Re: New Family From Norway!

June 5, 2006

Hello Kristy ,

We are a family of five. Our three boys are 2, 6 and 8y. We live in

Sandefjord in the south-east of Norway.

Our Son Kristoffer (6) is the one with Mosaic DS and Autism. He had

" only " Downs until last year when he, after a long process, was

diagnosed with Autism... Since then we have used every minute of the

day to get into Autism and Gluten-, Casein- and Soy-free diet and

biomedical treatment of Autistic children, with great sucsess.

We also just last month got the Mosaic diagnose. For the last four

years we have suspected Mosaic since he dosen't look like a typical

Downs Syndrome kid and have no typical visible signs.

Beside the short standard info about Mosaic provided by our lokal

Downs Syndrom network, your website and forum is our first " contact "

with the Mosaic world...

We are just starting to read some of the old treads on your forum now.

Best regards

Lars-Ã˜ystein

>

> Hi Everyone,

> We have a new family from Norway. This is what he had to say:

>

> From Norway with a son who has Mosaic DS and Autism. Would love to

> join your forum. Best Regards Lars-OEystein.

>

> Welcome Lars! Please tell us all about you and your family! How old

> is your son?

> Please feel free to ask any questions you have about MDS and Autism

> here. We will be glad to answer your questions and share our

> experiences.

>

> My son, Tim, is 20 and he also has MDS and Asperger syndrome (form

> of Autism).

>

> Kristy Colvin

> IMDSA President

> www.imdsa.com

> Mom to Arron 24, 21, Tim 20 MDS, Stevan 19, and Garrett 10

>

June 5, 2006

Lars -

We did Gluten and Casein free for a year with our son and it was horrible.

I hope to never, ever be on that diet again - but you never know when an

allergy will develop - will be tested again for Celiac's disease in

August and I am praying that they will find nothing.

Darlene - Mom to (9) and (7)

>

> Hello Kristy ,

> We are a family of five. Our three boys are 2, 6 and 8y. We live in

> Sandefjord in the south-east of Norway.

> Our Son Kristoffer (6) is the one with Mosaic DS and Autism. He had

> " only " Downs until last year when he, after a long process, was

> diagnosed with Autism... Since then we have used every minute of the

> day to get into Autism and Gluten-, Casein- and Soy-free diet and

> biomedical treatment of Autistic children, with great sucsess.

> We also just last month got the Mosaic diagnose. For the last four

> years we have suspected Mosaic since he dosen't look like a typical

> Downs Syndrome kid and have no typical visible signs.

>

> Beside the short standard info about Mosaic provided by our lokal

> Downs Syndrom network, your website and forum is our first " contact "

> with the Mosaic world...

>

> We are just starting to read some of the old treads on your forum now.

>

> Best regards

> Lars-Ã˜ystein

>

> >

> > Hi Everyone,

> > We have a new family from Norway. This is what he had to say:

> >

> > From Norway with a son who has Mosaic DS and Autism. Would love to

> > join your forum. Best Regards Lars-OEystein.

> >

> > Welcome Lars! Please tell us all about you and your family! How old

> > is your son?

> > Please feel free to ask any questions you have about MDS and Autism

> > here. We will be glad to answer your questions and share our

> > experiences.

> >

> > My son, Tim, is 20 and he also has MDS and Asperger syndrome (form

> > of Autism).

> >

> > Kristy Colvin

> > IMDSA President

> > www.imdsa.com

> > Mom to Arron 24, 21, Tim 20 MDS, Stevan 19, and Garrett 10

> >

>

> Become a member of IMDSA today at http://www.imdsa.com

> *******************************************************

> Contact IMDSA Today at:

> IMDSA~PO Box 1052~lin,TX~77856~USA~1-~1-888-MDS-LINK

> *********************************************************************

> Share your story today! http://www.mosaicdownsyndrome.com

> *********************************************************

>

June 5, 2006

Lars,

I am glad that you have found our group and I hope that we can help in every

way that we can to give you information on MDS. Have you looked at our

organization's web site? www.imdsa.com We have information pages there also on

mosaic Down syndrome.

and, if you are interested in becoming a member of IMDSA you can receive our

quarterly newsletter MOSAIC WORLD that is full of information on mosaic Down

syndrome. If you do want to become a member you can do so on our site as well.

How did you find out that Kristoffer had MDS? Did they do a blood test that

they hadn't done before? Or, did they just clinically diagnose him because of

his lack of characteristics?

Please feel free to ask any questions you have on MDS. We all will be happy to

share experiences and answer your questions for you.

Kristy

Lars-Ø wrote:

Hello Kristy ,

We are a family of five. Our three boys are 2, 6 and 8y. We live in

Sandefjord in the south-east of Norway.

