Re: been a while and need advice

[Guest guest]

Rhonda,

I wish you the best of luck with your appointment. Not sure if you

are aware but this issue has been discussed recently, just within

the last week. If you come to the board and click on messages you

can stroll back to see previous discussions. I don't think it would

be necessary for you to bring your records from other physicians for

a psy. eval. He should be determining the final results on his own

evaluation, not everyone elses.

So you don't get stressed out by not coming to the board, you/I can

change your email delivery to daily digest or individual emails.

This way it is delivered directly to you, so everyone can benefit to

the responses to your questions and not just a single individual. We

all benefit by brainstorming and discussing between each other our

personal experience(s).

KC

>

> I have applied for disability with the state gov. and the State

Med.

> Bd. has requested a psychiatric evaluation which I know is

standard

> and I have an appt. next Tues with a Neuropsychologial doctor.

Anyone

> that has had to to this, is it better for me to take my current

doc's

> records and MRI's with me b/c they have forms I fill out before I

go

> and has the release forms for medical records. I figure they will

> want them to compare with what test results they get and I have

been

> told a 4-6 hrs of testing. Problem is some of the things in my

> medical records are so inaccurate and not me.

>

> Other question is I recall reading about the Mylar reaction from

> being exposed to mycotoxins and I get that flushed crap and I know

> it's not the female thing b/c I have had my skin HOT since 20

> something then lead up to night sweats profusely but I haven't had

> them as bad now but do get the mylar thing which is embarasing b/c

I

> see people looking at my neck where it gets red and flushed and is

so

> weird.Redneck! Normally happens when I'm talking at length.

I'm

> trying to recall where I read about the Mylar and linked to

> Aspergillous or other molds. I know I read that somewhere.

>

> Still trying to get out of the Toxic work place! Send responses

to

> my mail and group too b/c I don't always have time to come

to

> the group lately trying to survive. I have about blacked out more

> than 4 times lately and one time was while driving and I pulled

over

> then went back home. The fatigue is real intense also and just not

> sure what else is happening. Called doc and left message Tuesday

and

> have not heard anything back. Guess he is on vacation or almost

> blacking out while driving isn't important. Rhonda

>

[Guest guest]

This is a very real concern, these sudden bouts of intense fatigue. I get

them too now. I have to lie down.

I wonder how many car accidents are caused by mold?

Your doctor may be required to notify the DMV so they can pull your drivers

license(s). (if you have one or more)

This is a hot button issue as many older people are on the road who pass out

and then they kill people and juries

are reluctant to prosecute or awarddamages against them because they were

old and 'just sick'.

A few years ago an older man fell asleep at the wheel and plowed into a

crowded mall in Southern California. I think he killed 11 people.

[Guest guest]

HI ALL--A COUPLE MONTHS AGO, A FRIEND FROM MY TOWN BROUGHT ME A CASE OF " GOJI

JUICE. " HE CLAIMED IT WOULD HELP MY HEALTH CONSIDERABLY, & SO I STARTED TO TAKE

IT. WHILE I THOUGHT MAYBE IT WAS HELPING A LITTLE BIT WITH THE FATIGUE, ETC., I

DIDN'T WANT TO SPEND THE MONEY FOR ANOTHER CASE ($140). SO.....TO MAKE A LONG

STORY SHORT, I WENT OFF THE GOJI FOR A COUPLE OF WEEKS, ONLY TO FIND MY ENERGY

LEVEL GO DOWN TO ABOUT 20% OF WHAT IT WAS. I RESTARTED TAKING IT..... & I'M

FEELING SOOOOOO MUCH BETTER!! NO, I DON'T SELL OR HAVE ANY STOCK IN THIS

COMPANY. I'M ONLY TELLING MY EXPERIENCES, IN THE HOPE THAT SOMEONE ELSE MIGHT

FIND THIS PRODUCT BENEFICIAL. I WAS A NURSE, & I'M TOTALLY DISABLED NOW, & NOT

WORKING--BUT AM STILL A NURSE AT HEART!!

