Guest guest Posted June 23, 1999 Report Share Posted June 23, 1999 A big welcome to . I too am a primary caregiver - I have three children - two boys aged 11 and 13 and a daughter aged 9. It is the most challenging for me when I am incapacitated so that I cannot drive several months out of the year. My spouse travels 100 days of the year, and works from 6:30 am to 7ish when he is in town. I also have no relatives to speak of who can help -- they all live far away and even if they were in town it would not be very helpful anyway. I have found several ways to help deal with the frustrations the children, my husband and I experience. I hope we can open this topic wide up. To improve the quality of our lives is paramount to me. We are self-determined-if we want a certain quality of life and are willing to be flexible, open to change/learning and the outside help of a Family Counselor (we use one) it can be so much better (IMHO). Glad you are on board. (By now floating in the Atlantic Ocean somewhere off the coast of Ocean City, NJ), with a huge iced tea in an insulated mug in her hand. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2000 Report Share Posted February 8, 2000 Just went on Methotrexate for PA myself a month ago.I am CAUTIOUSLY optimistic. Begining to see the proverbial Light At The End Of The Tunnel.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2000 Report Share Posted February 9, 2000 , Thanks for your e-mail. Yes I am seeing an RD. I've been with RD's since the beginning almost 9 yrs ago. At 32 I'm fearful of what they will be prescribing for me in 10-20 years. I am going to try some homeopathic remedies again. I have tried it in the past but have never been able to stick with it because of the pain. I always knew if I would start my meds again I could at least function somewhat normally. The difference this time is that the only way I'm functioning this time, and normally is debatable, is to be doped up on darvocet. The quick fix of taking my NSAIDS again isn't working and I'm not willing to take the Prednisone my RD gave me. Dan <drhughes@...> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2005 Report Share Posted February 12, 2005 Get blood tests for: IGF-1 LH FSH Prolactin DHEA-S Thyroid Panel Tranferrin and Serum Ferritin SHBG PSA Find out where all your hormone levels are first and why your Testosterone levels are low. Need to be agressive on getting all these tests done before you start TRT. You can go in monday and get the blood test form and fill it out yourself, don't wait two months. Need a drug history and any use of pro-hormones, hair loss drugs, etc..... Without most of these tests a Doctor can't make a diagnosis. > > > Well I'm the new guy here. > > Here's my story. I am 48, have been slowly gaining weight for > several years, have had some success at losing it on Atkins, but am > at a start over point.. doig well. About 14 years ago I got a viral > infection in my testicles (boy did that hurt!). I have noticed a > steady loss of drive, frequent fatigue, feeling depressed and > irritable, progressive ED, poor blood lipid profile, declining > libido, etc etc etc.... all symptoms that a number of articles and > web sites say can be caused by low testosterone and are commonly > lumped together under " andropause " . > > About four years ago I talked to my doctor about testosterone > replacement. He was doing some blood work anyway so he added > testosterone test. All he said about the results was that it was in > the low normal range for my age. But he was against testosterone > replacment, saying it can cause heart disease, prostate cancer and a > host of other ills. So that was the end of the conversation. > > I have since changed doctors (because my health insurance changed). > I have continued researching TRT and find that the list of promblems > my other doctor gave me is not really true. In the mean time my > symptoms are progressing (as I get older damn it!). > > Last week I had a doctor appointment and I knew he would take blood > so I asked him about TRT. He said he had some clients on it and > doing well.. sounded very interested in the treatment. So he added > testosterone level to the blood tests. Yesterday I got a letter > with test results for the complete series of tests he ran. He had > checkmarks besides those that were normal. He checked testosterone > as " normal " noting that the level was 480. The doctor asked me to > make a follow up appointment for two months to monitor my blood > lipids, but no other comment about TRT. So I am afraid he may not > want to do anything about my