Guest guest Posted January 7, 2007 Report Share Posted January 7, 2007 I, too, am being sent by SS to a psychologist next week. What is it they are looking for? I know I'n not crazy but the illness, the chronic pain, fatigue and not being able to work sure has me upset, anxious and pretty down in the dumps. Do they want you to be depressed, anxious, etc. so they can just say it is all in your head and then deny you benefits. I've never been to a psychologist so I have no idea what to expect. What kinds of things are they going to be doing? My paper from SS says bring the child with you and all medications and that the appt. may take 2-3 hrs.!! I think they sent the wrong letter. The other Dr. they have me seeing is a physiotherapist, the info they sent me doesn't even have the correct office phone # for me to use and the directions they sent are all wrong!! Makes me wonder if they really want me to find the guy!?!!!!!! Sue Rhonda, I don't think it's much to worry about. you do some tests that basically are to deturmine what state of mind your in. they may diagnose anixity and depression or PTSD. if you know or think you have mcs and the room that you do the tests in is bothering you, I would tell them about it. I was still in moldy enviroment when they did my testing. thought I had did well on written quwstions but maybe not. at that time I had just found out about mold in one house but was liveing back in the first one and hadn't really realized the mold problem there. all my symptoms ran together and i didn't have a clue to what had been happening to me all those years. was still believeing my doctor and Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2007 Report Share Posted January 8, 2007 We all know the term paid whores...so let me give a readers digest version of how I got SS under the diagnosis of toxic encephalopathy. 1. DEMAND that they provide you WITH a " professional " who understands your illness. I DEMANDED that they give me o someone with medical background npt astupid liberal arts degreed " professiona; " who was on their " payroll " aka list of porviders. 2. Deamdn they give you that persons CV, CEU's and all courses in A & P, neurology, and medical sciencws, not the generic stuff you get as an undergrad. 3. DEMAND they tell you HOW many people they TREATED, evaluted with your problem. If none, then that perosn is NOT wqualified to evaluate ypu. 4. They state if they do not give you someone who is qualifed then you will charge them with medical malpractice and go to the news media....SSA does NOT like publicity. 5. Call your federal rep (senator/congresisonal rep) thats what they are there for. 6. Demand to deal with a REAL person not a clerk/ontact person who is giving you the so call " requirements. 7. I MADE them give me the opportunity to QUESTION who they wanted me to go to. We went OUTSIDE of thier list of paid whores. I got a board certified phd in neurotoxicology to do my eval. I interviewed him and then agreed he was acceptable and they made arrangements to pay him. NOw you have to understand the system. Each claimaint is allocated something like 260 or so for them to sp[end on you. SO of course the cheapest whpres are the psychologists. 8. This guy specialized in traumatic brain injuries and I know the chems hit the CNS with me. 9. He did not know the tests to be done and I provided him with the info and he agreed the tests were useful in determining my disability. 10. I made him be fragrance free etc. We spent a couple of times talking and I was ME. NO act just me and my usual attitrude towards things. Then we did the tests in a fairly neutral environment. I DID NOT look to appear sick or anything like that. 11. He was very interested in TE as he really never dealt with it in his practice but knew about it. 12. I did the tests to the best of my ability as I wanted him to see I WAS able to function in a netural environment. I DID keep asking him nhow I was doing as I was very concerned that my ability was coming through. 13. After we did the testing I DEMANDED that he come and watch me get " whacked " he resisted but I forced the issue. I told him UNLESS ypu see how things affect me you can not truly make a valid determination. So we went on a tour of the apt complex so I could find something to trigger me. I started to react by mubbling, and stumbling on wprds. He asked what is it, I told him it was laundry stuff and of course he didn't notice anything, I was now getting spacy and starting to not be able to respond as fast as I was previsouly. We turned a corner and he noticed the smell, so he did see I smelled at a higher level then him. I stayed there and got sicker in front of his eyes. I was in my doe in the headlights look, unable to speak as the words didn;t want to come out, it was if I knew what I wanted to say but was missing the step in my brain to say them. By now I was literally tripping on blades of grass. He determined it was time for me to get out opf there. 