Guest guest Posted January 30, 2010 Report Share Posted January 30, 2010 Dave, when you mentioned fluid , it didnt even click, but I do know what a syrinx is. My wife of 20 years has Chiari malformation, http://headsaga.blogspot.com/ which is often accompanied by syringomyelia or the presence of a syrinx. Her Chiari is secondary to a collegen deficiency disorder called Ehlers Danlose syndrome. This causes hypermobile joints and thus her head is settling and her spine is stabbing her brain to death through the hole in her head. They had to make her hole bigger, and even though she is fighting it, she is dye to be fused from her skull to c7. I have some good website info for your daughter. I hope she can see a good neuro. It matters a lot. Bobby here is the American Chiari and Syringomyelia Alliance Project http://www.asap.org/ http://www.csfinfo.org/http://www.chiariconnectioninternational.com/ (saadn'leelt- da ya day- n'zho) long life, old age, everything good-Apache prayer ________________________________ To: livercirrhosissupport Sent: Sat, January 30, 2010 6:46:19 PM Subject: Re: (unknown) My daughters condition is called syrinx..have read more about it than I want to know already..she is also splitting with my grandsons dad..he is a not a good person, but they co-signed on a house together less than a yr. ago..a real mess..I feel like I have to be this strong person, but it just isn't so.. Dave ____________ _________ _________ __ From: Jan Holman <janholmangmail (DOT) com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Sat, January 30, 2010 7:20:46 PM Subject: Re: (unknown) Dave - how are the people that you have been taking care of? is that what the stress is? Or is my memory playing tricks on me? My cardio put me on xanax to cut down on the strain on my heart from stress, don't know how you feel about medications like that, but has helped me a lot. Jan H On Sat, Jan 30, 2010 at 6:04 PM, dave dodds <daveliltoe@ yahoo. com> wrote: > Not been feeling good lately..in one of the valley's of this disease..may > be sticking me in hospital soon..was doing good, but had a lot of stress > happening lately. > Dave > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2010 Report Share Posted January 30, 2010 I can handle most anything except bad things happening to my daughter..with all the troubles in Haiti and the rest of the world, I shouldn't complain.... Dave ________________________________ To: livercirrhosissupport Sent: Sat, January 30, 2010 7:57:51 PM Subject: Re: (unknown)  Sorry to hear it,Dave..sounds like it's coming at you in buckets!                                                                            Love,Jill  We don't remember days, we remember moments. Life is not measured by the breaths we take,but by the moments that take our breath away. ____________ _________ _________ __ From: dave dodds <daveliltoeyahoo (DOT) com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Sat, January 30, 2010 8:37:41 PM Subject: Re: (unknown)  My buddy died about a month ago, my daughter was diagnosed with fluid on her spine last week..is seeing neurologist in two weeks..my Pop is deaf as a post, and turns volume up so loud it rattles the walls...thats with his hearing aids in! I feel not so good physically or mentally..we all have our problem's..hate to complain..seems they come in big numbers all at once..    Dave ____________ _________ _________ __ From: Jan Holman <janholmangmail (DOT) com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Sat, January 30, 2010 7:20:46 PM Subject: Re: (unknown)  Dave - how are the people that you have been taking care of? is that what the stress is? Or is my memory playing tricks on me? My cardio put me on xanax to cut down on the strain on my heart from stress, don't know how you feel about medications like that, but has helped me a lot. Jan H On Sat, Jan 30, 2010 at 6:04 PM, dave dodds <daveliltoe@ yahoo. com> wrote: > Not been feeling good lately..in one of the valley's of this disease..may > be sticking me in hospital soon..was doing good, but had a lot of stress > happening lately. > Dave > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2010 Report Share Posted January 30, 2010 Dave - I know where you are coming from. 2 years ago I had my second grandson living with me for a few months, either come here or he would have to go to juvie. We didn't want that. But, he misbehaved here, eventually ended up there anyway. Then his brother came to help me after my bypass two years in April, will be leaving in March. The brother has already had brain surgery, and has symptoms again of probably needing it again. Their mother who is in the middle of a messy divorce and house foreclosure just told me that when she went in to be checked for her gall stones that she was told she had cysts or tumors on her kidneys. The doctors say it is a genetic problem usually, but don't know of anyone else who has/had it yet. My youngest has degenerative disk disease at 34, hasn't worked in months. Finally feels as if he could work, but has lots of restrictions from his doctor on the kind of work he can do, and now is not the time to be looking for work. My oldest son's wife had a car accident which traumatized her so much she hasn't driven for months. Ed had a heart attack in November, having an icd put in on the 10th, it is just one thing after another. And I feel like I have to be there for all of them too. My pastor has told me I don't have to take it all on myself, but she hasn't told me how not to do that. I can pray and leave it in God's hands but it still doesn't take it out of my mind. Yet, I don't think I would ever not want to know. Even when I was recovering from my triple bypass in a nursing home, I was very happy that my second daughter could tell me about a problem she was having. Made me feel that I hadn't been such a bad mother when she felt she could still talk to me about her problem. Jan H > My daughters condition is called syrinx..have read more about it than I > want to know already..she is also splitting with my grandsons dad..he is > a not a good person, but they co-signed on a house together less than a yr. > ago..a real mess..I feel like I have to be this strong person, but it just > isn't so.. > Dave > > > > > ________________________________ > > To: livercirrhosissupport > Sent: Sat, January 30, 2010 7:20:46 PM > Subject: Re: (unknown) > > > Dave - how are the people that you have been taking care of? is that what > the stress is? Or is my memory playing tricks on me? My cardio put me on > xanax to cut down on the strain on my heart from stress, don't know how you > feel about medications like that, but has helped me a lot. Jan H > > On Sat, Jan 30, 2010 at 6:04 PM, dave dodds <daveliltoeyahoo (DOT) com> wrote: > > > Not been feeling good lately..in one of the valley's of this disease..may > > be sticking me in hospital soon..was doing good, but had a lot of stress > > happening lately. > > Dave > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2010 Report Share Posted January 30, 2010 Thanks Bobby..We don't really know much about this as it just showed up on an MRI..she was seeing a back specialist recently, because of back pain forever now, and finally went to see a specialist about it..are there mild cases of this..I mean is it controllable or always progressive? Â Dave ________________________________ To: livercirrhosissupport Sent: Sat, January 30, 2010 8:06:37 PM Subject: Re: (unknown) Â Dave, when you mentioned fluid , it didnt even click, but I do know what a syrinx is. My wife of 20 years has Chiari malformation, http://headsaga. blogspot. com/ which is often accompanied by syringomyelia or the presence of a syrinx. Her Chiari