Guest guest Posted January 7, 2007 Report Share Posted January 7, 2007 I am not sure if mold can cause sleep disorders, except that it can cause an MSH deficiency which will cause sleep problems (inability to fall asleep/stay asleep). Sleep apnea is a disorder which needs to be treated. It is when you stop breathing repeatedly for some period of time while you sleep. My husband has it. Sleep apnea can affect the heart. They probably want to you come back so that you can try a cpap ( " continuous positive air pressure " ) machine while you sleep and see if this helps you, and if so, what pressure you need the machine set at. The cpap machine isn't so " pretty, " but does prevent complications from sleep apnea. Hope this helps, --- In , " moldcankill " <moldcankill@...> wrote: Has anyone been diagnosed with sleep disorders due to mold? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2007 Report Share Posted January 7, 2007 YOu don't need to do something just because a doctor tells you to. If you feel you get good rest and family members are not complaining, you are the best judge. People get different symptoms from mold exposure. It affects people different ways. Cpap therapy would just be outfitting you for a mask to wear at night which helps you to breathe better, showing you how to wear it, loaning/renting it out to you, etc. You could try it to see if you sleep better. It isn't anything that affects you internally and does not entail taking any medication, so harmless unless something odd were to happen, like you get choked by cord of cpap or something, can't think of anything but I guess anything could happen. Anyway, I wish I were in your situation, as I cannot get more than 4 hours of sleep, 6 is my best, and some nights I don't sleep at all...my insurance company which is " managing my case by nurse " wants me to go back to sleep lab again and be retested since my original sleep test was so long ago, and a friend wants me to ask for cpap mask as original diagnosis was insomnia with slight apnea. Since insomnia part they have no recommendation for, friend thinks perhaps cpap may help a little, so it's on my long list of things to do. However no doctor has ever connected my sleep loss with mold, which was your original question. However others have said there is. > > Has anyone been diagnosed with sleep disorders due to mold? After > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2007 Report Share Posted January 7, 2007 did she call it sleep apnea? its where you quit breathing while asleep and yes you can die from it. I had it bad while in the moldy homes. now it seems to come and go. I keep wanting to link it in with sinus problems and have also notice a weird rattleing sound coming from somewhere in my airways sometimes. I snore whem its going on and have woken up gagging for air. they told me I had this at the mayo clinic but when they tested me over night I had finally got a hotel room that didn't bother me and i slept well. last summer when my ac broke down and i had to open windows it got bad again and a cable guy that came to the door took one look at me and said' you have sleep apnea' he related his with his sinuses too. he's the one that told me to use canning salt and distilled water to wash sinuses. the heat was getting to me bad at this time to and my feet and legs were swollen to the knees. he noticed this as being part of it. ? he didn't know anything about toxic molds and didn't know what caused his sleep apnea. said his doctors had tried many things for it but he had improved with washing his sinuses. when i notice its back i usually caugh up dried mucus. i also have noticed a rattleing of something in my airways, but haven't fiqured out what it is. just does it while in the still half asleep mode, relaxed mode. sometimes it does this when i'm not even sleeping just relaxed or on the verge of sleep. > > Has anyone been diagnosed with sleep disorders due to mold? After > telling my doctors for over a year that I am constantly exhausted > he decided to send me for a battery of tests, including a sleep > study, for chronic fatigue. When I set up my sleep study the center > seemed a little too anxious to have me. They told me to bring my > insurance card but it didn't matter what insurance I had because they > would give me a paper saying I had a zero balance. Last night when I > arrived for the sleep study the technician started talking about my > return for the therapy - she didn't even know if I had a problem > yet. When I woke up she told me that I needed to return in two days > for therapy (cpap therapy I think it was called). I asked her what > my disorder was and she said that I was snoring a lot. I find that > difficult to believe because I frequently share a room/ bed with > family memebers and they all say that i don't snore. When I told her > that, she said well your EEG shows problems in REM sleep which could > cause death. WHat a lovely thing to tell someone at 4 A.M. Is she > even qualified to make these statements? I told her I wanted to talk > to the doctor before making a therapy appointment and she said that > my doctor (mind you my test was on a Sat evening) already said that > he wants me to get therapy. So I am wondering if there is anything I > can do to figure out if they are just trying to make money off of me > or if I really have a problem. Or maybe there is a neurological > problem - I already had encephalpothy (sorry about the spelling) from > the mold. > If I do have a sleep disorder then I will just add it to the list > of my mold related illnesses. But I would greatly appreciate > hearing about anyone elses experiences with such tests and disorders. > Usually I would be able to reason this out on my own but my brain > stopped functioning two years ago. If I am this disabled in my late > 20's I am scared about getting old - if I live past this mold > poisoning. Thank you for all of your help. