Re: Re: Anyone have any experience with Dr. Debaise in Orlando?

[Guest guest]

dawn

I also went thru what you are going thru.... i was thinking of going to Dr. Kolb which would had cost me a ton or going local here in Florida.... after I found out that my insurance would not cover an appeal on a surgery outside the state, and I knew I was going to try to appeal it, I stayed local and found a great doctor for a fraction of the price.... I am not sure what his pricing is now as it has been 3 years but he did an en bloc for less than 3K and I had really nice looking results from his operation as well as he wrote several letters to my ins company in support of my appeal as he noticed that upon removal both of mine were leaking and filled w/ mold, and I won the appeal. I do believe it is true that you get what you pay for and there are many surgeoens like Feng, Kolb, and Huong, that have probably dome many more enbloc type procedures but I also know what it is like to have financial constraints and have to make that decision.... you are talking about a ton of money.... I just sat and listened w/ my heart as to whether or not I thought this doctor would treat me right for a much smaller amount of money as we were so very strapped for cash then... I do not regret the decision I made - I really like my local doctor and had really nice results from him. If I had been rich no doubt I would have gone out of town just to make sure I got what I paid for but I wasn't rich.

I hope this helps a little

shari

[Guest guest]

Dawn, What the receptionist means is that he usually makes the incision through the skin and capsule, removes the implant THEN removes the capsule. En bloc means they cut around the capsule while the implant is still inside. The difference means that, if there are any contaminents in your implants that they won't get spilled into your chest cavity. There are times when this can't be done. . . That's where having a doctor you can trust comes in. At the minimum, a total capsulectomy should be done. . . With salines, the doctor may draw the saline out with a needle before removing the capsule . . . but, except for a needle stick, the capsule will be entact. We need a LOT more doctors who know how to do explants properly . .. They don't have to believe that implants are dangerous . . . But, they do need to respect

your request to have them removed as you request. It's not as though you were asking for a lower standard, you're asking for a higher standard. The doctor is working for you! He should do what you want. If, after talking to him, you don't think he's taking you seriously, I'd consider checking on Shari's doctor - or someone else. Don't let that doctor upset you . . . One of these days he'll remember seeing you (and likely a lot more implanted women) . . . At least I hope so so his wife doesn't have to suffer! . . . I wonder if they have had any children while she was implanted? . . . That's where this should become criminal! You could give him some information - we have lots of abstracts from medical journals - but I doubt he'd be interested! Your tests will probably come back negative . . . they usually do! . . . Look at it this way . . . If you get some of those diagnoses, it

will greatly affect your chances of getting private health/disablity or life insurance in the future. Let's hope you test negative! Hugs and prayers, Rogene

[Guest guest]

Ladies,

Looks like I'm not the only one who had to deal with a deaf ear doctor today.

I went to the rheumatologist and told him about my fibro, frozen shoulder etc. and that I felt my problems were related to silicone toxicity. He just dismissed me and said that scientific studies back in the 90's proved that silicone didn't cause inflammatory illnesses. So I told him I had an article by Dr. Kolb about silicone implants. He said I'm a rheumatologist and I can help you with your frozen shoulder.

I left their feeling so humiliated, hurt and angry all in one. Why oh why don't doctors listen or believe anything about silicone and it's harmful effects on the body.

So I'm going to call my other doctor and see if he knows of someone more open to the possibility of problems with silicone. I really don't want to go back to see this jerk unless I have too.

UUUUUUUUUggggggggggggggggggghhhhhhhhh!!!!

Penni

Re: Anyone have any experience with Dr. Debaise in Orlando?

Thanks Rogene and Lynda, I talked with Dr. Debaise's receptionist and she said he does do enbloc, although most procedures are removal with capsulectomy and THENa re-implant. He as an appt for a consult on July 11 -- not too faraway, with surgery scheduled a few days after for those who travel.Is there a difference between en bloc removal and a capsulectomy?Why would a doc say they do en bloc then don't? And how do you knowafter surgery what he/she truly did?I called Dr. Rotatori's office this morning and he doesn't even have aconsult appt. open until the end of August.I can get in to Dr. Kolb June 26th. I also called a fellow on explantation.com dr. list who is in WestPalm Beach area and the receptionist at the office said all of theirdr.s do en bloc procedures. I don't know if that is true.You know, I went to my primary care today to see about getting somebloodwork done -- and even though I brought literature with me, withsources cited, the guy (a resident) basically said, "I don't believeyou, my wife has saline implants and she's fine. I'll order the testsanyway. If you have lupus or rheumatoid arthritis or fibromyalgia, itis totally unrealted to your implants." EXACTLY what Dr. Kolb said hewould say. Plus he gave me that "I'm dealing with a crazy lady" lookthat I am sure many of you get.I did get tests for lupus, RA, and a sed rate test.I feel like I take a step down on the "diminishing capacity" ladderevery three weeks or so. I don't want to wait, because I can feelmyself getting worse, but at the same time, I feel like I have toinvestigate the money end. If I can get truly successful en blocremoval in state for 3,500....why spend over 6,000 and travel? Ifthe answer is "because you're guaranteed a good surgical result with atrue en bloc removal and that will help your chances of recovery, plusDr. Kolb rocks" then it's fine.And last, why would one snotty opinion from a 1st year resident makeme doubt myself?!! ARrrrghhhh!Dawn>> Have you talked to Dr. Debaise yet? . . . Or to his receiptionist?. . . > > This is something you want to be absolutely sure of . . . somedoctors say they'll do en bloc, then don't. . . Do you know any of hisother patients?> > Hugs and prayers,> > Rogene>