is secondary to a collegen deficiency disorder called Ehlers Danlose syndrome. This causes hypermobile joints and thus her head is settling and her spine is stabbing her brain to death through the hole in her head. They had to make her hole bigger, and even though she is fighting it, she is dye to be fused from her skull to c7. I have some good website info for your daughter. I hope she can see a good neuro. It matters a lot. Bobby here is the American Chiari and Syringomyelia Alliance Project http://www.asap. org/ http://www.csfinfo. org/http: //www.chiariconn ectioninternatio nal.com/ (saadn'leelt- da ya day- n'zho) long life, old age, everything good-Apache prayer ____________ _________ _________ __ From: dave dodds <daveliltoeyahoo (DOT) com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Sat, January 30, 2010 6:46:19 PM Subject: Re: (unknown) My daughters condition is called syrinx..have read more about it than I want to know already..she is also splitting with my grandsons dad..he is a not a good person, but they co-signed on a house together less than a yr. ago..a real mess..I feel like I have to be this strong person, but it just isn't so.. Dave ____________ _________ _________ __ From: Jan Holman <janholmangmail (DOT) com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Sat, January 30, 2010 7:20:46 PM Subject: Re: (unknown) Dave - how are the people that you have been taking care of? is that what the stress is? Or is my memory playing tricks on me? My cardio put me on xanax to cut down on the strain on my heart from stress, don't know how you feel about medications like that, but has helped me a lot. Jan H On Sat, Jan 30, 2010 at 6:04 PM, dave dodds <daveliltoe@ yahoo. com> wrote: > Not been feeling good lately..in one of the valley's of this disease..may > be sticking me in hospital soon..was doing good, but had a lot of stress > happening lately. > Dave > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2010 Report Share Posted January 30, 2010 Dave, I also know something about syrinx since my grandsons brain surgery was for chiari malformation like Bobby's wife. They thought at the time that they might have to do some work on his spine too because he had a partial syrinx, but they left it. Not sure if that is what is causing the problem for him now. Feeling for your daughter, can't be easy to have a problem like that in the middle of a life change and a child to take care of. Jan H > I can handle most anything except bad things happening to my daughter..with > all the troubles in Haiti and the rest of the world, I shouldn't > complain.... Dave > > > > > ________________________________ > > To: livercirrhosissupport > Sent: Sat, January 30, 2010 7:57:51 PM > Subject: Re: (unknown) > > > Sorry to hear it,Dave..sounds like it's coming at you in buckets! > > > Love,Jill > > We don't remember days, we remember moments. > Life is not measured by the breaths we take,but by the moments that take > our breath away. > > ____________ _________ _________ __ > From: dave dodds <daveliltoeyahoo (DOT) com> > To: livercirrhosissuppo rtyahoogroups (DOT) com > Sent: Sat, January 30, 2010 8:37:41 PM > Subject: Re: (unknown) > > > My buddy died about a month ago, my daughter was diagnosed with fluid on > her spine last week..is seeing neurologist in two weeks..my Pop is deaf as a > post, and turns volume up so loud it rattles the walls...thats with his > hearing aids in! I feel not so good physically or mentally..we all have our > problem's..hate to complain..seems they come in big numbers all at once.. > Dave > > ____________ _________ _________ __ > From: Jan Holman <janholmangmail (DOT) com> > To: livercirrhosissuppo rtyahoogroups (DOT) com > Sent: Sat, January 30, 2010 7:20:46 PM > Subject: Re: (unknown) > > > Dave - how are the people that you have been taking care of? is that what > the stress is? Or is my memory playing tricks on me? My cardio put me on > xanax to cut down on the strain on my heart from stress, don't know how you > feel about medications like that, but has helped me a lot. Jan H > > On Sat, Jan 30, 2010 at 6:04 PM, dave dodds <daveliltoe@ yahoo. com> > wrote: > > > Not been feeling good lately..in one of the valley's of this disease..may > > be sticking me in hospital soon..was doing good, but had a lot of stress > > happening lately. > > Dave > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2010 Report Share Posted January 30, 2010 Wow Jan! I only have one kid to worry about, and one grandbaby..she is a really sweet person, and given the family problems she grew up in, I am amazed how great she turned out..It's just so unfair that a good person has to endure great hardships..I don't know the answer that that riddle.  Dave ________________________________ To: livercirrhosissupport Sent: Sat, January 30, 2010 8:18:14 PM Subject: Re: (unknown)  Dave - I know where you are coming from. 2 years ago I had my second grandson living with me for a few months, either come here or he would have to go to juvie. We didn't want that. But, he misbehaved here, eventually ended up there anyway. Then his brother came to help me after my bypass two years in April, will be leaving in March. The brother has already had brain surgery, and has symptoms again of probably needing it again. Their mother who is in the middle of a messy divorce and house foreclosure just told me that when she went in to be checked for her gall stones that she was told she had cysts or tumors on her kidneys. The doctors say it is a genetic problem usually, but don't know of anyone else who has/had it yet. My youngest has degenerative disk disease at 34, hasn't worked in months. Finally feels as if he could work, but has lots of restrictions from his doctor on the kind of work he can do, and now is not the time to be looking for work. My oldest son's wife had a car accident which traumatized her so much she hasn't driven for months. Ed had a heart attack in November, having an icd put in on the 10th, it is just one thing after another. And I feel like I have to be there for all of them too. My pastor has told me I don't have to take it all on myself, but she hasn't told me how not to do that. I can pray and leave it in God's hands but it still doesn't take it out of my mind. Yet, I don't think I would ever not want to know. Even when I was recovering from my triple bypass in a nursing home, I was very happy that my second daughter could tell me about a problem she was having. Made me feel that I hadn't been such a bad mother when she felt she could still talk to me about her problem. Jan H On Sat, Jan 30, 2010 at 6:46 PM, dave dodds <daveliltoeyahoo (DOT) com> wrote: > My daughters condition is called syrinx..have read more about it than I > want to know already..she is also splitting with my grandsons dad..he is > a not a good person, but they co-signed on a house together less than a yr. > ago..a real mess..I feel like I have to be this strong person, but it just > isn't so.. > Dave > > > > > ____________ _________ _________ __ > From: Jan Holman <janholmangmail (DOT) com> > To: livercirrhosissuppo rtyahoogroups (DOT) com > Sent: Sat, January 30, 2010 7:20:46 PM > Subject: Re: (unknown) > > > Dave - how are the people that you have been taking care of? is that what > the stress is? Or is my memory playing tricks on me? My cardio put me on > xanax to cut down on the strain on my heart from stress, don't know how you > feel about medications like that, but has helped me a lot. Jan H > > On Sat, Jan 30, 2010 at 6:04 PM, dave dodds <daveliltoe@ yahoo. com> wrote: > > > Not been feeling good lately..in one of the valley's of this disease..may > > be sticking me in hospital soon..was doing good, but had a lot of stress > > happening lately. > > Dave > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2010 Report Share Posted January 30, 2010 ,honey...we're family here and that's what we do......listen to each other. It's really okay to let it all out...we, all of us, have too!   sending hugs your way!                                                                           