Re: Doing the Neuropsychological test is a WASTE OF TIME and MONEY(venting and long)

[Guest guest]

I certainly hope that you are not counting on this money indefinitely and

also are doing your best to deal with whatever life has handed you. We all

have to. Its important. Its not an entitlement. I'm not saying that you

shouldn't fight for it, you should, but you also need to think ahead - yes

you might not get it for long, thats life. Don't plan you life around a

disability. You know i have one of those diagnoses too but I am trying to

work through it. We have to do what we can to help ourselves. And get better

if we can. You only have one life. Live it.

[Guest guest]

In FOUR and A HALF Years I have my normal Retirement Pension and it

is Mine for LIFE no matter what. The Retirement disability is a

little more but not much and I have to work on that Wed. b/c they

only calculated the normal retirement and not the disability

retirement in the mail I got today. I've only had a month out of

constant mycotoxins/abestos etc. so I can't even begin to know how

the future will turn out.

--- In , LiveSimply <quackadillian@...>

wrote:

>

> I certainly hope that you are not counting on this money

indefinitely and

> also are doing your best to deal with whatever life has handed you.

We all

> have to. Its important. Its not an entitlement. I'm not saying that

you

> shouldn't fight for it, you should, but you also need to think

ahead - yes

> you might not get it for long, thats life. Don't plan you life

around a

> disability. You know i have one of those diagnoses too but I am

trying to

> work through it. We have to do what we can to help ourselves. And

get better

> if we can. You only have one life. Live it.

>

>

>

[Guest guest]

Rhonda, I felt so bad for you, reading your post. It's amazing to me

too that the patient is no longer listened to. It's been my experience

that if the dr.s can't figure it out, they start to blame the

patient...sad state of our medical care anymore. Don't give up...try

to find a dr. that knows about your illness. Are you able to see

Shoemaker or a doc that knows about his protocol?

Good luck, hang in there!

Hugs, Cheryl

[Guest guest]

Rhonda, theres other ways you can look at this.

this evaluation was not done by a specialest in toxic mold illnesses.

if what you posted is whats in the report it's left pretty wide open as

to the cause.

theres info. out there of brain effects from toxins. I've posted so

much about this right here on this board.

a neurotoxicologist may come to a different conclusion, as in toxin

exposure causeing brain damage.

just the fact that you haven't been out of your toxic enviroment very

long, and/or may have MCS could affect testing.

the fact that you have other proof of your illness caused by exposure

will play a big role in how this report is looked at.

I wouldn't stress on it.

>

> Rhonda, I felt so bad for you, reading your post. It's amazing to me

> too that the patient is no longer listened to. It's been my

experience

> that if the dr.s can't figure it out, they start to blame the

> patient...sad state of our medical care anymore. Don't give up...try

> to find a dr. that knows about your illness. Are you able to see

> Shoemaker or a doc that knows about his protocol?

> Good luck, hang in there!

> Hugs, Cheryl

>

[Guest guest]

I have been taking CSM since last March but was only on 2 packets a day

that my ENT prescribed and knows about Dr. Shoemaker but he does not

use any of the other protocol and has told me over and over to see Dr.

Shoemaker. My insurance told me they do not write off the overcharges

out of state and just the blood test my ENT did that is what Shoemaker

test for the write off charges were near $800. I had a patient packet

sent to me and saw how expensive everything is so seems out of the

question. I would like to have my medical records say mycotoxins and

documented by Dr. Shoemaker. I want another MMP9 test done again later

after I'm out of that toxic place and see if the 1112 goes down.

I should get the evaluation in the mail soon if medical records gets my

consent form I filled out yesterday. The assistant that saw me

yesterday said it mentioned mold so will be interesting to read the

report.

I called the retirement system to see if I could figure out why the

amount changed and got put on hold and another person came on and ask

me who told me the other amount and I told them then I get his

voicemail and he hasn't called me back the last three times I called

and left a message. I can't get on payroll until I get the correct

information to send in and I can't even get questions answered about

filling out the forms etc.

My mom said in today's paper here it has an artical about SSDI and the

backlog and the workers there are pressured to deny claims and one lady

had waited 5 years and is losing her home of 19 years. The system is

cheating people and I hope something is done about it. I may see if I

can find that artical online. Should be in the News and Observer for

Raleigh, NC.

