Guest guest Posted June 6, 1999 Report Share Posted June 6, 1999 Hello, my name is Barbara and my granddaughter, Kelsie, was diagnosed with CHARGE just days after birth. She is now almost two. She has had several surgeries to correct the atresia, also tubes in her ears. I can't say enough about the doctors at Children's Hospital in Birmingham, Alabama. They have been wonderful. Because of their knowledge, skill, and caring, Kelsie is progressing beautifully. She is our " little miracle " . I have only recently found the website and began reading your messages. I have been inspired by your support of each other. However, my problem at this point is not my granddaughter but my daughter. She is a wonderful mother to all three of the children, Jarrod is 7, Kelsie (CHARGE) is almost 2, and Ken is 1. My daughter would do anything for her children. However, a well intentioned (?) neighbor has told my daughter that she found some information on CHARGE and that CHARGE is caused by a " gestational brain injury " and even asked if my daughter had a fall or something while pregnant. You can probably imagine the guilt she is feeling. She thinks that she did something to cause Kelsie's health problems. Have any of you ever heard of anything like this? Has anything like this ever happened to any of you? Do you have any ideas on handling this? This is a tough one and I appreciate any help you can give me. My daughter has been so brave during all the crisis, surgeries, and so forth. But this has knocked her to her knees. Quote Link to comment Share on other sites More sharing options...
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