosis, and damage to other tissues (like nerves, brain, joints, muscles, thyroid, pancreas, other glands, skin, liver, spleen, among others), it is recommended that you follow a strict and permanent gluten free diet. As gluten sensitivity is a genetic syndrome, you may want to have your relatives screened as well.Interpretation of Fecal Antitissue Transglutaminase IgA: The level of intestinal IgA antibodies to the human enzyme tissue transglutaminase was below the upper limit of normal, and hence, there is no evidence of a gluten-induced autoimmune reaction.Interpretation of Quantitative Microscopic Fecal Fat Score: A fecal fat score less than 300 indicates there is no malabsorbed dietary fat in stool indicating that digestion and absorption of nutrients is currently normal.Interpretation of Fecal anti-casein (cow’s milk) IgA

antibody: Levels of fecal IgA antibody to a food antigen greater than or equal to 10 are indicative of an immune reaction, and hence immunologic “sensitivity” to that food. For any elevated fecal antibody level, it is recommended to remove that food from your diet. Values less than 10 indicate there currently is minimal or no reaction to that food and hence, no direct evidence of food sensitivity to that specific food. However, because 1 in 500 people cannot make IgA at all, and rarely, some people can still have clinically significant reactions to a food antigen despite the lack of a significant antibody reaction (because the reactions primarily involve T cells), if you have an immune syndrome or symptoms associated with food sensitivity, it is recommended that you try a strict removal of suspect foods from your diet for up to 12 months despite a negative test.Interpretation Of HLA-DQ Testing: HLA gene analysis reveals

that you have one of the main genes that predisposes to gluten sensitivity and celiac sprue, HLA-DQ2 or HLA-DQ8. Each of your offspring has a 50% chance of receiving this gene from you, and at least one of your parents passed it to you. You also have a non-celiac gene predisposing to gluten sensitivity (DQ1 or DQ3 not subtype 8). Having one celiac gene and one gluten sensitive gene, means that each of your parents, and all of your children (if you have them) will possess at least one copy of a gluten sensitive gene. Having two copies also means there is an even stronger predisposition to gluten sensitivity than having one gene and the resultant immunologic gluten sensitivity or celiac disease may be more severe. __________________________________________________

[Guest guest]

Patti

I don't think you have full blown celiac disease or sprue. But you

do probably have gluten sensitivity. I really do think there is a

wide range of severity here. Some people seemingly can recover and

eat gluten occasionally again without problem-- does now. But

others can't have the smallest amount ever--even in things that they

put on their body. Like eveything else it runs the gamut from

somewhat mild to severe and lifethreatening. Fortunately, there are

many good products out there now. I just hate eating out though

because there is some form of gluten in practically everything on

the menu.

Hugs, Kathy

>

>

> I just received by email my test results from EnteroLab

www.enterolab.com

> regarding my gluten sensitivity.

>

> Results show I have celiac disease. Okay, new chapter in my

life starts now.

> Patty

>

>

> A) Gluten Sensitivity Stool and Gene Panel Complete *Best

test/best value

> Fecal Antigliadin IgA 13.5 (Normal Range <10 Units)

>

> Fecal Antitissue Transglutaminase IgA 9 Units (Normal Range

<10 Units)

>

> Quantitative Microscopic Fecal Fat Score 120 Units (Normal

Range <300 Units)

>

> Fecal anti-casein (cow's milk) IgA antibody 8 Units (Normal

Range <10 Units)

>

> HLA-DQB1 Molecular analysis, Allele 1 0201

>

> HLA-DQB1 Molecular analysis, Allele 2 0303

>

> Serologic equivalent: HLA-DQ 2,3 (Subtype 2,9)

>

> Interpretation of Fecal Antigliadin IgA: Intestinal antigliadin

IgA antibody was elevated, indicating that you have active dietary

gluten sensitivity. For optimal health, resolution of symptoms (if

you have them), and prevention of small intestinal damage and

malnutrition, osteoporosis, and damage to other tissues (like

nerves, brain, joints, muscles, thyroid, pancreas, other glands,

skin, liver, spleen, among others), it is recommended that you

follow a strict and permanent gluten free diet. As gluten

sensitivity is a genetic syndrome, you may want to have your

relatives screened as well.

>

> Interpretation of Fecal Antitissue Transglutaminase IgA: The

level of intestinal IgA antibodies to the human enzyme tissue

transglutaminase was below the upper limit of normal, and hence,

there is no evidence of a gluten-induced autoimmune reaction.

