Intro and questions

[Guest guest]

Hi Penny

The only person I've heard of using the word " cured " in reference to

their child was Karyn Seroussi in her Parents magazine article.

You can consider adding No-Fenol to see if that helps with the casein

problems. No-Fenol might help with the phenols in the milk. It

might also help with the gut bug problems. If you use it, start at a

very low dose and you can build up gradually. If you look in the

Files section at this site,

www./group/ /files/ you will find

information on No-Fenol and other enzymes.

If he is on lots of supplements, I would consider if any can be

dropped now that he is on enzymes, but certainly nothing you think is

helping. You can discuss this with your doctor.

I'm not sure what you mean by " more complete " , but I'm glad it works

for you. I think complete is in the eye of the beholder. The

Complete came out after the Pep and ZP, which have been out for 21

months, so I think more like 1 1/2 years on the Complete or maybe a

little less. Dr. Houston formulates new stuff, then others attempt

to copy it, so it takes a little while. I guess no attempt at a

knock-off of No-Fenol, though, since Kirkman's guy dissed it. Devin

said he's coming out with something else that is new; we are waiting

(impatiently) to see what that will be.

> My name is Penny. My son is Kenzie and he is 6.5 years old. I was

> on this board a long time ago shortly after it first started. I

have

> been chelating him for mercury and other toxic metals since June

> 2000. We have done DMSA and then later to the next stage of

> DMSA/ALA. After having way too many gut bugs and the introduction

> of MTPrimer and MT Promoter we switched to that protocol. In

> January of this year we added TTFD and L-gluthathine. We've also

> done ABA/VB for 3.5years. We've done FGF therapy through Dr.

Aguilar

> in Mexico for 2.5 years. Past therapies included sensory

integration

> therapy, CST, listening therapy and of course he's always on lots

of

> supplements.

>

> When he was 2.5 years old I learned about the diet and read all the

> books. I had him tested with Dr. Shaw at the University of Florida

> and discovered that he should be on the diet. He was on the diet

for

> 21 months. I never saw any great things with the diet. I knew it

> was good for him but he never got beyond eating four foods. He

> still doesn't for that matter. The diet was the worst time of my

> life. It was torture for all involved. I wasted a ton of time and

> money on speciality foods. My other children would have to sneek

> normal foods. It was just bad so when enzyme therapy came along I

> was thrilled. It didn't take long before I was introducing the

> forbidden foods. It was great. I've used Houston enzymes and

> Kirkman's. I switched to Kirkmans when they came out with EnZyme-

> Complete DPP-IV. It just seemed a more complete and easier way to

> go than the two Houston enzymes. I know that many, probably most

of

> you use Houston enzymes. I would love to hear comparisons and see

> which people felt worked better. I also want to know about proper

> dosing. I always give Kenzie one DPP-IV 30 minutes before food or

> if he's going to eat right away, I open the capsule into

> applesauce. One of my problems is he doesn't drink hardly any

water

> with it so I worry about dissolving and absorption.

>

> He's been on the enzymes for probably two years. He still has

> noticeable problems with casein. He still craves gluten. He lives

> off chicken nuggets, corn chips and pretzels. He's very oral

> sensitive and the texture must be crunchy. He's pretty low

> functioning cognitively, only scores at about 30 months but he

> doesn't have behavioral issues so I'm thankful for that. But I

> don't anticipate any of these being my " miracle cure " . I just keep

> plugging away. I just really want to know if there is a huge

> difference between enzymes.

>

> Thanks

> Penny

[Guest guest]

Penny,

In my opinion (and experience-we did try Kirkman's Complete first)

there is a HUGE difference. Houston's is far and away the better

enzymes-again, in my opinion. Our stories are in the success files,

but I will tell you that my daughter went off the gfcf diet and has

done great. She is doing even better right now after treating for

yeast. I think the Houston enzymes are far superior besides treating

the g & c intollerences...they promote a true overall healing.

mentioned the No Fenol and that enzyme is amazing. It was a big key

in my daughter's success...started the yeast control, got rid of most

phenol issues, just really raised her tolerences. We also found that

reintroducing tiny amounts of TMG with No Fenol produced great

results. Anyway, my 2 cents-retry Houston enzymes.

