Guest guest Posted August 18, 2008 Report Share Posted August 18, 2008 *Hi Tricia,* *I can TOTALLY understand having a tough time due to pain- even when taking meds. i personally had a heck of a weekend pain wise and most of yesterday was spent on couch and crying. I just get ''hopeless'' I guess you can call it and just get so upset cause i wish i had my ''normal'' life back before pain. but living with this pain for almost 7 yrs starting at age 22 it seems like this is the normal for me now. ugh* ** *I wanted to mention I have RSD- reflex sympathetic dystrophy in my right knee that also spread over the yrs to my entire leg n foot also. I was diagnosed about 3wks after I fell down a flight of cellar stairs at my inlaws but my first dealing with the dr i saw (an orthopaedic dr id seen at age 14 when breaking my wrist after volleyball) was pure hell. he didnt know what was wrong with me, questioned if i was in as much pain as id stated (in all honesty i was in worse!!) but after he transferred me to a specialist id found out i had rsd which i knew nothing about at first.* ** *My ??? to you is....what are the drs telling you you ''have'' and have they ever mentioned RSD??? i wonder why theyd give you lyrica which is basically for people with fibromyalgia and they also give to people with rsd like myself. In my case it did nothing for me...just made me very sleepy to point i couldnt get out of bed even if i wanted to. My dr tried that med a few yrs back whn it was first starting to come out...id been on neurontin and he switched me. later on i went back on neurontin which has been my ''base'' med and helped me.* ** *i am sorry to also hear you are having no luck with drs and even with the emergency room docs..i as well as many here can probably understand alot more then youd understand but alot of us have been thru the ringer when it comes to drs, diagnosis and meds/treatments ect.* * A good friend of mine for past 5+yrs whos been a member of my rsd group lives in columbus ohio area i believe and is being treated for her rsd/pain there. She was a surgeon tech/nurse before getting hurt and now on disability. if youd like i can ask her about her drs and maybe even put you two in touch. I know she probably has contacts/friends in the medical community in columbus ohio so she may be of some assistance. She is a sweetheart, become a great friend and support to me and i know with any of us when we are helping someone else it helps take our minds off our own ordeals ect.* *But id be happy to mention you/your situation to her n like i said i could probably get you her email address or vice versa. just let me know hun and know you have a wonderful group of caring people here that will ''virtually'' hold ur hand thru it all !!!* ** *take care sweetie and dont lose hope or give up.* *rachael in southern va* 2a. TRICIA-PAIN!!! Posted by: " Tricia Mc " angelsr_watching@... angelsr_watching Sun Aug 17, 2008 7:03 am (PDT) In alot of pain this morning even though I have meds. Lyrica is one of them but that does not seem to do much.Tired of dealing with the docs in Newark,Ohio that do not seem to know much as none can agree on what is wrong with my knee. As i have been told five different things. Even have been told that my normal which is a crock. All the swelling and PAIN is not " normal " Sometimes it looks as if my left knee is buldging.I am thinking of telling my doc that I want a referral for OSU in Columbus,Ohio for a specialist,instead of dealing with docs in Newark,Ohio.Forget the docs in the ER they are rude at Licking Memorial. [X-(] Just tired of dealing with the pain all the time. [] Thanks for listening. Tricia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2008 Report Share Posted August 18, 2008 hi rachael i hav rsd in my rite knee down to my foot to i have had it for 7 years to when you described your self to tricia you could have been talking about me i am allmost just like you donnieKY tricia/ your pain n doc issues ect/ lyrica--ohio/columbus drs?? i have a friend there *Hi Tricia,* *I can TOTALLY understand having a tough time due to pain- even when taking meds. i personally had a heck of a weekend pain wise and most of yesterday was spent on couch and crying. I just get ''hopeless'' I guess you can call it and just get so upset cause i wish i had my ''normal'' life back before pain. but living with this pain for almost 7 yrs starting at age 22 it seems like this is the normal for me now. ugh* ** *I wanted to mention I have RSD- reflex sympathetic dystrophy in my right knee that also spread over the yrs to my entire leg n foot also. I was diagnosed about 3wks after I fell down a flight of cellar stairs at my inlaws but my first dealing with the dr i saw (an orthopaedic dr id seen at age 14 when breaking my wrist after volleyball) was pure hell. he didnt know what was wrong with me, questioned if i was in as much pain as id stated (in all honesty i was in worse!!) but after he transferred me to a specialist id found out i had rsd which i knew nothing about at first.* ** *My ??? to you is....what are the drs telling you you ''have'' and have they ever mentioned RSD??? i wonder why theyd give you lyrica which is basically for people with fibromyalgia and they also give to people with rsd like myself. In my case it did nothing for me...just made me very sleepy to point i couldnt get out of bed even if i wanted to. My dr tried that med a few yrs back whn it was first starting to come out...id been on neurontin and he switched me. later on i went back on neurontin which has been my ''base'' med and helped me..* ** *i am sorry to also hear you are having no luck with drs and even with the emergency room docs..i as well as many here can probably understand alot more then youd understand but alot of us have been thru the ringer when it comes to drs, diagnosis and meds/treatments ect.