>

> Interpretation of Quantitative Microscopic Fecal Fat Score: A

fecal fat score less than 300 indicates there is no malabsorbed

dietary fat in stool indicating that digestion and absorption of

nutrients is currently normal.

>

> Interpretation of Fecal anti-casein (cow's milk) IgA antibody:

Levels of fecal IgA antibody to a food antigen greater than or equal

to 10 are indicative of an immune reaction, and hence

immunologic " sensitivity " to that food. For any elevated fecal

antibody level, it is recommended to remove that food from your

diet. Values less than 10 indicate there currently is minimal or no

reaction to that food and hence, no direct evidence of food

sensitivity to that specific food. However, because 1 in 500 people

cannot make IgA at all, and rarely, some people can still have

clinically significant reactions to a food antigen despite the lack

of a significant antibody reaction (because the reactions primarily

involve T cells), if you have an immune syndrome or symptoms

associated with food sensitivity, it is recommended that you try a

strict removal of suspect foods from your diet for up to 12 months

despite a negative test.

>

> Interpretation Of HLA-DQ Testing: HLA gene analysis reveals that

you have one of the main genes that predisposes to gluten

sensitivity and celiac sprue, HLA-DQ2 or HLA-DQ8. Each of your

offspring has a 50% chance of receiving this gene from you, and at

least one of your parents passed it to you. You also have a non-

celiac gene predisposing to gluten sensitivity (DQ1 or DQ3 not

subtype 8). Having one celiac gene and one gluten sensitive gene,

means that each of your parents, and all of your children (if you

have them) will possess at least one copy of a gluten sensitive

gene. Having two copies also means there is an even stronger

predisposition to gluten sensitivity than having one gene and the

resultant immunologic gluten sensitivity or celiac disease may be

more severe.

>

>

>

> __________________________________________________

>

[Guest guest]

Patty,

My guess is the implant damage does this to our bodies.

I was told to check out this site:

www.moldwarriors.com

Donna

[Guest guest]

Hi Patty,

My 13-year old daughter was diagnosed two years ago with Celiac Disease and

it really has been much easier than we expected. Since I am a health food

nut anyway, the transition into gluten free has been easy for her. Within a

couple of days of eating gluten free, all of her CD symptoms went away. She

can cheat occasionally without any symptoms now. I'm sure you'll do great!

Kenda

> Hi .

> I really wanted to cry when I saw those results! I know that a gluten free

> diet can be so difficult.

>

> I did this test right through the mail. It was very easy. I paid for the

> full panel from

> http://www.enterolab.com/

>

> https://www.enterolab.com/StaticPages/Frame_TestInfo.htm#stool_gene_complete

>

> and it was about $369 or so. They sent me the testing kit in the mail,

> which included test swabs for the casein test (to swab my cheeks inside my

> mouth), and a container for the fecal test (which sits right on your toilet),

> along with the DHL packaging to have it sent back to them.

>

> You can order just a gluten sensitivity test for $99. I just wanted to get

> the whole works so I would know what was going on. I specifically wanted to

> know if I had any casein sensitivity since I drink raw milk.

>

> I am really glad I spent the money to get this done. Now I know. Now I can

> proceed with the information to make my life better! I would encourage anyone

> who believes that they have any issues with food allergies to get tested.

>

> Patty

>

> Lamse <wannabe_proverbs31@...> wrote:

> Patty

>

> Sorry you have to got through this also. Could you give me info on how you

> had this test? Was it on your own, or through a doctor? How much does it

> cost?

>

> Thanks,

>

>

>

> Tricia Trish <glory2glory1401@...> wrote:

>

> I just received by email my test results from EnteroLab www.enterolab.com

> regarding my gluten sensitivity.

>

> Results show I have celiac disease. Okay, new chapter in my life starts

> now.

> Patty

>

>

> A) Gluten Sensitivity Stool and Gene Panel Complete *Best test/best value

> Fecal Antigliadin IgA 13.5 (Normal Range <10 Units)

>

> Fecal Antitissue Transglutaminase IgA 9 Units (Normal Range <10 Units)

>

> Quantitative Microscopic Fecal Fat Score 120 Units (Normal Range <300

> Units)

>

> Fecal anti-casein (cow¹s milk) IgA antibody 8 Units (Normal Range <10

> Units)

>

> HLA-DQB1 Molecular analysis, Allele 1 0201

>

> HLA-DQB1 Molecular analysis, Allele 2 0303

>

> Serologic equivalent: HLA-DQ 2,3 (Subtype 2,9)

>

> Interpretation of Fecal Antigliadin IgA: Intestinal antigliadin IgA antibody

> was elevated, indicating that you have active dietary gluten sensitivity. For

> optimal health, resolution of symptoms (if you have them), and prevention of

> small intestinal damage and malnutrition, osteoporosis, and damage to other

> tissues (like nerves, brain, joints, muscles, thyroid, pancreas, other glands,

> skin, liver, spleen, among others), it is recommended that you follow a strict

> and permanent gluten free diet. As gluten sensitivity is a genetic syndrome,

> you may want to have your relatives screened as well.

