Guest guest Posted November 27, 2006 Report Share Posted November 27, 2006 I cant use advair. Makes my heart race out of my chest. Dr. didnt question just told me to stop it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2006 Report Share Posted November 27, 2006 My daughter is also asthmatic. We have had learn how to control her asthma thru diet and avoidance of bad IAQ. She was prescribed by a leading physician Albuterol & Advair. To be used together. I questioned him: since this is the 1st meds she has gotten for her asthma why not just start w/one? He said it was so severe that she needed both. I questioned again about side effects. He said that she would experience none, except maybe a slight headache, and nausea until she got used to them. Well, I decided to do it my way and just start w/Albuterol. Yes, she got the headache/nausea. The 2nd night I decided to use them both as instructed as she was having a mild asthma attack. Upon taking the Advair she instantly stopped breathing, started to turn blue. Then came back w/in seconds. I called the Drs. office he said that doesn't happen, I waited to long. I explained she had this condition for a couple of years and nothing like this had ever happened. He told me to follow the instructions. There were NO side effects like that. So, the next night we proceeded to use it as he had instructed. Again, immed. after the Advair she stopped breathing, lips turning blue. As I was picking up the phone to call 911 she started to breath again. So, I decided to research it myself. Sure enough Advair has been reported to stop breathing, and some have even died. Well, I took her off of it. I do keep the Albuterol in the house just in case. But, she has not used it for a year. If we control her diet/exercise/IAQ she has NO problems. All she gets now is a cough every once in a blue moon, but her breathing is alot better. Ever since exposure she has had problems w/ALL medications making her sick, even Motrin, Tylenol. Before she never had this problem. They have given her a tiny dissolving pill (for chemo patients) that helps her not puke that one is alright. But, I often wonder if after exposure w/the body being on overload if the body rejects medication. Many have posted having problems w/meds. Alot w/asthma meds, some had no problems before but now can't take them. Is your body trying to tell you " yuk, something else I don't like? " We were never really big on meds., but sometimes you do need them. But, for some reason some peoples bodies don't want them. Just my thoughts. [] Asthma-Mycotoxins-Albuterol I'm 63 years old, and an asthmatic since age 9. My first mycotoxin reaction was 7 years ago. Here is the relationship between asthma- mycotoxins-albuterol, in my body. (1) My asthma reaction to mold and my toxic mold reaction are two different things, that usually co- exist in my body, at the same time. (2) As a long time asthmatic, I misinterpreted my first toxic mold reaction as being an asthmatic reaction. (3) Upon my seeing the massive amount of mold, in the building I worked in, I realized the physical feeling that I was dying, came from my exposure to the mold. At THAT time, I assumed that I was allergic to the mold, and my allergy was causing asthma, even though I was experiencing additional symptoms that I had never in my life had before. (4) BEFORE I saw the mold, and quit the job, I had been taking an ever increasing dose of albuterol (never exceeding the maximum dosage in the Physicians PDR Manual). But, to my amazement, the albuterol only PARTIALLY relieved my breathing symptoms, and did NOTHING for the other symptoms I was experiencing, no matter how high I raised my dosage. (5) Since I had not had ANY non-breathing related symptoms, before I started working in that building, one month previously, I went searching for the mold, which I found, in my work building. In hindsight, I should have just left the building, WITHOUT searching for the mold. This is why my blood boils, when I read all the postings on this board of people SEARCHING for their mold. WAKE UP! You don't have to find your mold- IT HAS ALREADY FOUND YOU!!!! Just run away fast. (6) After leaving my mold infested workplace, I began feeling my symptoms begin getting better within 4 or 5 days, and after about one month, all of my non-breathing symptoms had disappeared, and my asthma breathing symptoms had returned to their traditional level for that season of the year. As it was summer, and pollen allergies are one of my primary asthma triggers, I always have breathing problems at that time of the year. But, as usual, for that time of the year, my abuterol NOW relieved my breathing symptoms 100%, until my next regular dose of albuterol had to be taken. REMEMBER, my total time period of mold exposure was only 8 to 10 hours a day, 5 days a week, for 30 days. (7) The point I'm making, is, if you have a pre- existing asthma condition BEFORE your mold exposure, the asthma will become WORSE during your period of mold exposure. The " non-mold- aware " medical professionals will try to use that worsening of your asthma, to convince you that ALL YOU HAVE IS ASTHMA! To do this, they will tell you to take the Methacholine Challenge Test, that has been the subject of many postings on this board. If you had a pre- mold exposure asthma condition, this test will confirm their diagnosis, and when you tell them that you have a toxic mold reaction, in addition to your asthma, they will enter a further notation, that you are " delusional " on your medical record. (8) If you did NOT have a pre-existing asthma condition, BEFORE your mold exposure, the same test is equally pointless, as the conventional medical treatment for