[Guest guest]

Dawn,

I would travel and use Dr. Kolb, because she is experienced. If the doctor in your state usually does removal then puts the implants back in. I would worry of what you will look like after removal with out implant. Dr. Kolb specializes in that too so you won't look bad with explant. I look fine and many others say they look great as well. I think this is important for us to heal and move on without toxic bags in us. This is only my opinion and I will be here no matter what you choose to do or whom you us, for support. I am glad you are getting them out of you. Good Luck and God Bless

Donna

[Guest guest]

Penni,

How terrible makes me never want to go to anyone except Dr. Kolb, that is ridiculous he didn't believe you because his wife has implants. He is gonna wake up some day when she gets sick too. Good Luck Penni on finding a good doctor in your area, I hope you do soon.

Donna

[Guest guest]

Penni, Don't let him get to you. rheumys are the worst for understanding implant illnesses! . . . I swear they all memorized the same script! If you can find a good one, he/she is worth their weight in gold . . . but finding one - that's another matter! I'm copying your message to some silicone sisters in your area . . . Hopefully they'll have a recommendation. Love, Rogene Penni Pitre <penniquilts@...> wrote: Ladies, Looks like I'm not the only one who had to deal with a deaf ear doctor today. I went to the rheumatologist and told him about my fibro, frozen shoulder etc. and that I felt my problems were related to silicone toxicity. He just dismissed me and said that scientific studies back in the 90's proved that silicone didn't cause inflammatory illnesses. So I told him I had an article by Dr. Kolb about silicone implants. He said I'm a rheumatologist and I can help you with your frozen shoulder. I left their feeling so humiliated, hurt and angry all in one. Why oh why don't

doctors listen or believe anything about silicone and it's harmful effects on the body. So I'm going to call my other doctor and see if he knows of someone more open to the possibility of problems with silicone. I really don't want to go back to see this jerk unless I have too. UUUUUUUUUggggggggggggggggggghhhhhhhhh!!!! Penni Re: Anyone have any experience with Dr. Debaise in Orlando? Thanks Rogene and Lynda, I talked with Dr. Debaise's receptionist and she said he does do enbloc, although most procedures are removal with capsulectomy and THENa re-implant. He as an appt for a consult on July 11 -- not too faraway, with surgery scheduled a few days after for those who travel.Is there a difference between en bloc removal and a capsulectomy?Why would a doc say they do en bloc then don't? And how do you knowafter surgery what he/she truly did?I called Dr. Rotatori's office this morning and he doesn't even have aconsult appt. open until the end of August.I can get in

to Dr. Kolb June 26th. I also called a fellow on explantation.com dr. list who is in WestPalm Beach area and the receptionist at the office said all of theirdr.s do en bloc procedures. I don't know if that is true.You know, I went to my primary care today to see about getting somebloodwork done -- and even though I brought literature with me, withsources cited, the guy (a resident) basically said, "I don't believeyou, my wife has saline implants and she's fine. I'll order the testsanyway. If you have lupus or rheumatoid arthritis or fibromyalgia, itis totally unrealted to your implants." EXACTLY what Dr. Kolb said hewould say. Plus he gave me that "I'm dealing with a crazy lady" lookthat I am sure many of you get.I did get tests for lupus, RA, and a sed rate test.I feel like I take a step down on the "diminishing capacity" ladderevery three weeks or so. I don't want to wait, because I can

feelmyself getting worse, but at the same time, I feel like I have toinvestigate the money end. If I can get truly successful en blocremoval in state for 3,500....why spend over 6,000 and travel? Ifthe answer is "because you're guaranteed a good surgical result with atrue en bloc removal and that will help your chances of recovery, plusDr. Kolb rocks" then it's fine.And last, why would one snotty opinion from a 1st year resident makeme doubt myself?!! ARrrrghhhh!Dawn>> Have you talked to Dr. Debaise yet? . . . Or to his receiptionist?. . . > > This is something you want to be absolutely sure of . . . somedoctors say they'll do en bloc, then don't. . . Do you know any of hisother patients?> > Hugs and prayers,> >