>

> Interpretation of Fecal Antitissue Transglutaminase IgA: The level of

> intestinal IgA antibodies to the human enzyme tissue transglutaminase was

> below the upper limit of normal, and hence, there is no evidence of a

> gluten-induced autoimmune reaction.

>

> Interpretation of Quantitative Microscopic Fecal Fat Score: A fecal fat score

> less than 300 indicates there is no malabsorbed dietary fat in stool

> indicating that digestion and absorption of nutrients is currently normal.

>

> Interpretation of Fecal anti-casein (cow¹s milk) IgA antibody: Levels of

> fecal IgA antibody to a food antigen greater than or equal to 10 are

> indicative of an immune reaction, and hence immunologic ³sensitivity² to that

> food. For any elevated fecal antibody level, it is recommended to remove that

> food from your diet. Values less than 10 indicate there currently is minimal

> or no reaction to that food and hence, no direct evidence of food sensitivity

> to that specific food. However, because 1 in 500 people cannot make IgA at

> all, and rarely, some people can still have clinically significant reactions

> to a food antigen despite the lack of a significant antibody reaction (because

> the reactions primarily involve T cells), if you have an immune syndrome or

> symptoms associated with food sensitivity, it is recommended that you try a

> strict removal of suspect foods from your diet for up to 12 months despite a

> negative test.

>

> Interpretation Of HLA-DQ Testing: HLA gene analysis reveals that you have one

> of the main genes that predisposes to gluten sensitivity and celiac sprue,

> HLA-DQ2 or HLA-DQ8. Each of your offspring has a 50% chance of receiving this

> gene from you, and at least one of your parents passed it to you. You also

> have a non-celiac gene predisposing to gluten sensitivity (DQ1 or DQ3 not

> subtype 8). Having one celiac gene and one gluten sensitive gene, means that

> each of your parents, and all of your children (if you have them) will possess

> at least one copy of a gluten sensitive gene. Having two copies also means

> there is an even stronger predisposition to gluten sensitivity than having one

> gene and the resultant immunologic gluten sensitivity or celiac disease may be

> more severe.

>

>

> __________________________________________________

>

[Guest guest]

whoa now...here's something that interests me.

i had a root canal almost two weeks ago. besides the infraorbital

nerve trauma causing my lip and cheek to still tingle and be

numb..my knees are killing me. i thought it was the Biaxin they

gave me that aggravated my previous quinolone reaction. got all

that?

tell me about your knee pain and root canal.

cindi

>

> Hi Kathy,

> I probably don't. I can eat bread still and not feel like my

whole world has turned upside down, but it probably was contributing

to my knee pain and other issues that have recently gotten worse

ever since my root canals.

[Guest guest]

Patty,

ly, I'm shocked! . . . You're the picture of

health! (Ladies I'm serious - Patty is radiently

beautiful in every respect). If it was me, I believe

I'd get a second opinion.

A dear friend (who is a RN) has had Celiac disease for

some time . . .She's become very adept at manageing

her diet whether traveling or not . . .

If you'd like to talk to her, I'll be happy to connect

the two of you.

Her hubby is webmaster for a Celiac support group in

the DFW area.

I know you'll do a great job of managing your diet

too!

Love,

Rogene

[Guest guest]

Hi Rogene,

My daughter was the picture of health as well. She looked good, did well in

school and was/is an athlete. Some celiacs aren't terrible ill, while

others feel extremely sick with vomiting and diarrhea if they consume any

gluten at all, even if by accidental cross contamination. It sounds like

Patty is extremely lucky, as is my daughter.

Kenda

> Patty,

>

> ly, I'm shocked! . . . You're the picture of

> health! (Ladies I'm serious - Patty is radiently

> beautiful in every respect). If it was me, I believe

> I'd get a second opinion.

>

> A dear friend (who is a RN) has had Celiac disease for

> some time . . .She's become very adept at manageing

> her diet whether traveling or not . . .