Love,Jill  We don't remember days, we remember moments. Life is not measured by the breaths we take,but by the moments that take our breath away. ________________________________ To: livercirrhosissupport Sent: Sat, January 30, 2010 9:10:22 PM Subject: Re: (unknown)  I can handle most anything except bad things happening to my daughter..with all the troubles in Haiti and the rest of the world, I shouldn't complain.... Dave ____________ _________ _________ __ From: Jill <jillkstewart@ yahoo.com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Sat, January 30, 2010 7:57:51 PM Subject: Re: (unknown)  Sorry to hear it,Dave..sounds like it's coming at you in buckets!                                                                            Love,Jill  We don't remember days, we remember moments. Life is not measured by the breaths we take,but by the moments that take our breath away. ____________ _________ _________ __ From: dave dodds <daveliltoe@ yahoo. com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Sat, January 30, 2010 8:37:41 PM Subject: Re: (unknown)  My buddy died about a month ago, my daughter was diagnosed with fluid on her spine last week..is seeing neurologist in two weeks..my Pop is deaf as a post, and turns volume up so loud it rattles the walls...thats with his hearing aids in! I feel not so good physically or mentally..we all have our problem's..hate to complain..seems they come in big numbers all at once..    Dave ____________ _________ _________ __ From: Jan Holman <janholmangmail (DOT) com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Sat, January 30, 2010 7:20:46 PM Subject: Re: (unknown)  Dave - how are the people that you have been taking care of? is that what the stress is? Or is my memory playing tricks on me? My cardio put me on xanax to cut down on the strain on my heart from stress, don't know how you feel about medications like that, but has helped me a lot. Jan H On Sat, Jan 30, 2010 at 6:04 PM, dave dodds <daveliltoe@ yahoo. com> wrote: > Not been feeling good lately..in one of the valley's of this disease..may > be sticking me in hospital soon..was doing good, but had a lot of stress > happening lately. > Dave > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2010 Report Share Posted January 30, 2010 I don't know how she holds up...both me and her mother have ESLD, also..I may have told the group I raised her on my own..my greatest accomplishment for sure!  Dave ________________________________ To: livercirrhosissupport Sent: Sat, January 30, 2010 8:22:28 PM Subject: Re: (unknown)  Dave, I also know something about syrinx since my grandsons brain surgery was for chiari malformation like Bobby's wife. They thought at the time that they might have to do some work on his spine too because he had a partial syrinx, but they left it. Not sure if that is what is causing the problem for him now. Feeling for your daughter, can't be easy to have a problem like that in the middle of a life change and a child to take care of. Jan H On Sat, Jan 30, 2010 at 7:10 PM, dave dodds <daveliltoeyahoo (DOT) com> wrote: > I can handle most anything except bad things happening to my daughter..with > all the troubles in Haiti and the rest of the world, I shouldn't > complain.... Dave > > > > > ____________ _________ _________ __ > From: Jill <jillkstewart@ yahoo.com> > To: livercirrhosissuppo rtyahoogroups (DOT) com > Sent: Sat, January 30, 2010 7:57:51 PM > Subject: Re: (unknown) > > > Sorry to hear it,Dave..sounds like it's coming at you in buckets! > > > Love,Jill > > We don't remember days, we remember moments. > Life is not measured by the breaths we take,but by the moments that take > our breath away. > > ____________ _________ _________ __ > From: dave dodds <daveliltoe@ yahoo. com> > To: livercirrhosissuppo rtyahoogroups (DOT) com > Sent: Sat, January 30, 2010 8:37:41 PM > Subject: Re: (unknown) > > > My buddy died about a month ago, my daughter was diagnosed with fluid on > her spine last week..is seeing neurologist in two weeks..my Pop is deaf as a > post, and turns volume up so loud it rattles the walls...thats with his > hearing aids in! I feel not so good physically or mentally..we all have our > problem's..hate to complain..seems they come in big numbers all at once.. > Dave > > ____________ _________ _________ __ > From: Jan Holman <janholmangmail (DOT) com> > To: livercirrhosissuppo rtyahoogroups (DOT) com > Sent: Sat, January 30, 2010 7:20:46 PM > Subject: Re: (unknown) > > > Dave - how are the people that you have been taking care of? is that what > the stress is? Or is my memory playing tricks on me? My cardio put me on > xanax to cut down on the strain on my heart from stress, don't know how you > feel about medications like that, but has helped me a lot. Jan H > > On Sat, Jan 30, 2010 at 6:04 PM, dave dodds <daveliltoe@ yahoo. com> > wrote: > > > Not been feeling good lately..in one of the valley's of this disease..may > > be sticking me in hospital soon..was doing good, but had a lot of stress > > happening lately. > > Dave > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2010 Report Share Posted January 30, 2010 You know, after a while, this crazy life with a new problem every day gets to seeming normal. So, when the next wave hits, it is easier to remain standing. Except for this flu or cold or whatever I have had this last 10 days, I am really taken very good care of by God. So many things in my life can only be explained by the fact that he is in ultimate control. The hardest part is the concern for the others in my life, sons and daughters Ed and my 86 year old mother and her 75 year old sister. You are a strong person if you raised her alone and turned out well. My children's father has had multiple heart attacks and is limited in his activity, has little heart attacks now very frequently, so my kids have both parents to be concerned about too, and that bothers me. Hope they don't lose both of us too close together. Jan H > I don't know how she holds up...both me and her mother have ESLD, also..I > may have told the group I raised her on my own..my greatest accomplishment > for sure! > Dave > > > > > ________________________________ > > To: livercirrhosissupport > Sent: Sat, January 30, 2010 8:22:28 PM > Subject: Re: (unknown) > > > Dave, I also know something about syrinx since my grandsons brain surgery > was for chiari malformation like Bobby's wife. They thought at the time > that they might have to do some work on his spine too because he had a > partial syrinx, but they left it. Not sure if that is what is causing the > problem for him now. Feeling for your daughter, can't be easy to have a > problem like that in the middle of a life change and a child to take care > of. Jan H > On Sat, Jan 30, 2010 at 7:10 PM, dave dodds <daveliltoeyahoo (DOT) com> wrote: > > > I can handle most anything except bad things happening to my > daughter..with > > all the troubles in Haiti and the rest of the world, I shouldn't > > complain.... Dave > > > > > > > > > > ____________ _________ _________ __ > > From: Jill <jillkstewart@ yahoo.com> > > To: livercirrhosissuppo rtyahoogroups (DOT) com > > Sent: Sat, January 30, 2010 7:57:51 PM > > Subject: Re: (unknown) > > > > > > Sorry to hear it,Dave..sounds like it's coming at you in buckets! > > > > > > Love,Jill > > > > We don't