Re: Thanks Jena for answering...

[Guest guest]

I get really upset with my body as it seems I have to take a pain pill just to

get my body to half way cooperate. I have probably taken today double of what I

am suppose to. but the pain has been almost to the point of unbearable. My daily

routine is always the same. I start my day the very same. with cup of coffee and

a pain pill just to I can move around enough to loosen up my body. it makes me

so mad. I have people depending on me too. as I have written before my daughter

has Down Syndrome and Monday-Friday she goes to what they call the training

center but it is really a lot like school. but more fun. keep the active,

social,etc. anyways I get up at least 45 minutes before I get her up and ready

so my meds will have time to kick in before I get her ready. I am so thankful

that a bus comes and picks her up. If I had to drive the 30 miles there and back

twice a day I don't know what I would do. She has the mentality of a 3-5 year

old so I have to completely dress her, do her hair and everything. Please don't

get me wrong. I am NOT complaining, she is my life. And she enjoys this so much

I would crawl to get her ready if I had too. it is just hard.

And then once she is off to the center I have my parents. my mama has many

health problems, diabetes, pulmonary hypertension, a whole list of things and

she is getting worse by the day. I am a only child. I lost my brother in 03 from

complications from diabetes. So, I help my Daddy out as much as I possibly can.

ok, I will end this book. and pray that all has lowered pain levels and gets a

good nights sleep.

Jena in Ga.

Thanks Jena for answering...

I do have fibro but has been mostly painful in my shoulders. I have to cook

Thanksgiving supper for tomorrow night...blended families lol...so I am

really pissed off at my body for causing me so much pain. I took my pain pill

for gout and it has helped a little. Just gets a person down sometimes to

always have to deal with this. Anyway, thanks for the kind response and give

you

and your mom a bit gentle hug from me.

CYH!

Cheryl

**************Life should be easier. So should your homepage. Try the NEW

AOL.com.

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[Guest guest]

jena,

I just joined 2 days ago. look, if your mind is able to get mad at the pain you

are fighting well. I am sorry I wish no one would have this unwordable pain. I

kept my mind going for 3 years then I lost my wife of 13 years, doughter,

mom,dad,2 sisterd, and my friends becouse the dr gave my drugs to take I did and

I was looked at like a pill head. so you sound like you still have your support

with you. make sure you SHOW YOUR LOVE for the spcial people in your life...

hope u wake up floating with no pain..... jeff. " 59kyote "

maby this will give you a mind break for a min...... my only fun......I

attached a picture..

Thanks Jena for answering...

I do have fibro but has been mostly painful in my shoulders. I have to cook

Thanksgiving supper for tomorrow night...blended families lol...so I am

really pissed off at my body for causing me so much pain. I took my pain pill

for gout and it has helped a little. Just gets a person down sometimes to

always have to deal with this. Anyway, thanks for the kind response and give

you

and your mom a bit gentle hug from me.

CYH!

Cheryl

**************Life should be easier. So should your homepage. Try the NEW

AOL.com.

(http://www.aol.com/?optin=new-dp & icid=aolcom40vanity & ncid=emlcntaolcom00000002<\

http://www.aol.com/?optin=new-dp & icid=aolcom40vanity & ncid=emlcntaolcom00000002>)

[Guest guest]

hi jena i start the day off the same way the pain pill first thang and my

dietcoke jena what kind of pain do you have i have rsd i call it liveing hell i

am so tird of herting i have a touth herting real bad i am going to get it

pulled this week i hope donnieKY

Subject: Re: Thanks Jena for answering...

To: Hugs-N-Pain

Date: Saturday, November 29, 2008, 2:14 AM

I get really upset with my body as it seems I have to take a pain pill just to

get my body to half way cooperate. I have probably taken today double of what I

am suppose to. but the pain has been almost to the point of unbearable. My daily

routine is always the same. I start my day the very same. with cup of coffee and

a pain pill just to I can move around enough to loosen up my body. it makes me

so mad. I have people depending on me too. as I have written before my daughter

has Down Syndrome and Monday-Friday she goes to what they call the training

center but it is really a lot like school. but more fun. keep the active,

social,etc. anyways I get up at least 45 minutes before I get her up and ready

so my meds will have time to kick in before I get her ready. I am so thankful

that a bus comes and picks her up. If I had to drive the 30 miles there and back

twice a day I don't know what I would do. She has the mentality of a 3-5 year

old so I have to

completely dress her, do her hair and everything. Please don't get me wrong. I

am NOT complaining, she is my life. And she enjoys this so much I would crawl to

get her ready if I had too. it is just hard.