Our Son Kristoffer (6) is the one with Mosaic DS and Autism. He had

" only " Downs until last year when he, after a long process, was

diagnosed with Autism... Since then we have used every minute of the

day to get into Autism and Gluten-, Casein- and Soy-free diet and

biomedical treatment of Autistic children, with great sucsess.

We also just last month got the Mosaic diagnose. For the last four

years we have suspected Mosaic since he dosen't look like a typical

Downs Syndrome kid and have no typical visible signs.

Beside the short standard info about Mosaic provided by our lokal

Downs Syndrom network, your website and forum is our first " contact "

with the Mosaic world...

We are just starting to read some of the old treads on your forum now.

Best regards

Lars-Ã˜ystein

>

> Hi Everyone,

> We have a new family from Norway. This is what he had to say:

>

> From Norway with a son who has Mosaic DS and Autism. Would love to

> join your forum. Best Regards Lars-OEystein.

>

> Welcome Lars! Please tell us all about you and your family! How old

> is your son?

> Please feel free to ask any questions you have about MDS and Autism

> here. We will be glad to answer your questions and share our

> experiences.

>

> My son, Tim, is 20 and he also has MDS and Asperger syndrome (form

> of Autism).

>

> Kristy Colvin

> IMDSA President

> www.imdsa.com

> Mom to Arron 24, 21, Tim 20 MDS, Stevan 19, and Garrett 10

>

Become a member of IMDSA today at http://www.imdsa.com

*******************************************************

Contact IMDSA Today at:

IMDSA~PO Box 1052~lin,TX~77856~USA~1-~1-888-MDS-LINK

*********************************************************************

Share your story today! http://www.mosaicdownsyndrome.com

*********************************************************

June 5, 2006

Hi Darlene,

Do you have Autsim? Our first week after removing milkproducts

(casein) was hell for us. He went balistic with airplanefuel... just

like someone who don't get his " fix " of heroin... He was up on the

walls and up in the roof... almost... but after that week everything

has changed, and after removing Gluten (bread ect.) he has imporved

speech, from no words to about 10 words. Sleeps at night. He now has

eye contact. He seeks contact with others. He understand what we tell

him and responds to it. He understands more of the danger aspect. He

also developed humor. He is very lucky and have en computer both at

home and at school with touchscreen and he does some computergames and

programs in his daily training. The last months he also learned have

to make choices if he wants an pear or an papaya, or between different

computergames.

In the start of the GFCFSF-diet we had many mistakes of giving him

food that contained both gluten and casein, but now we have a 100 %

natural gluten free diet and no casein in any food, drinks or medicine.

Our Son, Kristoffer, have no Celiac but we have done a Peptidanalysis

of his urin and it came back with the " positive " result and we

startede the diett.

Lars-Ã˜ystein

Norway

> > >

> > > Hi Everyone,

> > > We have a new family from Norway. This is what he had to say:

> > >

> > > From Norway with a son who has Mosaic DS and Autism. Would love to

> > > join your forum. Best Regards Lars-OEystein.

> > >

> > > Welcome Lars! Please tell us all about you and your family! How old

> > > is your son?

> > > Please feel free to ask any questions you have about MDS and Autism

> > > here. We will be glad to answer your questions and share our

> > > experiences.

> > >

> > > My son, Tim, is 20 and he also has MDS and Asperger syndrome (form

> > > of Autism).

> > >

> > > Kristy Colvin

> > > IMDSA President

> > > www.imdsa.com

> > > Mom to Arron 24, 21, Tim 20 MDS, Stevan 19, and Garrett 10

> > >

> >

> > Become a member of IMDSA today at http://www.imdsa.com

> > *******************************************************

> > Contact IMDSA Today at:

> > IMDSA~PO Box 1052~lin,TX~77856~USA~1-~1-888-MDS-LINK

> > *********************************************************************

> > Share your story today! http://www.mosaicdownsyndrome.com

> > *********************************************************

> >

June 5, 2006

Hi Kirsty,

He only has an clinical diagnose because of his lack of

characteristics. He not only has the lack of characteristics, but he

also has an 6-pack stomack (or is it 8?) and are incredible strong to

only be 6y. But after the last days of net-surfing and reading treads

on this forum, we are going back to our doctor to make him do more

test of the blood and the skin.

All this new information about the Mosaic have opend yet another new

world for us... everytime our son has an new diagnose or new medicine,

we plunge into the internet and in some mysterious way it seams like

the internet " expands " for us... hehe. Before Kristoffer was born we

lived in our small lifes and had our jobs and all the daily

routines... but now... it's incredible how big the world is. :-)

And we seam to grow with it.

Lars-Ã˜ystein

Norway

> >

> > Hi Everyone,

> > We have a new family from Norway. This is what he had to say:

> >

> > From Norway with a son who has Mosaic DS and Autism. Would love to

> > join your forum. Best Regards Lars-OEystein.

