Re: Questions about the mold diet and more...reply

[Guest guest]

Sue, I can relate. At least you are trying. Is 14 up or down for you

Sue?

>> My last MSH was 14! I have an appt. on Monday so I'lltry to find

out what's

> up. I know low MSH isn't good and you get more inflammation which

[Guest guest]

, Actually I see that my test results actually say '<8', so I

guess mine was same as yours. Hopefully since I am out of mold house,

they have gone up too-? When I first took test Blue Cross paid for it

but right after that they reassigned it as 'research status' test only

and notified Dr Shoemaker that test was not covered any longer so

probably will not retake it any time soon.

--- In , " smarshwar " <smarshwar@...>

wrote:

>

> Yes, I believe that 41 is in the normal range. My first test was

> below 8 which is reported as " undetectable. " My second one was 12

> which is still quite low, but better.

>

> -

[Guest guest]

Yes, that's good.

>

>

> does that mean 41 is good? Undetectable to 12 seems lower than 41.

>

[Guest guest]

Sue, did you see on Wild Oats site, they had a link to a list of

gluten free foods.

>

>

> The gluten free diet sounds good to me but I just don't know where

to start.

> If I could go to the grocery store to buy everything I need it would

be

> easy. I'll have to continue to research.

>

> Thanks, Sue

>

[Guest guest]

Sue, the way that I started was to figure out how I could prepare

gluten-free foods myself because there were few, if any, available in

the grocery store. One good resource is the Celiac Sprue Association

www.csaceliacs.org Also, most manufacturers now provide allergen

information on their web sites. Feel free to ask if you have any

questions.

-

>

>

> The gluten free diet sounds good to me but I just don't know where

to start.

> If I could go to the grocery store to buy everything I need it

would be

> easy. I'll have to continue to research.

>

> Thanks, Sue

[Guest guest]

Sue,

The diet is a bit over-whelming at first. However, if you just shop

for the basics such as meats (or beans if you're vegetarian),

nuts/seeds (I live on pumpkin seeds), veggies, fruit and plain rice

(you have to watch as some enriched rices can have gluten-derived

additives) then you don't have to worry about gluten. You pretty

much have to avoid all prepared foods unless they are labeled Gluten-

free. This is how I transitioned to the diet over 3 years ago.

Then, when my kids were also diagnosed, I started replacing all their

grains with the gluten-free grains and when I started eating that

stuff, I was getting sick again. That's when I figured out that I

really can't tolerate most grains. But, when I read Mold Warriors, I

realized it was likely the amylose that was impacting me. I have to

follow the low-amylose diet while on the CSM as I also had Lyme and

it goes a long way towards making me feel better. I ate 2 GF cookies

that I was baking for my kids two days ago and felt awful (of course,

the sugar can do that, as well).

Once you get into the routine, the diet is quite easy to follow. The

major issue remains eating out as the potential for cross-

contamination is so high. So, I pretty much don't eat out unless I

absolutely have to and then I use the money I save to buy the organic

meats, veggies, etc. I am also fortunate in that my whole house must

be on the diet, so there's no issue with contamination at home.

And, there's a whole nother support group to help you through this

process: Sillyyaks

Be well,

B

>

>

> The gluten free diet sounds good to me but I just don't know where

to start.

> If I could go to the grocery store to buy everything I need it

would be

> easy. I'll have to continue to research.

>

> Thanks, Sue

>

> I'm not , but I have been on a gluten free diet for over

seven

> years. When I started the diet doctors were ambivalent about

whether

> it would help with my symptoms or was necessary. From my own

research

> I thought it would help me (it did). Now, my doctors are quite

> supportive (things do change).

>

>

>

>

>

>

>

[Guest guest]

Thanks, ! It is very over-whelming but I'll start with meats and

veggies. I'm not a dessert person so that won't be difficult. How about jello

can

you eat that and what about frozen veggies, are they okay to eat or should it

be strictly fresh?

Sue

Sue,

The diet is a bit over-whelming at first. However, if you just shop

for the basics such as meats (or beans if you're vegetarian),

nuts/seeds (I live on pumpkin seeds), veggies, fruit and plain rice

(you have to watch as some enriched rices can have gluten-derived

additives) then you don't have to worry about gluten. You pretty

much have to avoid all prepared foods unless they are labeled Gluten-

free. This is how I transitioned to the diet over 3 years ago.

