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Gerald Van Waes wrote:

> Is it Asperger ? I still have no idea...

Yes, my friend, that pretty much covers all the bases.

Welcome to the group. Maybe we can help you understand

it better.

Clay

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From one Gerald to another... Find somebody with experience

diagnosing aspergers with people your age. Collect your school

records and have a list of people who have good memories of you at

various stages and no reason to fear an AS diagnosis for you.

Good luck,

Geald (Jerry) Newport

> Hello,

>

> I'm new to this group. I'm still not sure if myself have Asperger

syndrom or not.. My previous girlfriend's new man was diagnosed

autism. She started to read books and became convinced I had

Asperger syndrome and learned to understand what she had experienced

with me during the relationship of before. Also my new girlfriend

came to that idea simultanuously. I started to read books, did some

tests, which showed lots of qualities within the spectrum.. But I'm

still not sure. But I DO know I suffer a lot from some kinds of

dislexia, communication errors and direct confrontation memory

failors. I have difficulties not to make mistakes with sentences, to

understand people correctly etc. whenever there are confusing

sitiuations. When two things happen at the same time I cannot follow

any more or concentrate properly. When 2 people are in the room

asking me things I cannot remember which person said what, and then

say words which are wrong like newspaper when wanting to say

something else, forget dates, words, whatever they said. Also I

cannot read ver well through lines etc. I overlook things in

sentences, fall back on easy patterns when writing or deliberately

make it more complex or over-expressive so that nobody iunderstand a

word I'm saying.

> Perhaps all these are caused by something else, I still cannot

tell.

> My youth was full of lack of communication, I hade to be

overcareful with words and deads, so I think that caused it more or

less. I didn't have friends before I was 12 or 16, except during

some family visits. I lived in a kind of cocoon when I was young,

which I throughouly broke out. The whole process is a painful

growing of consciousness, trying to learn to understand how people

interact. Every time I'm scared if I'm not misinterpreting the same

errors happen. But each day I grow in selfassureness and somehow

these things can be minimilized but I don't have the feeling they

can be cured completely.

> Is it asperger ? I don't know. I wrote lots of poetry, difficult

theories about how to put ideas into abstract forms, which I thought

were brilliant enough ideas but nobody ever understood them; Anyhow

I can still explain them orally well but still cannot make a

sentence easily readable. It's always too difficult to others.

> Also when I write sentences some words will be written double too

often, or the sentence fails, or has a wrong structure. I want to

write very big sentences because I want to put all connections, like

a mathematical formula into one sentence.

> Is it Aspereger ? I've no idea. I know I'm more sensitive than

others, I am extremely good in abstract thinking, can solve almost

any difficult idea. In school I

> always knew already everything before we learned it, because I was

curious and read a lot. Never the less I was unable to make resume

of books for instance or concentrate on simple calculations. About

resumes of books : it was the feeling why something that was written

which for me like the essence of a book.

> I can can still continue like this. I also talk too much. It is

possible that this way going into a thought deeper that I miss the

point when someone changes the subject etc. and so on

> Is it Asperger ? I still have no idea...

>

> Gerald

>

>

>

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Jane wrote : " So English is your second (or third or fourth?) language? "

it's supposed to be my third language

first languuage is Dutch, but I write and talk English a lot,

Gerald

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Hi Gerald,

I'm new to this group too, just joined last week. I learned of AS

through an article about Scissorhands and it went on from there.

I'm 99.9% sure I'm on the autistic spectrum. That last percentage

point remains unsure mostly because I haven't been diagnosed. But I

can't stand doctors so I won't go to them, unless it's for something

other than my " head " . I once tried to get help in finding out if I had

auditory dyslexia. I was told by my doctor to contact these folks who

dealt with dyslexia at a local hospital. After a rather humiliating

phone conversation with one lady there who said that maybe my problem

was a " self-confidence issue " , I gave up seeking an answer from the

" professionals " . (It turned out they were only interested in helping

dyslexic children anyway and I was in my late 20's.) I've always had

problems regarding oral speech, such as stammering, talking backwards,

hearing things wrong (including my own voice), difficulties with proper

volume, repeating myself, etc,.