LOVE & GOD BLESS YOU ALL!

VICTORIA

[] Re: been a while and need advice

Rhonda,

I wish you the best of luck with your appointment. Not sure if you

are aware but this issue has been discussed recently, just within

the last week. If you come to the board and click on messages you

can stroll back to see previous discussions. I don't think it would

be necessary for you to bring your records from other physicians for

a psy. eval. He should be determining the final results on his own

evaluation, not everyone elses.

So you don't get stressed out by not coming to the board, you/I can

change your email delivery to daily digest or individual emails.

This way it is delivered directly to you, so everyone can benefit to

the responses to your questions and not just a single individual. We

all benefit by brainstorming and discussing between each other our

personal experience(s).

KC

>

> I have applied for disability with the state gov. and the State

Med.

> Bd. has requested a psychiatric evaluation which I know is

standard

> and I have an appt. next Tues with a Neuropsychologial doctor.

Anyone

> that has had to to this, is it better for me to take my current

doc's

> records and MRI's with me b/c they have forms I fill out before I

go

> and has the release forms for medical records. I figure they will

> want them to compare with what test results they get and I have

been

> told a 4-6 hrs of testing. Problem is some of the things in my

> medical records are so inaccurate and not me.

>

> Other question is I recall reading about the Mylar reaction from

> being exposed to mycotoxins and I get that flushed crap and I know

> it's not the female thing b/c I have had my skin HOT since 20

> something then lead up to night sweats profusely but I haven't had

> them as bad now but do get the mylar thing which is embarasing b/c

I

> see people looking at my neck where it gets red and flushed and is

so

> weird.Redneck! Normally happens when I'm talking at length.

I'm

> trying to recall where I read about the Mylar and linked to

> Aspergillous or other molds. I know I read that somewhere.

>

> Still trying to get out of the Toxic work place! Send responses

to

> my mail and group too b/c I don't always have time to come

to

> the group lately trying to survive. I have about blacked out more

> than 4 times lately and one time was while driving and I pulled

over

> then went back home. The fatigue is real intense also and just not

> sure what else is happening. Called doc and left message Tuesday

and

> have not heard anything back. Guess he is on vacation or almost

> blacking out while driving isn't important. Rhonda

>

[Guest guest]

THANKS VICTORIA, I'VE BEEN WONDERING IF IT HELPS, BUT GEE, IT'S TO

EXPENCIVE FOR ME. ;(

> >

> > I have applied for disability with the state gov. and the State

> Med.

> > Bd. has requested a psychiatric evaluation which I know is

> standard

> > and I have an appt. next Tues with a Neuropsychologial doctor.

> Anyone

> > that has had to to this, is it better for me to take my current

> doc's

> > records and MRI's with me b/c they have forms I fill out before

I

> go

> > and has the release forms for medical records. I figure they

will

> > want them to compare with what test results they get and I have

> been

> > told a 4-6 hrs of testing. Problem is some of the things in my

> > medical records are so inaccurate and not me.

> >

> > Other question is I recall reading about the Mylar reaction

from

> > being exposed to mycotoxins and I get that flushed crap and I

know

> > it's not the female thing b/c I have had my skin HOT since 20

> > something then lead up to night sweats profusely but I haven't

had

> > them as bad now but do get the mylar thing which is embarasing

b/c

> I

> > see people looking at my neck where it gets red and flushed and

is

> so

> > weird.Redneck! Normally happens when I'm talking at length.

> I'm

> > trying to recall where I read about the Mylar and linked to

> > Aspergillous or other molds. I know I read that somewhere.