> >

> > Welcome Lars! Please tell us all about you and your family! How old

> > is your son?

> > Please feel free to ask any questions you have about MDS and Autism

> > here. We will be glad to answer your questions and share our

> > experiences.

> >

> > My son, Tim, is 20 and he also has MDS and Asperger syndrome (form

> > of Autism).

> >

> > Kristy Colvin

> > IMDSA President

> > www.imdsa.com

> > Mom to Arron 24, 21, Tim 20 MDS, Stevan 19, and Garrett 10

> >

>

> Become a member of IMDSA today at http://www.imdsa.com

> *******************************************************

> Contact IMDSA Today at:

> IMDSA~PO Box 1052~lin,TX~77856~USA~1-~1-888-MDS-LINK

> *********************************************************************

> Share your story today! http://www.mosaicdownsyndrome.com

> *********************************************************

>

June 5, 2006

Lars -

has a diagnosis (from the school) of Aspergers which is on the Autism

Spectrum. Some people swear by the GF-CF diet but we found no difference

with on it and since we can't put our son on the diet without having

to go on it ourselves everyone went GF-CF. We stayed on it for a little

over a year - but lost so much weight on this diet and he was skinny

to begin with, on GF-CF he became more particular about what he eats. I am

hoping when he becomes a teenager his appetite will kick in - I have heard

of teenagers eating their parents out of house and home :-)

(who has MDS) loves working on the computer (so much so that I have

to limit her computer time - like TV time). She now has a device,

SpringBoard from the Prentke Romich Company, to help her with communication

- it is like a mini-laptop that speaks for her. She does give one word

utterances (two for Thank you) but the device helps her communicate with

teachers better. Over time they learn to communicate with - her

Kindergarten teacher know understands about 75% of the time but the

device helps them (especially when there are 20 kids in the class and they

need an answer fast).

As for Celiac, there are two markers that they look for (I don't remember

what they are) in the blood and last year one came up high - they did the

endoscopy and found one area that looked suspect. This year that marker

came up normal but the other came up high so we will do another endoscopy in

August.

Darlene - Mom to (9) and (7)

>

> Hi Darlene,

>

> Do you have Autsim? Our first week after removing milkproducts

> (casein) was hell for us. He went balistic with airplanefuel... just

> like someone who don't get his " fix " of heroin... He was up on the

> walls and up in the roof... almost... but after that week everything

> has changed, and after removing Gluten (bread ect.) he has imporved

> speech, from no words to about 10 words. Sleeps at night. He now has

> eye contact. He seeks contact with others. He understand what we tell

> him and responds to it. He understands more of the danger aspect. He

> also developed humor. He is very lucky and have en computer both at

> home and at school with touchscreen and he does some computergames and

> programs in his daily training. The last months he also learned have

> to make choices if he wants an pear or an papaya, or between different

> computergames.

>

> In the start of the GFCFSF-diet we had many mistakes of giving him

> food that contained both gluten and casein, but now we have a 100 %

> natural gluten free diet and no casein in any food, drinks or medicine.

>

> Our Son, Kristoffer, have no Celiac but we have done a Peptidanalysis

> of his urin and it came back with the " positive " result and we

> startede the diett.

>

> Lars-Ã˜ystein

> Norway

>

> > > >

> > > > Hi Everyone,

> > > > We have a new family from Norway. This is what he had to say:

> > > >

> > > > From Norway with a son who has Mosaic DS and Autism. Would love to

> > > > join your forum. Best Regards Lars-OEystein.

> > > >

> > > > Welcome Lars! Please tell us all about you and your family! How old

> > > > is your son?

> > > > Please feel free to ask any questions you have about MDS and Autism

> > > > here. We will be glad to answer your questions and share our

> > > > experiences.

> > > >

> > > > My son, Tim, is 20 and he also has MDS and Asperger syndrome (form

> > > > of Autism).

> > > >

> > > > Kristy Colvin

> > > > IMDSA President

> > > > www.imdsa.com

> > > > Mom to Arron 24, 21, Tim 20 MDS, Stevan 19, and Garrett 10

> > > >

> > >

> > > Become a member of IMDSA today at http://www.imdsa.com

> > > *******************************************************

> > > Contact IMDSA Today at:

> > > IMDSA~PO Box 1052~lin,TX~77856~USA~1-~1-888-MDS-LINK

> > > *********************************************************************

> > > Share your story today! http://www.mosaicdownsyndrome.com

> > > *********************************************************

> > >

June 5, 2006

Hello Darlene,

I dont know where you live, but here in Norway we have the glutenfree

food and the natural-glutenfree food... in the gluten free food there

can be up to 0,3% gluten (often there is more) but in the natural

gluten free there are absolute 0% of gluten. That difference took a

time for us to notice since there are nobody to tell us (except for

internet forums). The difference are very important. We are fortunate

to have Karl Ludvig Richelt here in Norway to. (the man with the

peptid analysis Ref; Jaquelyn McCandless's book " Children with

starving brains " ).