Then, when my kids were also diagnosed, I started replacing all their

grains with the gluten-free grains and when I started eating that

stuff, I was getting sick again.

[Guest guest]

Thanks, !

Sue, the way that I started was to figure out how I could prepare

gluten-free foods myself because there were few, if any, available in

the grocery store. One good resource is the Celiac Sprue Association

www.csaceliacs.www.csaceliacs.<WBR>org Also, most manufacturers now p

information on their web sites. Feel free to ask if you have any

questions.

-

[Guest guest]

, Do I only need to follow the low amylose diet while you are on

CSM?

when I read Mold Warriors, I

> realized it was likely the amylose that was impacting me. I have to

> follow the low-amylose diet while on the CSM

[Guest guest]

I think the low amylose diet helps even when you're not taking CSM as

it helps to minimize the pro-inflammatory cytokines, which are often

elevated in most of us with biotoxin exposure. I know the diet is

imperative for Lyme patients while on the CSM (to feel well) as the

combination of the cytokines from the Lyme toxins, along with the

increase while on CSM often makes Lyme patients feel far worse on CSM

(that was certainly my experience even with the diet and fish oil).

However, my kids did not have to follow the low amylose diet while on

CSM and they didn't seem to experience much additional inflammation,

but their only source of biotoxins was the house. So, I think it

really depends upon your level and source of inflammation. With Lyme,

you've got the spirochete constantly producing the toxins, even while

you're removing them. So, I'm likely a worst case scenario and perhaps

get a much larger benefit from following the diet than others might

experience.

B

> when I read Mold Warriors, I

> > realized it was likely the amylose that was impacting me. I have

to

> > follow the low-amylose diet while on the CSM

>

[Guest guest]

Sometimes frozen veggies are actually fresher than the ones bought at

a roadside stand or the supermarket. Sometimes the fresh ones have

been on the shelf for days or the road side has been exposed to

extreme heat. Most frozen vegatables are frozen as soon as harvested

st therefore, they do not have time to get " old. "

Last summer my friend was given a supposely fresh tomatoe by a friend,

She went home and had a tomatoe sandwich and came up with and awful

case of food poison. Come to find out, everyone who had tomatoes from

that batch got ill because the tomatoes had been exposed to too much

sun and heat. The tomatoes looked good too.

>

>

> Thanks, ! It is very over-whelming but I'll start with meats

and

> veggies. I'm not a dessert person so that won't be difficult. How

about jello can

> you eat that and what about frozen veggies, are they okay to eat or

should it

> be strictly fresh?

>

> Sue

>

>

>

>

> Sue,

>

> The diet is a bit over-whelming at first. However, if you just

shop

> for the basics such as meats (or beans if you're vegetarian),

> nuts/seeds (I live on pumpkin seeds), veggies, fruit and plain

rice

> (you have to watch as some enriched rices can have gluten-derived

> additives) then you don't have to worry about gluten. You pretty

> much have to avoid all prepared foods unless they are labeled

Gluten-

> free. This is how I transitioned to the diet over 3 years ago.

> Then, when my kids were also diagnosed, I started replacing all

their

> grains with the gluten-free grains and when I started eating that

> stuff, I was getting sick again.

>

>

>

>

>

>

>

[Guest guest]

So when we eat non-organic meats we are eating hormones and whatever

the animal ingest including mold in feed, right? YUCK. If I had

someone to cook for me, I'd be totally vegetarian anyhow and do not

eat meat daily. It is hard enough for me to figure out what to eat

and figuring out gluten free and all that seems hard. How would I

even know I have a gluten intolerance? I may have already ask that.