>

> If you'd like to talk to her, I'll be happy to connect

> the two of you.

>

> Her hubby is webmaster for a Celiac support group in

> the DFW area.

>

> I know you'll do a great job of managing your diet

> too!

>

> Love,

>

> Rogene

>

>

[Guest guest]

Thank you Rogene....you're so sweet! I think I will accept these test results and just go with the gluten free diet for awhile. It certainly can't hurt me and just may be the ticket I needed. The proof will be in the diet results, and not any more tests. You know me and doctors! (Shudder!) Thanks for the offer for connecting me to a knowledgeable friend. is going to be a great help to me, and my parents have a friend who has been celiac for years. I know between everyone here and my friends, I will have lots of help! I'll certainly need help with the traveling and eating part of it! Any and all tips welcome! Hugs, Patty Rogene S <saxony01@...> wrote: Patty,ly, I'm shocked! . . . You're the picture ofhealth! (Ladies I'm serious - Patty is radientlybeautiful in every respect). If it was me, I believeI'd get a second opinion.A dear friend (who is a RN) has had Celiac disease forsome time . . .She's become very adept at manageingher diet whether traveling or not . . . If you'd like to talk to her, I'll be happy to connectthe two of you. Her hubby is webmaster for a Celiac support group inthe DFW area.I know you'll do a great job of managing your diettoo!Love,Rogene __________________________________________________

[Guest guest]

Hi Kenda,

Good to see you back! . . . Is your house finished?

And are you back in? Are you feeling better after

getting out of there for a while?

My friend become unconscious if she gets even a small

amount of gluten! . . . Awful stuff!

Rogene

[Guest guest]

The antibiotic did not cause the bladder infection.

Clindamycin (Cleocin) is used for patients who are allergic to Penicillin and is very effective for staph and strep infections. It's not typically the antibiotic of choice for an abscess in your gums. It's actually very useful in vaginal infections. If you got a bladder infection or an inflammation (cystitis), the bacteria in your bladder was likely a strain that is resistant to Cleocin. Rarely, Cleocin can cause a vulvovaginal Candidiasis and, if you have such and do not wipe properly, you can cause a bladder infection. Levaquin, however, can cause that, too. Levaquin is specific for infections such as those found in the bladder.

Sherry

Re: Re: Test results on celiac for me

I was put on an antibiotic after I complained of continual pain in the root canal area. He gave me a strong antibiotic just to be on the safe side. It was so strong that it gave me a bladder infection. (great!). It was clindamycin, I believe.

I wondered how in the world I could get a bladder infection while on an antibiotic. But others here wrote and said they had the same experience. Once I finished the clindamycin, I had to get on another diffrent (expensive!) antibiotic to deal with the bladder infection...levaquin.

Pattycindi22595 <cindi22595@...> wrote:

yes, i'm familiar with the controversy over root canals. it was something i carefully considered because of my own hashi's. much of the problem is if the root canal is actually done right...even holistic dentists have said this. also familiar with the book. it's a tough decision...root canal or lose a tooth? let me ask you - did they give you antibiotics aferwards? I've had a reaction to an antibiotic back in march (before i realized it was a tooth problem and thought it was sinus)...and it's the same type ADR as that one...yet not listed on this drug's sheet. so just wondering? I had Biaxin this time. i stopped it after 4 days and have vowed never to put another antibiotic in my body. they have caused so many problems for me. but interesting...i have stretched my knees here more at the computer recently...and have wondered if that is the reason...but do feel the antibiotic is exaccerbating the problem. cindi>> Not much to tell other than I got 2 root canals back to back in September of last year, and gradually started experiencing increasing pain in my right knee. It continued to get worse and nothing seemed to help it. I was stumped...why my right knee? I had not injured it, I had not suffered from this type of knee pain previously. But it became stiff and very painful if kept bent for a long period of time Standing up from a sitting position usually left me limping along until it got exercised enough to be mobile and painless. It was driving me crazy. I never had arthritis type problems before at all.

__________________________________________________

[Guest guest]

Levaquin is the quinolone that caused my intial knee/leg...total

joint pain. The quionolones are very toxic..a very strong

antibiotic that can even cross the CNS barrier. Google " quinolone

toxicity " or tendon rupture + quinolone, etc...for more info. there

are several supports groups...and a FQ org (floroquinolone). I

would think it was the levaquin that caused the knee problem given

that is one of the most common ADRs.

cindi

>

> I was put on an antibiotic after I complained of continual pain in

the root canal area. He gave me a strong antibiotic just to be on

the safe side. It was so strong that it gave me a bladder

infection. (great!). It was clindamycin, I believe.