And then once she is off to the center I have my parents. my mama has many

health problems, diabetes, pulmonary hypertension, a whole list of things and

she is getting worse by the day. I am a only child. I lost my brother in 03 from

complications from diabetes. So, I help my Daddy out as much as I possibly can.

ok, I will end this book. and pray that all has lowered pain levels and gets a

good nights sleep.

Jena in Ga.

Thanks Jena for answering...

I do have fibro but has been mostly painful in my shoulders. I have to cook

Thanksgiving supper for tomorrow night...blended families lol...so I am

really pissed off at my body for causing me so much pain. I took my pain pill

for gout and it has helped a little. Just gets a person down sometimes to

always have to deal with this. Anyway, thanks for the kind response and give you

and your mom a bit gentle hug from me.

CYH!

Cheryl

************ **Life should be easier. So should your homepage. Try the NEW

AOL.com.

(http://www.aol. com/?optin= new-dp & icid= aolcom40vanity & ncid=emlcntaolco

m00000002)

[Guest guest]

My husband used to get really upset with me but he now knows that I am trying.

In the beginning before my DR. got my meds adjusted. they did mess me up pretty

bad. but as time has past and my problems have worsened. the meds do not seem

to do that much to me anymore. It is hard to know if it is the meds or fibro fog

or just having to dang much on my mind. it is difficult to be sick and in pain

24-7 a handicapped child to care for, make everyone has clean clothes and food

to eat and also care for my parents. But there are days my body just says no

more and it just will not go. no matter how hard I try it just will not. Those

days I take far less meds, my body just wants to rest and sleep. my

rheumatologist told us this was very normal for the fibro and CFS.

Jena

Thanks Jena for answering...

I do have fibro but has been mostly painful in my shoulders. I have to cook

Thanksgiving supper for tomorrow night...blended families lol...so I am

really pissed off at my body for causing me so much pain. I took my pain pill

for gout and it has helped a little. Just gets a person down sometimes to

always have to deal with this. Anyway, thanks for the kind response and give

you

and your mom a bit gentle hug from me.

CYH!

Cheryl

**************Life should be easier. So should your homepage. Try the NEW

AOL.com.

(http://www.aol.com/?optin=new-dp & icid=aolcom40vanity & ncid=emlcntaolcom00000002<\

http://www.aol.com/?optin=new-dp & icid=aolcom40vanity & ncid=emlcntaolcom00000002>)

[Guest guest]

looks like you have your hands full. when I looked at the dr notes today I was

realy upset at the amont of meds the put me on. the in 1 month it would

change... they did this for 2 years. in between that I was going to hospital

with bleeding ulsers// they had the nerve to say I was withdrawing that's why I

was sick...... I have had ulsers for 18 years, you would think they would chill

with the meds and find something eles. but nerve injorys are nothing but a

test. they have no clue so I am thinking myself to deth.......don't you think

you need to take the meds on a reg pace? I did the same and I was worse " like

it could be " . have you tried neroten? my mother has fibro. it helps a bit

for her.. hope you relax tonight. see ya..... jeff sorry for mis spelling I

have one hand and life is to short to c/k spelling........I forgot the

picture,,,,,,, now I wont.. thanks

Thanks Jena for answering...

I do have fibro but has been mostly painful in my shoulders. I have to cook

Thanksgiving supper for tomorrow night...blended families lol...so I am

really pissed off at my body for causing me so much pain. I took my pain pill

for gout and it has helped a little. Just gets a person down sometimes to

always have to deal with this. Anyway, thanks for the kind response and give

you

and your mom a bit gentle hug from me.