Anyway, I'm no expert (obviously), but you sound to be on the autistic

spectrum to me.

a

> Hello,

>

> I'm new to this group. I'm still not sure if myself have Asperger

> syndrom or not.. My previous girlfriend's new man was diagnosed

> autism. She started to read books and became convinced I had Asperger

> syndrome and learned to understand what she had experienced with me

> during the relationship of before. Also my new girlfriend came to that

> idea simultanuously. I started to read books, did some tests, which

> showed lots of qualities within the spectrum.. But I'm still not sure.

> But I DO know I suffer a lot from some kinds of dislexia,

> communication errors and direct confrontation memory failors. I have

> difficulties not to make mistakes with sentences, to understand people

> correctly etc. whenever there are confusing sitiuations. When two

> things happen at the same time I cannot follow any more or concentrate

> properly. When 2 people are in the room asking me things I cannot

> remember which person said what, and then say words which are wrong

> like newspaper when wanting to say something else, forget dates,

> words, whatever they said. Also I cannot read ver well through lines

> etc. I overlook things in sentences, fall back on easy patterns when

> writing or deliberately make it more complex or over-expressive so

> that nobody iunderstand a word I'm saying.

> Perhaps all these are caused by something else, I still cannot tell.

> My youth was full of lack of communication, I hade to be overcareful

> with words and deads, so I think that caused it more or less. I didn't

> have friends before I was 12 or 16, except during some family visits.

> I lived in a kind of cocoon when I was young, which I throughouly

> broke out. The whole process is a painful growing of consciousness,

> trying to learn to understand how people interact. Every time I'm

> scared if I'm not misinterpreting the same errors happen. But each day

> I grow in selfassureness and somehow these things can be minimilized

> but I don't have the feeling they can be cured completely.

> Is it asperger ? I don't know. I wrote lots of poetry, difficult

> theories about how to put ideas into abstract forms, which I thought

> were brilliant enough ideas but nobody ever understood them; Anyhow I

> can still explain them orally well but still cannot make a sentence

> easily readable. It's always too difficult to others.

> Also when I write sentences some words will be written double too

> often, or the sentence fails, or has a wrong structure. I want to

> write very big sentences because I want to put all connections, like a

> mathematical formula into one sentence.

> Is it Aspereger ? I've no idea. I know I'm more sensitive than

> others, I am extremely good in abstract thinking, can solve almost any

> difficult idea. In school I

> always knew already everything before we learned it, because I was

> curious and read a lot. Never the less I was unable to make resume of

> books for instance or concentrate on simple calculations. About

> resumes of books : it was the feeling why something that was written

> which for me like the essence of a book.

> I can can still continue like this. I also talk too much. It is

> possible that this way going into a thought deeper that I miss the

> point when someone changes the subject etc. and so on

> Is it Asperger ? I still have no idea...

>

> Gerald

>

>

>

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Thank you a,

The reason why I have doubts if I am on that spectrum is that the

characteristics are not constant, but whenever I'm a bit nervous, which happens

easily in situations which have no centered concentration. I am aware it could

have been caused by the confusing mother-son relationship I experienced which

causes these nerves rather than a failor which is always present, so I'm still

not sure. A kind of dyslexia can be part of this too. On the other hand it's

very easy to think on a multi-dimensional descriptive comparing level (abstract

thinking, images, sounds, etc.) and to understand what others cannot.

I do not like repetitive patterns at all, change things relatively rapidly

because it reminds me of this cocooning prison which I think this problem

implies. Whenever life takes me seriously confusion is less.. Judgelments on

lack of " self-confidence " seems familiar to me. For me after some years I'm

mostly pretty self-assured but like a professor confusion is still beyond every

new corner..

Gerald

Re: new to group

Hi Gerald,

I'm new to this group too, just joined last week. I learned of AS

through an article about Scissorhands and it went on from there.