>

> I wondered how in the world I could get a bladder infection

while on an antibiotic. But others here wrote and said they had the

same experience. Once I finished the clindamycin, I had to get on

another diffrent (expensive!) antibiotic to deal with the bladder

infection...levaquin.

[Guest guest]

Ok, here's a website devoted to the quinolones:

http://www.fqresearch.org/index.htm

These drugs are so toxic that I can't believe how much they are

given out...they really should be used as a last resort...when the

particular bacteria has been identified. They are known for

ligament/tendon pain.

cindi

--- In , " cindi22595 " <cindi22595@...>

wrote:

>

> Levaquin is the quinolone that caused my intial knee/leg...total

> joint pain. The quionolones are very toxic..a very strong

> antibiotic that can even cross the CNS barrier. Google " quinolone

> toxicity " or tendon rupture + quinolone, etc...for more info.

there

> are several supports groups...and a FQ org (floroquinolone). I

> would think it was the levaquin that caused the knee problem given

> that is one of the most common ADRs.

[Guest guest]

Hi Kenda

It is good to see you back. We missed you. HOw is everything

going? Are you feeling better?

Hugs,

Kathy

> >

> > I just received by email my test results from EnteroLab

www.enterolab.com

> > regarding my gluten sensitivity.

> >

> > Results show I have celiac disease. Okay, new chapter in my

life starts

> > now.

> > Patty

> >

> >

> > A) Gluten Sensitivity Stool and Gene Panel Complete *Best

test/best value

> > Fecal Antigliadin IgA 13.5 (Normal Range <10 Units)

> >

> > Fecal Antitissue Transglutaminase IgA 9 Units (Normal Range

<10 Units)

> >

> > Quantitative Microscopic Fecal Fat Score 120 Units (Normal

Range <300

> > Units)

> >

> > Fecal anti-casein (cow¹s milk) IgA antibody 8 Units (Normal

Range <10

> > Units)

> >

> > HLA-DQB1 Molecular analysis, Allele 1 0201

> >

> > HLA-DQB1 Molecular analysis, Allele 2 0303

> >

> > Serologic equivalent: HLA-DQ 2,3 (Subtype 2,9)

> >

> > Interpretation of Fecal Antigliadin IgA: Intestinal antigliadin

IgA antibody

> > was elevated, indicating that you have active dietary gluten

sensitivity. For

> > optimal health, resolution of symptoms (if you have them), and

prevention of

> > small intestinal damage and malnutrition, osteoporosis, and

damage to other

> > tissues (like nerves, brain, joints, muscles, thyroid, pancreas,

other glands,

> > skin, liver, spleen, among others), it is recommended that you

follow a strict

> > and permanent gluten free diet. As gluten sensitivity is a

genetic syndrome,

> > you may want to have your relatives screened as well.

> >

> > Interpretation of Fecal Antitissue Transglutaminase IgA: The

level of

> > intestinal IgA antibodies to the human enzyme tissue

transglutaminase was

> > below the upper limit of normal, and hence, there is no evidence

of a

> > gluten-induced autoimmune reaction.

> >

> > Interpretation of Quantitative Microscopic Fecal Fat Score: A

fecal fat score

> > less than 300 indicates there is no malabsorbed dietary fat in

stool

> > indicating that digestion and absorption of nutrients is

currently normal.

> >

> > Interpretation of Fecal anti-casein (cow¹s milk) IgA antibody:

Levels of

> > fecal IgA antibody to a food antigen greater than or equal to 10

are

> > indicative of an immune reaction, and hence immunologic

³sensitivity² to that

> > food. For any elevated fecal antibody level, it is recommended

to remove that

> > food from your diet. Values less than 10 indicate there

currently is minimal

> > or no reaction to that food and hence, no direct evidence of

food sensitivity

> > to that specific food. However, because 1 in 500 people cannot

make IgA at

> > all, and rarely, some people can still have clinically

significant reactions

> > to a food antigen despite the lack of a significant antibody

reaction (because

> > the reactions primarily involve T cells), if you have an immune

syndrome or

> > symptoms associated with food sensitivity, it is recommended

that you try a

> > strict removal of suspect foods from your diet for up to 12

months despite a

> > negative test.