I wish I was rich enough to hire a chef and eat clean, good food that

taste good daily. Wishful thinking....I may check out some gluten

free foods. We have a Whole Foods around but not close to me but

might be other places I can find it. Whole Foods can be expensive

too. No, I can't see me eating seeds everyday living off that but I

love my veggies and eat them but need more calories than that. I like

beans but good gosh.............what they do isn't fun. I don't eat

much bread but do pasta and probably eat way too much processed

foods. Oh, and once I tried making some veggie juice and it turned

out way green from spinach and wasn't quite like my V8. If I keep

practicing, maybe I can master the veggie juice. I can drink 64oz of

V8 a day. I'm addicted....and low sodium I buy...

Rhonda

> >

> >

> > The gluten free diet sounds good to me but I just don't know

where

> to start.

> > If I could go to the grocery store to buy everything I need it

> would be

> > easy. I'll have to continue to research.

> >

> > Thanks, Sue

> >

> > I'm not , but I have been on a gluten free diet for over

> seven

> > years. When I started the diet doctors were ambivalent about

> whether

> > it would help with my symptoms or was necessary. From my own

> research

> > I thought it would help me (it did). Now, my doctors are quite

> > supportive (things do change).

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

Jello itself is gluten-free, but I avoid it due to the artificial

colors and sugar. I make jello for my kids using the plain gelatin

and fruit juice. There's usually a recipe on the packets of gelatin

for " Knox blox " . I also make a pumpkin pie for my own treat using

the gelatin - it ends up having a custard texture. This works well

for me because I'm allergic to eggs. It's basically a recipe similar

to the jello, just replacing the juice with almond milk (or regular

milk if you can tolerate). Then I just add a large can of pumpkin

along with a little bit of molasses and spices and pour it in pie

pans and chill. If I weren't so lazy, I would make a crust using

ground pumpkin seeds mixed with coconut oil (pecan meal is even

better, but I also developed an allergy to pecans).

As others have mentioned, you can sometimes do better with frozen

veggies rather than fresh, particularly this time of year. Our local

Super Target actually has frozen organic veggies. Although, my

favorite veggie this time of year is butternut squash. I cube it,

drizzle with olive oil and sea salt and bake for 45 minutes to an

hour.

Good luck.

B.

>

>

> Thanks, ! It is very over-whelming but I'll start with meats

and

> veggies. I'm not a dessert person so that won't be difficult. How

about jello can

> you eat that and what about frozen veggies, are they okay to eat or

should it

> be strictly fresh?

>

> Sue

>

>

>

>

> Sue,

>

> The diet is a bit over-whelming at first. However, if you just

shop

> for the basics such as meats (or beans if you're vegetarian),

> nuts/seeds (I live on pumpkin seeds), veggies, fruit and plain

rice

> (you have to watch as some enriched rices can have gluten-derived

> additives) then you don't have to worry about gluten. You pretty

> much have to avoid all prepared foods unless they are labeled

Gluten-

> free. This is how I transitioned to the diet over 3 years ago.

> Then, when my kids were also diagnosed, I started replacing all

their

> grains with the gluten-free grains and when I started eating that

> stuff, I was getting sick again.

>

>

>

>

>

>

>

[Guest guest]

My understanding is that a higher protein diet is often helpful for

detoxification. I know that I cannot do vegetarian as I tried it for

a while and did not feel well. Philosophically I totally agree with

the concept. I've migrated towards following the blood type diet

(I'm type O, which is the high protein type), as I encountered so

much overlap between the foods that caused me grief (grains and

dairy) and those I do well with. And, yes, if you eat regular

grocery store meat, you will get lots of hormones. I can only

tolerate the meats that are grass fed (I think I even react to the

organic meats at Whole Foods when they are fed a high grain diet). I

also eat alot of wild Alaskan Salmon, which is supposedly the lowest

in mercury.

It may seem time consuming, but on the average my meals are ready in

30-45 minutes and most of the time, I just pop everything in the

oven, drizzled in olive oil and sprinkled with sea salt. Alot of

veggies, like green beans and asparagus cook quite well in this

manner. Or, I'll steam the veggies. And, yes, this is very plain

food, but you can add different spices and juices (I like fresh

squeezed lemon) to enhance the flavor.

The veggie juicing is wonderful for detoxing, but as you mention you

do need protein. You could try nut butters and if you have a juicer,

those sometimes have attachments so that you can make your own nut

butters. I started out juicing just carrots and then gradually

increased the amount of greens, with parsley being the main green I

use now. Although, I honestly don't think you save any money juicing

yourself when you use the organic veggies, it is definitely far

fresher and more nutritious than what you can buy.