* * A good friend of mine for past 5+yrs whos been a member of my rsd group lives in columbus ohio area i believe and is being treated for her rsd/pain there.. She was a surgeon tech/nurse before getting hurt and now on disability. if youd like i can ask her about her drs and maybe even put you two in touch. I know she probably has contacts/friends in the medical community in columbus ohio so she may be of some assistance. She is a sweetheart, become a great friend and support to me and i know with any of us when we are helping someone else it helps take our minds off our own ordeals ect.* *But id be happy to mention you/your situation to her n like i said i could probably get you her email address or vice versa. just let me know hun and know you have a wonderful group of caring people here that will ''virtually' ' hold ur hand thru it all !!!* ** *take care sweetie and dont lose hope or give up.* *rachael in southern va* 2a. TRICIA-PAIN! !! Posted by: " Tricia Mc " angelsr_watching@ yahoo.com angelsr_watching Sun Aug 17, 2008 7:03 am (PDT) In alot of pain this morning even though I have meds. Lyrica is one of them but that does not seem to do much.Tired of dealing with the docs in Newark,Ohio that do not seem to know much as none can agree on what is wrong with my knee. As i have been told five different things. Even have been told that my normal which is a crock. All the swelling and PAIN is not " normal " Sometimes it looks as if my left knee is buldging.I am thinking of telling my doc that I want a referral for OSU in Columbus,Ohio for a specialist,instead of dealing with docs in Newark,Ohio. Forget the docs in the ER they are rude at Licking Memorial. [X-(] Just tired of dealing with the pain all the time. [] Thanks for listening. Tricia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2008 Report Share Posted August 18, 2008 Thank you I will look into this and mention it to my doctor and will do research on this myself.I sometimes have pinching feeling in the lower part of my neck between the shoulders that hurts alot too. Does not happen all the time.He gave me lyrics hoping that it would help I think but it really does not.Depending on his reaction to what I ay to him will determine if i go to OSU which I more than likely will go there.Thank You for your support and taking the time to care,I will be thinking about all of you! \ Tricia tricia/ your pain n doc issues ect/ lyrica--ohio/ columbus drs?? i have a friend there *Hi Tricia,* *I can TOTALLY understand having a tough time due to pain- even when taking meds. i personally had a heck of a weekend pain wise and most of yesterday was spent on couch and crying. I just get ''hopeless'' I guess you can call it and just get so upset cause i wish i had my ''normal'' life back before pain. but living with this pain for almost 7 yrs starting at age 22 it seems like this is the normal for me now. ugh* ** *I wanted to mention I have RSD- reflex sympathetic dystrophy in my right knee that also spread over the yrs to my entire leg n foot also. I was diagnosed about 3wks after I fell down a flight of cellar stairs at my inlaws but my first dealing with the dr i saw (an orthopaedic dr id seen at age 14 when breaking my wrist after volleyball) was pure hell. he didnt know what was wrong with me, questioned if i was in as much pain as id stated (in all honesty i was in worse!!) but after he transferred me to a specialist id found out i had rsd which i knew nothing about at first.* ** *My ??? to you is.....what are the drs telling you you ''have'' and have they ever mentioned RSD??? i wonder why theyd give you lyrica which is basically for people with fibromyalgia and they also give to people with rsd like myself. In my case it did nothing for me...just made me very sleepy to point i couldnt get out of bed even if i wanted to. My dr tried that med a few yrs back whn it was first starting to come out...id been on neurontin and he switched me. later on i went back on neurontin which has been my ''base'' med and helped me..* ** *i am sorry to also hear you are having no luck with drs and even with the emergency room docs..i as well as many here can probably understand alot more then youd understand but alot of us have been thru the ringer when it comes to drs, diagnosis and meds/treatments ect.* * A good friend of mine for past 5+yrs whos been a member of my rsd group lives in columbus ohio area i believe and is being treated for her rsd/pain there.. She was a surgeon tech/nurse before getting hurt and now on disability. if youd like i can ask her about her drs and maybe even put you two in touch. I know she probably has contacts/friends in the medical community in columbus ohio so she may be of some assistance. She is a sweetheart, become a great friend and support to me and i know with any of us when we are helping someone else it helps take our minds off our own ordeals ect.* *But id be happy to mention you/your situation to her n like i said i could probably get you her email address or vice versa. just let me know hun and know you have a wonderful group of caring people here that will ''virtually' ' hold ur hand thru it all !!!* ** *take care sweetie and dont lose hope or give up.* *rachael in southern va* 2a. TRICIA-PAIN! !! Posted by: " Tricia Mc " angelsr_watching@ yahoo.com angelsr_watching Sun Aug 17, 2008 7:03 am (PDT) In alot of pain this morning even though I have meds. Lyrica is one of them but that does not seem to do much.Tired of dealing with the docs in Newark,Ohio that do not seem to know much as none can agree on what is wrong with my knee. As i have been told five different things. Even have been told that my normal which is a crock. All the swelling and PAIN is not " normal " Sometimes it looks as if my left knee is buldging.I am thinking of telling my doc that I want a referral for OSU in Columbus,Ohio for a specialist,instead of dealing with docs in Newark,Ohio. Forget the docs in the ER they are rude at Licking Memorial. [X-(] Just tired of dealing with the pain all the time. [] Thanks for listening. Tricia Quote Link to comment Share on other sites More sharing options...
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