> >

> > Interpretation Of HLA-DQ Testing: HLA gene analysis reveals

that you have one

> > of the main genes that predisposes to gluten sensitivity and

celiac sprue,

> > HLA-DQ2 or HLA-DQ8. Each of your offspring has a 50% chance of

receiving this

> > gene from you, and at least one of your parents passed it to

you. You also

> > have a non-celiac gene predisposing to gluten sensitivity (DQ1

or DQ3 not

> > subtype 8). Having one celiac gene and one gluten sensitive

gene, means that

> > each of your parents, and all of your children (if you have

them) will possess

> > at least one copy of a gluten sensitive gene. Having two copies

also means

> > there is an even stronger predisposition to gluten sensitivity

than having one

> > gene and the resultant immunologic gluten sensitivity or celiac

disease may be

> > more severe.

> >

> >

> > __________________________________________________

> >

[Guest guest]

Yes Patty,

I had a saliva test done almost two years ago. My antibodies were

out of the normal range. I have been on a gluten free diet (mostly)

for about one and half years. The only difference I could detect

was that I got less headaches. Everytime I cheat (and it isn't that

often) I tend to get a headache the next day. I don't have full

blown celiac disease. It isn't that hard to follow a gluten free

diet if you stick with the basics--meat, fish, eggs, fruit,

veggies. But it is hard if you eat things with sauces, eat in

restaurants, eat baked goods, etc. I have stopped asking in

restaurants because they often don't know. I just order a salad.

But most salad dressings have gluten too. I picked up a menu showing

various substances that could be in foods in Culvers the other day

and every salad dressing they carried had gluten. I really hate

missing the baked goods that I loved. I cheated bigtime with my

daughter's graduation and over the course of four days mangaged to

have one of everything I was missing: pizza at my favorite

restarant, Italian beef at my favorite restaruant, chocolate chip

cookies, etc. Then I had a headache three out of the next four days

and wasn't feeling very good. Of course, half the town has a

headache because of the humid weather. My thought is that I will

continue to try to heal, I will eat mainly a gluten free diet, and

hopefully occasionally cheat. I will say that celiac can kill you.

A friend of mine lost her mother at the age of 33 due to undianosed

and untreated celiac. And some people do not improve despite the

diet though that is rare. Certainly we should all be tested. It is

too important not to. Good luck

Kathy

> >

> >

> > I just received by email my test results from EnteroLab

> www.enterolab.com

> > regarding my gluten sensitivity.

> >

> > Results show I have celiac disease. Okay, new chapter in my

> life starts now.

> > Patty

> >

> >

> > A) Gluten Sensitivity Stool and Gene Panel Complete *Best

> test/best value

> > Fecal Antigliadin IgA 13.5 (Normal Range <10 Units)

> >

> > Fecal Antitissue Transglutaminase IgA 9 Units (Normal Range

> <10 Units)

> >

> > Quantitative Microscopic Fecal Fat Score 120 Units (Normal

> Range <300 Units)

> >

> > Fecal anti-casein (cow's milk) IgA antibody 8 Units (Normal

> Range <10 Units)

> >

> > HLA-DQB1 Molecular analysis, Allele 1 0201

> >

> > HLA-DQB1 Molecular analysis, Allele 2 0303

> >

> > Serologic equivalent: HLA-DQ 2,3 (Subtype 2,9)

> >

> > Interpretation of Fecal Antigliadin IgA: Intestinal antigliadin

> IgA antibody was elevated, indicating that you have active dietary

> gluten sensitivity. For optimal health, resolution of symptoms (if

> you have them), and prevention of small intestinal damage and

> malnutrition, osteoporosis, and damage to other tissues (like

> nerves, brain, joints, muscles, thyroid, pancreas, other glands,

> skin, liver, spleen, among others), it is recommended that you

> follow a strict and permanent gluten free diet. As gluten

> sensitivity is a genetic syndrome, you may want to have your

> relatives screened as well.

> >

> > Interpretation of Fecal Antitissue Transglutaminase IgA: The

> level of intestinal IgA antibodies to the human enzyme tissue

> transglutaminase was below the upper limit of normal, and hence,

> there is no evidence of a gluten-induced autoimmune reaction.

> >

> > Interpretation of Quantitative Microscopic Fecal Fat Score: A

> fecal fat score less than 300 indicates there is no malabsorbed

> dietary fat in stool indicating that digestion and absorption of

> nutrients is currently normal.

