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Letter to the Editor

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Thank you, i urge everyone on this forum to do as i have done and send their

feelings to their local papers on anything of concern to us lyme patients ,

also do as i have done and contact ur papers explaining ur experiances with

lyme disease ask them if they would like to do an article on your battle for

there paper.....i thought this was stupid at first but so far i have been the

subject of 3 articles , one that ran statewide ( 3/4 page) inthe state of NJ,

i recieved much feedback from others with lyme from all of them, we MUST keep

our disease in front of the public eye, the more exposure we can get for our

disease and the more pressure we can put on the powers that be the better of

we shall one day be......also i emplore all lymies in the state of NJ to

contact the governors office and all of their state representitives and demand

that the attorney general hold the same type of hearing as were held in conn.

Reid

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Great letter Reid,

I see by that you have sent this letter to your local papers....great

idea. Let us know if there is a response!!!

Marta

[Lyme-aid] Letter to the editor

>From: RMcmur3194@...

>

>Dear Editor.

> During the last couple of weeks I have noticed large, full page ads

for

>the Lyme Disease vaccine called " Lymerix. " While this vaccine is a step in

the

>right direction it should only be taken by people who definitely do not

have

>an " active Lyme

>Disease infection. " As some Doctors now believe that once you have

contracted

>Lyme you will always have an " active infection " even though it may be in

>remission. I beg that people who have Believed they " had " Lyme only to be

>dismissed that it could not be due to a negative blood test refrain from

>being injected with the vaccine.

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  • 3 years later...
  • 8 months later...
Guest guest

e,

That was a very good article. It's good that she was able to open

up,,and tell it like it is. You should be proud of her.

Kim and Logan 5 poly

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  • 2 years later...
Guest guest

Excellent letter! I think they have probably received 100's of letters by now and I couldn't be more pleased. The Cranio group is writing also. How dare they not mention that a child needs to have Cranio ruled out!

People Magazine is obviously no better than any other crappy tabloid!

Good job ladies!

Amy

Read Max's story @ CAPPS CranioKid Max

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Guest guest

Excellent letter! I think they have probably received 100's of letters by now and I couldn't be more pleased. The Cranio group is writing also. How dare they not mention that a child needs to have Cranio ruled out!

People Magazine is obviously no better than any other crappy tabloid!

Good job ladies!

Amy

Read Max's story @ CAPPS CranioKid Max

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  • 2 months later...

Hi ,

How lucky little Kaylee is, to have you for her Mom! I'm not sure that she's

quite old enough yet to fully understand but even so, I'm sure your family must

be extremely proud of you - as we are! You've created a terrific editorial. You

can tell that you've put a lot of thought and care into it. I'll be very

surprised if this doesn't stir things up a bit. I hope you'll keep us updated

and let us know if you get any response. (I can't help wondering if your phone

will be ringing off the hook soon?) I'm also happy that you'll be meeting soon,

for the local area support group. I hope that works out well. With advocates

like you, all children with JRA can almost certainly be assured brighter

futures. Your efforts are much appreciated.

Take Care,

Georgina

A MOM'S PLEA FOR SOME HELP

Why is Tarboro the way it is?

Why is everyone, or what seems to be everyone in Tarboro so tradition oriented?

Why so pessimistic about allowing new events?

I have been trying desperately to raise awareness about Juvenile Rheumatoid

Arthritis (JRA) in our community. I even did an article a few months back,

trying to find other families that have kids with JRA so I could start a support

group and got no response whatsoever.

I am now trying to organize an Arthritis Walk for next year and it seems next to

impossible to do. I was given a person to contact about the location for the

walk. I was told that I might want to do a different type of event as there are

other walks close to the time I would like to do the Arthritis Walk. The

participation might not be so good and I would want it to be a success.

Why should I change what I want to do?

The other walks that are held are for different causes. This would be the only

Arthritis Walk held in Eastern North Carolina and I plan to include Rocky Mount,

and Greenville instead of having an isolated Tarboro event. I think by

doing this and getting the other cities involved it would be a great success and

help everyone with arthritis.

I am a " mom on a mission " so to speak as my three-year-old daughter has JRA. I

am determined to do anything and everything I can to raise awareness about JRA

and do everything possible to raise all the money I can to help in the research

of arthritis and finding a cure.

Why does it seem that if you are the " right kind of person " everyone jumps to

help you? If you live on the right side of town, you drive the right kind of

car, you have the right amount of money, etc, people in Tarboro jump to help

you, but if you are just an everyday working person like myself, then no one

wants to help you or you are just ignored.

Why do Tarboro people want to be so hush hush about some things, but others they

want the world to know? I have been a citizen of this town the marjority of my

life, and I am disgusted and hurt by the lack of response from the community I

have grown up in not responding to help for a good cause.

