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Re: Speech

>From: Nairduelle@...

>: You forgot to say where you were from! I am a deafblind specialist

teacher working out of the provincial school/resource center in Ontario. It

was one of the first deafblind centers in Canada, and years back we even had

some out of province children. Parents had to politically fight many

battles, and as a result we have many programs and services for the young

adults who have graduated as well. The college has a two year training

program in Deafblind Intervention, so there are now many intervenors

specifically trained to work with all levels of deafblind children. Let me

know your area. Check also " deafblind services " on your computer, but the

list is not very complete. Ann

>

>Are you a deaf-blind teacher? I need help finding a deaf-blind school for

my

>daughter,

>Caitlin, 7, Charge. Any info would be appreciated. Lindner

>

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>4th International CHARGE Syndrome Conference, Houston, Texas, July

>23-25, 1999.

>For information about the CHARGE Syndrome Foundation or to become a member

please contact marion@....

>

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Re: Speech/communication

: Thanks for sharing the communication development of your gal with

us! My guess is that she is very bright, and the right techniques were used

to find out how she would store and retrieve concepts. Maybe she was only

using one eye at a time to read distance signed communication, with her head

turned as you mention. I know my student with CHARGE now (age 15) has just

started to use both eyes together. That makes tracking alot easier. How do

the glasses work to enhance tracking? Are they for distance or short range?

Do they enhance her aquity? Her early visual assessments for distance may

not have taken in the feild loss issue? I wonder if she was reading " Dairy

Queen " off the cup, posters, garbage, or business sign?!# There are usually

so many issues with lighting (having coloboma) that would affect how one

sees the signed communication. I had a student with deafblindness from

congenital reubella a few years back who I felt was aphasic. We were able

to increase his reading skills to about Grade 5 or 6 by the time he

graduated. He had virtually no expressive signed communication without

presenting the concrete with the signed information. Once the words were

presented in print, you knew he understood as he signed. He could even

answer ?'s presented in print, but not in sign. We had a " dictionary "

thing. Pictures of himself being involved in meaningful activity with the

printed word were used in a,b,c...order so that he could retreive the

information easily and communicate it to us when needed. Now that the

picture BLOCKS program is on computer disk, I thought he might have expanded

his " assistive " book. I wanted him to have a very small computer that he

could carry and use as an assistive device in communication, but then it was

out of my hands when he graduated. I was invited to his birthday party

recently and it burned me to see the staff choosing his meal without even

consulting him. You would think they could have even brought pictures of

food or a pen and paper! He sat starring at my salad as if to say, " that

looks good " . We had worked on his spelling with letter blocks as well.

(There are small magnetic boards out now, my student with CHARGE seems to

like the way letters stick) One day I left the room while working on the

computer. We always had to cue, cue, cue to get him to locate and type the

letters. I came back in and he had typed 3 words, and was on his

forth...all animals. Another reinforcement like " Dairy Queen " ...language

development coming from the child's interest. If we sat him down to write

to a friend, or plan a trip, party, etc., it was easier to pull the

expressive communication out of him. Ann Gloyn

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