14. We was concerned that I was sick and wanted to be sure I could reverse it. I DEMANDED that he retest me to see the loss of functionability and we did. 15. I was not able to recreate that " block " testas I did before and I was not able to talk in the manner he was used to seeing me perform. 16. His report stated that my performance was impaired with the chemcials and my ability was very clearly defined. 17. I had been complaining from our initial talk I felt like I was getting dumb/stupid as I knew I had a iq of 140 something and now things would not process or come across as such. His testing detrermined that my iq tested at I think 117 or 119 but my ability to understand and explain abstract concepts was higher than I tested, but he could not verify it was previous;y at 140+. 18. There was no doubt that the cheicals did have an effect on my cognitive ability. THerefore, it was NOT PSYCHOLOGICAL and I was awarded SS under toxic encephaloapthy. Woth requirements of bieng in a work environment that was chemcially neutral. THat I was stressed over having an illness that is not understood by most people. 19. Try to stand up foryourself and hold off until you can get a REAL person who can give you a honest independent evaluation. Be yourself and let them see how it affects you. 20. Most of the paid whores are looking to see if they can peg you as being depressed as that gives them the abiloty to call these illnesses everything but what they truly are. Everything is a statistic with them. 21. THey know claimiants are DESPERATE for $ and they force you to hold out and accept whatever diagnosis they give you so you can receive benefits. It SUCKS what they do and get away with. 22. THe paidwhores look to see how you are dressed, are you dirty, dishelved, are you " derpessed " looking or acting, Are you taking care of hygiene, feeding yourself, able to do normal daily acitivites. > Date: Sun, 7 Jan 2007 19:50:26 EST From: ssr3351@... Reply-To: > Subject: > Re: [] Re: Merck Manual 1.> > > I, too, am being sent by SS to a psychologist next week. What is it they are > looking for? I know I'n not crazy but the illness, the chronic pain, fatigue > and not being able to work sure has me upset, anxious and pretty down in the > dumps. Do they want you to be depressed, anxious, etc. so they can just say > it is all in your head and then deny you benefits. I've never been to a > psychologist so I have no idea what to expect. What kinds of things are they > going to be doing? My paper from SS says bring the child with you and all > medications and that the appt. may take 2-3 hrs.!! I think they sent the wrong > letter. The other Dr. they have me seeing is a physiotherapist, the info they > sent me doesn't even have the correct office phone # for me to use and the > directions they sent are all wrong!! Makes me wonder if they really want me to > find the guy!?!!!!!! > > Sue > > Rhonda, I don't think it's much to worry about. you do some tests that > basically are to deturmine what state of mind your in. they may > diagnose anixity and depression or PTSD. if you know or think you have > mcs and the room that you do the tests in is bothering you, I would > tell them about it. I was still in moldy enviroment when they did my > testing. thought I had did well on written quwstions but maybe not. at > that time I had just found out about mold in one house but was liveing > back in the first one and hadn't really realized the mold problem there. > all my symptoms ran together and i didn't have a clue to what had been > happening to me all those years. was still believeing my doctor and > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2007 Report Share Posted January 8, 2007 What is PTSD? If you say you are depressed is that in my favor or not? Sus he should spend quite a bit of time talking to you, this is when you tell him what you've been through. yes, you may get diagnosed with PTSD, they do put you on disability for that. and if they do it's nothing to be embaressed about. the cause can be more physilogical than pychological with mold illness. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2007 Report Share Posted January 8, 2007 yes my shrinks letter to SSDI stated I had depression and anxiety. Janet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2007 Report Share Posted January 9, 2007 You are a smart man Joe, DL...Huh. Never would of thought of that. Marcie joseph salowitz <josephsalowitz@...