CYH!

Cheryl

**************Life should be easier. So should your homepage. Try the NEW

AOL.com.

(http://www.aol.com/?optin=new-dp & icid=aolcom40vanity & ncid=emlcntaolcom00000002<\

http://www.aol.com/?optin=new-dp & icid=aolcom40vanity & ncid=emlcntaolcom00000002><\

http://www.aol.com/?optin=new-dp & icid=aolcom40vanity & ncid=emlcntaolcom00000002<h\

ttp://www.aol.com/?optin=new-dp & icid=aolcom40vanity & ncid=emlcntaolcom00000002>>)

[Guest guest]

Hey Donnie, Mine all started in 02 I was rear-ended in a accident. I had my arm

lying in the window and somehow or way it damaged my ulnar nerve. I had surgery

on that twice. once in 7-02 and again 10-03. I still ended up with with

neuropathy to the ulnar nerve. in 2-03 my brother had open- heart surgery he was

a very sick man. I was staying with him after they took him out of ICU and the

nurse's would fuss at him to stand and walk. He had no muscle tone in his legs.

we could not get it across to the nurses. he didn't walk in so he sure could

not walk that soon after surgery well anyways. I stopped calling the nurses for

help. I would just bear hug him and lift him myself. his dry wt. was around 220.

we did this for several days. and one night I was getting him up out of the

chair and my back popped and I felt it give it scared us both to death as he had

3 back surgeries in the past. I slowly put him back in the chair and he would

not let me lift him anymore. I didn't go to the dr. or anything. It really

didn't hurt that bad at that time. He really worried more about it than I did.

But as time went on my brother passed away in 11-03. Slowly my back began to

bother me more. I have this one aunt that I can talk too and I know it isn't

going any further. so I talked to her about it. After my brother passed away I

went back to my job as a special needs school bus driver. After spending 4-5

hours a day fighting that big steering wheel on that bus my back was bothering

me more and more. my daughter only had 1 year before she graduated so I knew I

would be quitting so I just kept it to myself or talked to my aunt. one week,

before my daughter graduated we were painting her room and I had painted the

window and it had stuck and I was trying to get it to open. instead of asking my

husband to open it. I got up under it and give a it a good push and when I did

the window came open and my back popped again. and I hit me knees with pain. oh

gosh, what pain that was. I had so lorcet plus my pain management Dr had given

me for my elbow so I took those and kept my mouth shut til my daughter

graduated. I was determined to finish out that week with her on the bus. I had

been with her 10 years on the bus. and I was going to miss her last week. Crazy

Mama thing. Anyways, I could barely walk at her graduation. I started Monday

morning trying to get in touch with a Dr. of course they were all out of town.

so I went to A Chiropractor. he did what he could with massage and heat packs,

but after he studied my x-rays he would not touch me anymore. as I had 2

fractures I had a new Fracture of T-7 ruptured T-78 and the old fracture from

my brother to T-11. I finally got in touch with my pain management Dr. as he is

a spine specialist too. and he could not believe what I had done. not a my age

anyways, I was 44 at the time. I had to have all the test.CT's MRI's etc. The

old fracture had healed on it's own and in his words was rusty with arthritis.

the new fracture was not making any effort to heal so he did a procedure called

a Vertebroplasty. If you look it up they say there is nothing to it. That is a

Bunch of Bull. having me kids didn't hurt that bad. basically he put cement in

my back at the fractured vertebrae to stabilize it and keep it from moving. but

now my back is all this way and that way.

I have Degenerative Disc Disease, Bulging disc at C-5-6-7-8, pinched nerves at

L5-S-1, There is nothing they can do about the bulging disc at T 7-8 due to the

risk of collapsing a lung. I have osteoarthritis in both hips. there is

something going of with my pelvis but they haven't told what that is yet.

So, you ask and I told you. Maybe after reading all this you will be board

enough you can go to bed and get some sleep.

Jena

Thanks Jena for answering...