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2007 Report Share Posted January 7, 2007 Thanks and welcome to the group. this is what this cable guy had tried. he even bought his own machine but he said you have to fiqure out the exact air pressure for yourself and he just got aggervated with it. I share his thoughts that somehow its tied in with the sinus problems, or brought on by them. > Has anyone been diagnosed with sleep disorders due to mold? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2007 Report Share Posted January 7, 2007 13 years ago I started having sleep problems and heart arythmias. The irregular hearbeat seems to have calmed down but I actually drink wine to sleep and if I run out, then I have sleep problems. I took valerian when first started also. All my symptoms that were real prominant started after moving in my new house 13+ years ago and I figure b/c I was breathing myco's 24/7 with mold etc. at work also.Rhonda --- In , " moldcankill " <moldcankill@...> wrote: > > Has anyone been diagnosed with sleep disorders due to mold? After > telling my doctors for over a year that I am constantly exhausted > he decided to send me for a battery of tests, including a sleep > study, for chronic fatigue. When I set up my sleep study the center > seemed a little too anxious to have me. They told me to bring my > insurance card but it didn't matter what insurance I had because they > would give me a paper saying I had a zero balance. Last night when I > arrived for the sleep study the technician started talking about my > return for the therapy - she didn't even know if I had a problem > yet. When I woke up she told me that I needed to return in two days > for therapy (cpap therapy I think it was called). I asked her what > my disorder was and she said that I was snoring a lot. I find that > difficult to believe because I frequently share a room/ bed with > family memebers and they all say that i don't snore. When I told her > that, she said well your EEG shows problems in REM sleep which could > cause death. WHat a lovely thing to tell someone at 4 A.M. Is she > even qualified to make these statements? I told her I wanted to talk > to the doctor before making a therapy appointment and she said that > my doctor (mind you my test was on a Sat evening) already said that > he wants me to get therapy. So I am wondering if there is anything I > can do to figure out if they are just trying to make money off of me > or if I really have a problem. Or maybe there is a neurological > problem - I already had encephalpothy (sorry about the spelling) from > the mold. > If I do have a sleep disorder then I will just add it to the list > of my mold related illnesses. But I would greatly appreciate > hearing about anyone elses experiences with such tests and disorders. > Usually I would be able to reason this out on my own but my brain > stopped functioning two years ago. If I am this disabled in my late > 20's I am scared about getting old - if I live past this mold > poisoning. Thank you for all of your help. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2007 Report Share Posted January 7, 2007 funny how we are all supposed to just be crazy and have no symptoms or illnesses in common actually do have a lot in common includeing a lot of bad misdiagnoses. > > > > Has anyone been diagnosed with sleep disorders due to mold? After > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2007 Report Share Posted January 7, 2007 Since mycotoxins affect both your nerves and hormones which both play a part in sleep, I'd say mold can definately affect sleep. Having a bad case of Candidas has been shown to cause nervousness and sleep difficulties and they are type of fungal infection. Also allergies can affect nerves and your sleep, so I think for sure, yes. However whether your sleep apnea is enough that mask will help, you'd have to try it and see. Many people have mild apnea and it doesn't bother them. They could be seeking money. That's what it is all about now. I think sleep clinics favorite patients are sleep apnea patients since it is probably the only easily manageable sleep problem they have, and you are a constant customer, but see if it helps. There is no negative side of treatment if you have insurance to pay for it, it's kind of a question like 'why not'? --- In , " smarshwar " <smarshwar@...