testosterne level since it wasn't " low " > (under 300). > > From what I have read, 480 is in the " normal " range but probably not > in the adequate range. Most articles suggest a level of at least 700 > to ward of symptoms of andropause. I called the doctor's office and > talked to his nurse (he had left for the day and will be gone this > coming week). I explained what I had read and that if the doctor was > not willing to consider TRT at this level to please refer to an > endocrinologist. I was really excited when he sounded positive > toward TRT and quite disappointed when he seemed to dismiss me > as " normal " with no follow-up. > > I have read many of the posts in this group. It seems that most of > you guys are classically " hypgonadism " starting with really low > testosterone levels of 300 or even much lower. Is anyone else here > a middle aged male not content to suffer the usual symptoms of > decling testosterone levels? Did you have trouble convincing doctors > to prescribe TRT with levels that were in the low normal range? > > It seems to me that if I went in with a level of 180-200 most > doctors would be willing to prescribe TRT and boost to 700-800. So > why should someone with a level of less than 500 have to suffer with > symptoms when his optimum level should also be 700-800? > > There seems to be a lot of experience and wisdom among this group. > Any comments or advice? > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2005 Report Share Posted February 12, 2005 Hi, Not the sharpest tool in the box but I'll make some comments that may be practicle. Did you mean you are having trouble with all the symptoms indicating low testosterone? Or are you having some ED problems that you didn't mention as well. How is your interest in sex? Many things can cause trouble with ED and weight gain. Low thyroid can do a job on you as well as high estrogen called E2 which can rise to a level where it gives bad symptoms. Medications like those to lower cholesterol are even suspect like depression, anxiety and blood pressure medications. The doctors do not keep up on the medications that cause ED. Lack of exercise can upset your metabolism. Smoking and drinking may even have an impact. Masturbation in excess may not leave anything left over for the spouse for instance. Psychological problems can sneak in when porno takes over the stimulation for sex compared to a spouse that isn't quite as inspiring. Common sense should still apply here. You can't have quilt in your relationship. Get to an endocrinologist that has many years experience as doctors new to hormone therapy should be avoided as they get their technical education from pharmaceutical reps. No formal training as it is not life and death here they say. It is tough to ask your friends who is a good endocrinologist so ask those in the medical profession first. Continue the reading as you must know when you are receiving poor treatment. ernestnolan > > > Well I'm the new guy here. > > Here's my story. I am 48, have been slowly gaining weight for > several years, have had some success at losing it on Atkins, but am > at a start over point.. doig well. About 14 years ago I got a viral > infection in my testicles (boy did that hurt!). I have noticed a > steady loss of drive, frequent fatigue, feeling depressed and > irritable, progressive ED, poor blood lipid profile, declining > libido, etc etc etc.... all symptoms that a number of articles and > web sites say can be caused by low testosterone and are commonly > lumped together under " andropause " . > > About four years ago I talked to my doctor about testosterone > replacement. He was doing some blood work anyway so he added > testosterone test. All he said about the results was that it was in > the low normal range for my age. But he was against testosterone > replacment, saying it can cause heart disease, prostate cancer and a > host of other ills. So that was the end of the conversation. > > I have since changed doctors (because my health insurance changed). > I have continued researching TRT and find that the list of promblems > my other doctor gave me is not really true. In the mean time my > symptoms are progressing (as I get older damn it!). > > Last week I had a doctor appointment and I knew he would take blood > so I asked him about TRT. He said he had some clients on it and > doing well.. sounded very interested in the treatment. So he added > testosterone level to the blood tests. Yesterday I got a letter > with test results for the complete series of tests he ran. He had > checkmarks besides those that were normal. He