> wrote: You can read the entire Merck Manual, including the psychological test,online,for free, by going to www.merckmedicus.com, and registering as a doctor. It perfectly legal to do so, as long as you don't pretend to be a doctor, when sharing the information you learn, with others. This web site provides free access to many medical texts. When you register, they may ask you, online, for your license number and the state that issued the license. Enter your real driver's license number and state. Or any other valid license, as they do not specify " physician's " license. Once registered, look on the right side of their home page for " Merck Manual Professional Edition, and click on it. On the next page that opens, click on " psychiatric disorders " on the left side of the page. On the next page that opens, click on " approach to the patient with mental complaints " . On the next page that opens, click on " medical assessment of patient with mental symptoms " . This is the page with the test. You can print it out, but, unfortunately, there does not seem to be a way to save it to your computer, or email it. There is no mention of mold, mycotoxins, or multiple chemical sensitivities, as a possible cause of mental disorders. So, if you are waiting for a doctor, who does things " BY THE BOOK " , to recognize their connection to mental disorders, don't hold your breath. Holding your breath would probably make you fail the test. But, you might get lucky, and find a doctor who can think outside the box, or " outside the book " , who will see the connection. Good Luck. Joe > > I think the wriiten tests basically deturmine if your well rounded in > the mental area. several differents tests. one may be to determine if > you are a lier. things like that. all i remember is that in report he > said i was very well rounded, didn't exagerate, and was very > truthful. than deturmined more from the interview what he diagnosed > me with. i do remember one written test that asked questions about > how i felt so that one may of been more to do with diagnoseing > illness. sorry i was pretty out of it than and don't remember that > much about it.I would stress that the main thing is to be truthful.--- __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2007 Report Share Posted January 9, 2007 Post Tramatic Stress Disorder. Marcie ssr3351@... wrote: What is PTSD? If you say you are depressed is that in my favor or not? Sus he should spend quite a bit of time talking to you, this is when you tell him what you've been through. yes, you may get diagnosed with PTSD, they do put you on disability for that. and if they do it's nothing to be embaressed about. the cause can be more physilogical than pychological with mold illness. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2007 Report Share Posted January 9, 2007 Marcie, what do they base PTSD on? Do I tell them I'm depressed about not working, loss of income, stressed about my CHRONIC illness, only 55 and my life as I knew it is gone forever. Love my kids and husband and can't do what I used to do. Can't even attend business & military functions with my husband. Difficult going to funerals and many other places including church!! Sue Post Tramatic Stress Disorder. Marcie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2007 Report Share Posted January 10, 2007 I am so sorry. I am younger and I feel the same. But HOPE--never give up your HOPE! sending good luck to you and postive thoughts your way, Jane I truly mean that too. ssr3351@... wrote: Marcie, what do they base PTSD on? Do I tell them I'm depressed about not working, loss of income, stressed about my CHRONIC illness, only 55 and my life as I knew it is gone forever. Love my kids and husband and can't do what I used to do. Can't even attend business & military functions with my husband. Difficult going to funerals and many other places including church!! Sue Post Tramatic Stress Disorder. Marcie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2007 Report Share Posted January 10, 2007 I feel exactly the same way, Sue--even to go to the grocery & the bank, etc., on one day is often about ALL I can do. The fatigue of my illness is so overwhelming sometimes, I have to come home & sleep half the afternoon--I hate that! I used to be a VERY active person, working full time, & even going dancing 2 nites a week.....till I awoke one morning in SEVERE pain, & could hardly move my legs. The story never ends......this isn't a bad dream. Its a true NIGHTMARE! Take care, & God bless & help us all!! Re: [] Re: Merck Manual I am so sorry. I am younger and I feel the same. But HOPE--never give up your HOPE! sending good luck to you and postive thoughts your way, Jane I truly mean that too. ssr3351@... wrote: Marcie, what do they base PTSD on? Do I tell them I'm depressed about not working, loss of income, stressed about my CHRONIC illness, only 55 and my life as I knew it is gone forever. Love my kids and husband and can't do what I used to do. Can't even attend business & military functions with my husband. Difficult going to funerals and many other places including church!! Sue Post Tramatic Stress Disorder. Marcie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2007 Report Share Posted January 10, 2007 It's just like a King story ONLY IT ISN " T A NOVEL!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! Sue I feel exactly the same way, Sue--even to go to the grocery & the bank, etc., on one day is often about ALL I can do. The fatigue of my illness is so overwhelming sometimes, I have to come home & sleep half the afternoon--I hate that! I used to be a VERY active person, working full time, & even going dancing 2 nites a week.....till I awoke one morning in SEVERE pain, & could hardly move my legs. The story never ends......this isn't a bad dream. Its a true NIGHTMARE! Take care, & God bless & help us all!