Be well,

B

>

> So when we eat non-organic meats we are eating hormones and

whatever

> the animal ingest including mold in feed, right? YUCK. If I had

> someone to cook for me, I'd be totally vegetarian anyhow and do not

> eat meat daily. It is hard enough for me to figure out what to eat

> and figuring out gluten free and all that seems hard. How would I

> even know I have a gluten intolerance? I may have already ask

that.

> I wish I was rich enough to hire a chef and eat clean, good food

that

> taste good daily. Wishful thinking....I may check out some gluten

> free foods. We have a Whole Foods around but not close to me but

> might be other places I can find it. Whole Foods can be expensive

> too. No, I can't see me eating seeds everyday living off that but

I

> love my veggies and eat them but need more calories than that. I

like

> beans but good gosh.............what they do isn't fun. I don't

eat

> much bread but do pasta and probably eat way too much processed

> foods. Oh, and once I tried making some veggie juice and it turned

> out way green from spinach and wasn't quite like my V8. If I keep

> practicing, maybe I can master the veggie juice. I can drink 64oz

of

> V8 a day. I'm addicted....and low sodium I buy...

>

> Rhonda

>

>

>

[Guest guest]

Before I started 4 packs a day of CSM my appetite was bad and had to

figure anything I could get down to eat. I ordered then some protein

powder and drank that daily. I still have some and should drink some

of that daily when I don't eat a lot of protein. Yes I wonder about

eating seafood due to mercury and know someone that was going

downhill rapidly and when the docs tested her for mercury it as sky

high and she only ate seafood(not sure what) and chicken due to food

allergies as far as meats. She has now got much better and calls

herself in remission. She has 13 brain lesion due to not just mold

but other toxins.

I found a bag of organic, raw sunflower seeds I had ordered recently

last night and ate all of what was left. Now I'm going to order more

and other seeds also. It would be interesting to get a food allergy

test done just to see what I might be allergic to. Since my

deductible is way reached with insurance, may check into that but I

really do not need any extra bills even at the 20% I have to pay. I

went over on my cell phone bill this time which sucks...

Oh, another thing, I have been told to warn everyone not to leave

your internet on while away from computer for a long period b/c the

hackers/scammers are attacking bigtime. Was told within 11 seconds

they can find computers to be easily attacked. I need to get my

computer fixed real soon since my firewall got corrupted and last

night I left my dial up internet up for hours and came back to

computer and I wish I'd wrote down what it said b/c I can't remember

but it let me know someone had access to my computer which I have

never seen that before. I unplugged the computer ASAP! Maybe my

computer person will let me make payments to her since she knows I'm

out of work. It is amazing the hackers/scammers spend all their time

trying to hack computers and steal from us. I still can't believe my

bank gave access to have someone Western Union thousands of $$ to

Pakistan. Hello!!!!!!!!!!!! FBI said terrorist related so Be On Guard

and watchout! And not just terrorist doing this as you well know....

Rhonda

> >

> > So when we eat non-organic meats we are eating hormones and

> whatever

> > the animal ingest including mold in feed, right? YUCK. If I had

> > someone to cook for me, I'd be totally vegetarian anyhow and do

not

> > eat meat daily. It is hard enough for me to figure out what to

eat

> > and figuring out gluten free and all that seems hard. How would

I

> > even know I have a gluten intolerance? I may have already ask

> that.

> > I wish I was rich enough to hire a chef and eat clean, good food

> that

> > taste good daily. Wishful thinking....I may check out some gluten

> > free foods. We have a Whole Foods around but not close to me but

> > might be other places I can find it. Whole Foods can be

expensive

> > too. No, I can't see me eating seeds everyday living off that

but

> I

> > love my veggies and eat them but need more calories than that. I

> like

> > beans but good gosh.............what they do isn't fun. I don't

> eat

> > much bread but do pasta and probably eat way too much processed

> > foods. Oh, and once I tried making some veggie juice and it

turned

> > out way green from spinach and wasn't quite like my V8. If I keep

> > practicing, maybe I can master the veggie juice. I can drink 64oz

> of

> > V8 a day. I'm addicted....and low sodium I buy...