> >

> > Interpretation of Fecal anti-casein (cow's milk) IgA antibody:

> Levels of fecal IgA antibody to a food antigen greater than or

equal

> to 10 are indicative of an immune reaction, and hence

> immunologic " sensitivity " to that food. For any elevated fecal

> antibody level, it is recommended to remove that food from your

> diet. Values less than 10 indicate there currently is minimal or

no

> reaction to that food and hence, no direct evidence of food

> sensitivity to that specific food. However, because 1 in 500

people

> cannot make IgA at all, and rarely, some people can still have

> clinically significant reactions to a food antigen despite the

lack

> of a significant antibody reaction (because the reactions

primarily

> involve T cells), if you have an immune syndrome or symptoms

> associated with food sensitivity, it is recommended that you try a

> strict removal of suspect foods from your diet for up to 12 months

> despite a negative test.

> >

> > Interpretation Of HLA-DQ Testing: HLA gene analysis reveals

that

> you have one of the main genes that predisposes to gluten

> sensitivity and celiac sprue, HLA-DQ2 or HLA-DQ8. Each of your

> offspring has a 50% chance of receiving this gene from you, and at

> least one of your parents passed it to you. You also have a non-

> celiac gene predisposing to gluten sensitivity (DQ1 or DQ3 not

> subtype 8). Having one celiac gene and one gluten sensitive gene,

> means that each of your parents, and all of your children (if you

> have them) will possess at least one copy of a gluten sensitive

> gene. Having two copies also means there is an even stronger

> predisposition to gluten sensitivity than having one gene and the

> resultant immunologic gluten sensitivity or celiac disease may be

> more severe.

> >

> >

> >

> > __________________________________________________

> >

[Guest guest]

Hi Rogene!

The house is nearly finished, just a teeny bit of paint work remains. We'll

start moving back in later today, after it is completely cleaned. I have

been feeling great since being out of the house. I'm hopeful that I don't

start with headaches or my cloudy head again. If I do, I'll know exactly

what caused it! I ran the heat on high last night and will do it again

tonight to help cure the paint and polyurethane. I probably should have had

non-toxic paint used but since the entire house wasn't being painted, it

wouldn't have matched well. and I are leaving on another cruise in a

little over a week so the house will have another week to cure with me on

the ocean.

Yes, gluten can be terrible stuff for some. Since eats gluten free,

I generally do too. Since some celiacs don't test positive, it's better to

be safe since we know either 's father or I must be positive in order

for her to have the disease. I tested negative, Jeff hasn't been tested

yet.

Kenda

> Hi Kenda,

>

> Good to see you back! . . . Is your house finished?

> And are you back in? Are you feeling better after

> getting out of there for a while?

>

> My friend become unconscious if she gets even a small

> amount of gluten! . . . Awful stuff!

>

> Rogene

>

>

[Guest guest]

it would be impossible to really know if it was the root canal

removal that did it..or whether the quinolone reaction had died

down.

My worst pain was about 3 weeks out from the Levaquin...and over the

next 3 months...gradually subsided.

don't get me wrong...root canals not done properly are bad bad

things...and i keep wondering whether i should have had one at all.

but if you had Levaquin, knee pain could also have been damage from

the quinolone presenting.

i'll never take another quinolone drug. i've heard so many sad

stories of lives destroyed.

cindi

> >

> > Levaquin is the quinolone that caused my intial knee/leg...total

> > joint pain. The quionolones are very toxic..a very strong

> > antibiotic that can even cross the CNS barrier.

Google " quinolone

> > toxicity " or tendon rupture + quinolone, etc...for more info.

> there

> > are several supports groups...and a FQ org (floroquinolone). I

> > would think it was the levaquin that caused the knee problem

given

> > that is one of the most common ADRs.

>

>

>

>

>

> __________________________________________________

>

[Guest guest]

yea, this has been my dilemma. a number of us who went untreated

hypo for so long have crumbling teeth. hypo can cause that. now i

know why despite good dental care, i started having cavities and

then needing crowns back in my 30s. it really makes me mad. but

now what to do?

dentures really should be a last option. they really can have so

many problems too. very little chewing ability. and still the

maintenance and even gum problems/bone loss. one hypo gal i know

did do that though..it was the most affordable option for her.

i've considered implants...but for autoimmune folks..that can be a

horror too. but the expense is awful.

i'd like to save my teeth...and from what i research, a root canal

done properly is safe. but still not the best option for an

autoimmune person. and iffy.

i'm worried i'm going to have problems from the one i had recently.

which leaves pulling that toooth..and getting a bridge. not really

an attractive option.

there honestly are no good options it seems. :-(

cindi

>

> I do not trust root canals. I have had a number of them

(inherited

> bad teeth) and am losing them one by one.