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2007 Report Share Posted January 12, 2007 One of these days, maybe he'll write a novel about US, Sue! Wouldn't THAT be a trip?! Re: [] Re: Merck Manual It's just like a King story ONLY IT ISN " T A NOVEL!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! Sue I feel exactly the same way, Sue--even to go to the grocery & the bank, etc., on one day is often about ALL I can do. The fatigue of my illness is so overwhelming sometimes, I have to come home & sleep half the afternoon--I hate that! I used to be a VERY active person, working full time, & even going dancing 2 nites a week.....till I awoke one morning in SEVERE pain, & could hardly move my legs. The story never ends......this isn't a bad dream. Its a true NIGHTMARE! Take care, & God bless & help us all!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2007 Report Share Posted January 12, 2007 Yes, it would, !!! A frightening nightmare that would scare everyone to death!!!!!!!!!!!! One of these days, maybe he'll write a novel about US, Sue! Wouldn't THAT be a trip?! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2007 Report Share Posted January 15, 2007 DO YA SUPPOSE HE'D LISTEN, IF WE SENT HIM OUR STORIES? VICTORIA ???????????? Re: [] Re: Merck Manual Yes, it would, !!! A frightening nightmare that would scare everyone to death!!!!!!!!!!!! One of these days, maybe he'll write a novel about US, Sue! Wouldn't THAT be a trip?! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2007 Report Share Posted January 16, 2007 I don't know, but someone has to listen someday soon!!! I took a copy of Dr. Shoemaker's book to the local hospital library. Even if just one Dr. picks it up and reads it would be one more person that knows about the illness!!!!!! I also gave one to my local Dr. I keep trying and will not give up!!! Sue DO YA SUPPOSE HE'D LISTEN, IF WE SENT HIM OUR STORIES? VICTORIA ???????????? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2007 Report Share Posted January 17, 2007 Does Dr. Shoemaker offer quantity discounts on Mold Warriors? I think that his book would be a good gift for all different sorts of people.. On 1/16/07, ssr3351@... <ssr3351@...> wrote: > > > I don't know, but someone has to listen someday soon!!! I took a copy of > Dr. > Shoemaker's book to the local hospital library. Even if just one Dr. picks > > it up and reads it would be one more person that knows about the > illness!!!!!! > I also gave one to my local Dr. I keep trying and will not give up!!! > > Sue > > DO YA SUPPOSE HE'D LISTEN, IF WE SENT HIM OUR STORIES? > VICTORIA ???????????? > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2007 Report Share Posted January 17, 2007 LiveSimply wrote: > Does Dr. Shoemaker offer quantity discounts on Mold Warriors? > When I was last in his office, when leaving, they offer them for 15.00 each when paying your bill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2007 Report Share Posted January 17, 2007 I'm not completely sure. My memory is shot, but I think he gives a discount on a case. I know I bought a case and brought them home then some I sold and others I donated. I felt it was my contribution to a very good cause. The local hospital libraries are a good place to start and then your local Drs. and ANYONE who is willing to read it!! I even sold one to the place where I get my haircut! They leave it out with the magazines for people to read. I think it would be great if we came up with a brochure for the sick building group with info and mold facts that we could download and print. That way we all could print them hang them up in libraries, give them to Drs. offices any place where the public has to sit, wait and READ!!!! Trifold would be great to fold, keep them in the car and take them everywhere you go!! Sue Does Dr. Shoemaker offer quantity discounts on Mold Warriors? I think that his book would be a good gift for all different sorts of people.. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2007 Report Share Posted January 17, 2007 I think the $15 is just a one time deal for patients. Sue LiveSimply wrote: > Does Dr. Shoemaker offer quantity discounts on Mold Warriors? > When I was last in his office, when leaving, they offer them for 15.00 each when paying your bill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2007 Report Share Posted January 17, 2007 GOOD IDEA, SUE......I'D DO THAT TOO, IF I COULD AFFORD IT. UNFORTUNATELY, I'M ABOUT DEAD BROKE!! VICTORIA :>( Re: [] Re: Merck Manual I don't know, but someone has to listen someday soon!!! I took a copy of Dr. Shoemaker's book to the local hospital library. Even if just one Dr. picks it up and reads it would be one more person that knows about the illness!!!!!! I also gave one to my local Dr. I keep trying and will not give up!!! Sue DO YA SUPPOSE HE'D LISTEN, IF WE SENT HIM OUR STORIES? VICTORIA ???????????? Quote Link to comment Share on other sites More sharing options...
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