> >

> > Rhonda

> >

> >

> >

>

[Guest guest]

You can get wild Alaskan seafood over the internet, comes frozen,

with lower mercury content, Vital Choice is one brand. It's

expensive though. However they have canned salmonn without any

bones or skin in pack that is very good and not as expensive as

getting the frozen filets. I still limit intake to two servings a

week myself as it still does have mercury in it. I'm trying to go

vegetarian right now since nothing else has helped with my gi

problems and figure it is the protein my body is reacting

too...immune system reacting to complete protein sources, like eggs,

milk, meat. It's only been a few days but I feel okay, satisfied,

and my throat is not sore or irritated for a change. I noticed when

I got up every morning my throat felt fine until I ate something.

How did your friend get better. Did she chelate and if so, do you

know which method she used to chelate?

Cell phone. I solved that by using a prepaid card and doing most my

calling on land line. High speed internet connections now

practically give away the phone service with unlimited long distance

to boot.

>

> Yes I wonder about

> eating seafood due to mercury and know someone that was going

> downhill rapidly and when the docs tested her for mercury it as

sky

> high and she only ate seafood(not sure what) and chicken due to

food

> allergies as far as meats. She has now got much better and calls

> herself in remission. She has 13 brain lesion due to not just

mold

> but other toxins.

[Guest guest]

Rhonda, Did she find out about the brain lesions from Dr Shoemaker?

Did getting rid of the mercury help heal the lesions?

In , " iluvbunnies5262 "

<iluvbunnies5262@...> wrote:

>

> She has 13 brain lesion due to not just mold

> but other toxins.

>

[Guest guest]

Sue, there is a huge resource for organic foods and gluten free

foods at Amazon.com, many times with discounts running. Just click

on Groceries at Amazon, Specialty Foods, Organic, etc.

<http://www.amazon.com/Natural-Organic-

Grocery/b/ref=sc_bb_br_16310101_1/002-8778715-4126427?

ie=UTF8 & node=51537011 & no=16310101 & me=ATVPDKIKX0DER>

_http://www.amazon.com/Natural-Organic-

Grocery/b/ref=sc_bb_br_16310101_1/002-8778715-4126427?

ie=UTF8 & node=51537011 & no=16310101 & me=ATVPDKIKX0DER_

Gluten free:

<http://www.amazon.com/b/ref=sc_bm_l_4_51537011_1_2/002-8778715-

4126427?ie=UTF8 & node=16310211 & no=51537011 & keywords=gluten%

20free & me=ATVPDKIKX0DER>

_http://www.amazon.com/b/ref=sc_bm_l_4_51537011_1_2/002-8778715-

4126427?ie=UTF8 & node=16310211 & no=51537011 & keywords=gluten%

20free & me=ATVPDKIKX0DER_

>

>

> Can you tell me what you eat? Examples for breakfast, lunch and

dinner

> would be helpful.

> Thanks,

> Sue :

>

> *******Most people with chronic illness do better if they remove

Gluten

[Guest guest]

No, She found out thru MRI's. Me and her go to the same ENT that

prescribes CSM and he told us both to go to Dr. Shoemaker. I'll have

to ask her if her lesions got better on last MRI. Think she get on

every 3 months which I find excessive. I do know she calls herself in

remission and she takes a variety of things to help her and she cut out

the fish and at the same time started low dose naltrexone and got a lot

better. She has gone from wheelchair to walking then went downhill

again and that is when they tested for mercury and it was real high.

It is too bad man has polluted the water ETC. to the point seafood is

toxic and it's killing them too. I'll post what she says about her

lesions. Seems she had 7 on the MRI before the total was 13.

Way back in her 20's she stayed in a flooded home for some time and

from there started having a lot of symptoms and thinks she was in other

contaminated homes along the way and insecticides that were sprayed at

another home did things to ruin her health. She can't tolerate CSM.

Rhonda

> >

> > She has 13 brain lesion due to not just mold

> > but other toxins.

> >

>