Re: new stuff

[Guest guest]

Your increased heart rate was probably from the sugar in the Sprite and

the fact your body turns the potatos into sugar - so you bascially had a

double dose of sugar. I get this after I eat pasta, potatos, some

legumes, most breads, and all processed sugars!!!

Sissy

On Fri, 18 May 2001 15:05:20 -0400 (EDT) PEARLY2@... writes:

> I started taking some new candida pills and I stopped after the first

> day. I want to ask you all for advice.

> I did have potatoes and I had the Sprite, and they may have started

> the

> fast pulse rate, but in the back of my mind I am wondering if it was

> the

> new products I been taking. The names are Arteriozyme and Candicid.

> They

> are both ny Energique.Suppose to do an intestinal cleanse, also

> suppose

> to absorb the die off 95%.

> A Nathopath told me to take these. I took them for one day. I want

> you

> to know that I lost almost 3 pounds by the next morning, I was

> shocked !

> Happy about that aspect of it. I am still on xanax ( weaning myself

> off

> of it ) and I am wondering if you all think these could have

> triggered

> the rapid heart rate? Anyone else take these? Any input would e

> great. I

> am finding myself afraid of everything lately!

>

> Pearl (NY)

>

>

> Country Living at it's finest

> Countrylife

>

>

> Send blank message to candidiasis-unsubscribeonelist if you

> want to UNSUBSCRIBE !

>

[Guest guest]

I don't know...the fact that you lost such weight in such a short amount of

time. I know some medicines that are supposed to help with weight will

speed up your heart. Did you have any heart racing with potatoes and Sprite

before you started the medication?

Sissy

On Fri, 18 May 2001 15:05:20 -0400 (EDT) PEARLY2@... writes:

> I started taking some new candida pills and I stopped after the first

> day. I want to ask you all for advice.

> I did have potatoes and I had the Sprite, and they may have started

> the

> fast pulse rate, but in the back of my mind I am wondering if it was

> the

> new products I been taking. The names are Arteriozyme and Candicid.

> They

> are both ny Energique.Suppose to do an intestinal cleanse, also

> suppose

> to absorb the die off 95%.

> A Nathopath told me to take these. I took them for one day. I want

> you

> to know that I lost almost 3 pounds by the next morning, I was

> shocked !

> Happy about that aspect of it. I am still on xanax ( weaning myself

> off

> of it ) and I am wondering if you all think these could have

> triggered

> the rapid heart rate? Anyone else take these? Any input would e

> great. I

> am finding myself afraid of everything lately!

>

> Pearl (NY)

>

>

> Country Living at it's finest

> Countrylife

>

>

> Send blank message to candidiasis-unsubscribeonelist if you

> want to UNSUBSCRIBE !

>

[Guest guest]

I convinced the ped to give us five more days of Omnicef for 's sinus

infection, so she'll get a total of 16 days (there was extra in the bottle

for the first 10 day course) and then be re-evaluated. Though I know if they

looked at her right now they would say she's clear but I " know " she hasn't

completely kicked it yet.

Then yesterday the " sinus behavior " was really bad (2 tantrums + much

attitude) and later in the evening I noticed what looked like petechiae

(little blood spots under the skin) on the fronts and backs of her shoulders,

plus some on her chest below her neck. I know that can be a sign of sepsis

but she had no fever whatsoever and was acting her usual, so I decided just

to wait for this morning and check her in the night to make sure it wasn't

spreading or increasing. She didn't seem sick. But it was still not a fun

night for me! Guilt! But I just had the feeling she wasn't really sick and I

didn't want to do the whole ER thing over something I knew was nothing. Our

protocol with her antibody def would say the ER trip was our call, but I was

hoping my mommy instincts were working.

It was the right decision because she was still the same this morning and the

ped didn't really think it looked like petechiae (mostly because she did not

appear sick at all), though it did not blanch when pressed. He did a CBC

(finger stick, she didn't even cry though we were out of EMLA! And she said

" thank you " to the nurse after!) and the machine messed up and didn't give a

white count, but he was just looking at platelets anyway, which were fine. I

assume if it were really petechiae the platelets would be off and then you'd

want to look for the cause (do a white count w/diff).