(also anxiously awaiting Devin's

unveiling lol)

> My name is Penny. My son is Kenzie and he is 6.5 years old. I was

> on this board a long time ago shortly after it first started. I

have

> been chelating him for mercury and other toxic metals since June

> 2000. We have done DMSA and then later to the next stage of

> DMSA/ALA. After having way too many gut bugs and the introduction

> of MTPrimer and MT Promoter we switched to that protocol. In

> January of this year we added TTFD and L-gluthathine. We've also

> done ABA/VB for 3.5years. We've done FGF therapy through Dr.

Aguilar

> in Mexico for 2.5 years. Past therapies included sensory

integration

> therapy, CST, listening therapy and of course he's always on lots

of

> supplements.

>

> When he was 2.5 years old I learned about the diet and read all the

> books. I had him tested with Dr. Shaw at the University of Florida

> and discovered that he should be on the diet. He was on the diet

for

> 21 months. I never saw any great things with the diet. I knew it

> was good for him but he never got beyond eating four foods. He

> still doesn't for that matter. The diet was the worst time of my

> life. It was torture for all involved. I wasted a ton of time and

> money on speciality foods. My other children would have to sneek

> normal foods. It was just bad so when enzyme therapy came along I

> was thrilled. It didn't take long before I was introducing the

> forbidden foods. It was great. I've used Houston enzymes and

> Kirkman's. I switched to Kirkmans when they came out with EnZyme-

> Complete DPP-IV. It just seemed a more complete and easier way to

> go than the two Houston enzymes. I know that many, probably most

of

> you use Houston enzymes. I would love to hear comparisons and see

> which people felt worked better. I also want to know about proper

> dosing. I always give Kenzie one DPP-IV 30 minutes before food or

> if he's going to eat right away, I open the capsule into

> applesauce. One of my problems is he doesn't drink hardly any

water

> with it so I worry about dissolving and absorption.

>

> He's been on the enzymes for probably two years. He still has

> noticeable problems with casein. He still craves gluten. He lives

> off chicken nuggets, corn chips and pretzels. He's very oral

> sensitive and the texture must be crunchy. He's pretty low

> functioning cognitively, only scores at about 30 months but he

> doesn't have behavioral issues so I'm thankful for that. But I

> don't anticipate any of these being my " miracle cure " . I just keep

> plugging away. I just really want to know if there is a huge

> difference between enzymes.

>

> Thanks

> Penny

[Guest guest]

Penny I hope you are still around because I want to tell you about

my family and some things we have just learned.

I have just found out that my son is reacting badly to the rice bran

that is in all enzymes- why I think this might be interests you is

my son is now improving daily because he is no longer on them -This

is not the first thing I was giving daily that was bad about a month

ago I found out the another supplement I was giving my son was

reacting to the orange flavoring. I started from stratch and my son

is much happier. Read the paper on line at Childern's Biomedical

Center of Utah Inc. called Understanding Autism by Jepsn MD

it might give you a idea. my 2 cents Ann

..

[Guest guest]

Hello

Thank you all for your responses . And some very educational information that

i never

even though to look into . My daughter was born premature at 32 weeks , she

had to

tranfused twice and resucisitated three times . so we no the whys , no

answers as to

how to fix her . She did talk till she was three , and i figure it to be ,

because of no

spoke to her that much , she was a quite child in her own little world . And

that i look

bad at her infancy stages she did not cry much or fuss to much . I guess i

missed the

signs .

I have asked her theraphists about a machine for her , one response was they

want her

to continue talking on own . how can convince them that she really needs one

for

such times in emergencies ?

once again thank everyone for all this information.

rozziej

ps. feel free to email me offlist at gyspywoman73@...

[Guest guest]

Hi lind,

From reading your post, I do believe your daughter has a speech disorder of

some kind , but not likely apraxia of speech since she can produce words.

Although, many topics discussed on this board would be beneficial for

helping you daughter, such as EFA supplement, specialized diets, and talking

devices.

If you can find a way to have a talking device, such as a Dynovox Dynamite,

paid for or supplied through the school district, would help your daughter

communicate her needs and put your mind at ease some what. Some insurance

companies will cover the cost of such devices, but there are other

alternatives such as grants, foundations, medicare and medicaid if insurance

won't pay. We had a dynmite on loan through the school district last school

year (we had to turn it in at the end of the school year). We are waiting

for Chase's new dynamite to be delivered soon. Insurance is paying 80% and a

local foundation will pay the rest so we will not have anything out of

pocket money (income did not matter in our case). It may take some research

on your part to see about getting a talking device for your daughter, they

can cost around $7000.

