Re: Unregulated industry

[Guest guest]

Hi Marcie,

Can you share with us specifically how Dr. treats mold

patients? I'm in the Dallas area and had considered seeing him about

my Lyme a couple years ago, but when I talked to their office, they

seemed to focus entirely on hyperbarics (i.e., they didn't seem to be

aware of Shoemaker's protocol for treating the Lyme neurotoxins).

Is Dr. familiar with Shoemaker's protocol or does he have his

own? If so, would you mind sharing?

Thanks,

B.

>

> Hi ,

> I have not been on for awhile. Hope that you are doing better

since I talked to you awhile ago. You bot are right....it is very

hard to find docs that know anything about mold or that are willing

to admit it. Dr Alfred in ,Texas is fantastic.

Thanks to KC's advice I am seeing a great doc. The news of my tests

are not anything to be happy about but at least I know where I stand

right now.

> Hope everyone is doing better or Okay!!! I'll take an okay any

day. LOL!!

> Marcie McGovern

>

[Guest guest]

, I, too, was very healthy ALL my life!!!!! I was an outdoor kid and

other than the normal childhood illnesses like chicken pox and a few coughs

and colds I was well. I didn't grow up with AC and loved the outdoors. I had

never been in a hospital except to have my children, never had a broken bone

or a hospital stay and hardly ever missed work. When they were doing some

remodeling at my school that's when everything started to happen. Every joint

and muscle ached, blinding headaches, blurred vision, slurred speech,

debilitating fatigue, itchy crawly skin, twitches and the list goes on and on.

That

was all the beginning that changed my life FOREVER!!!

Sue

sorry--but i COMPLETELY disagree with this one. i was HEALTHY--until i

inhaled two lungs full of a powdery substance at my former workplace.

" aspirgillus

& penicillium are powdery substances which are inhaled. " BOTH cause

inflammation/ penicillium are powdery substances which are inh

i was HEALTHY--always, before this happened!

victoria

[Guest guest]

Hi Marcie,

Wish I could say I was better but I am in mold hell right now and

trying to get out. I see light at the end of the tunnel though.

Good to hear from you again,

sorry for the slow responce. I can't spend too much time on this porch

(where I keep my computer) for two reasons, one I get sick and two

it's 28 degrees out here.

On Mon, 8 Jan 2007 15:05:54 -0800 (PST), you wrote:

>

>Hi ,

> I have not been on for awhile. Hope that you are doing better since I talked

to you awhile ago. You bot are right....it is very hard to find docs that know

anything about mold or that are willing to admit it. Dr Alfred in

,Texas is fantastic. Thanks to KC's advice I am seeing a great doc.

The news of my tests are not anything to be happy about but at least I know

where I stand right now.

> Hope everyone is doing better or Okay!!! I'll take an okay any day. LOL!!

> Marcie McGovern

[Guest guest]

I am just seeking the answers and if my thinking is the same as

medical Dr's who don't have a more vocal critic, I can't help this.

I would never support them in the fraud that mold isn't harmful to

sensitive individuals. We just agree that it's not harmful to

non-compromised individuals. The way I differ from them is in that I

am always looking for someone to prove to me wrong. If I am wrong I

want to know so I can correct myself. I WANT THE TRUTH. They have no

interest in this disease or desire for the truth. As a matter of fact

I would venture further to say their afraid of the truth. That's why

they keep lying.

I admit I am biased because I had extensive exposure to pesticides and

suddenly became ill. I lived in my moldy house for 14 years prior to

this with no notable or profound ill effects. Never seen anyone

affected anywhere near the way I have been other than though the

internet. Thank God for this.

On Tue, 09 Jan 2007 05:22:50 -0000, you wrote:

>. I guess, you're fortunate to not have

>other family members impacted, so you can't so easily see the

>correlations that I can see, but please don't give credence to these

>idiotic doctors that have told so many of us on that mold can't make

>us this sick. Many of us have to hear that on a daily basis from

>family members who are in denial and the last place we need it echoed

>is on this list.

[Guest guest]

I do think that healthy individuals can become sick if exposed for

long periods of time. The symptoms would probably go un noticed for

very long period and symptoms show up slowly. For example, say you

retire from your job and instead of being home 12-14 hours a day of

which 8 are sleeping, you now spend 24 hours a day on average, less

some errands here and there and one night out. You might get more

than your body can handle whereby before you were able to get rid of

what toxins you took in enough to keep illness from coming on.

Second to farmers, housewives are statistically more likely to get

lung infection from fungus than average person, so to me that is

someone who is home alot is more likely to be affected from upper

respiratory infection from fungus than someone who changes

environments more often and is outside more often. Farmers probably

get it from stored grains. It also could be that a person can

handle the toxins for ten years but not eleven...

>

> I am just seeking the answers and if my thinking is the same as

> medical Dr's who don't have a more vocal critic, I can't help this.