checked testosterone > as " normal " noting that the level was 480. The doctor asked me to > make a follow up appointment for two months to monitor my blood > lipids, but no other comment about TRT. So I am afraid he may not > want to do anything about my testosterne level since it wasn't " low " > (under 300). > > From what I have read, 480 is in the " normal " range but probably not > in the adequate range. Most articles suggest a level of at least 700 > to ward of symptoms of andropause. I called the doctor's office and > talked to his nurse (he had left for the day and will be gone this > coming week). I explained what I had read and that if the doctor was > not willing to consider TRT at this level to please refer to an > endocrinologist. I was really excited when he sounded positive > toward TRT and quite disappointed when he seemed to dismiss me > as " normal " with no follow-up. > > I have read many of the posts in this group. It seems that most of > you guys are classically " hypgonadism " starting with really low > testosterone levels of 300 or even much lower. Is anyone else here > a middle aged male not content to suffer the usual symptoms of > decling testosterone levels? Did you have trouble convincing doctors > to prescribe TRT with levels that were in the low normal range? > > It seems to me that if I went in with a level of 180-200 most > doctors would be willing to prescribe TRT and boost to 700-800. So > why should someone with a level of less than 500 have to suffer with > symptoms when his optimum level should also be 700-800? > > There seems to be a lot of experience and wisdom among this group. > Any comments or advice? > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2005 Report Share Posted February 12, 2005 Earnest, Thanks for your response. If you will reread my first paragraph you will see that I am having trouble with the whole laundry list of problems that may be caused by low testosterone, encluding ED. That is certainly one of the main problems I would like to fix, but certainly not the only one. Interest in sex isn't what it used to be by far, but I am not not interested, hence the desire to improve ED. Just out of curiosity.. you want to define masturbation to excess? Maybe that is why I need new glasses. > > > Hi, > > Not the sharpest tool in the box but I'll make some comments that may > be practicle. > > Did you mean you are having trouble with all the symptoms indicating > low testosterone? Or are you having some ED problems that you didn't > mention as well. How is your interest in sex? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2005 Report Share Posted February 12, 2005 Hi - I am right in your ballpark...I test in the high 400s, and have symptoms of hypo. You need to be treated more based on how you feel, not by numbers. I am only 28, but my doctor wants to treat me because of my symptoms. Even at your age, chances are your T is too low and you would benefit greatly by getting it over 700 or so. Good luck DK > > > Well I'm the new guy here. > > Here's my story. I am 48, have been slowly gaining weight for > several years, have had some success at losing it on Atkins, but am > at a start over point.. doig well. About 14 years ago I got a viral > infection in my testicles (boy did that hurt!). I have noticed a > steady loss of drive, frequent fatigue, feeling depressed and > irritable, progressive ED, poor blood lipid profile, declining > libido, etc etc etc.... all symptoms that a number of articles and > web sites say can be caused by low testosterone and are commonly > lumped together under " andropause " . > > About four years ago I talked to my doctor about testosterone > replacement. He was doing some blood work anyway so he added > testosterone test. All he said about the results was that it was in > the low normal range for my age. But he was against testosterone > replacment, saying it can cause heart disease, prostate cancer and a > host of other ills. So that was the end of the conversation. > > I have since changed doctors (because my health insurance changed). > I have continued researching TRT and find that the list of promblems > my other doctor gave me is not really true. In the mean time my > symptoms are progressing (as I get older damn it!). > > Last week I had a doctor appointment and I knew he would take blood > so I asked him about TRT. He said he had some clients on it and > doing well.. sounded very interested in the treatment. So he added > testosterone level to the blood tests. Yesterday I got a letter > with test results for the complete series of tests he