Kris

[ ] Intro and questions

> Hello

>

> my name is lind and i just found this board . my child is on the

>

> autism spectrum and she talks . she talks it is empty she says

>

> nothing that makes any sense to others. She is in theraphy and

>

> has been for about 5 years . she did not talk until she was 3 .

>

>

> I might be on the wrong board , my questions are that she talks

>

> and it about nothing which scares me to no end . And when she gets

>

>

> emotionally unbalanced she falls apart and can not talk or tell

>

> you what is wrong . And i have asked the speech person what can

>

> we do to help her when this happens. She had no answer for me

>

> but said she would research it . anyone with any i ideas or

>

> suggestions for me. because she is 8 years old and rides

>

> the bus to school. All this scares me to no end , because she

>

> could get raped and never be able to tell me. she could get hurt

>

> and i would never know who did it . i was wondering about the

>

> new talking devices , if maybe one of them would work for her

>

> when these periods happen and there is no one with her . any one

>

> have any experience with the talking boxes. and my other questions

>

>

> does not a speech theraphist diagnosis a speech problem ? And how

>

> much do they test for ?

>

> thanks for any and all responses.

>

>

>

>

>

>

>

>

[Guest guest]

lind,

There are some speech disorders that manifest similar to your description of

your daughter's speech difficulties, such as the speech without meaning and

inability to produce speech during times of stress. Has anyone ever

mentioned Aphasia?

" Aphasia is a condition in which the ability to communicate through spoken

language is affected. In addition, it can also manifest itself in reading

and writing abilities. It may begin with speech delays and progress to a

loss of communication skills in different areas. Aphasia is a condition that

may be both temporary and permanent. It does not include speech difficulties

caused by motor speech disorders that involve problems in muscle control.

The exact nature of the language difficulties is due very much to what areas

of the brain are damaged. Congenital Aphasia is very rare and most

individuals with Aphasia have acquired it after a period of normal language

development. There are many different types of aphasia that each involve a

disturbance in different areas of the brain and involve different language

difficulties.

Types of Aphasia

Congenital Aphasia

This language deficit is present at birth and involves partial or total loss

of ability to acquire language. It is a relatively rare form of aphasia.

More often, aphasia is acquired through some type of trauma to the brain.

Global Aphasia

Global Aphasia involves an inability to produce recognizeable speech as well

as an inability to understand spoken language. It is caused most often by

widespread damage to the language areas of the left hemisphere. It is quite

severe in that all basic language functions are affected, although some

functions may be affected more than others.

Broca's Aphasia

Broca's Aphasia is caused by damage to the Broca's area in the frontal lobe

of the language dominant hemisphere. It results in difficulty in forming

sounds and a restricted vocabulary. Comprehension remains unaffected.

Individuals are aware of the language difficulties and what they want to say

but cannot exert control over their spoken language.

Wernicke's Aphasia

Wernicke's Aphasia is caused by damage to the Wernicke's area in the

temporal lobe of the language dominant hemisphere. It results in an

inability to understand the meaning of spoken words. Interestingly,

individuals with this type of aphasia are able to speak themselves although

they may have atypical speech patterns and may add extraneous or nonsense

words. In addition, they may have a diminished reading and writing ability.

They may also speak in long uninterrupted sentences. Individuals with this

type of aphasia seem to be unaware of their language errors.

Conduction Aphasia

Conduction or Associative Aphasia involves a difficulty in repeating words

sentences, and phrases. Individuals with this type of aphasia may frequently

correct their speech. In addition, they may have some trouble finding the

right word. It is a relatively uncommon form of aphasia.

Anomic Aphasia

Anomic or Nominal Aphasia involves an inability to find the right name for a

person or object. They may be able to adequately describe the item but

cannot remember its name. Other language functions remain intact. This type

of aphasia affects an individual's ability to converse at a flowing pace

since they have considerable difficulty in searching for words.