I'm 99.9% sure I'm on the autistic spectrum. That last percentage

point remains unsure mostly because I haven't been diagnosed. But I

can't stand doctors so I won't go to them, unless it's for something

other than my " head " . I once tried to get help in finding out if I had

auditory dyslexia. I was told by my doctor to contact these folks who

dealt with dyslexia at a local hospital. After a rather humiliating

phone conversation with one lady there who said that maybe my problem

was a " self-confidence issue " , I gave up seeking an answer from the

" professionals " . (It turned out they were only interested in helping

dyslexic children anyway and I was in my late 20's.) I've always had

problems regarding oral speech, such as stammering, talking backwards,

hearing things wrong (including my own voice), difficulties with proper

volume, repeating myself, etc,.

Anyway, I'm no expert (obviously), but you sound to be on the autistic

spectrum to me.

a

> Hello,

>

> I'm new to this group. I'm still not sure if myself have Asperger

> syndrom or not.. My previous girlfriend's new man was diagnosed

> autism. She started to read books and became convinced I had Asperger

> syndrome and learned to understand what she had experienced with me

> during the relationship of before. Also my new girlfriend came to that

> idea simultanuously. I started to read books, did some tests, which

> showed lots of qualities within the spectrum.. But I'm still not sure.

> But I DO know I suffer a lot from some kinds of dislexia,

> communication errors and direct confrontation memory failors. I have

> difficulties not to make mistakes with sentences, to understand people

> correctly etc. whenever there are confusing sitiuations. When two

> things happen at the same time I cannot follow any more or concentrate

> properly. When 2 people are in the room asking me things I cannot

> remember which person said what, and then say words which are wrong

> like newspaper when wanting to say something else, forget dates,

> words, whatever they said. Also I cannot read ver well through lines

> etc. I overlook things in sentences, fall back on easy patterns when

> writing or deliberately make it more complex or over-expressive so

> that nobody iunderstand a word I'm saying.

> Perhaps all these are caused by something else, I still cannot tell.

> My youth was full of lack of communication, I hade to be overcareful

> with words and deads, so I think that caused it more or less. I didn't

> have friends before I was 12 or 16, except during some family visits.

> I lived in a kind of cocoon when I was young, which I throughouly

> broke out. The whole process is a painful growing of consciousness,

> trying to learn to understand how people interact. Every time I'm

> scared if I'm not misinterpreting the same errors happen. But each day

> I grow in selfassureness and somehow these things can be minimilized

> but I don't have the feeling they can be cured completely.

> Is it asperger ? I don't know. I wrote lots of poetry, difficult

> theories about how to put ideas into abstract forms, which I thought

> were brilliant enough ideas but nobody ever understood them; Anyhow I

> can still explain them orally well but still cannot make a sentence

> easily readable. It's always too difficult to others.

> Also when I write sentences some words will be written double too

> often, or the sentence fails, or has a wrong structure. I want to

> write very big sentences because I want to put all connections, like a

> mathematical formula into one sentence.

> Is it Aspereger ? I've no idea. I know I'm more sensitive than

> others, I am extremely good in abstract thinking, can solve almost any

> difficult idea. In school I

> always knew already everything before we learned it, because I was

> curious and read a lot. Never the less I was unable to make resume of

> books for instance or concentrate on simple calculations. About

> resumes of books : it was the feeling why something that was written

> which for me like the essence of a book.

> I can can still continue like this. I also talk too much. It is

> possible that this way going into a thought deeper that I miss the

> point when someone changes the subject etc. and so on

> Is it Asperger ? I still have no idea...

>

> Gerald

>

>

>

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a wrote:

>make out what they are saying at all. Once I went to Scotland with my

>parents - and I couldn't understand 95% of what was being said while in

>that country. It was really frustrating. Everything sounded like one

>big blurrrrrrr. This can occur when I'm hearing english that's being

>spoken by someone who has my accent, or close to it.

I often/usually miss the beginning of what anyone says, unless I have

had a chance to prepare myself to hear them. As for accents...it

depends. Understanding someone who has an accent different from mine

usually takes more work -- varying from a little bit extra to an

exhausting amount. And the environment matters, too.