There are many people suffering daily from arthritis and by having this walk

here we could raise money to help in the research to find a cure. Research is

expensive and without people as myself willing to take on the challenge and

responsibility of organizing a walk there is no money to research a cure and

help the 70 million Americans, 300,000 of those being children.

What if it was your child suffering from JRA or any other disease and you wanted

to start a walk or another event to raise money for research and every which way

you turned it was greeted with a pessimistic attitude? How would you feel?

I am trying desperately to do something that will benefit a lot of people. Want

the people of Tarboro step up and help me achieve this goal and help a l ot of

arthritis sufferers? If you would like to help, call 641-1659 or e-mail me at

maydo65@....

I am looking for anyone that is willing and able to help.

Dew, Tarboro

Letter to the Editor

HI all,

Just a note to let everyone know that I am trying to start a walk in

our town next year. I know that seems like a long time away, but i

have never done anything like this before so I want to give myself

plenty of time. I have had no luck getting anywhere in our town so I

wrote a letter to the editor. The link below should take you to the

letter. I would like some feed back on this if anyone has time.

Thanks for helping me out and listening to me vent. I know I am not

well known here, but everything I get from this group makes a big

difference. I will be attending my first JRA support group meeting

that a lady in Raleigh is trying to get up and going on Sunday, Sept

25. I will be sharing this support group with her and all there. I

hope all are having a great week. For those of you not doing so well,

I will say an extra prayer for you and hope all gets better.

http://dailysoutherner.com/articles/2005/09/19/news/editorial/opinion2.

txt

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  • 1 year later...

To the Editor of the Jamaica Plain Gazette,

I can honestly say in my entire life I have never written a Letter to the

Editor about an advertisement, but in this Holiday Season, my Christmas

festivities and nearing the end of another year, I was totally uplifted reading

the

full page ad placed by Mordy Levin and Terry Bruce from Boston Community

Ventures. So many of the Gazette's readership are working on various issues

that

pit good against not so good and when I get discouraged, I have to keep

reminding myself that good overpowers bad each and every time but not always on

our personal timetable. I will take the ad's quote from Mohandas Gandhi "

When I despair, I remember that all through history the way of truth and love

has always won. There have been tyrants and murderers and for a time they seem

invincible but in the end, they always fall - think of it, always, " frame it

and put it in a prominent place in my home for inspiration. Thanks Mordy

and Terry. What a great gift.

Mulvey son

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  • 6 months later...
Guest guest

Glad your opinion was published in View Point of Drug Topics.

Jeanetta

>

> Hi Everyone,

>

> Just found out I was in Drug Topics magazine and no one told me.

> Anyways for whatever it is worth here is my " Letter to the Editor "

> which was published on June 4th 2007 Edition.

>

> Joe Medina, CPhT

>

> --------------

> Techs shouldn't be hired off the street

>

> Having read the May 7 " Viewpoint " by NPTA's Mike ston, I would

> like to add my response.

>

> The topic of national standardized education for pharmacy technicians

> is not a new one, and I have been pursuing this avenue for almost a

> decade now. The " 20/20 " broadcast, though sensationalized, did hit on

> the fact that something must be done to ensure patient safety.

>

> Patients have always been led to believe that their prescription for

> the IV solutions that run in their veins was filled by a practicing

> pharmacist. The reality is that technicians fill 95% of prescription

> orders, including those for IV solutions. This in itself would not be

> a cause for alarm but for the fact that technicians in several states

> need no prior education or experience to work in the pharmacy setting.

> In fact, some state boards of pharmacy do not even recognize

> technicians as part of pharmacy.

>

> If I were a consumer, I would question why a technician—and not the

> pharmacist—is filling my prescription order. It is the pharmacist in

> whom I place my trust. The answer is simply that there is a major

> shortage of pharmacists nationwide, and the role of the technician has

> changed to more of a dispensing function than simply one of working

> the cash register.

>

> Many employers, pharmacists, and even state boards argue that

> technicians are trained and in some cases must be certified by passing

> a national exam to work in pharmacy. In other states a technician can

> be hired off the street with no prior experience. Employers may

> require a national certification exam, which does exist, but this exam

> can be taken by someone with no formal education or prior experience.

> In fact, one can take the national exam having never stepped foot in a

> pharmacy. So what validity does the national exam offer besides the

> fact that one studied the books and passed?

>

> I am a true national advocate for pharmacy technicians and I believe

> they are capable of filling medication orders. But I also believe that

> without proper training of all technicians, medication errors will

> continue. The more consumers become aware of who is filling their

> prescriptions, the more they will demand accountability via

> standardized formal education for technicians in both the didactic and

> the practical sense.

>

> Joe Medina, CPhT

> National Pharmacy Technician Advocate

> President/Founder, Tech Lectures

> joemedina@...

>

> Source:

>

http://www.drugtopics.com/drugtopics/article/articleDetail.jsp?id=429699 & searchS\

\

> \

> tring=joe%20medina

>

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