ran. He had > checkmarks besides those that were normal. He checked testosterone > as " normal " noting that the level was 480. The doctor asked me to > make a follow up appointment for two months to monitor my blood > lipids, but no other comment about TRT. So I am afraid he may not > want to do anything about my testosterne level since it wasn't " low " > (under 300). > > From what I have read, 480 is in the " normal " range but probably not > in the adequate range. Most articles suggest a level of at least 700 > to ward of symptoms of andropause. I called the doctor's office and > talked to his nurse (he had left for the day and will be gone this > coming week). I explained what I had read and that if the doctor was > not willing to consider TRT at this level to please refer to an > endocrinologist. I was really excited when he sounded positive > toward TRT and quite disappointed when he seemed to dismiss me > as " normal " with no follow-up. > > I have read many of the posts in this group. It seems that most of > you guys are classically " hypgonadism " starting with really low > testosterone levels of 300 or even much lower. Is anyone else here > a middle aged male not content to suffer the usual symptoms of > decling testosterone levels? Did you have trouble convincing doctors > to prescribe TRT with levels that were in the low normal range? > > It seems to me that if I went in with a level of 180-200 most > doctors would be willing to prescribe TRT and boost to 700-800. So > why should someone with a level of less than 500 have to suffer with > symptoms when his optimum level should also be 700-800? > > There seems to be a lot of experience and wisdom among this group. > Any comments or advice? > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2005 Report Share Posted February 12, 2005 Hi , Theta's test list is great. I do suggest adding total T again, plus free T plus estradiol (aka E2). Low free T, high SHBG and high estrogens can cause significant symptoms even with a total T levels around 480. Tests will give a better idea. Most endocrinologists are more conservative about TRT than your old doc. Suggest getting the tests, & if treating male hormones can be reasonably expected to help you, we'll help you find the right doc. Bruce > > > > > > Well I'm the new guy here. > > > > Here's my story. I am 48, have been slowly gaining weight for > > several years, have had some success at losing it on Atkins, but am > > at a start over point.. doig well. About 14 years ago I got a viral > > infection in my testicles (boy did that hurt!). I have noticed a > > steady loss of drive, frequent fatigue, feeling depressed and > > irritable, progressive ED, poor blood lipid profile, declining > > libido, etc etc etc.... all symptoms that a number of articles and > > web sites say can be caused by low testosterone and are commonly > > lumped together under " andropause " . > > > > About four years ago I talked to my doctor about testosterone > > replacement. He was doing some blood work anyway so he added > > testosterone test. All he said about the results was that it was in > > the low normal range for my age. But he was against testosterone > > replacment, saying it can cause heart disease, prostate cancer and a > > host of other ills. So that was the end of the conversation. > > > > I have since changed doctors (because my health insurance changed). > > I have continued researching TRT and find that the list of promblems > > my other doctor gave me is not really true. In the mean time my > > symptoms are progressing (as I get older damn it!). > > > > Last week I had a doctor appointment and I knew he would take blood > > so I asked him about TRT. He said he had some clients on it and > > doing well.. sounded very interested in the treatment. So he added > > testosterone level to the blood tests. Yesterday I got a letter > > with test results for the complete series of tests he ran. He had > > checkmarks besides those that were normal. He checked testosterone > > as " normal " noting that the level was 480. The doctor asked me to > > make a follow up appointment for two months to monitor my blood > > lipids, but no other comment about TRT. So I am afraid he may not > > want to do anything about my testosterne level since it wasn't " low " > > (under 300). > > > > From what I have read, 480 is in the " normal " range but probably not > > in the adequate range. Most articles suggest a level of at least 700 > > to ward of symptoms of andropause. I called the doctor's office and > > talked to his nurse (he had left for the day and will be gone