> >

> > Still trying to get out of the Toxic work place! Send responses

> to

> > my mail and group too b/c I don't always have time to

come

> to

> > the group lately trying to survive. I have about blacked out

more

> > than 4 times lately and one time was while driving and I pulled

> over

> > then went back home. The fatigue is real intense also and just

not

> > sure what else is happening. Called doc and left message

Tuesday

> and

> > have not heard anything back. Guess he is on vacation or almost

> > blacking out while driving isn't important. Rhonda

> >

>

>

>

>

>

>

[Guest guest]

, If it helping you to feel better, continue, but I will post

Ralph Moss's comments on GOJI juice, about which he describes himself

as a friendly skeptic of, and says green tea should have as much

antioxidants, if that is the agent, for much less money. Ralph Moss

is a researcher of alternative therapies for cancer patients, so he

looking for it's ability to help cancer patients, so may do well for

people with neurotoxic injury or CFS patients:

<http://chetday.com/gojijuice.htm>

http://chetday.com/gojijuice.htm

>

> THANKS VICTORIA, I'VE BEEN WONDERING IF IT HELPS, BUT GEE, IT'S TO

> EXPENCIVE FOR ME. ;( --- In

[Guest guest]

I hope they don't take my license away. I haven't actually blacked

out but have felt it more lately and the weather fronts aggrevate me

so much. I'm not sure if I'm having TIA's or not and not even sure

how docs can tell or if a SPECT scan will show that. I had another

brain MRI but they did it without contrast and not sure why. They

said nothing changed. And I thought they would do one of my

neck/spine since I had all the trouble with back of neck nerves with

pain/pressure. They did give me nerve block shots but help a

little. I get so much pressure on my face and eyes along with back

of neck and it makes me so sick. I think the low pressure must

affect those nerves and if they are swollen and inflammed, the

pressure makes it worse. We have front after front and never stops

around here. My fatigue is back so bad it's hard for me to get things

accomplished around my house or get up out of bed.

My next paycheck will be docked 48hrs. I'm trying to figure out how

to not go back while waiting for approval and be able to pay bills.

If I don't get approved, not sure what I will do. I get tremors so

bad now when exposed to mold and I can't write when that happens. I

had to get a teller at the bank Friday to write out information for

depositing money b/c I was shaking so bad after going to work.

Then I found mold on the inside of my storm door today and it is in

small cracks too and I used white vinegar and qtips and tried to

clean it and it will just come back b/c not a tight fit door and

moisture gets in. I just freaked when I saw mold. I can't get away

from the crap. It was black and no telling which mold it is. Same

mold was all over that door back when I had the remediation and I

cleaned up everything around here.

I also had a reaction at my mom's Christmas Eve in her den and had

the tremors/pins/needles and ask her about it and she said maybe mold

is in their attic and things are stored up there they brought down

for Christmas. I can't get away from it. My dad once said his hvac

probably has mold. I may have been poisoned my whole life. At 12 a

penicillin shot about killed me then I was saved just to be poisoned

a slow torture. It is getting where I don't even want to leave my

house but then I find it still around my house and I never looked in

my attic b/c I don't have a pull down ladder and scared to look.

Rhonda

--- In , LiveSimply <quackadillian@...>

wrote:

>

> This is a very real concern, these sudden bouts of intense fatigue.

I get

> them too now. I have to lie down.

>

> I wonder how many car accidents are caused by mold?

>

> Your doctor may be required to notify the DMV so they can pull your

drivers

> license(s). (if you have one or more)

>

> This is a hot button issue as many older people are on the road who

pass out

> and then they kill people and juries

> are reluctant to prosecute or awarddamages against them because

they were

> old and 'just sick'.

>

> A few years ago an older man fell asleep at the wheel and plowed

into a

> crowded mall in Southern California. I think he killed 11 people.