> wrote: > > I am not sure if mold can cause sleep disorders, except that it can > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2007 Report Share Posted January 7, 2007 When I was living in a moldy situation, I could never sleep well. It wasn't just one thing, it was a multitude of different things that were making it impossible to sleep normally. My nose would stop up every single night which would mean that i would wake up in the middle of the night gasping for air. On many nights i'd also wake up with my nose and throat burning. My vision was clouding over, I had incredibly painful headaches. This is just a few, the list goes on and on. So I think the question really should be, does mold ever NOT cause sleep disturbances. Seriously. The body repairs itself during sleep. This is an absolutely necessary process. It also imprints memories from short term to long term memory during sleep. Animals who are not allowed to sleep for a more than a very few days go insane and eventually die. As we all know, many (most, it seems) doctors are incredibly ignorant of the connections between mold related symptoms because the subject is very complex and the medical establishment is not helping much. Many would even go so far as to say that a majority of doctors are apparently fearful to diagnose that anything is caused by indoor molds or other toxic aspects of damp buildings, no matter how much evidence there is that points to them as being unhealthy on multiple levels to people forced to live or work in them. The sleep situation is a perfect example of how one of these situations might unfold. The unhealthful effects of not being able to sleep properly are well documented. The simple fact that moldy buildings cause sleep problems is also clear to all of us. Why don't they put two and two together, then? Because they are terrified of vengeful retribution, it seems. Is that any way to run a country? How are we supposed to trust these people to protect us from other dangers? What else are they not telling us? By the way, having chronic illnesses can and does often prevent people from getting jobs. It also prevents you from getting insurance privately, if you don't have a job or your job doesn't offer group insurance. That can and often does have additional life-destroying implications. For example, most jobs do credit checks on prospective employees, and unpaid medical bills sends up a big red flag. So, being hit by an 'unexpected' (BTW, what illnesses ARE expected?) chronic illness can be a body blow that sends a person who was previously in the middle class and part of society into a downward health, financial and career spiral that they might never recover from. On 1/7/07, moldcankill <moldcankill@...> wrote: > > Has anyone been diagnosed with sleep disorders due to mold? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2007 Report Share Posted January 7, 2007 Another thing I need to add is that getting decent sleep is all-important. If you are in moldy situation that causes your nose to stop up badly at night you NEED to insert some fresh air into that situation. Get a HEPA air cleaner and dilute your moldy indoor air by sleeping with the windows cracked open even if it makes your space too cold or hot for comfort. I wish I had realized this sooner. I had a very long time of it just getting worse and worse before I realized that the indoor air was causing this. I really didn't want to realize it. Nobody does. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2007 Report Share Posted January 8, 2007 I have sleep disorder and mine was diagnosed before the mold and before I gained weight (thank predsone for weight gain) I also have allergies and sinus problems. I had all of these before the mold exposure. One thing I did not have was the asthma. The mold seemed to worsen my allergies and other small issues I had going on but were not a problem. What mold did was take away my life, before mold, with allergies and all, I could work and I was a hard worker. Now I can't work...it really hurt my quality of life more than anything. About sleep disorders, I would get a second opinion because if you don't have true sleep apnea, you don't need that added stress of dealing with the machine. Don't get me wrong, I love my machine now that I am use to it but if there is really no need for it, there is no reason to have it!! The folks who did my sleep studies would not discuss my disorder, they said the doctor would discuss the test results. --- In , " moldcankill " <moldcankill@...> wrote: > > Has anyone been diagnosed with sleep disorders due to mold? After > telling my doctors for over a year that I am constantly exhausted > he decided to send me for a battery of tests, including a sleep > study, for chronic fatigue. When I set up my sleep study the center > seemed a little too anxious to have me. They told me to bring my > insurance card but it didn't matter what insurance I had because they > would give me a paper saying I had a zero balance. Last night when I > arrived for the sleep study the technician started talking about my > return for the therapy - she didn't even know if I had a problem > yet. When I woke up she told me that I needed to return in two days > for therapy (cpap therapy I think it was called). I asked her what > my disorder was and she said that I was snoring a lot. I find that > difficult to believe because I frequently share a room/ bed with > family memebers and they all say that i don't snore. When I told her > that, she said well your EEG shows problems in REM sleep which could > cause death. WHat a lovely thing to tell someone at 4 A.M. Is she > even qualified to make these statements? I told her I wanted to talk > to the doctor before making a therapy appointment and she said that > my doctor (mind you my test was on a Sat evening) already said that > he wants me to get therapy. So I am wondering if there is anything I > can do to figure out if they are just trying to make money off of me > or if I really have a problem. Or maybe there is a neurological > problem - I already had encephalpothy (sorry about the spelling) from > the mold. > If I do have a sleep disorder then I will just add it to the list > of my mold related illnesses. But I would greatly appreciate > hearing about anyone elses experiences with such tests and disorders. > Usually I would be able to reason this out on my own but my brain > stopped functioning two years ago. If I am this disabled in my late > 20's I am scared about getting old - if I live past this mold > poisoning. Thank you for all of your help. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2007 Report Share Posted January 8, 2007 It's probably our bodies way of telling us that 'this' is not a good place to be sleeping, by keeping us awake. If it wasn't for all our 'things', we would probably instinctive try a new place to sleep if we aren't able to bet rest where we are at. I'm sure we still have basic instincts that keep us healthy but more and more we ignore these for more civilized signs like the official weather report, what the doctor says, etc. --- In , LiveSimply <quackadillian@...> wrote: > > When I was living in a moldy situation, I could never sleep well. It wasn't > just one thing, it was a multitude of different things that were Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2007 Report Share Posted January 8, 2007 true, many, many things going on. > > > > Has anyone been diagnosed with sleep disorders due to mold? > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2007 Report Share Posted January 11, 2007 The doctor told me that my sleep disorder is the result of several issues. My body seems to be on high-alert at all times because I have 6 different fungi and a mycotoxin at the cellular level. An infection of the hypothalamus adds to the problem because my CNS is totally out of wack. Throw in fear, anger and frustration and you get sleep disorders. Having been to numerous doctor's over the past three years, I say trust your gut. It seems that, for some, humiliation and ridicule needed to be accompanied with a good dose of financial milking. Good luck! > > Has anyone been diagnosed with sleep disorders due to mold? After > telling my doctors for over a year that I am constantly exhausted > he decided to send me for a battery of tests, including a sleep > study, for chronic fatigue. When I set up my sleep study the center > seemed a little too anxious to have me. They told me to bring my > insurance card but it didn't matter what insurance I had because they > would give me a paper saying I had a zero balance. Last night when I > arrived for the sleep study the technician started talking about my > return for the therapy - she didn't even know if I had a problem > yet. When I woke up she told me that I needed to return in two days > for therapy (cpap therapy I think it was called). I asked her what > my disorder was and she said that I was snoring a lot. I find that > difficult to believe because I frequently share a room/ bed with > family memebers and they all say that i don't snore. When I told her > that, she said well your EEG shows problems in REM sleep which could > cause death. WHat a lovely thing to tell someone at 4 A.M. Is she > even qualified to make these statements? I told her I wanted to talk > to the doctor before making a therapy appointment and she said that > my doctor (mind you my test was on a Sat evening) already said that > he wants me to get therapy. So I am wondering if there is anything I > can do to figure out if they are just trying to make money off of me > or if I really have a problem. Or maybe there is a neurological > problem - I already had encephalpothy (sorry about the spelling) from > the mold. > If I do have a sleep disorder then I will just add it to the list > of my mold related illnesses. But I would greatly appreciate > hearing about anyone elses experiences with such tests and disorders. > Usually I would be able to reason this out on my own but my brain > stopped functioning two years ago. If I am this disabled in my late > 20's I am scared about getting old - if I live past this mold > poisoning. Thank you for all of your help. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2007 Report Share Posted January 11, 2007 How did you find out you have an infection of the hypothalmus? > > The doctor told me that my sleep disorder is the result of several > issues. My body seems to be on high-alert at all times because I > have 6 different fungi and a mycotoxin at the cellular level. An > infection of the hypothalamus adds to the problem because my CNS is > totally out of wack. Throw in fear, anger and frustration and you > get sleep disorders. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2007 Report Share Posted January 11, 2007 Paradoxically, I've found that PIRACETAM helped me sleep when I was going through the worst of it. I rarely remember to take it now before sleeping but I've found that it seems to improve sleep quality somewhat (because I'm sleeping better now than I have in many many years..now that I am out of the apartment I got sick in) Piracetam is a neuroprotective supplement that is also really helpful with headaches. Look it up. It's also a great bargain for what it does. Its also been used to treat epilepsy. It soothes the brain but its not sedating. It just normalizes things positively. It won't address breathing problems, like sleep apnea, but it can and does protect your brain like nothing else under conditions of hypoxia..for example its been used for climbers and athletes training at high altitudes. It also improves memory.. Its also very safe.. On 1/10/07, slkycaldwell <slkycaldwell@...