this > > coming week). I explained what I had read and that if the doctor was > > not willing to consider TRT at this level to please refer to an > > endocrinologist. I was really excited when he sounded positive > > toward TRT and quite disappointed when he seemed to dismiss me > > as " normal " with no follow-up. > > > > I have read many of the posts in this group. It seems that most of > > you guys are classically " hypgonadism " starting with really low > > testosterone levels of 300 or even much lower. Is anyone else here > > a middle aged male not content to suffer the usual symptoms of > > decling testosterone levels? Did you have trouble convincing doctors > > to prescribe TRT with levels that were in the low normal range? > > > > It seems to me that if I went in with a level of 180-200 most > > doctors would be willing to prescribe TRT and boost to 700-800. So > > why should someone with a level of less than 500 have to suffer with > > symptoms when his optimum level should also be 700-800? > > > > There seems to be a lot of experience and wisdom among this group. > > Any comments or advice? > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2005 Report Share Posted February 13, 2005 Bruce, Thanks for the additional advice on tests, etc. Obviously the trick to getting back on the right track is to find the right doctor who can and will treat hormone levels in males. I am a little hopeful that my GP may be willing to, but am not really sure, nor am I sure that he has the experience to interpret all the test results and work to balance levels.. just have to wait and see. I did find a link to The Hormone Foundation/Endocrine Society with a searchable data base of doctors who treat hormone levels in men. Two are here in my city, one is in my insurance PPO. On his web page he has links to a variety of information documents published by the Hormone Foundation, including one on low testosterone which includes andropause and recomends treatment to alieviate symptoms. I find this a hopeful sign that if my GP is unwilling or unable to treat my hormone levels, this endocrinologist might. If neither of these docotors pan out, I certainly hope that you and others in this group will be able to help me find one who can and will help. > > > Most endocrinologists are more conservative about TRT than > your old doc. Suggest getting the tests, & if treating male > hormones can be reasonably expected to help you, we'll help > you find the right doc. > > Bruce Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2005 Report Share Posted February 13, 2005 Hi, I don't know but would recognize it when I see it. Excessive is full of other considerations here. When a man's interest in sex is low to begin with and he wants to maintain his normal masturbation routine in spite of the fact that he can no longer get it up for his spouse, he should be considerate enough to save something for his spouse. If he only has so many shells he can shoot per week why not save some to the wife. It is frequently easier to become aroused by porn at the expense of the wife and eventually some men give up the porn in behalf of the wife (maybe). The spouse deserves a good life and us men should be feeling guilty if we don't provide that for her. Sometimes the wife doesn't look as good as she used to when it comes time for sex and it is more dificult to make the visual stimulation work. Gotta try and fix that somehow. More mastrubation under those circumstances is not wise for any thinking man. Some guys can't do it anymore and find a sweet young thing that can visually stimulate them to prove they are still a potent man. Some divorce the wife when sex begins to fail. I guess some women do it too. Did I cover it all. ernestnolan > > > > > > Hi, > > > > Not the sharpest tool in the box but I'll make some comments that > may > > be practicle. > > > > Did you mean you are having trouble with all the symptoms > indicating > > low testosterone? Or are you having some ED problems that you > didn't > > mention as well. How is your interest in sex? > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2005 Report Share Posted February 13, 2005 Looking at the reference chart, the standard deviation is significant, since it is a large fraction of the mean. I can see now why doctors would consider a level of 200 " normal " since it is only 2 standard deviations below the mean for the 35-44 age group- ~16 percent of the population should then have a level of 240 or less. My doctor said he won't treat me unless I am a statistical low (what 5th percentile???) regardless of the several