>

[Guest guest]

,

And, yet again, you and I are not so different. I functioned quite

well and did extremely well professionally, as well as balancing

family life, despite what I considered to be chronic allergies, for

which I also compensated with my nasal irrigation, etc. It wasn't

until I got Lyme that I could not function at all. And, for a couple

years, I was determined that it was Lyme that made me so sick. The

reality is that I likely got the Lyme due to the chronic exposure to

mold toxins. I honestly didn't believe that mold was much of an

issue at all for me until 4 months into the CSM treatment and I had

gone off it for a day (due to NAET treatment) and about keeled over

when I went to work at my desk at home. A day later I found that

there was mold underneath (it was an antique that was refinished, but

underside was never sealed). Up until that point, I blamed all my

symptoms on Lyme. The reality is that Lyme was just what tipped my

immune system over the edge (an analogy would be that it's what made

my bucket of toxin tolerance overflow). I can certainly see how that

well could have been the case for you - you didn't just one day get

exposed to the chemicals and/or the mold - it was just a huge

chemical hit that caused your system to " overflow " and once that

happens it's very difficult to " reset " the system, and most

especially when you're still being exposed.

My point is that the deterioration of your immune system likely

occurred over a long period of time, that just wasn't perceptable.

Alot of people might attribute any physical symptoms as plan old

aging. I did that as well when I hit 40 - it did become much more

difficult to compensate, but I did compensate by working out more,

eating better, etc. If I hadn't gotten Lyme, I likely would still be

compensating as I believe many people are. I think the same is true

for yourself.

I'm just trying to present to you another logical way of looking at

your situation. I'm not saying you're wrong and there's likely no way

at all to prove you're wrong or I'm right unless you happened to run

Shoemaker's panel of blood tests just before and just after your

chemical incident.

So, again, our theories are different, but in the end, we are both

looking for answers on how to move forward safely from here such that

we don't have to be here ever again. I am concerned that you're

missing the path forward by focusing so much on why you are the way

you are (and by your suggestion that the only way that you'll change

your viewpoint is that if someone PROVES you WRONG).

I honestly think there are many logical reasons you haven't seen as

many people impacted. As we've discussed many times on this list,

this isn't a topic people want to talk about. Alot of us actually

look healthier than the normal population due to the things we do to

compensate. Only a few close friends are aware of my health issues.

The rest of the people with whom I interface just think I'm a wacky

health nut. I'll also posit that there's an even larger group of

people that are also very impacted that don't have the energy to get

out in the world or they end up addicted to drugs, alcohol, etc as a

way of escaping this nightmare. I think many on this list are highly

educated and smart enough to figure out that the way we're feeling

just isn't normal no matter what doctors say. I fear there are many,

many more that actually have listened to these doctors and are so

drugged out on the sleep medications, pain medications and anti-

depressants that they've shut themselves away from the world, so

you're not likely to encounter them. Also, I might suggest that or

you linger in some of the Lyme, Fibromyalgia and Chronic Fatigue

Support groups and I bet you'll find many more of these folks.

I do wish your well on your wellness journey.

B.

>

> >. I guess, you're fortunate to not have

> >other family members impacted, so you can't so easily see the

> >correlations that I can see, but please don't give credence to

these

> >idiotic doctors that have told so many of us on that mold can't

make

> >us this sick. Many of us have to hear that on a daily basis from

> >family members who are in denial and the last place we need it

echoed

> >is on this list.

>

[Guest guest]

I was also a very healthy person until I began to work

in the contaminated building. My immune system was

broken due to the mold exposure and exposure to what

ever else is in that building!

Val

[Guest guest]

Me too, I worked in a non-tradictional field beside men operating heavy

equipment all day and my hobbies were carpentry and landscapeing and

electronics. within 2 months after my new roof was put on that leaked,

I suffered the first, very painful effects of stachybotrys exposure.---

In , Madeska <madeskv@...> wrote:

>

> I was also a very healthy person until I began to work

> in the contaminated building. My immune system was

> broken due to the mold exposure and exposure to what

> ever else is in that building!

>

> Val

>

[Guest guest]

The flip side of that claim is that some mold toxins MAKE people

'immunocompromised'.

They create a favorable habitat for themselves in many ways.. one of them is

by destroying (our) immune systems..

[Guest guest]

For me the illness took years I believe to get me. It didn't get my

husband until the third mold place. That place he gutted and he was

ok for a while but eventually had seizures and a blood clot by his

heart. He has recovered but has some mcs. I lived in the first

house for about 8 years and was fine then one summer felt very weak

and had sinus problems. Felt better after antiobiotics and was ok

all winter and then the spring came and the same thing happened. Very

weak suddenly when the weather changed. That summer things progressed

quickly with severe uticaria and my life never was the same. Sinus

surgery, asthma, mcs, candida, moving so many times and the stress of

it all. Being poisoned by fragrances, etc. by people that don't

listen is also difficult for me.

> >

> > >. I guess, you're fortunate to not have

> > >other family members impacted, so you can't so easily see the

> > >correlations that I can see, but please don't give credence to

> these

> > >idiotic doctors that have told so many of us on that mold can't

> make

> > >us this sick. Many of us have to hear that on a daily basis

from

> > >family members who are in denial and the last place we need it

> echoed

> > >is on this list.

> >

>

[Guest guest]

I think several factors could play a role. genetics, types of mold

exposed to, amounts of it. and any kind of illment, sinuses or a cold

things like that could lower your immune defences enough for it to

grab hold. some of my family has autoammune diseases so I'm sure

genetics played a role with me.

> > >

> > > >. I guess, you're fortunate to not have

> > > >other family members impacted, so you can't so easily see the

> > > >correlations that I can see, but please don't give credence to

> > these

> > > >idiotic doctors that have told so many of us on that mold

can't

> > make

> > > >us this sick. Many of us have to hear that on a daily basis

> from

> > > >family members who are in denial and the last place we need it

> > echoed

> > > >is on this list.

> > >

> >

>