>

> My options soon will be dentures or dental implants.

>

> Dentures have big problems as the materials they are made of can

also

> be toxic. Dental implants are imbedded and to some, titanium can

be a problem.

[Guest guest]

Lea,

I hope you are enjoying your new home and this new chapter in your life!

Kenda

> Kenda, it is nice to have you back. We have moved from our big home and we

> are trying to get settled. I miss the big yard, but this home is new and it

> is much easier to clean. We spent thousands of dollars reparing the old home

> and now it is for sale.

>

> Take care and enjoy your trip...love you........Lea

> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~`

> Re: Test results on celiac for me

>

>

>> Hi Rogene!

>>

>> The house is nearly finished, just a teeny bit of paint work remains.

> We'll

>> start moving back in later today, after it is completely cleaned. I

> have

>> been feeling great since being out of the house. I'm hopeful that I

> don't

>> start with headaches or my cloudy head again. If I do, I'll know

> exactly

>> what caused it! I ran the heat on high last night and will do it again

>> tonight to help cure the paint and polyurethane. I probably should have

> had

>> non-toxic paint used but since the entire house wasn't being painted, it

>> wouldn't have matched well. and I are leaving on another cruise

> in a

>> little over a week so the house will have another week to cure with me

> on

>> the ocean.

>>

>> Yes, gluten can be terrible stuff for some. Since eats gluten

> free,

>> I generally do too. Since some celiacs don't test positive, it's better

> to

>> be safe since we know either 's father or I must be positive in

> order

>> for her to have the disease. I tested negative, Jeff hasn't been tested

>> yet.

>>

>> Kenda

>>

>>

>>> Hi Kenda,

>>>

>>> Good to see you back! . . . Is your house finished?

>>> And are you back in? Are you feeling better after

>>> getting out of there for a while?

>>>

>>> My friend become unconscious if she gets even a small

>>> amount of gluten! . . . Awful stuff!

>>>

>>> Rogene

>>>

>>>

>>

>>

>>

>>

>>

>> Opinions expressed are NOT meant to take the place of advice given by

> licensed health care professionals. Consult your physician or licensed

> health care professional before commencing any medical treatment.

>>

>> " Do not let either the medical authorities or the politicians mislead

> you. Find out what the facts are, and make your own decisions about how to

> live a happy life and how to work for a better world. " - Linus ing,

> two-time Nobel Prize Winner (1954, Chemistry; 1963, Peace)

>>

>> See our photos website! Enter " implants " for access at this link:

>> http://.shutterfly.com/action/

>>

>>

[Guest guest]

Kenda

It is good to hear that you are feeling so well. Are you still

taking the liver cleanse stuff? How do you think it worked for

you? How about Dr. Leu? Is he finished? Have you heard of taking

Chinese Bitters? I have heard alot of good about it for helping

with liver detox.

Hugs Kathy

--- In , Kenda Skaggs <skaggs@...>

wrote:

>

> Hi Rogene!

>

> I feel the best I have in years! Getting out was a very good

thing for me.

>

> I had no idea Lea left her home. Were they able to sell and it

relocate?

>

> The restoration company is cleaning everything before it makes its

way back

> into the house. We brought very little into the trailers, just

clothing and

> necessities. The mold we had in the house was one of the safer

varieties,

> if a safe variety exists! I'm in no hurry to get back into the

house. The

> restoration company can take their time and do it right.

>

> Mold is bad news and grows quickly. It definitely needs to be

taken care

> of.

>

> Kenda

>

>

> > Kenda,

> >

> > I'm sooooooo happy for you that you're feeling so much

> > better! . . . I had a feeling that you would do much

> > better once you got out of your house!

> >

> > I just hope that Lea begins feeling better now that

> > she's away from her old house too!

> >

> > What kind of cleanup have/are you doing of your

> > personal possessions? . . . Did you take many things

> > with you to the trailers?

> >

> > A silicone sister had horrible mold problems, not just

> > once, but three times. . . Once was after she took

> > some things from her old house. The type of mold she

> > had was the worst though! She had to literally leave

> > everything behind and take only her drivers liscense

> > in a baggie - go to a hotel room, shed everything

> > again before moving into new housing.

> >

> > People need to realise that mold problems are major.

> > If one spots mold, it must be addressed immediately!

> > Homes should be checked regularly for the presense of

> > mold.

> >

> > Hugs,

> >

> > Rogene

> >

> >

>