asthma-caused breathing problems and non- asthma caused breathing problems, is THE SAME. The treatment of acute breathing distress is albuterol with atrovent(ipratropium bromide) added on if the problem includes phlegm in your lungs. And, if that fails, they add on prednisone. Prednisone is the doctor's way of saying: " I have no idea of what is causing your immune system to malfunction, so lets just turn off your body's immune-reaction, completely, with prednisone. " Don't misunderstand me. THE PREDNISONE DOES WORK. But, if you are still in the mold environment, after the prednisone wears off, you get sick again. (9) Since I like happy endings, I will share my happy ending with you all. My recurring mold exposures, over the last 7 years, have turned me into such a compulsive, mold hunter, mold finder, and mold eliminator, in my home environment, that, in the process of making my home as mold- free as possible, I have also made my home so allergen-free, that my albuterol dosage requirements are at an all time low. Start throwing things out, and feeling healthier, as an asthmatic. (10) One last thing. Please stop posting the false notion that exposure to mold will help us build up an immunity to mold. I'm getting tired of punching my wall, every time I read that. Thank you, and may you all find your happy endings. Joe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2006 Report Share Posted November 27, 2006 > > > (10) One last > thing. Please stop posting the false notion that exposure to mold > will help us build up an immunity to mold. I'm getting tired of > punching my wall, every time I read that. Thank you, and may you all > find your happy endings. > Joe > ME TOO! p.s. I have asthma type illness from my mold exposure and no inhalents do a thing for me and because I have mcs i actually have a bad reaction to inhalents. i to am getting burnt out on others, not so ill, trying to force thier beliefs in this group. just because you haven't been there does not mean it doesn't exsist. part of knowledge about mold illness is understanding how differently we all can be affected, not baseing your beliefs just on your experience. if anything, those not so affected YET should wise up and listen to those more affected and take it as a warning of what could happen to them. also they should realize that it takes awhile after getting completely away from thier exposure for the full affects of thier illness to show up, so until they quit exposeing thierselfs they are not even going to know the extent of what has happened to them, plus they probably dont even realize that they may not even be thinking very clearly and shouldn't,during this time be tring to force thier opinions on anyone. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2006 Report Share Posted November 27, 2006 Good thoughts. What we all need to remember is that there are " oldies " & " newbie's " here. Sometimes newbie's are in denial, don't have a clear understanding of the " whole " picture, still trying to figure it out. Have never been faced w/something that is making them sick and no one can help. I am not a newbie, have clear understanding, and still struggled with the whole MCS thing. I was fixated on mold being the only trigger. But, then in time it clicked. Now I get it. But, it took time. But, I never argued, see I wanted to learn. It helps to have the " whole " picture and use it. Some will, some won't. Some will get better, some won't. Yes, it is very irritating to hear someone tell us things that contradict everything and everyone else. Sometimes they are in a denial phase, hoping someone will tell them they are correct. I think they don't realize how hurtful and aggravating it can be the oldies who do know. For them to come in here spoutting off things that don't even make sense, are no one has ever heard. Yes, it is irritating for someone to ask for help-then you help them, then they argue and tell what they have come up with. Even though there is NOTHING there to support it. They don't understand that we all react differently. Then when you factor in MCS that is whole different story about triggers and reaction. I think all of you here do a wonderful job helping others. There is always going that one special person who just isn't going to believe, or get it. That one person who knows things that no one else does, and tries to force them on us, that one person who has all the answers but no proof to back it up. We can try to help. But, if they are not going to get it and argue the facts then maybe it's best if we all stick together. This board is set up to help those willing to be helped, those that want help, and need our help, along w/helping ourselves. People who are very ill from exposure and need to find answers. Victims who know nothing about MCS and how it effects you after exposure. We should be trying to help those victims that need it, not using every ounce of energy on someone who that doesn't really want it. We are blessed to have each other. To have Sharon, KC, Carl, and all of us. To be able to get help, knowledge, advice. If someone doesn't want it then just let them be. Because if they have really been exposed, are really sick, really re-act, and so forth. One day they will come openly and listen to ALL of the knowledge we have here, and will accept it openly, and maybe be able to make themselves better. My family wouldn't be better, my daughter wouldn't have made it without all of you. For this I thank god everyday. I learned about MCS here, about overload, about a " safe " home. Everything I have learned here, keeps my family safe. Thank you all. [] Re: Asthma-Mycotoxins-Albuterol > > > (10) One last > thing. Please stop