symptoms I am experiencing... I get my lab work back this week. > > Hi - > > I am right in your ballpark...I test in the high 400s, and have > symptoms of hypo. You need to be treated more based on how you feel, > not by numbers. I am only 28, but my doctor wants to treat me > because of my symptoms. Even at your age, chances are your T is too > low and you would benefit greatly by getting it over 700 or so. Good > luck > > DK >k Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2005 Report Share Posted February 14, 2005 Hi, Even if the GP is willing, you should not waste your money and time. This is not his specialty and he will learn on you instead of give you proper care. Get to the best qualified endocrinologist you can. ernestnolan > > > > > > Most endocrinologists are more conservative about TRT than > > your old doc. Suggest getting the tests, & if treating male > > hormones can be reasonably expected to help you, we'll help > > you find the right doc. > > > > Bruce Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2005 Report Share Posted February 26, 2005 Well, Here is what has happened so far: My GP referred me to a Urologist, rather than an Endocrinologist as I had asked. I am aware that some Urologists to a fine job of treating andropause and have lots of experience with HRT. I do not know if this one does ore not. My appointment is for Tues. March 1st... I don't know whether to just go and find out what is what, or whether to call my GP's office to find out why he chose this doctor and/or call the Urologist's office to find out more about him. The Urologist's office maile me some paper work to fill out.. much of it has to do with ED... which is a SYMPTOM that I want to emprove, but not the only symptom that has me seeking HRT. What think you all? > > > > > > > > > Most endocrinologists are more conservative about TRT than > > > your old doc. Suggest getting the tests, & if treating male > > > hormones can be reasonably expected to help you, we'll help > > > you find the right doc. > > > > > > Bruce Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2005 Report Share Posted February 26, 2005 You should study the AACE guidelines for treating hypogonadism located in the " LINKS " section of this forum. Insist on all the tests to find the real cause of your low T. Don't be afraid to ask questions or assert yourself. Hopefully he is a good MD and listens to patients. Regards, K4 > > > > > > > > > > > > Most endocrinologists are more conservative about TRT than > > > > your old doc. Suggest getting the tests, & if treating male > > > > hormones can be reasonably expected to help you, we'll help > > > > you find the right doc. > > > > > > > > Bruce Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2005 Report Share Posted February 26, 2005 Hi, Given the testicular infection you had some years back, a checkup from urologist is the reasonable next step. See if he'll also run the tests that Theta mentioned (msg. 21722). Let us know what he says. Few " mainstream " docs will consider your recent total T of 480 to be abnormally low. The uro will probably resist if you push the testosterone issue too much. However, he should not object to tests that might " prove him right " (or not). " Andropause " is a dirty word with many docs. They consider it a normal part of aging, so it isn't a disease, so it shouldn't be treated, treating it is bad medicine, etc. etc., blah, blah. In some cases they may be right: starting out on male hormone therapy is best avoided if symptoms are mild. Your symptoms seem to be severe enough to deserve treatment. Note that other conditions can cause your symptoms, so pushing for testosterone therapy now may be premature. If you want anti-aging testosterone therapy without a diagnosis of hypogonadism, there are docs who will provide it. They believe making a person feel better is valid medicine (well, duh). You will probably need to find such doc yourself, we can help. Let us know what you think after you've seen the uro. Thus think all I, Bruce > > > Well, > > Here is what has happened so far: > > My GP referred me to a Urologist, rather than an Endocrinologist as > I had asked. I am aware that some Urologists to a fine job of > treating andropause and have lots of experience with HRT. I do not > know if this one does ore not. My appointment is for Tues. March > 1st... I don't know whether to just go and find out what is what, or > whether to call my GP's office to find out why he chose this doctor > and/or call the Urologist's office to find out more about him. > > The Urologist's office maile me some paper work to fill out.. much > of it has to do with ED... which is a SYMPTOM that I want to > emprove, but not the only symptom that has me seeking HRT. > > What think you all? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2006 Report Share Posted July 26, 2006 Hi all iam trying to get my first prescrition filled and there telling me it only comes in 50mg is that true or how do i get the right dose? VicAletha Wittmann <Aletha@...> wrote: Coming right up.Aletha Re: [low dose naltrexone] OT Benfotiamine- Tom Bayuk>>> Hi Arlene,>> My husband takes Benfotiamine and so does Gerald from our chat site. I > will> forward on an earlier message regarding the product and the amounts he> suggested that one take.>> It is a wonderful way to get a large quaintly of B1 without taking shots.> Some MS'rs get a great deal of help with it.>> My best> Aletha>>>>>>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2006 Report Share Posted July 26, 2006 > > > Hi all iam trying to get my first prescrition filled and there telling me it only comes in 50mg is that true or how do i get the right dose? Vic ====== Vic, If you are in the USA got to the homepage of the LDN website and scroll down and look for the list of reputable compounding pharmacies. Choose one and call to see how to send your prescription in and make payment arrangements and they will mail your pills to you. You must use a compounding pharmacy and the best ones to get it properly mixed are listed on the LDN website. Make sure whatever compounding pharmacy you do choose that they use pure naltrexone powder. Do not use a pharmacy that crushes the 50mg naltrexone tablets into a powder but one that uses pure naltrexone powder. Also make sure your compounding pharmacy DOES NOT use any calcium carbonate as a filler in your LDN capsules. Calcium carbonate can cause LDN to release slow and LDN MUST release fast to work. The best fillers are...Lactose(but if allergic to lactose) ask for dairy free non-refrigerate Acidophilus as a filler, there's also gelatin or Avicel(cellulose). LDN website homepage http://www.ldninfo.org Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2006 Report Share Posted July 26, 2006 You need to have it compounded to the correct dose. Personally I dont like mixing meds and soutions myself as I feel more comfortable if a profesionial does it but thats just me. Welcome to the group!!!!!!!!!!!! --- Victor Nicassio <cruzn51@...> wrote: > > Hi all iam trying to get my first prescrition filled > and there telling me it only comes in 50mg is that > true or how do i get the right dose? Vic > Aletha Wittmann <Aletha@...> wrote: > Coming right up. > Aletha > Re: [low dose naltrexone] OT Benfotiamine- > Tom Bayuk > > > > > > Hi Arlene, > > > > My husband takes Benfotiamine and so does Gerald > from our chat site. I > > will > > forward on an earlier message regarding the > product and the amounts he > > suggested that one take. > > > > It is a wonderful way to get a large quaintly of > B1 without taking shots. > > Some MS'rs get a great deal of help with it. > > > > My best > > Aletha > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2006 Report Share Posted July 26, 2006 i thought about having it done but the pharmasist told me it cost @115.00 so i told him to drop deadM B <skippertulip2@...> wrote: You need to have it compounded to the correct dose. Personally I dont like mixing meds and soutions myselfas I feel more comfortable if a profesionial does itbut thats just me.Welcome to the group!!!!!!!!!!!!--- Victor Nicassio <cruzn51 > wrote:> > Hi all iam trying to get my first prescrition filled> and there telling me it only comes in 50mg is that> true or how do i get the right dose? Vic> Aletha Wittmann <Aletharedshift> wrote: > Coming right up.> Aletha> Re: [low dose naltrexone] OT Benfotiamine-> Tom Bayuk> >> >> > Hi Arlene,> >> > My husband takes Benfotiamine and so does Gerald> from our chat site. I > > will> > forward on an earlier message regarding the> product and the amounts he> > suggested that one take.> >> > It is a wonderful way to get a large quaintly of> B1 without taking shots.> > Some MS'rs get a great deal of help with it.> >> > My best> > Aletha> >> >> >> >> >> >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2006 Report Share Posted July 26, 2006 > > i thought about having it done but the pharmasist told me it cost @115.00 so i told him to drop dead ====== Call Irmat pharmacy in NY, that's the pharmacy Dr. Bihari sends his patients to. You'll probably pay somewhere between $30 and $40 for 30 capsules. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2006 Report Share Posted July 26, 2006 Skips tends to be cheaper at $15/month. Irmat is great too, but more expensive and they don't spend time with you on the phone. We use Irmat and are very happy with them, but I think Skip is more in touch with his clients. We may switch in the future for that reason. We stay with Irmat for now because they are near Dr. Bihari and because is doing so well we worry about doing anything different (changing fillers etc.). Aletha [low dose naltrexone] Re: New guy > > >> >> i thought about having it done but the pharmasist told me it cost @115.00 >> so i told him to drop dead > ====== > > Call Irmat pharmacy in NY, that's the pharmacy Dr. Bihari sends his > patients to. You'll probably pay somewhere between $30 and $40 for 30 > capsules. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2006 Report Share Posted July 26, 2006 where do u live? I NEVER heard of a price that high for LDN in any dosage --- Victor Nicassio <cruzn51@...> wrote: > i thought about having it done but the pharmasist > told me it cost @115.00 so i told him to drop dead > > M B <skippertulip2@...> wrote: You > need to have it compounded to the correct dose. > Personally I dont like mixing meds and soutions > myself > as I feel more comfortable if a profesionial does it > but thats just me. > > Welcome to the group!!!!!!!!!!!! > > --- Victor Nicassio <cruzn51@...> wrote: > > > > > Hi all iam trying to get my first prescrition > filled > > and there telling me it only comes in 50mg is that > > true or how do i get the right dose? Vic > > Aletha Wittmann <Aletha@...> wrote: > > Coming right up. > > Aletha > > Re: [low dose naltrexone] OT > Benfotiamine- > > Tom Bayuk > > > > > > > > > Hi Arlene, > > > > > > My husband takes Benfotiamine and so does Gerald > > from our chat site. I > > > will > > > forward on an earlier message regarding the > > product and the amounts he > > > suggested that one take. > > > > > > It is a wonderful way to get a large quaintly of > > B1 without taking shots. > > > Some MS'rs get a great deal of help with it. > > > > > > My best > > > Aletha > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2006 Report Share Posted July 26, 2006 there are a list of approved ldn pharmacies that have been involved with ldn and know what they are doing. These people understand how how to do this what fillers to use.  cyndiPharmacyPhoneFaxIrmat Pharmacy, New York, NY(212) 685-0500(800) 975-2809(212) 532-6596Gideon's Drugs, New York, NY(212) 575-6868(212) 575-6334The Compounder Pharmacy, Aurora, IL(630) 859-0333(800) 679-4667(630) 859-0114The Medicine Shoppe, Canandaigua, NY(585) 396-9970(800) 396-9970(585) 396-7264Skip's Pharmacy, Boca Raton, FL(561) 218-0111(800) 553-7429(561) 218-8873's Pharmacy, Toronto, Canada(416) 488-2600(800) 361-6624(On Jul 26, 2006, at 12:14 AM, Bren wrote: i Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2006 Report Share Posted July 26, 2006 i was curious was that a regular pharmacy or a compounding pharmacy? cyndi On Jul 26, 2006, at 2:05 AM, M B wrote: > where do u live? I NEVER heard of a price that high > for LDN in any dosage > > --- Victor Nicassio <cruzn51@...> wrote: > >> i thought about having it done but the pharmasist >> told me it cost @115.00 so i told him to drop dead >> >> M B <skippertulip2@...> wrote: You >> need to have it compounded to the correct dose. >> Personally I dont like mixing meds and soutions >> myself >> as I feel more comfortable if a profesionial does it >> but thats just me. >> >> Welcome to the group!!!!!!!!!!!! >> >> --- Victor Nicassio <cruzn51@...> wrote: Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2006 Report Share Posted July 26, 2006 it was a regular pharmacy who got a price from a compounding pharmacyCyndi Lenz <psychrn@...> wrote: i was curious was that a regular pharmacy or a compounding pharmacy?cyndiOn Jul 26, 2006, at 2:05 AM, M B wrote:> where do u live? I NEVER heard of a price that high> for LDN in any dosage>> --- Victor Nicassio <cruzn51 > wrote:>>> i thought about having it done but the pharmasist>> told me it cost @115.00 so i told him to drop dead>>>> M B <skippertulip2 > wrote: You>> need to have it compounded to the correct dose.>> Personally I dont like mixing meds and soutions>> myself>> as I feel more comfortable if a profesionial does it>> but thats just me.>>>> Welcome to the group!!!!!!!!!!!!>>>> --- Victor Nicassio <cruzn51 > wrote: How low will we go? Check out Messenger’s low PC-to-Phone call rates. Quote Link to comment Share on other sites More sharing options...
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