remember days, we remember moments. > > Life is not measured by the breaths we take,but by the moments that take > > our breath away. > > > > ____________ _________ _________ __ > > From: dave dodds <daveliltoe@ yahoo. com> > > To: livercirrhosissuppo rtyahoogroups (DOT) com > > Sent: Sat, January 30, 2010 8:37:41 PM > > Subject: Re: (unknown) > > > > > > My buddy died about a month ago, my daughter was diagnosed with fluid on > > her spine last week..is seeing neurologist in two weeks..my Pop is deaf > as a > > post, and turns volume up so loud it rattles the walls...thats with his > > hearing aids in! I feel not so good physically or mentally..we all have > our > > problem's..hate to complain..seems they come in big numbers all at once.. > > Dave > > > > ____________ _________ _________ __ > > From: Jan Holman <janholmangmail (DOT) com> > > To: livercirrhosissuppo rtyahoogroups (DOT) com > > Sent: Sat, January 30, 2010 7:20:46 PM > > Subject: Re: (unknown) > > > > > > Dave - how are the people that you have been taking care of? is that what > > the stress is? Or is my memory playing tricks on me? My cardio put me on > > xanax to cut down on the strain on my heart from stress, don't know how > you > > feel about medications like that, but has helped me a lot. Jan H > > > > On Sat, Jan 30, 2010 at 6:04 PM, dave dodds <daveliltoe@ yahoo. com> > > wrote: > > > > > Not been feeling good lately..in one of the valley's of this > disease..may > > > be sticking me in hospital soon..was doing good, but had a lot of > stress > > > happening lately. > > > Dave > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2010 Report Share Posted January 30, 2010 Dave, I'm sorry to read about your buddy and I know many won't agree but he's better off. And when it comes to a child that's ill it's a whole nother subject. LIFE SUCKS at times that's for sure. I really do hope you get to feeling better. Can you get any help to relieve the strain of taking care of your dad?...Best wishes, Debbie > > > Not been feeling good lately..in one of the valley's of this disease..may > > be sticking me in hospital soon..was doing good, but had a lot of stress > > happening lately. > > Dave > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2010 Report Share Posted January 30, 2010 Dave Please remember that we are all here for you!!! You go ahead and complain if you want to - at least it gets it off the chest. However, through it all, take care of yourself especially. Your daughter nor your Pop are going to benefit one iota if you get too sick to be there. Gloria ________________________________ My buddy died about a month ago, my daughter was diagnosed with fluid on her spine last week..is seeing neurologist in two weeks..my Pop is deaf as a post, and turns volume up so loud it rattles the walls...thats with his hearing aids in! I feel not so good physically or mentally..we all have our problem's..hate to complain..seems they come in big numbers all at once.. Dave ____________ _________ _________ __ From: Jan Holman <janholmangmail (DOT) com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Sat, January 30, 2010 7:20:46 PM Subject: Re: (unknown) Dave - how are the people that you have been taking care of? is that what the stress is? Or is my memory playing tricks on me? My cardio put me on xanax to cut down on the strain on my heart from stress, don't know how you feel about medications like that, but has helped me a lot. Jan H On Sat, Jan 30, 2010 at 6:04 PM, dave dodds <daveliltoe@ yahoo. com> wrote: > Not been feeling good lately..in one of the valley's of this disease..may > be sticking me in hospital soon..was doing good, but had a lot of stress > happening lately. > Dave > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2010 Report Share Posted January 30, 2010 I am a chronic worrier. I worry about how much I worry. Got that from my mom...my pop has the ability to let go of things he can't control..as he says, " I just let it roll off of me " . Will hope and pray for the best, and see what the news is after she sees the neurologist.  I think I will see a professional soon about my stress and depression. Hopefully they can give me a hand up. There is a stress center at a local hospital, so I may check it out. Just don't want to be checked in to a hospital right now. I have to take care of my father, and be available for my daughter and grandson.  Dave ________________________________ To: livercirrhosissupport Sent: Sat, January 30, 2010 8:53:26 PM Subject: Re: (unknown)  You know, after a while, this crazy life with a new problem every day gets to seeming normal. So, when the next wave hits, it is easier to remain standing. Except for this flu or cold or whatever I have had this last 10 days, I am really taken very good care of by God. So many things in my life can only be explained by the fact that he is in ultimate control. The hardest part is the concern for the others in my life, sons and daughters Ed and my 86 year old mother and her 75 year old sister. You are a strong person if you raised her alone and turned out well. My children's father has had multiple heart attacks and is limited in his activity, has little heart attacks now very frequently, so my kids have both parents to be concerned about too, and that bothers me. Hope they don't lose both of us too close together. Jan H On Sat, Jan 30, 2010 at 7:35 PM, dave dodds <daveliltoeyahoo (DOT) com> wrote: > I don't know how she holds up...both me and her mother have ESLD, also..I > may have told the group I raised her on my own..my greatest accomplishment > for sure! > Dave > > > > > ____________ _________ _________ __ > From: Jan Holman <janholmangmail (DOT) com> > To: livercirrhosissuppo rtyahoogroups (DOT) com > Sent: Sat, January 30, 2010 8:22:28 PM > Subject: Re: (unknown) > > > Dave, I also know something about syrinx since my grandsons brain surgery > was for chiari malformation like Bobby's wife. They thought at the time > that they might have to do some work on his spine too because he had a > partial syrinx, but they left it. Not sure if that is what is causing the > problem for him now. Feeling for your daughter, can't be easy to have a > problem like that in the middle of a life change and a child to take care > of. Jan H > On Sat, Jan 30, 2010 at 7:10 PM, dave dodds <daveliltoe@ yahoo. com> wrote: > > > I can handle most anything except bad things happening to my > daughter..with > > all the troubles in Haiti and the rest of the world, I shouldn't > > complain.... Dave > > > > > > > > > > ____________ _________ _________ __ > > From: Jill <jillkstewart@ yahoo.com> > > To: livercirrhosissuppo rtyahoogroups (DOT) com > > Sent: Sat, January 30, 2010 7:57:51 PM > > Subject: Re: (unknown) > > > > > > Sorry to hear it,Dave..sounds like it's coming at you in buckets! > > > > > > Love,Jill > > > > We don't remember days, we remember moments. > > Life is not measured by the breaths we take,but by the moments that take > > our breath away. > > > > ____________ _________ _________ __ > > From: dave dodds <daveliltoe@ yahoo. com> > > To: livercirrhosissuppo rtyahoogroups (DOT) com > > Sent: Sat, January 30, 2010 8:37:41 PM > > Subject: Re: (unknown) > > > > > > My buddy died about a month ago, my daughter was diagnosed with fluid on > > her spine last week..is seeing neurologist in two weeks..my Pop is deaf > as a > > post, and turns volume up so loud it rattles the walls...thats with his > > hearing aids in! I feel not so good physically or mentally..we all have > our > > problem's..hate to complain..seems they come in big numbers all at once.. > > Dave > > > > ____________ _________ _________ __ > > From: Jan Holman <janholmangmail (DOT) com> > > To: livercirrhosissuppo rtyahoogroups (DOT) com > > Sent: Sat, January 30, 2010 7:20:46 PM > > Subject: Re: (unknown) > > > > > > Dave - how are the people that you have been taking care of? is that what > > the stress is? Or is my memory playing tricks on me? My cardio put me on > > xanax to cut down on the strain on my heart from stress, don't know how > you > > feel about medications like that, but has helped me a lot. Jan H > > > > On Sat, Jan 30, 2010 at 6:04 PM, dave dodds <daveliltoe@ yahoo. com> > > wrote: > > > > > Not been feeling good lately..in one of the valley's of this > disease..may > > > be sticking me in hospital soon..was doing good, but had a lot of > stress > > > happening lately. > > > Dave > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2010 Report Share Posted January 30, 2010 I think he relies on me more than he really needs to Debbie..my mom did everything for him..very old school..he doesn't think he is able to see good enough to turn the heat up or down..It is really a simple task..turn it the same direction every time and the thermostat goes up or down...it's really kind of funny when you think about it..I don't know how many times I've told him and showed him..he doesn't have alzheimer's..he is just a domestic cripple, so to speak..when I say my mom did everything in the house for him..I mean everything.  Dave ________________________________ To: livercirrhosissupport Sent: Sat, January 30, 2010 8:56:35 PM Subject: Re: (unknown)  Dave, I'm sorry to read about your buddy and I know many won't agree but he's better off. And when it comes to a child that's ill it's a whole nother subject. LIFE SUCKS at times that's for sure. I really do hope you get to feeling better. Can you get any help to relieve the strain of taking care of your dad?...Best wishes, Debbie > > > Not been feeling good lately..in one of the valley's of this disease..may > > be sticking me in hospital soon..was doing good, but had a lot of stress > > happening lately. > > Dave > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2010 Report Share Posted January 30, 2010 My oldest daughter left MN when she was 19 years old with her 15 year old sister going along to help with my two oldest grandsons, 18 months and about 5 months or so. Of course I worried all the time until I found out that they made it safe, and then waited for the younger one to fly home. later, my oldest daughter was on her way back to Mn for a visit and was late getting there. I imagined them at the side of the road, unable to help themself at the least, not visible to anyone else and hurt or worse. When she did get to MN and had no problems, I told myself I had to stop worrying, that she was an adult and I couldn't control her. Nothing really terrible had happened yet, and my worrying was only bothering me, like an ulcer, inability to do what I could have done if I weren't worrying so much. I think there is a difference between concern and worrying. If I find there is a problem, I try to see what I can do to help fix it whether it is with my family or my friends or my church. But when my daughter told me about her kidney problems I told her I was sorry she had to have another problem, called other family members to check, and them them be checked to see if it is genetic, pray for her, think about it frequently, but it doesn't control me now. Not to say there aren't times when I am temporarily controlled by things. I hope you can get some help. Jan H > I am a chronic worrier. I worry about how much I worry. Got that from my > mom...my pop has the ability to let go of things he can't control..as he > says, " I just let it roll off of me " . Will hope and pray for the best, and > see what the news is after she sees the neurologist. I think I will see a > professional soon about my stress and depression. Hopefully they can give > me a hand up. There is a stress center at a local hospital, so I may check > it out. Just don't want to be checked in to a hospital right now. I have > to take care of my father, and be available for my daughter and grandson. > Dave > > > > > ________________________________ > > To: livercirrhosissupport > Sent: Sat, January 30, 2010 8:53:26 PM > Subject: Re: (unknown) > > > You know, after a while, this crazy life with a new problem every day gets > to seeming normal. So, when the next wave hits, it is easier to remain > standing. Except for this flu or cold or whatever I have had this last 10 > days, I am really taken very good care of by God. So many things in my life > can only be explained by the fact that he is in ultimate control. The > hardest part is the concern for the others in my life, sons and daughters > Ed > and my 86 year old mother and her 75 year old sister. > You are a strong person if you raised her alone and turned out well. My > children's father has had multiple heart attacks and is limited in his > activity, has little heart attacks now very frequently, so my kids have > both > parents to be concerned about too, and that bothers me. Hope they don't > lose both of us too close together. Jan H > On Sat, Jan 30, 2010 at 7:35 PM, dave dodds <daveliltoeyahoo (DOT) com> wrote: > > > I don't know how she holds up...both me and her mother have ESLD, also..I > > may have told the group I raised her on my own..my greatest > accomplishment > > for sure! > > Dave > > > > > > > > > > ____________ _________ _________ __ > > From: Jan Holman <janholmangmail (DOT) com> > > To: livercirrhosissuppo rtyahoogroups (DOT) com > > Sent: Sat, January 30, 2010 8:22:28 PM > > Subject: Re: (unknown) > > > > > > Dave, I also know something about syrinx since my grandsons brain surgery > > was for chiari malformation like Bobby's wife. They thought at the time > > that they might have to do some work on his spine too because he had a > > partial syrinx, but they left it. Not sure if that is what is causing the > > problem for him now. Feeling for your daughter, can't be easy to have a > > problem like that in the middle of a life change and a child to take care > > of. Jan H > > On Sat, Jan 30, 2010 at 7:10 PM, dave dodds <daveliltoe@ yahoo. com> > wrote: > > > > > I can handle most anything except bad things happening to my > > daughter..with > > > all the troubles in Haiti and the rest of the world, I shouldn't > > > complain.... Dave > > > > > > > > > > > > > > > ____________ _________ _________ __ > > > From: Jill <jillkstewart@ yahoo.com> > > > To: livercirrhosissuppo rtyahoogroups (DOT) com > > > Sent: Sat, January 30, 2010 7:57:51 PM > > > Subject: Re: (unknown) > > > > > > > > > Sorry to hear it,Dave..sounds like it's coming at you in buckets! > > > > > > > > > Love,Jill > > > > > > We don't remember days, we remember moments. > > > Life is not measured by the breaths we take,but by the moments that > take > > > our breath away. > > > > > > ____________ _________ _________ __ > > > From: dave dodds <daveliltoe@ yahoo. com> > > > To: livercirrhosissuppo rtyahoogroups (DOT) com > > > Sent: Sat, January 30, 2010 8:37:41 PM > > > Subject: Re: (unknown) > > > > > > > > > My buddy died about a month ago, my daughter was diagnosed with fluid > on > > > her spine last week..is seeing neurologist in two weeks..my Pop is deaf > > as a > > > post, and turns volume up so loud it rattles the walls...thats with his > > > hearing aids in! I feel not so good physically or mentally..we all have > > our > > > problem's..hate to complain..seems they come in big numbers all at > once.. > > > Dave > > > > > > ____________ _________ _________ __ > > > From: Jan Holman <janholmangmail (DOT) com> > > > To: livercirrhosissuppo rtyahoogroups (DOT) com > > > Sent: Sat, January 30, 2010 7:20:46 PM > > > Subject: Re: (unknown) > > > > > > > > > Dave - how are the people that you have been taking care of? is that > what > > > the stress is? Or is my memory playing tricks on me? My cardio put me > on > > > xanax to cut down on the strain on my heart from stress, don't know how > > you > > > feel about medications like that, but has helped me a lot. Jan H > > > > > > On Sat, Jan 30, 2010 at 6:04 PM, dave dodds <daveliltoe@ yahoo. com> > > > wrote: > > > > > > > Not been feeling good lately..in one of the valley's of this > > disease..may > > > > be sticking me in hospital soon..was doing good, but had a lot of > > stress > > > > happening lately. > > > > Dave > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2010 Report Share Posted January 30, 2010 Your dad reminds me of a friend's husband. She has the same thing I have right now, in the worst of it. Here, my grandson has done some cooking, We have had TV dinners, gotten take out because I don't feel like cooking. Made one meal all week, an easy one. She still has to take care of him, make his meals and anything else he needs. He thinks that is what a woman is for. When she had surgery last year, she had to cook the day she came home from the hospital. We have tried to tell him that it isn't right, but he doesn't hear us. Jan H > I think he relies on me more than he really needs to Debbie..my mom did > everything for him..very old school..he doesn't think he is able to see good > enough to turn the heat up or down..It is really a simple task..turn it the > same direction every time and the thermostat goes up or down...it's really > kind of funny when you think about it..I don't know how many times I've told > him and showed him..he doesn't have alzheimer's..he is just a domestic > cripple, so to speak..when I say my mom did everything in the house for > him..I mean everything. > Dave > > > > > ________________________________ > > To: livercirrhosissupport > Sent: Sat, January 30, 2010 8:56:35 PM > Subject: Re: (unknown) > > > Dave, I'm sorry to read about your buddy and I know many won't agree but > he's better off. And when it comes to a child that's ill it's a whole nother > subject. LIFE SUCKS at times that's for sure. I really do hope you get to > feeling better. Can you get any help to relieve the strain of taking care of > your dad?...Best wishes, Debbie > > > > > > > Not been feeling good lately..in one of the valley's of this > disease..may > > > be sticking me in hospital soon..was doing good, but had a lot of > stress > > > happening lately. > > > Dave > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2010 Report Share Posted January 30, 2010 Dave, then crawl in the bed, pull the covers up to your neck or throw them off (depending on where your dad ends up with the thermostat) and wait him out. Tell him YOU are SICK and ask for some soup!!! and then pretend like you can't hear anything he's saying...;-) > > > > > Not been feeling good lately..in one of the valley's of this disease..may > > > be sticking me in hospital soon..was doing good, but had a lot of stress > > > happening lately. > > > Dave > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2010 Report Share Posted January 30, 2010 Yup, we can always find a reason for guilting ourselves! Oh ya, I do it too. How dare I complain when there is real tragedy in the world and especially to children. But, a good friend of mine told me a few years ago (his wife died of lung cancer) that I had to take the time to do that complaining and feeling sorry for myself occasionally or it would just all bottle up into stress!!! Gloria ________________________________ I can handle most anything except bad things happening to my daughter..with all the troubles in Haiti and the rest of the world, I shouldn't complain.... Dave ____________ _________ _________ __ From: Jill <jillkstewart@ yahoo.com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Sat, January 30, 2010 7:57:51 PM Subject: Re: (unknown) Sorry to hear it,Dave..sounds like it's coming at you in buckets! Love,Jill We don't remember days, we remember moments. Life is not measured by the breaths we take,but by the moments that take our breath away. ____________ _________ _________ __ From: dave dodds <daveliltoe@ yahoo. com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Sat, January 30, 2010 8:37:41 PM Subject: Re: (unknown) My buddy died about a month ago, my daughter was diagnosed with fluid on her spine last week..is seeing neurologist in two weeks..my Pop is deaf as a post, and turns volume up so loud it rattles the walls...thats with his hearing aids in! I feel not so good physically or mentally..we all have our problem's..hate to complain..seems they come in big numbers all at once.. Dave ____________ _________ _________ __ From: Jan Holman <janholmangmail (DOT) com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Sat, January 30, 2010 7:20:46 PM Subject: Re: (unknown) Dave - how are the people that you have been taking care of? is that what the stress is? Or is my memory playing tricks on me? My cardio put me on xanax to cut down on the strain on my heart from stress, don't know how you feel about medications like that, but has helped me a lot. Jan H On Sat, Jan 30, 2010 at 6:04 PM, dave dodds <daveliltoe@ yahoo. com> wrote: > Not been feeling good lately..in one of the valley's of this disease..may > be sticking me in hospital soon..was doing good, but had a lot of stress > happening lately. > Dave > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2010 Report Share Posted January 30, 2010 ROFL Jan H > Dave, then crawl in the bed, pull the covers up to your neck or throw them > off (depending on where your dad ends up with the thermostat) and wait him > out. Tell him YOU are SICK and ask for some soup!!! and then pretend like > you can't hear anything he's saying...;-) > > > > > > > > > Not been feeling good lately..in one of the valley's of this > disease..may > > > > be sticking me in hospital soon..was doing good, but had a lot of > stress > > > > happening lately. > > > > Dave > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2010 Report Share Posted January 30, 2010 Sometimes you can just do it in your head. I have a technique, besides posting here, which helps me when I get down. I call it wallowing in misery. There is a logic theory, fallacy called the slippery slope. You start out by having a problem, figuring you should do something because if you dont, the problems will get bigger. For instance, if I don't graduate from High School, I can go to college, if I don't go to college I will never get a job making enough to support a family. I am sure you get the idea. it just gets worse and worse all the time. All the problems you can imagine. When the reality is that of course you can support a family with out a college degree, your dad can change the thermostat if he is capable of using his hands and mind. When I go down the slippery slope, I keep on inventing problems until it gets so ridiculous I just have to laugh. Then I am ready to go again until the next time. Jan H > > Yup, we can always find a reason for guilting ourselves! Oh ya, I do it > too. How dare I complain when there is real tragedy in the world and > especially to children. > > But, a good friend of mine told me a few years ago (his wife died of lung > cancer) that I had to take the time to do that complaining and feeling sorry > for myself occasionally or it would just all bottle up into stress!!! > > Gloria > > > > > ________________________________ > > > I can handle most anything except bad things happening to my daughter..with > all the troubles in Haiti and the rest of the world, I shouldn't > complain.... Dave > > ____________ _________ _________ __ > From: Jill <jillkstewart@ yahoo.com> > To: livercirrhosissuppo rtyahoogroups (DOT) com > Sent: Sat, January 30, 2010 7:57:51 PM > Subject: Re: (unknown) > > > Sorry to hear it,Dave..sounds like it's coming at you in buckets! > > > Love,Jill > > We don't remember days, we remember moments. > Life is not measured by the breaths we take,but by the moments that take > our breath away. > > ____________ _________ _________ __ > From: dave dodds <daveliltoe@ yahoo. com> > To: livercirrhosissuppo rtyahoogroups (DOT) com > Sent: Sat, January 30, 2010 8:37:41 PM > Subject: Re: (unknown) > > > My buddy died about a month ago, my daughter was diagnosed with fluid on > her spine last week..is seeing neurologist in two weeks..my Pop is deaf as a > post, and turns volume up so loud it rattles the walls...thats with his > hearing aids in! I feel not so good physically or mentally..we all have our > problem's..hate to complain..seems they come in big numbers all at once.. > Dave > > ____________ _________ _________ __ > From: Jan Holman <janholmangmail (DOT) com> > To: livercirrhosissuppo rtyahoogroups (DOT) com > Sent: Sat, January 30, 2010 7:20:46 PM > Subject: Re: (unknown) > > > Dave - how are the people that you have been taking care of? is that what > the stress is? Or is my memory playing tricks on me? My cardio put me on > xanax to cut down on the strain on my heart from stress, don't know how you > feel about medications like that, but has helped me a lot. Jan H > > On Sat, Jan 30, 2010 at 6:04 PM, dave dodds <daveliltoe@ yahoo. com> > wrote: > > > Not been feeling good lately..in one of the valley's of this disease..may > > be sticking me in hospital soon..was doing good, but had a lot of stress > > happening lately. > > Dave > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2010 Report Share Posted January 30, 2010 I'll try that..I have my own computer now, in my room. Going to buy some headphones, also. I just can't hang in the living room with him. If I ask him to turn the T.V. down, he pouts, and turns it all the way down.  Dave ________________________________ To: livercirrhosissupport Sent: Sat, January 30, 2010 9:31:03 PM Subject: Re: (unknown)  Dave, then crawl in the bed, pull the covers up to your neck or throw them off (depending on where your dad ends up with the thermostat) and wait him out. Tell him YOU are SICK and ask for some soup!!! and then pretend like you can't hear anything he's saying...;-) > > > > > Not been feeling good lately..in one of the valley's of this disease..may > > > be sticking me in hospital soon..was doing good, but had a lot of stress > > > happening lately. > > > Dave > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2010 Report Share Posted January 30, 2010 Dave, I'm sooo sorry. I know that's got to be so hard for you. It's like a total role reversal. DO SOMETHING FOR YOU !...honestly, it's something you need for your own well being and the continuing ability to try to do what you can for your dad. It's clear to see that you're a dedicated son but a person can only take so much. That or put an ad on the internet and find him a NEW WIFE !!!...seriously though, I wish you the best and hope things ease up even if just for a little while.~~~Debbie > > > > > > > Not been feeling good lately..in one of the valley's of this disease..may > > > > be sticking me in hospital soon..was doing good, but had a lot of stress > > > > happening lately. > > > > Dave > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2010 Report Share Posted January 30, 2010 For sure they snowball when I get started..gonna get some shuteye..hope you all get a good night sleep..tomarrows a new day..let's pray for a good one..peace and comfort,  Dave ________________________________ To: livercirrhosissupport Sent: Sat, January 30, 2010 9:42:51 PM Subject: Re: (unknown)  Sometimes you can just do it in your head. I have a technique, besides posting here, which helps me when I get down. I call it wallowing in misery. There is a logic theory, fallacy called the slippery slope. You start out by having a problem, figuring you should do something because if you dont, the problems will get bigger. For instance, if I don't graduate from High School, I can go to college, if I don't go to college I will never get a job making enough to support a family. I am sure you get the idea. it just gets worse and worse all the time. All the problems you can imagine. When the reality is that of course you can support a family with out a college degree, your dad can change the thermostat if he is capable of using his hands and mind. When I go down the slippery slope, I keep on inventing problems until it gets so ridiculous I just have to laugh. Then I am ready to go again until the next time. Jan H On Sat, Jan 30, 2010 at 8:33 PM, Gloria <gadamscanyahoo (DOT) ca> wrote: > > Yup, we can always find a reason for guilting ourselves! Oh ya, I do it > too. How dare I complain when there is real tragedy in the world and > especially to children. > > But, a good friend of mine told me a few years ago (his wife died of lung > cancer) that I had to take the time to do that complaining and feeling sorry > for myself occasionally or it would just all bottle up into stress!!! > > Gloria > > > > > ____________ _________ _________ __ > > > I can handle most anything except bad things happening to my daughter..with > all the troubles in Haiti and the rest of the world, I shouldn't > complain.... Dave > > ____________ _________ _________ __ > From: Jill <jillkstewart@ yahoo.com> > To: livercirrhosissuppo rtyahoogroups (DOT) com > Sent: Sat, January 30, 2010 7:57:51 PM > Subject: Re: (unknown) > > > Sorry to hear it,Dave..sounds like it's coming at you in buckets! > > > Love,Jill > > We don't remember days, we remember moments. > Life is not measured by the breaths we take,but by the moments that take > our breath away. > > ____________ _________ _________ __ > From: dave dodds <daveliltoe@ yahoo. com> > To: livercirrhosissuppo rtyahoogroups (DOT) com > Sent: Sat, January 30, 2010 8:37:41 PM > Subject: Re: (unknown) > > > My buddy died about a month ago, my daughter was diagnosed with fluid on > her spine last week..is seeing neurologist in two weeks..my Pop is deaf as a > post, and turns volume up so loud it rattles the walls...thats with his > hearing aids in! I feel not so good physically or mentally..we all have our > problem's..hate to complain..seems they come in big numbers all at once.. > Dave > > ____________ _________ _________ __ > From: Jan Holman <janholmangmail (DOT) com> > To: livercirrhosissuppo rtyahoogroups (DOT) com > Sent: Sat, January 30, 2010 7:20:46 PM > Subject: Re: (unknown) > > > Dave - how are the people that you have been taking care of? is that what > the stress is? Or is my memory playing tricks on me? My cardio put me on > xanax to cut down on the strain on my heart from stress, don't know how you > feel about medications like that, but has helped me a lot. Jan H > > On Sat, Jan 30, 2010 at 6:04 PM, dave dodds <daveliltoe@ yahoo. com> > wrote: > > > Not been feeling good lately..in one of the valley's of this disease..may > > be sticking me in hospital soon..was doing good, but had a lot of stress > > happening lately. > > Dave > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2010 Report Share Posted January 30, 2010 Oh, I really really understand it Dave!! If my son were sick with something that sounds that bad, WELL, I'd just have to go down to and move in with him. I couldn't stand not knowing daily what is really going on... Gloria ________________________________ I don't know how she holds up...both me and her mother have ESLD, also..I may have told the group I raised her