posting the false notion that exposure to mold > will help us build up an immunity to mold. I'm getting tired of > punching my wall, every time I read that. Thank you, and may you all > find your happy endings. > Joe > ME TOO! p.s. I have asthma type illness from my mold exposure and no inhalents do a thing for me and because I have mcs i actually have a bad reaction to inhalents. i to am getting burnt out on others, not so ill, trying to force thier beliefs in this group. just because you haven't been there does not mean it doesn't exsist. part of knowledge about mold illness is understanding how differently we all can be affected, not baseing your beliefs just on your experience. if anything, those not so affected YET should wise up and listen to those more affected and take it as a warning of what could happen to them. also they should realize that it takes awhile after getting completely away from thier exposure for the full affects of thier illness to show up, so until they quit exposeing thierselfs they are not even going to know the extent of what has happened to them, plus they probably dont even realize that they may not even be thinking very clearly and shouldn't,during this time be tring to force thier opinions on anyone. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2006 Report Share Posted November 27, 2006 Thank you both for clearing up my confusion. I have never had asthma-- that is until I lived in a defective, moldy home for over four years. I didn't even have breathing symptoms while we lived there. Those started when repair work was done in the attic and stirred up the mold. I wondered why Albuterol made me feel worse--my heart raced and I thought I'd die and I switched to a nebulizer with Xopenex. I had bad reactions to every asthma medication prescribed, including Singulair and Foradil. I now use Xopenex periodically and give myself allergy shots every 1-4 days with a bit more success. Still, sometimes neither treatment seems to help. Lastly, yes, I agree--one does not build up immunity with exposure. My doctor said the exposure " hammered " my immune system. - > > > > > > (10) One last > > thing. Please stop posting the false notion that exposure to mold > > will help us build up an immunity to mold. I'm getting tired of > > punching my wall, every time I read that. Thank you, and may you > all > > find your happy endings. > > Joe > > > ME TOO! > p.s. I have asthma type illness from my mold exposure and no > inhalents do a thing for me and because I have mcs i actually have a > bad reaction to inhalents. > i to am getting burnt out on others, not so ill, trying to force > thier beliefs in this group. just because you haven't been there does > not mean it doesn't exsist. part of knowledge about mold illness is > understanding how differently we all can be affected, not baseing > your beliefs just on your experience. if anything, those not so > affected YET should wise up and listen to those more affected and > take it as a warning of what could happen to them. also they should > realize that it takes awhile after getting completely away from thier > exposure for the full affects of thier illness to show up, so until > they quit exposeing thierselfs they are not even going to know the > extent of what has happened to them, plus they probably dont even > realize that they may not even be thinking very clearly and > shouldn't,during this time be tring to force thier opinions on anyone. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2006 Report Share Posted November 28, 2006 I tried all the inhalers and the singular. I had to stop all. The inhalers didn't really help me breath better and the singular made me very hyper. I tried the preventive inhalers and the rescue inhalers. Thrush was a big problem plus some of them make more mucus for me. Of course they work for some but so ymmv. > > > > > > > > > (10) One last > > > thing. Please stop posting the false notion that exposure to mold > > > will help us build up an immunity to mold. I'm getting tired of > > > punching my wall, every time I read that. Thank you, and may you > > all > > > find your happy endings. > > > Joe > > > > > ME TOO! > > p.s. I have asthma type illness from my mold exposure and no > > inhalents do a thing for me and because I have mcs i actually have > a > > bad reaction to inhalents. > > i to am getting burnt out on others, not so ill, trying to force > > thier beliefs in this group. just because you haven't been there > does > > not mean it doesn't exsist. part of knowledge about mold illness is > > understanding how differently we all can be affected, not baseing > > your beliefs just on your experience. if anything, those not so > > affected YET should wise up and listen to those more affected and > > take it as a warning of what could happen to them. also they > should > > realize that it takes awhile after getting completely away from > thier > > exposure for the full affects of thier illness to show up, so until > > they quit exposeing thierselfs they are not even going to know the > > extent of what has happened to them, plus they probably dont even > > realize that they may not even be thinking very clearly and > > shouldn't,during this time be tring to force thier opinions on > anyone. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2006 Report Share Posted November 28, 2006 Have any of you seen the pill for asthma? If so have you tried it? I can't remember the name of it. Just wondered if it were taken orally if it would work better, since not being inhaled directly into the lungs. I'd like to have an alternative for my daughter incase she needs it one day, but very scared to try anything after the incident. I don't even really know if it is for kids either. [] Re: Asthma-Mycotoxins-Albuterol I tried all the inhalers and the singular. I had to stop all. The inhalers didn't really help me breath better and the singular made me very hyper. I tried the preventive inhalers and the rescue inhalers. Thrush was a big problem plus some of them make more mucus for me. Of course they work for some but so ymmv. > > > > > > > > > (10) One last > > > thing. Please stop posting the false notion that exposure to mold > > > will help us build up an immunity to mold. I'm getting tired of > > > punching my wall, every time I read that. Thank you, and may you > > all > > > find your happy endings. > > > Joe > > > > > ME TOO! > > p.s. I have asthma type illness from my mold exposure and no > > inhalents do a thing for me and because I have mcs i actually have > a > > bad reaction to inhalents. > > i to am getting burnt out on others, not so ill, trying to force > > thier beliefs in this group. just because you haven't been there > does > > not mean it doesn't exsist. part of knowledge about mold illness is > > understanding how differently we all can be affected, not baseing > > your beliefs just on your experience. if anything, those not so > > affected YET should wise up and listen to those more affected and > > take it as a warning of what could happen to them. also they > should > > realize that it takes awhile after getting completely away from > thier > > exposure for the full affects of thier illness to show up, so until > > they quit exposeing thierselfs they are not even going to know the > > extent of what has happened to them, plus they probably dont even > > realize that they may not even be thinking very clearly and > > shouldn't,during this time be tring to force thier opinions on > anyone. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2006 Report Share Posted November 28, 2006 I thought I would Chime in here. I agree that never having asthma in my life, only common hayfever, that it is interesting that the Mayo Clinic and a pulmounlgoist both told me that I now have asthma. They said this has been coming on for a long time. (?) I have never smoked or been around any dirty air. I have always been very active with no problem breathing for 56years. They keep looking for another cause. I too had no help with the inhalers mentioned below. So I quit. It occured to me that the fungus that still inhabits my body is the reason my lungs are still being iritated causing my immune system to go into over drive. It is probably also the reason my digestive tract is not right. I have bloating and yeast like symptoms. So I thought I would try someting else. Just like the medicine they gave me for allergies which didn't work I was going to find another way. For my nose and throat I use Hydgronperoxide. Just read the lable. Internally I am trying the strick " cave man diet " with a vitamin suppliment. This includes Kyolic Garlic supplement. This help showes up in a book titled Nutritional Healing by Phillis A Balch, CNC. According to the book Garlic nurtalizes Fungus. As I have read here in the past some of you have talked about a die-off. This is why I probably feel like I have the flu, with out the tempture though. I have been doing this for 5 days, we will see. Don in Sedona --- <eaglestone@...> wrote: > Have any of you seen the pill for asthma? If so have you tried it? I can't remember the name > of it. Just wondered if it were taken orally if it would work better, since not being inhaled > directly into the lungs. I'd like to have an alternative for my daughter incase she needs it > one day, but very scared to try anything after the incident. I don't even really know if it is > for kids either. > > > > > [] Re: Asthma-Mycotoxins-Albuterol > > > I tried all the inhalers and the singular. I had to stop all. The > inhalers didn't really help me breath better and the singular made me > very hyper. I tried the preventive inhalers and the rescue inhalers. > Thrush was a big problem plus some of them make more mucus for me. > Of course they work for some but so ymmv. > > > > > > > > > > > > > > (10) One last > > > > thing. Please stop posting the false notion that exposure to > mold > > > > will help us build up an immunity to mold. I'm getting tired of > > > > punching my wall, every time I read that. Thank you, and may > you > > > all > > > > find your happy endings. > > > > Joe > > > > > > > ME TOO! > > > p.s. I have asthma type illness from my mold exposure and no > > > inhalents do a thing for me and because I have mcs i actually > have > > a > > > bad reaction to inhalents. > > > i to am getting burnt out on others, not so ill, trying to > force > > > thier beliefs in this group. just because you haven't been there > > does > > > not mean it doesn't exsist. part of knowledge about mold illness > is > > > understanding how differently we all can be affected, not baseing > > > your beliefs just on your experience. if anything, those not so > > > affected YET should wise up and listen to those more affected and > > > take it as a warning of what could happen to them. also they > > should > > > realize that it takes awhile after getting completely away from > > thier > > > exposure for the full affects of thier illness to show up, so > until > > > they quit exposeing thierselfs they are not even going to know > the > > > extent of what has happened to them, plus they probably dont even > > > realize that they may not even be thinking very clearly and > > > shouldn't,during this time be tring to force thier opinions on > > anyone. > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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