> wrote: > > The doctor told me that my sleep disorder is the result of several > issues. My body seems to be on high-alert at all times because I > have 6 different fungi and a mycotoxin at the cellular level. An > infection of the hypothalamus adds to the problem because my CNS is > totally out of wack. Throw in fear, anger and frustration and you > get sleep disorders. > > Having been to numerous doctor's over the past three years, I say > trust your gut. It seems that, for some, humiliation and ridicule > needed to be accompanied with a good dose of financial milking. Good > luck! > > --- In <%40>, > " moldcankill " > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2007 Report Share Posted January 11, 2007 Why don't you record yourself sleeping. I think I read of people doing that when they don't believe they snore. You might have sleep apnea (spell) and you stop breathing many times during the night when you have that illness. Alot of people get some kind of sleep disorder from mold. I know I never can sleep longer than 4 hours at a time. I have that hyper feeling and I take medication for it, so it helps. I have some neurological thing. -- In , " slkycaldwell " <slkycaldwell@...> wrote: > > The doctor told me that my sleep disorder is the result of several > issues. My body seems to be on high-alert at all times because I > have 6 different fungi and a mycotoxin at the cellular level. An > infection of the hypothalamus adds to the problem because my CNS is > totally out of wack. Throw in fear, anger and frustration and you > get sleep disorders. > > Having been to numerous doctor's over the past three years, I say > trust your gut. It seems that, for some, humiliation and ridicule > needed to be accompanied with a good dose of financial milking. Good > luck! > > > > > > Has anyone been diagnosed with sleep disorders due to mold? After > > telling my doctors for over a year that I am constantly exhausted > > he decided to send me for a battery of tests, including a sleep > > study, for chronic fatigue. When I set up my sleep study the > center > > seemed a little too anxious to have me. They told me to bring my > > insurance card but it didn't matter what insurance I had because > they > > would give me a paper saying I had a zero balance. Last night > when I > > arrived for the sleep study the technician started talking about > my > > return for the therapy - she didn't even know if I had a problem > > yet. When I woke up she told me that I needed to return in two > days > > for therapy (cpap therapy I think it was called). I asked her > what > > my disorder was and she said that I was snoring a lot. I find > that > > difficult to believe because I frequently share a room/ bed with > > family memebers and they all say that i don't snore. When I told > her > > that, she said well your EEG shows problems in REM sleep which > could > > cause death. WHat a lovely thing to tell someone at 4 A.M. Is > she > > even qualified to make these statements? I told her I wanted to > talk > > to the doctor before making a therapy appointment and she said > that > > my doctor (mind you my test was on a Sat evening) already said > that > > he wants me to get therapy. So I am wondering if there is > anything I > > can do to figure out if they are just trying to make money off of > me > > or if I really have a problem. Or maybe there is a neurological > > problem - I already had encephalpothy (sorry about the spelling) > from > > the mold. > > If I do have a sleep disorder then I will just add it to the > list > > of my mold related illnesses. But I would greatly appreciate > > hearing about anyone elses experiences with such tests and > disorders. > > Usually I would be able to reason this out on my own but my brain > > stopped functioning two years ago. If I am this disabled in my > late > > 20's I am scared about getting old - if I live past this mold > > poisoning. Thank you for all of your help. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2007 Report Share Posted January 11, 2007 Lots of things have helped me but not constantly. Some of them are Sam-E, sublingual Melatonin, but actually had better results from sublingual Pregnenolone, which is a precursor of Melatonin and also affects other hormones that may be suppressed by toxins. The sublinquals were made by Source Natural. Sam-E helped me to sleep better and was only thing I've ever taken that also had a positive affect on my mood. --- In , LiveSimply <quackadillian@...> wrote: > > Paradoxically, I've found that PIRACETAM helped me sleep when I was going > through the worst of it. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2007 Report Share Posted January 11, 2007 ....OH, and antihistamines! They have stronger affect if I don't take them every night though. --- In , LiveSimply <quackadillian@...> wrote: > > Paradoxically, I've found that PIRACETAM helped me sleep when I was going > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2007 Report Share Posted January 11, 2007 A sleep disorder lab would watch you all night and monitor other things that could be helpful. This is one thing the medical community treats without medicine and no equipment used does any harm, no radiation or anything so no harm done, only helpful if you have it, but if you are not interested, don't pursue it. You have a better sense of what you need than doctors do. --- In , " ldelp84227 " <ldelp84227@...> wrote: > > Why don't you record yourself sleeping. I think I read of people > doing that when they don't believe they snore. Quote Link to comment Share on other sites More sharing options...
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