So the guess is that we have a new nonspecific virus on top of the sinus

infection she's finishing. My husband is discouraged because he's afraid

we're going to have to cut back on the new activities. She just took her

first class ever this Spring, she went to gymnastics four whole times. She

missed once due to illness and then also had her sinus infection during the

last class. Plus we went to our local public pool for the first time ever

last Saturday, and she LOVED it more than anything in the world.

I'm not cutting back on anything yet, I bet if you asked her she'd say it was

worth it. But I hate that she's fighting two different things right now.

(mom to , age 3. Currently has polysaccharide antibody def,

previously had transient IgG, IgA, t-cell & other defs)

[Guest guest]

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[Guest guest]

In a message dated 4/11/2005 10:38:00 A.M. Eastern Daylight Time,

johnvel@... writes:

I really do like my son, he has the heart of an angel and he is

comical and handsome. I KNOW he is okay and will be, but I do hope

that some one day someone else will recognize this in him so that his

circle of friends will grow.

And its so true they are so sweet

and caring.

THe hearts of angels

lee curtis has some wonderful books about self esteem

feelings etc.

[Guest guest]

Velvet!

Hooray! I'm so glad he was accepted!

I know what you mean about hurting for our kid and their social issues. My

son is nearly eight, and he comes home insisting no one likes him either.

Well, some people do. I wish I could encourage him to focus on what goes

right instead of what doesn't. I tell him that mistakes are things to learn

by, that everyone makes them, that we pick ourselves up and slog on the

best we can. Sasha does like to hear that he isn't alone with his

struggles, but he feels that his are more extreme, and I suppose they are.

Oh it is hard, isn't it? Poor Sasha is just so clueless in the park and

other public places. I feel that I must watch him every second and coach

him from the sidelines. I do not like to do this, and my interference isn't

always welcome. Believe me, I am not naturally a hovering parent, so this

is really hard on me. But some day perhaps I will discover that fine line

between helping too little and helping too much.

Best wishes to you, Velvet. I hope son #3 benefits from the diagnostic

evaluation and that you will get some answers to the questions about ADHD

vs. AS.

T.

mom of Sasha, 7

At 02:33 PM 4/11/2005 +0000, you wrote:

>Hello, just wanted to post an update:

>

>First off, some good news for my son #3: he has been accepted into

>the diagnostic clinic of the children's hospital that evaluated him

>for the remainder of the school year. He will begin at the end of

>this month and DH and I are to attend a meeting this evening for an

>overview of the program. The ratio of children to teacher is 1:6 with

>an aide. Even if he still comes out of the 2 month program without an

>identifiable 'label' beyond ADHD, I think this will be an exceptional

>opportunity for him so that when he returns to his usual school we

>will all have a better take on how to approach his individual

>learning needs.

>

>This will also be son #3's first experience on a school bus and the

>day is going to be very long for him as the school is in a nearby,

>but different city (hour long ride I estimate). Seems so strange to

>be sending him off to somewhere different from where his brothers

>attend, but I know it is for the best.

>

>Here is an example of my son: over the weekend he and I went on a

>bicycle ride alone together and while we passed an area on a trail he

>surprised me by recalling a dream I had which I mentioned in passing

>to him about a year ago! His memory for detail such as this is mind-

>boggling; I could hardly remember what he was talking about at first,

>but he remembered the conversation as if it just took place. However,

>on the flip side: I said to him, " hey, your pants have 'floods' fix

>them and pull them down over your ankles. " He complied by hiking them

>around his waist. So, I repeated, " no, no, your ankles... " He put his

>hands on his knees! Finally, I asked: " do you know where your ankles

>are? " (Points questionally at waist, knees, then elbows... evidently

>not!) This is coming from my little dude who will be 9 years of age

>in a week! Imagine, to be so smart in so many ways, but to be

>clueless in others such as knowing where one's ankles are. It must be

>so frustrating and difficult in his world at times.