We are lucky that the whole family does not have to do the diet.

Our son also lost some weight in the beginning, but after that we

startet to " heal the gut " with Probiotics and added more vitamines,

minerals, Omega-3's, calsium and " smart food " with lots of

antioxidants and vimines (avocado, garlic, broccoli, papaya ect.).

He gained weiht again. We also reduced and almost removed all the

sugar, not to feed the Candida.

Lars-Ã˜ystein

Norway

> > > > >

> > > > > Hi Everyone,

> > > > > We have a new family from Norway. This is what he had to say:

> > > > >

> > > > > From Norway with a son who has Mosaic DS and Autism. Would

love to

> > > > > join your forum. Best Regards Lars-OEystein.

> > > > >

> > > > > Welcome Lars! Please tell us all about you and your family!

How old

> > > > > is your son?

> > > > > Please feel free to ask any questions you have about MDS and

Autism

> > > > > here. We will be glad to answer your questions and share our

> > > > > experiences.

> > > > >

> > > > > My son, Tim, is 20 and he also has MDS and Asperger syndrome

(form

> > > > > of Autism).

> > > > >

> > > > > Kristy Colvin

> > > > > IMDSA President

> > > > > www.imdsa.com

> > > > > Mom to Arron 24, 21, Tim 20 MDS, Stevan 19, and

Garrett 10

> > > > >

> > > >

> > > > Become a member of IMDSA today at http://www.imdsa.com

> > > > *******************************************************

> > > > Contact IMDSA Today at:

> > > > IMDSA~PO Box

1052~lin,TX~77856~USA~1-~1-888-MDS-LINK

> > > >

*********************************************************************

> > > > Share your story today! http://www.mosaicdownsyndrome.com

> > > > *********************************************************

> > > >

June 5, 2006

and there's more!!

Lars also wrote:

My name is Lars Iversen (30), I'm the father of tre boys, 2, 6 and 9.

One of them (6) are born in 1999. He was diagnosed with Downs Syndrome

14 days after birth. He wasn't the typical Downs Syndrome kid and never

had any signs so after much delay... in the summer of '05 he also got

the Autism Diagnosis, and has since then gone over to an gluten-,

casein- and soyafree diet. With great sucsess. We just recived an new

kromosone test with the diagnosis Mosaic.

Welcome Iverson family!!!

--- Kristy Colvin wrote:

> Hi Everyone,

> We have a new family from Norway. This is what he had to say:

>

> From Norway with a son who has Mosaic DS and Autism. Would love to

> join your forum. Best Regards Lars-OEystein.

>

> Welcome Lars! Please tell us all about you and your family! How old

> is your son?

> Please feel free to ask any questions you have about MDS and Autism

> here. We will be glad to answer your questions and share our

> experiences.

>

> My son, Tim, is 20 and he also has MDS and Asperger syndrome (form

> of Autism).

>

> Kristy Colvin

> IMDSA President

> www.imdsa.com

> Mom to Arron 24, 21, Tim 20 MDS, Stevan 19, and Garrett 10

>

__________________________________________________

June 5, 2006

Lars,

You have a beautiful son! I am glad that I could see his picture. If you would

like to post his picture on our photo album you can do that by sending the

picture to our secretary/web mistress, Twomey and she will put it up for

you. Our photo albulm is password protected and only those who are part of this

egroup can view the pictures. To go to our photo albulm just go to:

http://www.imdsa.com/photos.htm

User ID is: vktphipps

Password: mds

Kristoffer is so lucky to have wonderful parents like you and your wife! I

know that he is going to thrive and succeed with the love and care that you give

him.

It is amazing that with the invention of the internet we can learn so much

from eachother. When my son was diagnosed there was no information and once the

internet came about I was able to learn so much that I soaked it up like a

sponge!

Kristy

Lars-Ø wrote:

Hi Kirsty,

He only has an clinical diagnose because of his lack of

characteristics. He not only has the lack of characteristics, but he

also has an 6-pack stomack (or is it 8?) and are incredible strong to

only be 6y. But after the last days of net-surfing and reading treads

on this forum, we are going back to our doctor to make him do more

test of the blood and the skin.

All this new information about the Mosaic have opend yet another new

world for us... everytime our son has an new diagnose or new medicine,

we plunge into the internet and in some mysterious way it seams like

the internet " expands " for us... hehe. Before Kristoffer was born we

lived in our small lifes and had our jobs and all the daily

routines... but now... it's incredible how big the world is. :-)

And we seam to grow with it.