I do have fibro but has been mostly painful in my shoulders. I have to cook

Thanksgiving supper for tomorrow night...blended families lol...so I am

really pissed off at my body for causing me so much pain. I took my pain pill

for gout and it has helped a little. Just gets a person down sometimes to

always have to deal with this. Anyway, thanks for the kind response and give

you

and your mom a bit gentle hug from me.

CYH!

Cheryl

************ **Life should be easier. So should your homepage. Try the NEW

AOL.com.

(http://www.aol. com/?optin= new-dp & icid= aolcom40vanity & ncid=emlcntaolco

m00000002)

[Guest guest]

hey DONNIE,

have you looked up the word hell in the dic? it has2 meanings. people use the

first one. WE use the 2nd one....

Thanks Jena for answering...

I do have fibro but has been mostly painful in my shoulders. I have to cook

Thanksgiving supper for tomorrow night...blended families lol...so I am

really pissed off at my body for causing me so much pain. I took my pain pill

for gout and it has helped a little. Just gets a person down sometimes to

always have to deal with this. Anyway, thanks for the kind response and give

you

and your mom a bit gentle hug from me.

CYH!

Cheryl

************ **Life should be easier. So should your homepage. Try the NEW

AOL.com.

(http://www.aol.<http://www.aol./> com/?optin= new-dp & icid= aolcom40vanity &

ncid=emlcntaolco m00000002)

[Guest guest]

Jena. I understand your situation. I took care of my parents for 24/7 for 9

years. My father passed away May 29th after 11 days of hospice. My mother has

all the same dieases as my father. They seemed to compete over the diseases

(just kidding) lol. My mother is now in the hospital and in the final stages of

COPD, renal failure, CHF and liver disease. My three siblings are drunks and do

not help. But, I know I did everything I could to help them and no regrets. It

is hard to be ill and be a caretaker for another person who is ill. My doctors

are really giving me a hard time about my pain meds. The weather and stress

really aggravate the sympthoms plus no sleep. I truly believe if doctors had a

tenth of our pain they would be so much more caring. I hope your pain lessens

and you get some relief. I will keep you in my prayers. Much love,

Subject: Re: Thanks Jena for answering...

To: Hugs-N-Pain

Date: Friday, November 28, 2008, 8:14 PM

I get really upset with my body as it seems I have to take a pain pill just to

get my body to half way cooperate. I have probably taken today double of what I

am suppose to. but the pain has been almost to the point of unbearable. My daily

routine is always the same. I start my day the very same. with cup of coffee and

a pain pill just to I can move around enough to loosen up my body. it makes me

so mad. I have people depending on me too. as I have written before my daughter

has Down Syndrome and Monday-Friday she goes to what they call the training

center but it is really a lot like school. but more fun. keep the active,

social,etc. anyways I get up at least 45 minutes before I get her up and ready

so my meds will have time to kick in before I get her ready. I am so thankful

that a bus comes and picks her up. If I had to drive the 30 miles there and back

twice a day I don't know what I would do. She has the mentality of a 3-5 year

old so I have to

completely dress her, do her hair and everything. Please don't get me wrong. I

am NOT complaining, she is my life. And she enjoys this so much I would crawl to

get her ready if I had too. it is just hard.

And then once she is off to the center I have my parents. my mama has many

health problems, diabetes, pulmonary hypertension, a whole list of things and

she is getting worse by the day. I am a only child. I lost my brother in 03 from

complications from diabetes. So, I help my Daddy out as much as I possibly can.

ok, I will end this book. and pray that all has lowered pain levels and gets a

good nights sleep.

Jena in Ga.

Thanks Jena for answering...

I do have fibro but has been mostly painful in my shoulders. I have to cook

Thanksgiving supper for tomorrow night...blended families lol...so I am

really pissed off at my body for causing me so much pain. I took my pain pill

for gout and it has helped a little. Just gets a person down sometimes to

always have to deal with this. Anyway, thanks for the kind response and give you

and your mom a bit gentle hug from me.

CYH!

Cheryl

************ **Life should be easier. So should your homepage. Try the NEW

AOL.com.

(http://www.aol. com/?optin= new-dp & icid= aolcom40vanity & ncid=emlcntaolco

m00000002)