Rogene>

[Guest guest]

Lea, I know the en bloc isn't always possible . . . That's where having a surgeon you can trust to do the very best job possible is so important. . . And why we can wholeheartedly recommend so few doctors. . . Don't worry about me. I'm doing really, really well . . the cancer scare motivated me to redouble my efforts to feel good all the time. It does get tiresome! . . . And, when one isn't feeling quite up to par, it's hard to master the discipline . . I';ll go for my three month checkup (following radiation) next week. This will include a bone scan, lab work and an exam - probably a sonogram. I have some other issues I want to discuss with them. . . namely thyroid as related to cancer. They're not going to be happy I won't take their meds - but I figure it's my body, my life and I make the decisions! Some of the things I'm doing now . . . NO more microwave! . . . No

teflon pans (It occurs to me that the old fashioned cast metal pans didn't stick, heated evenly - all the things that they've been trying so hard to replicate!). . . All fresh veggies . . . bi-weekly massage . . . daily sauna . . . detox foot pads . . . Only spring water . . . Natural Cellular Defense . . . Glutamine, N.A.C., Lipoic Acid, MagOx; Garden of Life's Living Calcium, Living Multi, Cod Liver Oil and Perfect Food. I'm have more strength, higher spirits and more energy for an extended time than I can remember in years . . . Not bad for someone nearly 70! I'm back to scheduling multiple activities for every day. Last week was wonderful . .. My daughter and grand daughter spent the week . . . My daughter badly needed some rest - and my grand daughter needed some undivided attention. . . She got it! . . .She wants to be a model (she's got what it takes), so we took a lot of pictures of her . . .

If you're interested, I can send you an invite to the on line album. I hope you're getting back to yourself now that the stress of the house, mold and move are behind you! . . . Love, Rogene

[Guest guest]

Dawn, If this doctor puts implants back in, please understand he may try to convince you to either keep yours or put in new ones. We have had some ladies say their PS told them they would look horrific if they didn't get new implants. His livelyhood is in implanting women, this is his comfort zone. Keep in mind he may try to discourage you in any way. Just a warning. BSBanshee1@... wrote: Dawn, I would travel and use Dr. Kolb, because she is experienced. If the doctor in your state usually does removal then puts the implants back in. I would worry of what you will look like after removal with out implant. Dr. Kolb specializes in that too so you won't look bad with explant. I look fine and many others say they look great as well. I think this is important for us to heal and move on without toxic bags in us. This is only my opinion and I will be here no matter what you choose to do or whom you us, for support. I am glad you are getting them out of you. Good Luck and God Bless Donna

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Dawn, If any doctor tell you that you'll be deformed without implant . . . take that as a description of his/her work . .. RUN! . . . As far as being depressed without implants? .. . How much more depressed can one be when they're sick 24/7. You may be flat, but you shouldn't be deformed or ugly! Hugs, Rogene

[Guest guest]

Dawn

I agree with Rogene....l my original PS said the same thing to me... i will look deformed and must have a replacement as I went from a AA to a C for 7 years under the muscle... he almost had me convinced but then I went to Dr. Bridge as I wasn't about to let my original "butcher" as I like to call him touch me again. I was convinced that I was gonna need a lot of repair work, llift, etc to fix my breast after the implants for so long as well as a pregnancy and breast feeding which took me to a DD for several months.... Dr. Bridge said he really didn't think I would need the lift and I thought he was full of it... he was comparing my skin with the pregnancy, etc., and said he was so sure that I didn't need one that If he ended up being wrong, he would do it later at his cost... Can you believe that - a PS talking himself OUT of extra $$ for the lift that I was willing to pay. He was right of course - I am not the least bit deformed looking after all those years w/ implants/breastfeeding, etc., and they look very normal. please run as fast as you can from any PS who tells you that - they are just trying to get more $$$ or et you to re-implant to avoid admitting they may have issues... I would run as fast as possible from any doc like that as i did my original PS. Just my opinion - hope it helps

love

shari

[Guest guest]

Ladies,

I called my alternative medicine doctor today. (Which I should have done in the first place). He gave me the name of a rheumatologist that he recommends his patients to. I told him about my experience yesterday and he said that this doctor will be more open to silicone toxicity. So we'll see. I need documentation from a rheumatologist that I have fibromyalgia for my Dow Corning Settlement (tip that is).