Lars-Ã˜ystein

Norway

> >

> > Hi Everyone,

> > We have a new family from Norway. This is what he had to say:

> >

> > From Norway with a son who has Mosaic DS and Autism. Would love to

> > join your forum. Best Regards Lars-OEystein.

> >

> > Welcome Lars! Please tell us all about you and your family! How old

> > is your son?

> > Please feel free to ask any questions you have about MDS and Autism

> > here. We will be glad to answer your questions and share our

> > experiences.

> >

> > My son, Tim, is 20 and he also has MDS and Asperger syndrome (form

> > of Autism).

> >

> > Kristy Colvin

> > IMDSA President

> > www.imdsa.com

> > Mom to Arron 24, 21, Tim 20 MDS, Stevan 19, and Garrett 10

> >

>

> Become a member of IMDSA today at http://www.imdsa.com

> *******************************************************

> Contact IMDSA Today at:

> IMDSA~PO Box 1052~lin,TX~77856~USA~1-~1-888-MDS-LINK

> *********************************************************************

> Share your story today! http://www.mosaicdownsyndrome.com

> *********************************************************

>

June 5, 2006

Sorry,

I forgot to give you 's email address to send your picture. It is

mosaicdownsyndrome@...

Kristy

Kristy Colvin wrote:

Lars,

You have a beautiful son! I am glad that I could see his picture. If you would

like to post his picture on our photo album you can do that by sending the

picture to our secretary/web mistress, Twomey and she will put it up for

you. Our photo albulm is password protected and only those who are part of this

egroup can view the pictures. To go to our photo albulm just go to:

http://www.imdsa.com/photos.htm

User ID is: vktphipps

Password: mds

Kristoffer is so lucky to have wonderful parents like you and your wife! I

know that he is going to thrive and succeed with the love and care that you give

him.

It is amazing that with the invention of the internet we can learn so much

from eachother. When my son was diagnosed there was no information and once the

internet came about I was able to learn so much that I soaked it up like a

sponge!

Kristy

Lars-Ø wrote:

Hi Kirsty,

He only has an clinical diagnose because of his lack of

characteristics. He not only has the lack of characteristics, but he

also has an 6-pack stomack (or is it 8?) and are incredible strong to

only be 6y. But after the last days of net-surfing and reading treads

on this forum, we are going back to our doctor to make him do more

test of the blood and the skin.

All this new information about the Mosaic have opend yet another new

world for us... everytime our son has an new diagnose or new medicine,

we plunge into the internet and in some mysterious way it seams like

the internet " expands " for us... hehe. Before Kristoffer was born we

lived in our small lifes and had our jobs and all the daily

routines... but now... it's incredible how big the world is. :-)

And we seam to grow with it.

Lars-Ã˜ystein

Norway

> >

> > Hi Everyone,

> > We have a new family from Norway. This is what he had to say:

> >

> > From Norway with a son who has Mosaic DS and Autism. Would love to

> > join your forum. Best Regards Lars-OEystein.

> >

> > Welcome Lars! Please tell us all about you and your family! How old

> > is your son?

> > Please feel free to ask any questions you have about MDS and Autism

> > here. We will be glad to answer your questions and share our

> > experiences.

> >

> > My son, Tim, is 20 and he also has MDS and Asperger syndrome (form

> > of Autism).

> >

> > Kristy Colvin

> > IMDSA President

> > www.imdsa.com

> > Mom to Arron 24, 21, Tim 20 MDS, Stevan 19, and Garrett 10

> >

>

> Become a member of IMDSA today at http://www.imdsa.com

> *******************************************************

> Contact IMDSA Today at:

> IMDSA~PO Box 1052~lin,TX~77856~USA~1-~1-888-MDS-LINK

> *********************************************************************

> Share your story today! http://www.mosaicdownsyndrome.com

> *********************************************************

>

June 5, 2006

Lars -

I had never heard that gluten free food was allowed to have 0.3% of gluten!

That is good to know especially due to 's test. We ate mostly plain

foods - plain chicken, plain veggies, plain fruit - that is why that diet

was so hard on me - it was BORING!

does not understand why she can't do everything and eat everything

that anyone else in the family has. This is an issue at church since she is

the youngest and I have to tell her that she can not have communion until

she goes through 3 years of CCD. If we do something she wants to do it too,

eat something she wants it eat it too - so if she is going gluten-free so

will we all.