Transcortical Aphasia

Transcortical Aphasia is caused by damage to language areas that are outside

the primary language areas of the brain. There are three types of this

aphasia: transcortical motor aphasia, transcortical sensory aphasia, and

mixed transcortical aphasia. In transcortical motor aphasia, an individual's

spontaneous speech is not fluent but their comprehension and ability to

repeat is intact. In transcortical sensory aphasia, an individual's

spontaneous speech is fluent, however their comprehension is disturbed

although their ability to repeat is intact.

Subcortical Aphasia

The discovery of this Subcortical Aphasia is relatively recent compared to

other types of aphasia. Subcortical aphasia mimics other types of aphasia

but involves damage to areas of the brain that are not typically associated

with language.

Receptive Aphasia

This involves an impaired ability to understand spoken language. It may also

affect the ability to understand written language as well. The ability to

use spoken language may remain intact, however, there may be fluency

difficulties. There are two major forms of receptive aphasia: auditory

aphasia, which involves difficulty in comprehending the meaning of spoken

words (hearing is intact), and ia, which involves difficulty in

comprehension of written language (vision and intelligence are normal).

----------------------------------------------------------------------------

----

Aphasia in Children

Although children who are older than ten years of age may have the same

symptoms as adults with aphasia, younger children may display slightly

different symptoms. They may show delays in the use of gestures, babbling,

lexical comprehension and or production, and early word combinations.

Prognosis for recovery is more favorable for children than adults although

there may be long-term deficits in some language areas. In addition, some

children may fully recover from aphasia but still have difficulty in

academic settings.

Causes of Aphasia

Stroke (most common cause in Adults)

Brain Injury (most common cause in Children)

Head Trauma

Tumor

Infection

Alzheimer's Disease

Assessment of Aphasia often involves evaluation of spontaneous speech,

ability to recognize and name objects, ability to comprehend what is heard,

ability to repeat words and phrases, and ability to read aloud.

If necessary, a further evaluation will be done and may use instruments such

as the Boston Diagnostic Examination, the Western Aphasia Battery, or the

Porch Index of Speech Ability. The results of these tests will indicate the

severity of the language deficits as well as provide information about the

location of the brain damage. In addition, an MRI or CT scan may provide

more information about the location of the damage.

Prognosis for recovery is related to the severity of the damage, however,

the majority of people affected recover to functional levels. More than half

of the individuals who display symptoms of Aphasia will recover. Once the

underlying brain injury is effectively treated, speech therapy may be used

to assist the individual in making the most of the language abilities that

are intact. "

http://languagelovers.tripod.com/aphasia.html

Kris

[ ] Intro and questions

> Hello

>

> my name is lind and i just found this board . my child is on the

>

> autism spectrum and she talks . she talks it is empty she says

>

> nothing that makes any sense to others. She is in theraphy and

>

> has been for about 5 years . she did not talk until she was 3 .

>

>

> I might be on the wrong board , my questions are that she talks

>

> and it about nothing which scares me to no end . And when she gets

>

>

> emotionally unbalanced she falls apart and can not talk or tell

>

> you what is wrong . And i have asked the speech person what can

>

> we do to help her when this happens. She had no answer for me

>

> but said she would research it . anyone with any i ideas or

>

> suggestions for me. because she is 8 years old and rides

>

> the bus to school. All this scares me to no end , because she

>

> could get raped and never be able to tell me. she could get hurt

>

> and i would never know who did it . i was wondering about the

>

> new talking devices , if maybe one of them would work for her

>

> when these periods happen and there is no one with her . any one

>

> have any experience with the talking boxes. and my other questions

>

>

> does not a speech theraphist diagnosis a speech problem ? And how

>

> much do they test for ?

>

> thanks for any and all responses.

>

>

>

>

>

>

>

>

[Guest guest]

hi rosalind,

I'm a spec ed teacher for autistic children. I would make social stories. take

pictures and make a story of any event, situation and give quotes of what she

should say in those situations. say them over and over again and try to act out

these situations if can. It's very important especially with what I call

" danger " situations. she must have the appropriate language if someone is

hurting her. ie, STOP, CALL 911, HELP ME. the call 911 is very important even

for typical folks. people sometimes will not get involved but if you scream

call 911 it gives them something to do to help without truly getting involved.

this issue is huge for my client i'm working with right now, he is starting

elementary school and you reminded me to teach him this too. \

hope this helps if you need more help e-mail me christinerome@...

chris

rosalind murvin <gyspywoman73@...> wrote:

Hello

my name is lind and i just found this board . my child is on the

autism spectrum and she talks . she talks it is empty she 9says

nothing that makes any sense to others. She is in theraphy and

has been for about 5 years . she did not talk until she was 3 .