Penni

---- Original Message -----

From: mikat828

Sent: Friday, June 16, 2006 12:53 PM

Subject: Re: Anyone have any experience with Dr. Debaise in Orlando?

Penni I hate to say it but very few of us here have been helped by rheumatologists. Most are old school and all they want to do is diagnose you with an autoimmune disease. If they can't, they are done with you. If they can, then they will try to prescribe toxic drugs that you wouldn't want to take. Personally I feel most of them are useless. You would do better to go to someone who is holistic. I have had fms for over twenty years and the thing that helped me most was a book I lent out and never got back. I can't remember who has it so I am looking to find an out of print copy. It is called Myotherapy by Bonnie Prudden. It is the best book and helped me more than regular physical therapy or chiropractic etc. She shows how to find the trigger points all over the body that cause all this pain and release them. Then she has extensive exercises to strengthen the area so that it is a permanent fix. I can't say enough good about this book or the technique. Compared to paying for useless doctor visits or injections of steroids or expensive physical therapy this is priceless!Love, Kathy > >> > Have you talked to Dr. Debaise yet? . . . Or to his receiptionist?> . . . > > > > This is something you want to be absolutely sure of . . . some> doctors say they'll do en bloc, then don't. . . Do you know any of his> other patients?> > > > Hugs and prayers,> > > > Rogene> >>

[Guest guest]

Rogene,

Thanks!!! Your such an inspiration.

Penni

Re: Anyone have any experience with Dr. Debaise in Orlando?

Thanks Rogene and Lynda, I talked with Dr. Debaise's receptionist and she said he does do enbloc, although most procedures are removal with capsulectomy and THENa re-implant. He as an appt for a consult on July 11 -- not too faraway, with surgery scheduled a few days after for those who travel.Is there a difference between en bloc removal and a capsulectomy?Why would a doc say they do en bloc then don't? And how do you knowafter surgery what he/she truly did?I called Dr. Rotatori's office this morning and he doesn't even have aconsult appt. open until the end of August.I can get in to Dr. Kolb June 26th. I also called a fellow on explantation.com dr. list who is in WestPalm Beach area and the receptionist at the office said all of theirdr.s do en bloc procedures. I don't know if that is true.You know, I went to my primary care today to see about getting somebloodwork done -- and even though I brought literature with me, withsources cited, the guy (a resident) basically said, "I don't believeyou, my wife has saline implants and she's fine. I'll order the testsanyway. If you have lupus or rheumatoid arthritis or fibromyalgia, itis totally unrealted to your implants." EXACTLY what Dr. Kolb said hewould say. Plus he gave me that "I'm dealing with a crazy lady" lookthat I am sure many of you get.I did get tests for lupus, RA, and a sed rate test.I feel like I take a step down on the "diminishing capacity" ladderevery three weeks or so. I don't want to wait, because I can feelmyself getting worse, but at the same time, I feel like I have toinvestigate the money end. If I can get truly successful en blocremoval in state for 3,500....why spend over 6,000 and travel? Ifthe answer is "because you're guaranteed a good surgical result with atrue en bloc removal and that will help your chances of recovery, plusDr. Kolb rocks" then it's fine.And last, why would one snotty opinion from a 1st year resident makeme doubt myself?!! ARrrrghhhh!Dawn>> Have you talked to Dr. Debaise yet? . . . Or to his receiptionist?. . . > > This is something you want to be absolutely sure of . . . somedoctors say they'll do en bloc, then don't. . . Do you know any of hisother patients?> > Hugs and prayers,> > Rogene>

[Guest guest]

I am fearing my visit this August to the rheumy. I must go to one for my disability case. We had our first interview on Tuesday. My GP told me they will automatically deny my claim, because of my age (33). So, we are looking for a long fight. I am still unsettled about this. My husband just wants to be prepared in case I still can't work two years from now. I want to think will be working for some time within two years. I wish this whole thing would just end already! (frustrated). Penni Pitre <penniquilts@...> wrote: Ladies, I called my alternative medicine doctor today. (Which I should have done in the first place). He gave me the name of a rheumatologist that he recommends his patients to. I told him about my experience yesterday and he said that this doctor will be more open to silicone toxicity. So we'll see. I need documentation from a rheumatologist that I have fibromyalgia for my Dow Corning Settlement (tip that is). Penni ---- Original Message ----- From: mikat828