Darlene

P.S. - we live in PA (in the USA)

>

> Hello Darlene,

>

> I dont know where you live, but here in Norway we have the glutenfree

> food and the natural-glutenfree food... in the gluten free food there

> can be up to 0,3% gluten (often there is more) but in the natural

> gluten free there are absolute 0% of gluten. That difference took a

> time for us to notice since there are nobody to tell us (except for

> internet forums). The difference are very important. We are fortunate

> to have Karl Ludvig Richelt here in Norway to. (the man with the

> peptid analysis Ref; Jaquelyn McCandless's book " Children with

> starving brains " ).

>

> We are lucky that the whole family does not have to do the diet.

> Our son also lost some weight in the beginning, but after that we

> startet to " heal the gut " with Probiotics and added more vitamines,

> minerals, Omega-3's, calsium and " smart food " with lots of

> antioxidants and vimines (avocado, garlic, broccoli, papaya ect.).

> He gained weiht again. We also reduced and almost removed all the

> sugar, not to feed the Candida.

>

> Lars-Ã˜ystein

> Norway

>

> > > > > >

> > > > > > Hi Everyone,

> > > > > > We have a new family from Norway. This is what he had to say:

> > > > > >

> > > > > > From Norway with a son who has Mosaic DS and Autism. Would

> love to

> > > > > > join your forum. Best Regards Lars-OEystein.

> > > > > >

> > > > > > Welcome Lars! Please tell us all about you and your family!

> How old

> > > > > > is your son?

> > > > > > Please feel free to ask any questions you have about MDS and

> Autism

> > > > > > here. We will be glad to answer your questions and share our

> > > > > > experiences.

> > > > > >

> > > > > > My son, Tim, is 20 and he also has MDS and Asperger syndrome

> (form

> > > > > > of Autism).

> > > > > >

> > > > > > Kristy Colvin

> > > > > > IMDSA President

> > > > > > www.imdsa.com

> > > > > > Mom to Arron 24, 21, Tim 20 MDS, Stevan 19, and

> Garrett 10

> > > > > >

> > > > >

> > > > > Become a member of IMDSA today at http://www.imdsa.com

> > > > > *******************************************************

> > > > > Contact IMDSA Today at:

> > > > > IMDSA~PO Box

> 1052~lin,TX~77856~USA~1-~1-888-MDS-LINK

> > > > >

> *********************************************************************

> > > > > Share your story today! http://www.mosaicdownsyndrome.com

> > > > > *********************************************************

> > > > >

June 6, 2006

I'v been told that the reason for the " glutenfree " and " natural

glutenfree " is that people with Celiac in most cases can tolerate 0,3%

gluten, and that it is " glutenfree " enough. And people with

" Hyperpeptiduri " like many Autistic people have, can't tolerate any

gluten so they must have 0% gluten in their foods. In some cases even

soy(soya) and corn(mais) are removed because the proteins in soy and

corn looks alot like gluten, and can do the same damage.

I can't say it is so boring to be on the diet... Our family eat less

food with gluten and casein than we used to do... but... now we eat

more healthy food, more vegetables, berries, herbs, pure meat and

" cleaner " food. Lots of recipies from mexico, thailand, india ect. As

you might know, we also must prepare much food from the basic, but

more and more of the foodstores take in more and more " Clean food " and

gluten and caseinfree food.

Some of the links we use;

www.autismwebsite.com/ari/index.htm

www.varvei.no - Norwegian site by a mom who has an utistic son.

www.autismspeaks.com

www.neurozym.com - Norwegian Company wich test for peptids

www.tacanow.com

www.autismndi.com

www.autismndi.com/links

www.drneubrander.com/page1.html

www.cureautismnow.org

www.combatautism.org

www.danmarinofoundation.org

www.firstsigns.org

www.researchautism.org

www.naar.org

www.autismtoday.com

www.unc.edu/~cory/autism-info/autism-info.html

www.autismone.org

www.actagainstautism.org.uk/presentations

www.actagainstautism.org.uk

www.autismndi.com

www.danconference.com

On the most of the sites there are links to other sites with info and

mediaclips about Autism and Diet.

Lars-Ã˜ystein

> > > > > > >

> > > > > > > Hi Everyone,

> > > > > > > We have a new family from Norway. This is what he had to

say:

> > > > > > >

> > > > > > > From Norway with a son who has Mosaic DS and Autism. Would

> > love to

> > > > > > > join your forum. Best Regards Lars-OEystein.

> > > > > > >

> > > > > > > Welcome Lars! Please tell us all about you and your family!

> > How old

> > > > > > > is your son?

> > > > > > > Please feel free to ask any questions you have about MDS and

> > Autism

> > > > > > > here. We will be glad to answer your questions and share our

> > > > > > > experiences.

> > > > > > >

> > > > > > > My son, Tim, is 20 and he also has MDS and Asperger syndrome

> > (form

> > > > > > > of Autism).