I might be on the wrong board , my questions are that she talks

and it about nothing which scares me to no end . And when she gets

emotionally unbalanced she falls apart and can not talk or tell

you what is wrong . And i have asked the speech person what can

we do to help her when this happens. She had no answer for me

but said she would research it . anyone with any i ideas or

suggestions for me. because she is 8 years old and rides

the bus to school. All this scares me to no end , because she

could get raped and never be able to tell me. she could get hurt

and i would never know who did it . i was wondering about the

new talking devices , if maybe one of them would work for her

when these periods happen and there is no one with her . any one

have any experience with the talking boxes. and my other questions

does not a speech theraphist diagnosis a speech problem ? And how

much do they test for ?

thanks for any and all responses.

[Guest guest]

Hi,

Someone recommended this group because I have mold under my kitchen sink The

good news is that this hasn't been going on long, just a few weeks, so hopefully

remediation won't be too difficult.

It started with a leaky faucet that I didn't do anything about until I noticed

that the entire floor of the cabinet underneath was soaked. The plumber came and

supposedly fixed the faucet but it was still leaking. A week later, he put in a

completely new faucet and I thought the problem was fixed. I had been running a

small fan in the cabinet to dry it out, but I took the fan out about a week ago

and didn't look into the cabinet until yesterday. There is definitely mold down

there now. I could smell it and saw some white fuzz. Now I know why we've all

been sick the past few weeks.

I put on a mask and placed a large plastic lid under the sink to catch any more

moisture falling from wherever it's coming from; it almost covers the whole

area. I raised it up on a couple of bowls so air can circulate under it, and put

a lamp down there and turned it on in hopes that will help dry things out -- I

don't want to use a fan and blow spores all over the apartment. Then I taped

mylar over the doors temporarily until I can get the manager here.

Unfortunately, it's Christmas, so I can forget about him until tomorrow. Anyway,

it's a lot better in here since I put the mylar up, but I know the lack of air

circulation will just encourage more mold to grow. Yikes.

Questions:

1. What do I ask the manager to do, aside from finding and fixing the leak?

These are very cheap cabinets, made with particle board and loaded with

formaldehyde. I'm very sensitive to formaldehyde and could not tolerate new

cabinets in this small apartment. I'm thinking maybe the best thing is to

re-cover the cabinet with mylar once the leak is fixed and things are dried out,

and just live with it.

2. How do I clean/kill the mold without using chemicals? I am also sensitive to

chlorine bleach. Would UV light work?

Thanks for any suggestions.

LaVonne

[Guest guest]

LaVonne,

The most important thing is to eliminate the leaks permanently, and to

prevent the humidity in the enclosed space from getting

up to the point where there is further mold growth.

You also need to get any visible mold cleaned up and then make sure that the

area where the water leaked is dried out thoroughly.

What you do also depends a lot on whether the mold there is making you sick.

If its making you sick, then you need to protect yourself and it sounds like

you already have a good idea of where your priorities should be.

If they won't fix the leak, then check to see if you can repair and deduct.

But be careful, there might be hidden reservoirs of mold in there and that

is a complicated situation because it IS THEIR RESPONSIBILITY but they often

don't want to deal with it and if they have been told repeatedly about it

and ignored the issue but then it gets worse and

someone gets sick they are often very desperate to pin the blame for the

situation on someone else...

Document everything you can.. and make your requests in writing and keep

copies..

Take photos, etc.. its important..

Hopefully this will work out okay for you.. I'm sure others can add advice..

On 12/25/06, LaVonne Ellis <c-i-s@...> wrote:

>

> Hi,

>

> Someone recommended this group because I have mold under my kitchen sink

> The good news is that this hasn't been going on long, just a few weeks, so

> hopefully remediation won't be too difficult.

>

> It started with a leaky faucet that I didn't do anything about until I

> noticed that the entire floor of the cabinet underneath was soaked. The

> plumber came and supposedly fixed the faucet but it was still leaking. A

> week later, he put in a completely new faucet and I thought the problem was

> fixed. I had been running a small fan in the cabinet to dry it out, but I

> took the fan out about a week ago and didn't look into the cabinet until

> yesterday. There is definitely mold down there now. I could smell it and saw

> some white fuzz. Now I know why we've all been sick the past few weeks.