>

>The other conversation we had, out of the blue: " Mom, no one in my

>class likes me. " " Why do you say that? " " Well, --- and --- (names a

>girl and boy in his class) and (teacher) like me, but no one else

>does. They think I am dumb. " (OUCH, my heart!) " Well, I like you! " " I

>know, Mom. " I repeat, it must be so difficult...

>

>I really do like my son, he has the heart of an angel and he is

>comical and handsome. I KNOW he is okay and will be, but I do hope

>that some one day someone else will recognize this in him so that his

>circle of friends will grow.

>

>Also, I KNOW that there is more going on with him beyond ADHD. By the

>way, he has been taking 18mg. of Concerta. Personally, I really see

>no change in his demeanor, though his teacher says he is better able

>to focus and remain seated in the classroom and because I do respect

>her judgment I am continuing the med. The program that was taught at

>school called " How Does Your Engine Run " was fun for the kids and

>definitely something positive that should be taught to all children

>about self-awareness of energy level, but really just a

>simplification of methods for self-composure that are pretty general.

>

>Okay, that is my book for today! Have a good one everybody!

>

>Velvet

>

>

>

>

>

>

>

[Guest guest]

VELVET :

HOW OLD IS YOUR CHILD? I CRIED WHEN I READ YOUR POST BECAUSE I KNOW HOW

PAINFUL IS TO HEAR YOUR SON TELLING YOU THAT NO ONE LIKES HIM AT SCHOOL . THAT'S

WHAT I'M GOING THROUGH RIGHT NOW AND MY HEART IS BLEEDING BECAUSE I FEEL THE

PAIN MY OWN SON IS GOING THROUGH AT SCHOOL HE ALSO TAKES CONCERTA BUT HAS NOT

BEEN WORKING FOR HIM. I WISH I COULD FIND A SUPPORT GROUP IN MY AREA SO I COULD

MEET WITH OTHER PARENTS WHO GO THROUGH THIS AND THAT MY SON COULD MEET WITH

OTHER CHILDREN LIKE HIM.

[Guest guest]

Dear Marice,

My son will be 9 years of age this week as a matter of fact. All his

days are not difficult; generally he is a happy-go-lucky soul. I can

only hope that this is how his take on life and other people will be

as he matures. I am worried, no doubt, but I feel blessed that I have

him - and, his 3 other brothers to help him and protect him!!! Son #3

has said on occasion that he knows that he is tall and will be a big

guy when he grows up (takes after his 6'1 " Dad) so other people will

not pick on him then! - lol - he is a gem!

If you have a Health Unit in your neck of the world (I am in Canada)

you might try contacting them for tips on a support group near you.

That or your nearest children's hospital to find some leads.

Personally, I gain my support through these wonderful online group(s).

For AS, this particular group is awesome, IMO. Please do not feel that

you are alone... though we may be far apart in distance all of our

hearts are nearby.

-Velvet

P.S. Please share more about your son - age, etc.

> VELVET :

> HOW OLD IS YOUR CHILD? I WISH I COULD FIND A SUPPORT GROUP IN MY

AREA SO I COULD

> MEET WITH OTHER PARENTS WHO GO THROUGH THIS AND THAT MY SON COULD

MEET WITH

> OTHER CHILDREN LIKE HIM.

[Guest guest]

well said Kenda - and lets also make sure that I do not get mixed up as this person. My name is Shari and I have been with this group and helped for years.... I have not posted much lately so some of the newbies may not know me as I have been ill. In my few years here we have had a handful of people come in here and stir things up and some people who are not who they claim to be.... we just get through it and move on. I have had a lot going on lately - my series of seizures last week and subsequent hospitalization at the helm. I am so confused lately - I think the anti-seizure meds are making me feel a little weird. Remember - I am always here for anyone that needs help or advice - I just have flares sometime that keep me out of the loop for a few weeks. Remember all: my name is spelled Shari.... I have no idea what has been going on the last few week w/ some of the newer people as I had no way to read all the messages nut I wanted to make sure I was not mistaken for someone that I am not....Seems like there have been a few issues here. Rogene and some of the others that have been around for a while can attest to who I am - I am one of the good guys!!