> > > > > > >

> > > > > > > Kristy Colvin

> > > > > > > IMDSA President

> > > > > > > www.imdsa.com

> > > > > > > Mom to Arron 24, 21, Tim 20 MDS, Stevan 19, and

> > Garrett 10

> > > > > > >

> > > > > >

> > > > > > Become a member of IMDSA today at http://www.imdsa.com

> > > > > > *******************************************************

> > > > > > Contact IMDSA Today at:

> > > > > > IMDSA~PO Box

> > 1052~lin,TX~77856~USA~1-~1-888-MDS-LINK

> > > > > >

> > *********************************************************************

> > > > > > Share your story today! http://www.mosaicdownsyndrome.com

> > > > > > *********************************************************

> > > > > >

June 6, 2006

Lars -

Thank you for all the websites we may need them in the summer - the one we

used to use a lot of was www.kinnikinnick.com out of Canada - I realize that

was 3 years ago and there are a whole lot more on the internet now than

there were then. I am just used to being on an Italian-food based diet

(lots of pasta, pizza and cheese) therefore if you remove my pasta, bread,

and cheeses - I have to re-learn to cook ;-) Never liked any of the Rice

Pastas - too mushy.

Darlene - Mom to (9) and (7)

>

> I'v been told that the reason for the " glutenfree " and " natural

> glutenfree " is that people with Celiac in most cases can tolerate 0,3%

> gluten, and that it is " glutenfree " enough. And people with

> " Hyperpeptiduri " like many Autistic people have, can't tolerate any

> gluten so they must have 0% gluten in their foods. In some cases even

> soy(soya) and corn(mais) are removed because the proteins in soy and

> corn looks alot like gluten, and can do the same damage.

>

> I can't say it is so boring to be on the diet... Our family eat less

> food with gluten and casein than we used to do... but... now we eat

> more healthy food, more vegetables, berries, herbs, pure meat and

> " cleaner " food. Lots of recipies from mexico, thailand, india ect. As

> you might know, we also must prepare much food from the basic, but

> more and more of the foodstores take in more and more " Clean food " and

> gluten and caseinfree food.

>

> Some of the links we use;

> www.autismwebsite.com/ari/index.htm

> www.varvei.no - Norwegian site by a mom who has an utistic son.

> www.autismspeaks.com

> www.neurozym.com - Norwegian Company wich test for peptids

> www.tacanow.com

> www.autismndi.com

> www.autismndi.com/links

> www.drneubrander.com/page1.html

> www.cureautismnow.org

> www.combatautism.org

> www.danmarinofoundation.org

> www.firstsigns.org

> www.researchautism.org

> www.naar.org

> www.autismtoday.com

>

www.unc.edu/~cory/autism-info/autism-info.html<http://www.unc.edu/%7Ecory/autism\

-info/autism-info.html>

> www.autismone.org

> www.actagainstautism.org.uk/presentations

> www.actagainstautism.org.uk

> www.autismndi.com

> www.danconference.com

>

> On the most of the sites there are links to other sites with info and

> mediaclips about Autism and Diet.

>

> Lars-Ã˜ystein

>

> > > > > > > >

> > > > > > > > Hi Everyone,

> > > > > > > > We have a new family from Norway. This is what he had to

> say:

> > > > > > > >

> > > > > > > > From Norway with a son who has Mosaic DS and Autism. Would

> > > love to

> > > > > > > > join your forum. Best Regards Lars-OEystein.

> > > > > > > >

> > > > > > > > Welcome Lars! Please tell us all about you and your family!

> > > How old

> > > > > > > > is your son?

> > > > > > > > Please feel free to ask any questions you have about MDS and

> > > Autism

> > > > > > > > here. We will be glad to answer your questions and share our

> > > > > > > > experiences.

> > > > > > > >

> > > > > > > > My son, Tim, is 20 and he also has MDS and Asperger syndrome

> > > (form

> > > > > > > > of Autism).

> > > > > > > >

> > > > > > > > Kristy Colvin

> > > > > > > > IMDSA President

> > > > > > > > www.imdsa.com

> > > > > > > > Mom to Arron 24, 21, Tim 20 MDS, Stevan 19, and

> > > Garrett 10

> > > > > > > >

> > > > > > >

> > > > > > > Become a member of IMDSA today at http://www.imdsa.com

> > > > > > > *******************************************************

> > > > > > > Contact IMDSA Today at:

> > > > > > > IMDSA~PO Box

> > > 1052~lin,TX~77856~USA~1-~1-888-MDS-LINK

> > > > > > >

> > > *********************************************************************

> > > > > > > Share your story today! http://www.mosaicdownsyndrome.com

> > > > > > > *********************************************************

> > > > > > >

June 8, 2006

--

Hello Lars!