Sent: Friday, June 16, 2006 12:53 PM Subject: Re: Anyone have any experience with Dr. Debaise in Orlando? Penni I hate to say it but very few of us here have been helped by rheumatologists. Most are old school and all they want to do is diagnose you with an autoimmune disease. If they can't, they are done with you. If they can, then they will try to prescribe toxic drugs that you wouldn't want to take. Personally I feel most of them are useless. You would do better to go to someone who is holistic. I have had fms for over twenty years and the thing that helped me most was a book I lent out and never got back. I can't

remember who has it so I am looking to find an out of print copy. It is called Myotherapy by Bonnie Prudden. It is the best book and helped me more than regular physical therapy or chiropractic etc. She shows how to find the trigger points all over the body that cause all this pain and release them. Then she has extensive exercises to strengthen the area so that it is a permanent fix. I can't say enough good about this book or the technique. Compared to paying for useless doctor visits or injections of steroids or expensive physical therapy this is priceless!Love, Kathy > >> > Have you talked to Dr. Debaise yet? . . . Or to his receiptionist?> . . .

> > > > This is something you want to be absolutely sure of . . . some> doctors say they'll do en bloc, then don't. . . Do you know any of his> other patients?> > > > Hugs and prayers,> > > > Rogene> >>

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,

I wouldn't let your GP get you down. Maybe rules have changed since 1996 but I was never denied disability. They don't tell you but I think it was based on CFS & depression. I can't remember anything else at the time. I just sent in all the documents and gave them all of my doctors names. I prayed a lot too.

I had guilt for a long, long time over being on disability. But besides receiving monthly income the medicare benefits have come in handy as my secondary insurance.

I'll be praying that it will all go smoothly for you.

Penni

Re: Anyone have any experience with Dr. Debaise in Orlando?

Penni I hate to say it but very few of us here have been helped by rheumatologists. Most are old school and all they want to do is diagnose you with an autoimmune disease. If they can't, they are done with you. If they can, then they will try to prescribe toxic drugs that you wouldn't want to take. Personally I feel most of them are useless. You would do better to go to someone who is holistic. I have had fms for over twenty years and the thing that helped me most was a book I lent out and never got back. I can't remember who has it so I am looking to find an out of print copy. It is called Myotherapy by Bonnie Prudden. It is the best book and helped me more than regular physical therapy or chiropractic etc. She shows how to find the trigger points all over the body that cause all this pain and release them. Then she has extensive exercises to strengthen the area so that it is a permanent fix. I can't say enough good about this book or the technique. Compared to paying for useless doctor visits or injections of steroids or expensive physical therapy this is priceless!Love, Kathy > >> > Have you talked to Dr. Debaise yet? . . . Or to his receiptionist?> . . . > > > > This is something you want to be absolutely sure of . . . some> doctors say they'll do en bloc, then don't. . . Do you know any of his> other patients?> > > > Hugs and prayers,> > > > Rogene> >>

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Wonderful Penni . . . It's so much easier to talk to a doctor who understands what you're going through! Rogene Penni Pitre <penniquilts@...> wrote: Ladies, I called my alternative medicine doctor today. (Which I should have done in the first place). He gave me the name of a rheumatologist that he recommends his patients to.

I told him about my experience yesterday and he said that this doctor will be more open to silicone toxicity. So we'll see. I need documentation from a rheumatologist that I have fibromyalgia for my Dow Corning Settlement (tip that is). Penni ---- Original Message ----- From: mikat828 Sent: Friday, June 16, 2006 12:53 PM Subject: Re: Anyone have any experience with Dr. Debaise in Orlando? Penni I hate to say it but very few of us here have been helped by rheumatologists. Most are old school and all they want to do is diagnose you with an autoimmune disease. If they can't, they are done with you. If they can, then they will try to prescribe toxic drugs that you wouldn't want to take. Personally I feel most of them are useless. You would do better to go to someone who is holistic. I have had fms for over twenty years and the thing that helped me most was a book I lent out and never got back. I can't remember who has it so I am looking to find an out of print copy. It is called Myotherapy by Bonnie Prudden. It is the best book and helped me more than regular physical therapy or chiropractic etc. She shows how to find the trigger points all over the body that cause all this pain and release them. Then she has extensive exercises to strengthen the area so that it is

a permanent fix. I can't say enough good about this book or the technique. Compared to paying for useless doctor visits or injections of steroids or expensive physical therapy this is priceless!Love, Kathy > >> > Have you talked to Dr. Debaise yet? . . . Or to his receiptionist?> . . . > > > > This is something you want to be absolutely sure of . . . some> doctors say they'll do en bloc, then don't. . . Do you know any of his> other patients?> > > > Hugs and prayers,> > > > Rogene> >>