One time, many years ago, my mother and I were " back east " in Boston

(from our home in Seattle). We were in the train station waiting for

a train, and my mother asked if I would get her a cup of coffee from

the coffee kiosk. When I got to the head of the line, it turned out

that I could not understand a single word said by the coffee man. He

was a " white ethnic " (not an immigrant, born and raised in the U.S.

in an Italian-heritage community) with a " white ethnic " accent, and

he was speaking to me in a huge echo-y place with lots of other

noises going on. Naturally, he quickly got irritated at my stupidity.

I was lucky that the customer behind me was willing and able to

translate between us.

I get a bit strange in huge open indoor spaces anyway.

Jane

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Jane Meyerding wrote:

>

> I often/usually miss the beginning of what anyone says, unless I have

> had a chance to prepare myself to hear them. As for accents...it

> depends. Understanding someone who has an accent different from mine

> usually takes more work -- varying from a little bit extra to an

> exhausting amount. And the environment matters, too.

This I can totally relate to. I often find myself asking a person to

repeat what they said but then before they do so I realize I did hear it

after all.

> was a " white ethnic " (not an immigrant, born and raised in the U.S.

> in an Italian-heritage community) with a " white ethnic " accent,

How did you find all this out if you could not even understand him? How

do you know that he did not get off the plane from Italy in the previous

month. What is a " white ethic " accent? I never knew that " white " had or

was an accent.

> he was speaking to me in a huge echo-y place with lots of other

> noises going on. Naturally, he quickly got irritated at my stupidity.

How do you know that he was irritated at your " stupidity " ? Maybe he was

simply irritated because " he " was not able to effectively communicate

with you, his customer?

> I get a bit strange in huge open indoor spaces anyway.

It also sounds like you read way too much into other's actions.

Red

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Red wrote:

>How did you find all this out if you could not even understand him? How

>do you know that he did not get off the plane from Italy in the previous

>month. What is a " white ethic " accent? I never knew that " white " had or

>was an accent.

I lived in Philadelphia for ten years (1962-1972). In 2004, I was

back there for Autreat. One thing that impressed me greatly was the

continuing visible presence of very identifiable Italian-Americans.

No doubt there are Americans of Italian descent in Seattle. But there

is no Italian-American community the way there is in Philadelphia and

Boston, no readily identifiable Italian-Americans here the way there

are back east. I say that not as a criticism. For me as an outsider,

it is a matter of indifference, except that I enjoy the greater

diversity of culture (even in how people look around me as I wait for

a train). A train platform in Philadelphia makes Seattle's population

look very " white bread. " Not just (not even primarily) because there

are more African Americans in Philadelphia than here, but because in

Philadelphia there are multiple white-ethnic communities adding

flavor to the mix.

Maybe somebody else here knows (I don't) why the " white ethnic "

accents disappear as people move from east to west coast in the U.S.

Maybe it's just because the people who come here tend to disperse

rather than create ethnic-identify communities such as the

traditional ones founded long ago in the east. Besides

Italian-American communities with distinct cultural markers, there

are Irish-American communities and others (back east). Chicago used

to have a large, distinct Polish-American community. There is at

least one fishing town on the northeast coast (can't remember the

name of it) with a strong Portuguese-American community.

>How do you know that he was irritated at your " stupidity " ? Maybe he was

>simply irritated because " he " was not able to effectively communicate

>with you, his customer?

He was irritated by my slowness in responding to him. Besides my

inability to understand him, I was operating on Seattle time -- not

the difference in time zones, but the speed of life. People are

expected to react/interact more rapidly in east coast (north east, at

least) cities than in Seattle. The same slower-than-back-east pace is

true for at least some other western cities, though I cannot say it

is true for all.

>It also sounds like you read way too much into other's actions.

You weren't there. It sounds like you rely too much on your (limited)

understanding of other people's experiences.

Jane

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> >How do you know that he was irritated at your " stupidity " ? Maybe he

> was

> >simply irritated because " he " was not able to effectively communicate

> >with you, his customer?

>

> He was irritated by my slowness in responding to him. Besides my

> inability to understand him, I was operating on Seattle time -- not

> the difference in time zones, but the speed of life. People are

> expected to react/interact more rapidly in east coast (north east, at

> least) cities than in Seattle. The same slower-than-back-east pace is

> true for at least some other western cities, though I cannot say it

> is true for all.