Rhonda

>

> Rhonda, I felt so bad for you, reading your post. It's amazing to me

> too that the patient is no longer listened to. It's been my

experience

> that if the dr.s can't figure it out, they start to blame the

> patient...sad state of our medical care anymore. Don't give up...try

> to find a dr. that knows about your illness. Are you able to see

> Shoemaker or a doc that knows about his protocol?

> Good luck, hang in there!

> Hugs, Cheryl

>

[Guest guest]

I am reposting this as my prior post seems to have gotten lost

in " space. "

This link is about a new book which explains why/how doctors fail to

listen to patients:

http://www.mercola.com/2007/feb/13/new-book-exposes-the-mistaken-

medical-assumptions-doctors-often-make.htm

The newspaper links on this page are interesting to read. I know that I

have frequently " not been listened to " and I am sure most folks here

have had the same experience.

-

>

> Rhonda, I felt so bad for you, reading your post. It's amazing to me

> too that the patient is no longer listened to.

[Guest guest]

Rhonda - Since it is your workplace that made you sick, could you get

Workers Compensation to pay for an office visit to Dr. Shoemaker?

I do hope you find a doctor who will believe you and help you soon.

-

[Guest guest]

There is no way Worker's Comp would pay for anything for me b/c they

would claim no proof the mold at work caused my illness b/c I had mold

at home also so I didn't eve try to go that route and I'm sure they

already checked into it to cover theirselves and they tried removing

some of the mold the Wrong way but still there is visable mold

throughout the building and unvisable mold b/c the HVAC is contaminated

and I'm sure the ducts are too. I also had to send a letter of

resignation to the department after I got the letter stating I had been

approved for retirement disability so I'm no longer considered an

employee.

I did find and ENT last March and have taken CSM since March but take

it less now and take it when I feel I get hits of mold or chemicals.

The ENT has prescribed CSM for 5 years but doesn't follow all of Dr.

Shoemaker's protocol and has told me too many times I need to go to Dr.

Shoemaker. I feel I can get better just being out of the toxic

workplace and all the mold remediation, waterproofing and replacing my

airhandler and ducts at home last year. I also tried to detox

everything possible in the house and it was a lot of hard work to do

all by myself. I know my house got better after all my work b/c I got

better overnight on CSM and away from the work place for days then went

back in and within 2 minutes I got symptoms and developed tremors last

year and still get them when I get exposed to mold or chemicals. If I

can get rid of this fatigue again like I did one time before getting

blasted with mycotoxins, would be a big plus. Then the sinuses and

pressure and headaches getting better would be great. My neck pain has

let up since out of toxic workplace for over a month, Yeah! b/c it was

killing me and I still feel something like pressure some with the

fronts but nothing like before when it must have been the nerves

inflamed.

I never got the copy of the neuropsyche test I requested last Tuesday

so I have left a message at the office that did the testing saying my

neuro's assistant said I had to request the records from the office

that did the evaluation. I'll probably have to call again....I want to

read that stupid report. As far as Conversion Somatic whatever it was,

I DO have a medical diagnoses for my illness and that is why I got

approved by State Medical Board and I'm sure they thought that report

was strange but I guess it is more saying my illness isn't linked to

neuro. Why couldn't they just say it that way if that is what they

think instead of making it look like a Faked Illness I create. That is

so stupid and even in my neuro's records says it Definately thought my

symptomology was from mold exposure but couldn't link the brain lesion

to my symptoms. That can make sense b/c the brain lesion isn't causing

all my symptoms but doesn't mean the lesion wasn't caused by the mold

toxins or even chemical toxins. They must think I link my symptoms

coming from the lesion where before I discovered the horrific mold

problem at home and work, I wondered it it was neuro causing my

symptoms but know now it is mycotoxins and chemicals.

I wonder if I would have been better off seeing a psychiatrist for my

evaluation instead of going to a neuropsychological place...

Rhonda

>

> Rhonda - Since it is your workplace that made you sick, could you get

> Workers Compensation to pay for an office visit to Dr. Shoemaker?

> I do hope you find a doctor who will believe you and help you soon.

> -

>