>

>

>

[Guest guest]

Rhonda

So sorry you are going thru such a bad time, after all the work you

had done to clean your house-those of us that have had major

exposures seem to have to be vigilant for the rest of our lives-hope

you are taking cholestrymine- up to 5-6 doses a day untill you get

your reactivity down alittle. I have had numerouse black outs from

mold- it can be very scarry-I now carry an epi-pen- and instruct all

my close friends in its use. Very bad pain in the back of the neck is

something alot of mold sufferers have- a swollen lymph node at the

base of the skull seems to be the culprit-even my dog got one when we

lived in the moldy house for 10 years.Not being a doc, but

recognising your symptoms- I would say avoidence and CSM will help

allot more than nerve blocking shots and further expensive tests- the

only tests that show mold damage are the " Shoemaker " tests anyway . I

do recommend sleeping outside and avoiding all inside spaces as much

as possible untill you are feeling better. I know this is difficult-

but it has saved me twice in the past year- a long extension cord and

a heating blanket inside a sleeping bag and you are set to go. When I

slept outside last spring, I had cross contaminated so many

things ,that I slept with only one cheap thin blanket- and froze my

but off for 2 months- but I got better. Good Luck

>

> I hope they don't take my license away. I haven't actually blacked

> out but have felt it more lately and the weather fronts aggrevate

me

> so much. I'm not sure if I'm having TIA's or not and not even sure

> how docs can tell or if a SPECT scan will show that. I had another

> brain MRI but they did it without contrast and not sure why. They

> said nothing changed. And I thought they would do one of my

> neck/spine since I had all the trouble with back of neck nerves

with

> pain/pressure. They did give me nerve block shots but help a

> little. I get so much pressure on my face and eyes along with back

> of neck and it makes me so sick. I think the low pressure must

> affect those nerves and if they are swollen and inflammed, the

> pressure makes it worse. We have front after front and never stops

> around here. My fatigue is back so bad it's hard for me to get

things

> accomplished around my house or get up out of bed.

>

> My next paycheck will be docked 48hrs. I'm trying to figure out

how

> to not go back while waiting for approval and be able to pay

bills.

> If I don't get approved, not sure what I will do. I get tremors so

> bad now when exposed to mold and I can't write when that happens.

I

> had to get a teller at the bank Friday to write out information for

> depositing money b/c I was shaking so bad after going to work.

>

> Then I found mold on the inside of my storm door today and it is in

> small cracks too and I used white vinegar and qtips and tried to

> clean it and it will just come back b/c not a tight fit door and

> moisture gets in. I just freaked when I saw mold. I can't get

away

> from the crap. It was black and no telling which mold it is. Same

> mold was all over that door back when I had the remediation and I

> cleaned up everything around here.

>

> I also had a reaction at my mom's Christmas Eve in her den and had

> the tremors/pins/needles and ask her about it and she said maybe

mold

> is in their attic and things are stored up there they brought down

> for Christmas. I can't get away from it. My dad once said his hvac

> probably has mold. I may have been poisoned my whole life. At 12

a

> penicillin shot about killed me then I was saved just to be

poisoned

> a slow torture. It is getting where I don't even want to leave my

> house but then I find it still around my house and I never looked

in

> my attic b/c I don't have a pull down ladder and scared to look.

>

> Rhonda

>

[Guest guest]

, when you sleep outside, where do you do other things, like

cook, eat, bath, dress...clothes are in car??...or do you have an

apartment or home but just sleep outside??

--- In , " carondeen " <kdeanstudios@...>

wrote:

>

recommend sleeping outside and avoiding all inside spaces as much

> as possible untill you are feeling better. I know this is difficult-

> but it has saved me twice in the past year- a long extension cord

and

> a heating blanket inside a sleeping bag and you are set to go. When

I

[Guest guest]

I am very gratfully sleeping inside an apt for the last 2 months-Once I

slept on a friends deck, for almost 4 months I slept in a field in back

of a friend house, and used her house to prepare food-then ate outside-

used the Y, kept clothes, ect in my car-gradually I could spend more

time in her house-more recently-I just slept in the backyard of the new

mold house I bought-in my trusty tent-useing the house for necessities,

untill I got the tenent in the apt out so I could try that-I only

recommend bottoming out from mold in the spring-so you have all summer

and fall to recover-LOL

-- In , " barb1283 " <barb1283@...>

wrote:

>

> , when you sleep outside, where do you do other things, like

> cook, eat, bath, dress...clothes are in car??...or do you have an

> apartment or home but just sleep outside??

>

>

> >

>