I hope all this mess is cleared sp soon - please let me know if I can be of assistance....

thanks all!!

love

shari

[Guest guest]

Shari,

No confusion on my part. Your kind sweet and have just had the hell scared out of you with seizures. Your a gem!

Penni

Re: new stuff

well said Kenda - and lets also make sure that I do not get mixed up as this person. My name is Shari and I have been with this group and helped for years.... I have not posted much lately so some of the newbies may not know me as I have been ill. In my few years here we have had a handful of people come in here and stir things up and some people who are not who they claim to be.... we just get through it and move on. I have had a lot going on lately - my series of seizures last week and subsequent hospitalization at the helm. I am so confused lately - I think the anti-seizure meds are making me feel a little weird. Remember - I am always here for anyone that needs help or advice - I just have flares sometime that keep me out of the loop for a few weeks. Remember all: my name is spelled Shari.... I have no idea what has been going on the last few week w/ some of the newer people as I had no way to read all the messages nut I wanted to make sure I was not mistaken for someone that I am not....Seems like there have been a few issues here. Rogene and some of the others that have been around for a while can attest to who I am - I am one of the good guys!!

I hope all this mess is cleared sp soon - please let me know if I can be of assistance....

thanks all!!

love

shari

[Guest guest]

Shari,

We know who you are. We won't mix you up with anyone.

Lynda

At 09:24 AM 6/14/2006, you wrote:

>well said Kenda - and lets also make sure that I do not get mixed up

>as this person. My name is Shari and I have been with this group

>and helped for years.... I have not posted much lately so some of

>the newbies may not know me as I have been ill. In my few years

>here we have had a handful of people come in here and stir things up

>and some people who are not who they claim to be.... we just get

>through it and move on. I have had a lot going on lately - my

>series of seizures last week and subsequent hospitalization at the

>helm. I am so confused lately - I think the anti-seizure meds are

>making me feel a little weird. Remember - I am always here for

>anyone that needs help or advice - I just have flares sometime that

>keep me out of the loop for a few weeks. Remember all: my name is

>spelled Shari.... I have no idea what has been going on the last few

>week w/ some of the newer people as I had no way to read all the

>messages nut I wanted to make sure I was not mistaken for someone

>that I am not....Seems like there have been a few issues

>here. Rogene and some of the others that have been around for a

>while can attest to who I am - I am one of the good guys!!

>

>I hope all this mess is cleared sp soon - please let me know if I

>can be of assistance....

>

>thanks all!!

>

>love

>shari

>

[Guest guest]

Shari, Is the medication you're taking Neurontin by any chance? Check the website www.askapatient.com to check out patients comments on medicaions. Hugs, Rogene halvey70@... wrote: well said Kenda - and lets also make sure that I do not get mixed up as this person. My name is Shari and I have been with this group and

helped for years.... I have not posted much lately so some of the newbies may not know me as I have been ill. In my few years here we have had a handful of people come in here and stir things up and some people who are not who they claim to be.... we just get through it and move on. I have had a lot going on lately - my series of seizures last week and subsequent hospitalization at the helm. I am so confused lately - I think the anti-seizure meds are making me feel a little weird. Remember - I am always here for anyone that needs help or advice - I just have flares sometime that keep me out of the loop for a few weeks. Remember all: my name is spelled Shari.... I have no idea what has been going on the last few week w/ some of the newer people as I had no way to read all the messages nut I wanted to make sure I was not mistaken for someone that I am not....Seems like there have been a few issues here. Rogene and

some of the others that have been around for a while can attest to who I am - I am one of the good guys!! I hope all this mess is cleared sp soon - please let me know if I can be of assistance.... thanks all!! love shari