on my own..my greatest accomplishment for sure! Dave ____________ _________ _________ __ From: Jan Holman <janholmangmail (DOT) com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Sat, January 30, 2010 8:22:28 PM Subject: Re: (unknown) Dave, I also know something about syrinx since my grandsons brain surgery was for chiari malformation like Bobby's wife. They thought at the time that they might have to do some work on his spine too because he had a partial syrinx, but they left it. Not sure if that is what is causing the problem for him now. Feeling for your daughter, can't be easy to have a problem like that in the middle of a life change and a child to take care of. Jan H On Sat, Jan 30, 2010 at 7:10 PM, dave dodds <daveliltoe@ yahoo. com> wrote: > I can handle most anything except bad things happening to my daughter..with > all the troubles in Haiti and the rest of the world, I shouldn't > complain.... Dave > > > > > ____________ _________ _________ __ > From: Jill <jillkstewart@ yahoo.com> > To: livercirrhosissuppo rtyahoogroups (DOT) com > Sent: Sat, January 30, 2010 7:57:51 PM > Subject: Re: (unknown) > > > Sorry to hear it,Dave..sounds like it's coming at you in buckets! > > > Love,Jill > > We don't remember days, we remember moments. > Life is not measured by the breaths we take,but by the moments that take > our breath away. > > ____________ _________ _________ __ > From: dave dodds <daveliltoe@ yahoo. com> > To: livercirrhosissuppo rtyahoogroups (DOT) com > Sent: Sat, January 30, 2010 8:37:41 PM > Subject: Re: (unknown) > > > My buddy died about a month ago, my daughter was diagnosed with fluid on > her spine last week..is seeing neurologist in two weeks..my Pop is deaf as a > post, and turns volume up so loud it rattles the walls...thats with his > hearing aids in! I feel not so good physically or mentally..we all have our > problem's..hate to complain..seems they come in big numbers all at once.. > Dave > > ____________ _________ _________ __ > From: Jan Holman <janholmangmail (DOT) com> > To: livercirrhosissuppo rtyahoogroups (DOT) com > Sent: Sat, January 30, 2010 7:20:46 PM > Subject: Re: (unknown) > > > Dave - how are the people that you have been taking care of? is that what > the stress is? Or is my memory playing tricks on me? My cardio put me on > xanax to cut down on the strain on my heart from stress, don't know how you > feel about medications like that, but has helped me a lot. Jan H > > On Sat, Jan 30, 2010 at 6:04 PM, dave dodds <daveliltoe@ yahoo. com> > wrote: > > > Not been feeling good lately..in one of the valley's of this disease..may > > be sticking me in hospital soon..was doing good, but had a lot of stress > > happening lately. > > Dave > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2010 Report Share Posted January 30, 2010 I'D DIVORCE THE BONEHEAD!!! How horribly self-centered and cruel... My hubby can be a real jack--- at times; but, at least he certainly can and does cook etc. Gloria ________________________________ Your dad reminds me of a friend's husband. She has the same thing I have right now, in the worst of it. Here, my grandson has done some cooking, We have had TV dinners, gotten take out because I don't feel like cooking. Made one meal all week, an easy one. She still has to take care of him, make his meals and anything else he needs. He thinks that is what a woman is for. When she had surgery last year, she had to cook the day she came home from the hospital. We have tried to tell him that it isn't right, but he doesn't hear us. Jan H On Sat, Jan 30, 2010 at 8:22 PM, dave dodds <daveliltoeyahoo (DOT) com> wrote: > I think he relies on me more than he really needs to Debbie..my mom did > everything for him..very old school..he doesn't think he is able to see good > enough to turn the heat up or down..It is really a simple task..turn it the > same direction every time and the thermostat goes up or down...it's really > kind of funny when you think about it..I don't know how many times I've told > him and showed him..he doesn't have alzheimer's. .he is just a domestic > cripple, so to speak..when I say my mom did everything in the house for > him..I mean everything. > Dave > > > > > ____________ _________ _________ __ > From: drgonflyblue <pita54meyahoo (DOT) com> > To: livercirrhosissuppo rtyahoogroups (DOT) com > Sent: Sat, January 30, 2010 8:56:35 PM > Subject: Re: (unknown) > > > Dave, I'm sorry to read about your buddy and I know many won't agree but > he's better off. And when it comes to a child that's ill it's a whole nother > subject. LIFE SUCKS at times that's for sure. I really do hope you get to > feeling better. Can you get any help to relieve the strain of taking care of > your dad?...Best wishes, Debbie > > > > > > > Not been feeling good lately..in one of the valley's of this > disease..may > > > be sticking me in hospital soon..was doing good, but had a lot of > stress > > > happening lately. > > > Dave > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2010 Report Share Posted January 30, 2010 She almost did. Went to years of counseling to build up her self esteem. To see her, you would think she had not a worry or problem. She projects competence and treats her husband with respect even though he tries to tell her what to do. And she is on medication for the stress too. Jan H > I'D DIVORCE THE BONEHEAD!!! How horribly self-centered and cruel... My > hubby can be a real jack--- at times; but, at least he certainly can and > does cook etc. > > Gloria > > > > > ________________________________ > > > Your dad reminds me of a friend's husband. She has the same thing I have > right now, in the worst of it. Here, my grandson has done some cooking, We > have had TV dinners, gotten take out because I don't feel like cooking. > Made one meal all week, an easy one. She still has to take care of him, > make his meals and anything else he needs. He thinks that is what a woman > is for. When she had surgery last year, she had to cook the day she came > home from the hospital. We have tried to tell him that it isn't right, but > he doesn't hear us. Jan H > > On Sat, Jan 30, 2010 at 8:22 PM, dave dodds <daveliltoeyahoo (DOT) com> wrote: > > > I think he relies on me more than he really needs to Debbie..my mom did > > everything for him..very old school..he doesn't think he is able to see > good > > enough to turn the heat up or down..It is really a simple task..turn it > the > > same direction every time and the thermostat goes up or down...it's > really > > kind of funny when you think about it..I don't know how many times I've > told > > him and showed him..he doesn't have alzheimer's. .he is just a domestic > > cripple, so to speak..when I say my mom did everything in the house for > > him..I mean everything. > > Dave > > > > > > > > > > ____________ _________ _________ __ > > From: drgonflyblue <pita54meyahoo (DOT) com> > > To: livercirrhosissuppo rtyahoogroups (DOT) com > > Sent: Sat, January 30, 2010 8:56:35 PM > > Subject: Re: (unknown) > > > > > > Dave, I'm sorry to read about your buddy and I know many won't agree but > > he's better off. And when it comes to a child that's ill it's a whole > nother > > subject. LIFE SUCKS at times that's for sure. I really do hope you get to > > feeling better. Can you get any help to relieve the strain of taking care > of > > your dad?...Best wishes, Debbie > > > > > > > > > > > Not been feeling good lately..in one of the valley's of this > > disease..may > > > > be sticking me in hospital soon..was doing good, but had a lot of > > stress > > > > happening lately. > > > > Dave > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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