>

> I put on a mask and placed a large plastic lid under the sink to catch any

> more moisture falling from wherever it's coming from; it almost covers the

> whole area. I raised it up on a couple of bowls so air can circulate under

> it, and put a lamp down there and turned it on in hopes that will help dry

> things out -- I don't want to use a fan and blow spores all over the

> apartment. Then I taped mylar over the doors temporarily until I can get the

> manager here. Unfortunately, it's Christmas, so I can forget about him until

> tomorrow. Anyway, it's a lot better in here since I put the mylar up, but I

> know the lack of air circulation will just encourage more mold to grow.

> Yikes.

>

> Questions:

>

> 1. What do I ask the manager to do, aside from finding and fixing the

> leak? These are very cheap cabinets, made with particle board and loaded

> with formaldehyde. I'm very sensitive to formaldehyde and could not tolerate

> new cabinets in this small apartment. I'm thinking maybe the best thing is

> to re-cover the cabinet with mylar once the leak is fixed and things are

> dried out, and just live with it.

>

> 2. How do I clean/kill the mold without using chemicals? I am also

> sensitive to chlorine bleach. Would UV light work?

>

> Thanks for any suggestions.

>

> LaVonne

>

>

>

[Guest guest]



Poor baby, to have endured so much at such a young age. It would be hard to tease out if she has autism or if she has these behaviors due to the abuses she suffered. I guess in the end, dealing with it is what is important.

You said she is being sent to another class - an autism class. Is this something you want for her or not? It sounds like you don't think it's a good idea. You should know that you have a voice in the decision making process, especially regarding placement. I would be asking what benefits she will receive in the new class that make it worth her while to be moved, especially if she is making good progress where she is now.

Welcome to our group!

RoxannaAutism Happens

( ) Intro and questions

Hi all,My husband Al and I adopted MacKenzie in 3/2005. She wasalmost 1 year old then. At adoption time we relized she hadbeen abused in the orphanage. She had huge strap marks on herbuttock and legs, was tied down, some of the strap marks weresutchured closed and she was pealing from head to toe as ifsunburned but if was winter time. She was very dirty, stunk ofurine and was terrified of the water. She was also unable tohold herself up, crawl or to roll over. We thought in timethat all the institusional like behaviors would pass.....notmaintainting eye contact, not liking water, refusing todeficate into her diaper, tantrums with head banging, notcalling for help when needed, not talking, not potty training.Eventurally some of these behaviors subsided, but she didn'twant to be near strangers and would scream bloody murder inpublic and it would take patients and time to wait out thetantrum until she'd except that all was ok and nothing badwould happen to her. She appears to have learned, learnedhelplessness. Doesn't want to try to do anything. I finallygot her to walk by 18 months, but she didn't seem to want totalk. We had horrible eatting issues with her and still are.She will only eat crunchy foods...and inorder to get food intoher I need to chop up meat/veggies, mix with mao and put inbetween toast (white bread only) and chop into tiny pieces.She did like fruit, but is refusing it now...so we slip someprune juice into her milk...she will not use an open cup orutenciles even today. If you didn't tell her to pull up herpants she'd wadle around like a duck forever. Potty trainingwe did from age 2 to 3 years old and we started stamping herhand with stamps/washable ink and it was the only thing thatworked. She is in preschool and we were blessed to have anelementary school nearby that holds preschool so she is in speced with speech/ot services. She did start speaking at age 2.5,but her sentences are short...she knows all her ABC, can countto 50 and reads! But cognitively she is often out of touch andvery hard to test. We are on the CHOP waiting list for autismevaluation but the school wants her in a spectrum disorderclass full-time and she will be moved end of feb. We areworried if this is the correct thing to do as she is doing wellwith the disabled children without autism...has stoped handflapping, is starting to speek in sentence more and more andhas learned appropriate behaviors typical of her age....theeating is huge issue as are her fine motor skills and cognativelearning. She is not aggressitve...the total oppostie, quite,shy, smart if you can get her attention, loves to be huged...isafraid of children, but loves adults. Any input of help youcan give us would be wonderful. She will be 4 years old thisApril also and we can see is far behind her new brother Jack,adopted this May cognativly....even he is noticing and askingwhy?...it's so hard...are we doing all the right things?Love and Hugs,a Wolfarthhttp://s250.photobucket.com/albums/gg241/TheDumplingCrew/December%202007/?action=guestloginPassword: MacandJackModerator of CHOP Cleft Online Support Groupchopcleftsupport/__________________________________________________________Netscape. Just the Net You Need.