>

> >It also sounds like you read way too much into other's actions.

>

> You weren't there. It sounds like you rely too much on your (limited)

> understanding of other people's experiences.

I can pretty much tell when another is getting irritated by me when I'm

having a hard time understanding what's being said. A hard stare

directed right at me for one, a rolling of the eyes, a heavy sigh

followed by brisk, abrupt movements, a rise in blood pressure...on and

on. People who have empathy don't react in these ways.

I can relate to open, echoey spaces and background noises making things

'strange'.

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  • 3 years later...

Welcome

Bethany

>

> Hi everyone,

> Just to introduce myself, I had two brain surgeries for Chiari

> malformation tht left me with chronic pain,neurological deficits, and

> developed fibromyalgia. Still looking for help with the daily pain

> issues.

>

>

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hi emily wecome to the group we all no what pain is we are all a bunch of

painers and a good bunch of people enytime you want to walk my key pad is here

tell us about your self what state do you live in donnieKY

Subject: New to Group

To: Hugs-N-Pain

Date: Wednesday, October 29, 2008, 1:45 PM

Hi everyone,

Just to introduce myself, I had two brain surgeries for Chiari

malformation tht left me with chronic pain,neurological deficits, and

developed fibromyalgia. Still looking for help with the daily pain

issues.

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Hi ,

Welcome to the group! We are very happy to have you. I'm so sorry to hear of

your pain issues. YIKES! Two brain surgeries? That sounds so very scary! Do you

see a Pain Management Specialist? This is where I'd look for pain control. They

will treat you the best. If you can tell me what City and State you live in,

perhaps I could aide you in finding a Specialist.

Just jump right in and ask any questions you'd like to. There are many members

of this group, some don't post on a regular basis, but they do read the posts

and will jump in when they can help someone.

Myself, I have fibro, OsteoArthritis, spinal Stenosis in my neck and lumbar

area, and Degenerative Disk Disease AKA DDD. I see a pain management specialist

and he really gives me adequate pain treatment. Much better than I've ever

gotten from any other type of doc. It is their specialty. I hope we can find

adequate care for you.

Blessings,

~Tommie~

www.myspace.com/tommiejj

PH, CFS, FMS, Diabetes, Sleep Apnea, Restless Leg Syndrome

Don't waste energy second-guessing what you're missing or

what can go awry. If you put enough energy into doubt,

something will undoubtedly go wrong.

Instead, focus on the positive possibilities with a hopeful attitude.

New to Group

Hi everyone,

Just to introduce myself, I had two brain surgeries for Chiari

malformation tht left me with chronic pain,neurological deficits, and

developed fibromyalgia. Still looking for help with the daily pain

issues.

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Hi

My names , I'm 20 and live in the UK.

Ive recently had surgery to my knee (last week).

Welcome to the group

Hugs

-- New to Group

To: Hugs-N-Pain

Date: Wednesday, October 29, 2008, 1:45 PM

Hi everyone,

Just to introduce myself, I had two brain surgeries for Chiari

malformation tht left me with chronic pain,neurological deficits, and

developed fibromyalgia. Still looking for help with the daily pain

issues.

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hi shelly what dose the 88 stand for i got e a boat that has 88 on the side is

it for a nascar driver and the uk where is it donnieKY

From: <mcgiffie5yahoo (DOT) com>

Subject: New to Group

To: Hugs-N-Pain@ yahoogroups. com

Date: Wednesday, October 29, 2008, 1:45 PM

Hi everyone,

Just to introduce myself, I had two brain surgeries for Chiari

malformation tht left me with chronic pain,neurological deficits, and

developed fibromyalgia. Still looking for help with the daily pain

issues.

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  • 2 weeks later...

>

> Hi everyone,

> Just to introduce myself, I had two brain surgeries for Chiari

> malformation tht left me with chronic pain,neurological deficits, and

> developed fibromyalgia. Still looking for help with the daily pain

> issues.

>

>dear emily i have been in pain for a long time and OHSU is done

testing me. my pain travles in me and jumps from place to place and i

beleave they are done with me. so good luck to you.

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