Welcome! I recently joined also and have a 4year old daughter with

MDS. She has a big speech delay but no visible signs either. We

are working on speech and she is progressing really well. She has

some AWESOME teachers now and it is wonderful to see all her hard

work start paying off. Because of the speech delay she was

exhibiting some autistic like signs but doesn't have. You will find

alot of encouragement and ideas and help and support here.

Donna:-)

*********************************************************************

- In MosaicDS , Lars-Ø wrote:

>

> Hello Kristy ,

> We are a family of five. Our three boys are 2, 6 and 8y. We live

in

> Sandefjord in the south-east of Norway.

> Our Son Kristoffer (6) is the one with Mosaic DS and Autism. He had

> " only " Downs until last year when he, after a long process, was

> diagnosed with Autism... Since then we have used every minute of

the

> day to get into Autism and Gluten-, Casein- and Soy-free diet and

> biomedical treatment of Autistic children, with great sucsess.

> We also just last month got the Mosaic diagnose. For the last four

> years we have suspected Mosaic since he dosen't look like a typical

> Downs Syndrome kid and have no typical visible signs.

>

> Beside the short standard info about Mosaic provided by our lokal

> Downs Syndrom network, your website and forum is our

first " contact "

> with the Mosaic world...

>

> We are just starting to read some of the old treads on your forum

now.

>

> Best regards

> Lars-Ã˜ystein

>

> >

>

June 8, 2006

Hi Donna,

Our son startet between around 18 months to spinn wheels, flapp his

hands. He startet to rock back and forth. He then also started to,

again and again, bang his head into walls, the side of the bed and

anything he could sit next to. He also startet to be fixated on water.

Put all of his food in the mouth at once. Making noises like " YYYYYYY

YYYYYYY " all day long. And he startet to put everything back into his

mouth like he used to do earlyer. He could ramble around in the bed

for hours and wake up in the middle of the night and very early in the

morning. He had som baby babling but this went away.

In kindergarden they trained with him but only with Downs syndrome i

mind. He was then testet, at age 5 and a half, and found that he

mentally was between 6 and 18 months in the development after this we

had some more tested done and the diagnose was Autism.

When he started school (fall '05) he was on the GFCF-diet and also

started ABA training. Since then he had great sucsess. Starting to

want to have eyecontact, babling, gained som words (11 by now), makes

choices, helps to dress and undress, want to have contact with other

people, can sit still for 30 minuttes to watch TV, sits still while

eating dinner and starts to use a fork, takes his vitamines willingly

by him self, gotten a sense of humor and many other small things. AND

he can look at wather without putting his hands into it or stepp into

the puddle or pool.

I must say i feel very welcome here. Tanks to you all. I think i have

learned more about downs and mosaic the last week than I ever did

before. In these treads i have up til now mostly writen about our son

and his MDS and Autism, but I'm also reading many of the old treads.

What kind of training do your daughter have for the speech delay? We

are in the ABA training and the speech training we do consists of

mimicing and repeating.

Lars-OEystein

> >

> > Hello Kristy ,

> > We are a family of five. Our three boys are 2, 6 and 8y. We live

> in

> > Sandefjord in the south-east of Norway.

> > Our Son Kristoffer (6) is the one with Mosaic DS and Autism. He had

> > " only " Downs until last year when he, after a long process, was

> > diagnosed with Autism... Since then we have used every minute of

> the

> > day to get into Autism and Gluten-, Casein- and Soy-free diet and

> > biomedical treatment of Autistic children, with great sucsess.

> > We also just last month got the Mosaic diagnose. For the last four

> > years we have suspected Mosaic since he dosen't look like a typical

> > Downs Syndrome kid and have no typical visible signs.

> >

> > Beside the short standard info about Mosaic provided by our lokal

> > Downs Syndrom network, your website and forum is our

> first " contact "

> > with the Mosaic world...

> >

> > We are just starting to read some of the old treads on your forum

> now.

> >

> > Best regards

> > Lars-Ã˜ystein

> >

>

> > >

> >

>

Sign In

Re: New Family From Norway!

Recommended Posts

Guest guest

Link to comment

Share on other sites

Guest guest

Link to comment

Share on other sites

Guest guest

Link to comment

Share on other sites

Guest guest

Link to comment

Share on other sites

Guest guest

Link to comment

Share on other sites

Guest guest

Link to comment

Share on other sites

Guest guest

Link to comment

Share on other sites

Guest guest

Link to comment

Share on other sites

Guest guest

Link to comment

Share on other sites

Guest guest

Link to comment

Share on other sites

Guest guest

Link to comment

Share on other sites

Guest guest

Link to comment

Share on other sites

Guest guest

Link to comment

Share on other sites

Guest guest

Link to comment

Share on other sites

Guest guest

Link to comment

Share on other sites

Join the conversation

Activity