[Guest guest]

In Mt. Airy Md., less than an hour out of DC, is nne Rothschild.  She is a WAPF MD who I am thinking would be knowledgeable about GAPS, as she is always at the conferences (and in fact spoke this past Nov.).  If you can't find her info otherwise, call the foundation's office and they'll give you her #.Also, FYI, Dr. Bruce Rind is an excellent endo working in DC, but of course this is another topic.MaureenOn Mar 19, 2008, at 11:11 AM, cbalmony wrote:,I think the most important quality to find in a doctor is one who is open-minded and willing to work as a partner along with you, rather than one who thinks he/she knows everything and you should follow along like a whipped pup ;o).I live in land and have given up on doctors for the time being. I know some doctors in the area who either work from the DAN protocol (for autism) or are associated with doctors who do. Some of these doctors also work with adults with chronic disorders. I have found these doctors to be the best at working WITH a patient due to the ever-increasing info surrounding autism and the immune system. It is necessary to be open-minded while working in this area. You may give them a call and ask a few questions. One place is Heartlight Healing Arts in Columbia. I think Janet (or Janelle) Love in Pasadena works with adults as well. There is an allergist in Towson, Dr. Layton. I friend of mine swears by a doctor in the Baltimore area who uses mostly herbs and diet. His name is something like Hindenberg, but I can't remember for sure.Sorry for the vague information. I'm not good with details. If I can find details, I will pass this along.Connie>> Hi. Joined the list a couple of weeks ago and never got around to> posting an intro. Have found the list very informative. > > Was wondering if anyone knows a doctor in the District of Columbia or> just outside the District who is using Dr. -McBride's GAPS> protocol. I heard of a doctor in land who used it but I also heard> that the prescribed an antifungal on the first or second visit. I am> not interested in any drug therapy or someone who is really based in> allopathic medicine and creating a hybrid treatment. To me the value> of Dr. -McBride's methodolgy is her genuine holistic> treatment, based on the body's ability to heal itself if provided with> the right materials.> > Also, I have another question. From what I gathered from her lecture> at WAPF in Nov. and from her book, Dr. -McBride says no dairy> for at least six months and more like a year to two years. Yet the> intro diet in the files section says "when dairy is introduced...if> tolerated." I have read one post on this list that says she has> revised her recommendations on some things--giving probiotic with> butter and using milk kefir instead of yogurt. But I am fuzzy about> when the permissible dairy products (ghee, kefir, 24-hour cultured> yogurt, butter) are fine to introduce. It seems strange that these are> included in the first eight weeks.> > Look forward to a reply.> > (Another) >

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Sorry for delayed reply. Thanks for replies from Connie and Maureen. I

wouldn't be

looking for a doctor if it was me, but the young person in question says he

wants the

counsel of a doctor, not an " Internet researcher. " (That would be me, although I

also read

books, esp. Dr. -McBride's:)

Any new info from Dr. -McBride about the phasing in of fermented dairy?

I got

that she said yogurt (24-hour cultured) first, then kefir. I understood the

intro diet to say

butter or ghee if tolerated, then after detox yogurt, then kefir, but I'm

confused about

timetable and what indicators to look for on when to introduce yogurt and when

kefir.

Also this morning someone mentioned Slippery Elm. I was surprised to find that

on the

illegals list in SCD and in Dr. -McBride's book. The only reason I could

think of (I

always use it for sore throats) is that it is " rich in mucilage, a complex

mixture of

polysaccharides, " and the SCD, which is based on Dr. Haas' research, had

identified a

sensitivity to disaccharides and polysaccharides in the original patients SCD

was designed

to treat (celiac). It's interesting bec. in addition to being used for sore

throat, slippery elm

has been used to help digestive problems. Anybody know?

Again, many thanks for the advice and sorry for delayed reply.

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