Re: New to Forums tired of pain

November 5, 2008

Hi...welcome. Being in a pain group is super helpful. Nobody knows how it is

but someone else in the same pain boat.

I had to go on disability as well. It took two years but if you have good

backing from your doctor it may be easier. I had to use a disability advocate to

present my case. I don't think I could have pulled it off without her. It

takes the weight off of your back to let someone else do all that paper work and

so on.

Disability will almost always start with a denial. Don't give up if that

happens and it usually does unless you're sitting there with your head in your

lap.

I have the " Spasm from hell " ....I call it " The Beast " . It started 18 years ago

and because it's an invisible thing it was hard to work with doctors on it. I

also have fibromyalgia and myofacial pain syndrome. And for added fun and

games I have advanced Osteoarthritis where most of my joints are eaten out and

L2 and L3 caved in on the nerves so my left leg is paresthesic with all sorts of

strange, painful sensations. Also some sciatic on the right side...so it's

balanced with the left side L3 and L4 cave in. *bummer*

The group seems a little quiet right now but it usually hums. Maybe post

election exhaustion.

Lotacats

Express Chronic Pain Awareness

http://www.cafepress.com/lotacatspix/5815010

Lotacatsfunpix.com

http://www.lotacatsfunpix.com/

Deviantart

http://lotacats05.deviantart.com/

>

> Subject: New to Forums tired of pain

> To: Hugs-N-Pain

> Date: Tuesday, November 4, 2008, 4:41 PM

> Hi! My name is Laurie and as the topic says I've never

> joined any kind

> of online forum. I live in AZ and have a wonderful husband

> a son (27)

> and 2 dogs. In May of 2000 I got my first DVT. It was about

> 2 1/2 feet

> long in my left leg. I found out I have 3 blood clotting

> factors protin

> S and C defishance and facter 5 lydon (sorry about the

> spelling I'm not

> the greatest). I also have May-thurner syndrom. The veins

> in my legs

> are being smashed by the arterys. The Dr.'s put in 4

> stints to open

> veins and a filter in my chest to keep clots from going to

> my chest or

> head. The serculation in my legs is very poor because of

> the damage the

> clots and dvt's have done. I live on pain pills.

> I've been hospitalized

> 9 times in the last 10 years. Somedays are better then

> others. I'm so

> tired of being in pain all the time. Some days I just want

> to end it

> all. I see a counceler once a week and I like him alot

> pluss all my Dr

> are great. Someone sugested getting online and talking to

> people that

> have to live in pain too. I've just started the paper

> work to get

> disablity. I really hated having to quit my job but I just

> can't do it

> any more. Anyway thats what I get to live with. I know

> there are people

> out there in worse shape then me and I don't know how

> they do it.

November 5, 2008

hi everbody i am still alive i thank it takes most painers 2 years to get

disibilty it took me 2 years to get mine that was 2 years of hell with money

problems my wife came ofer to my new apartment looking for me went to the rong

apartment tryed to get in the door a women came to the door and freaked her out

she thout i had me a girlfreand she started to get upset the women told her she

had the rong apartment my wife sead my trucks are infront she thout i lived

there she the woman came and told me i was 5 apartments down i went home to talk

to her so she would not cause a problem at my apartment she wants me to try and

talk thangs out she sead she would fix super i was tird of eating out of a can

she know how to get on my good side with my stomic she was crying and sead she

didnot sleep last nite because i was not there she called me a drugaddic about

15 minits into are talk i got up and sead im gone she sead dont leve and didnot

put me down nomore she

sead she would change i sead for how long we are going to finish are talk

tomarrow i got more atenthion to nite than in 6 months and how long would that

last it felt good haveing heat in my apartment i am cold now if she dose not let

me tern the heat on tomarrow i am strait back to my apartment i have let my leg

get to cold allready tonite my pain the last 2 days was great my leg has not

felt that good in about 5 weeks i told her she would have to give up the wood

heat it makes me hert she sead she knows i have rsd and i am going to have to

take pain pills if she exsepts that that is are bigest problem and i got mould

tonite by the cats thay were glad to see me this is a long one i have not got to

talk to everbody in solong donnieKY

> From: Laurie <mlaurielhotmail (DOT) com>

> Subject: New to Forums tired of pain

> To: Hugs-N-Pain@ yahoogroups. com

> Date: Tuesday, November 4, 2008, 4:41 PM

> Hi! My name is Laurie and as the topic says I've never

> joined any kind

> of online forum. I live in AZ and have a wonderful husband

> a son (27)

> and 2 dogs. In May of 2000 I got my first DVT. It was about

> 2 1/2 feet

> long in my left leg. I found out I have 3 blood clotting

> factors protin

> S and C defishance and facter 5 lydon (sorry about the

> spelling I'm not

> the greatest). I also have May-thurner syndrom. The veins

> in my legs

> are being smashed by the arterys. The Dr.'s put in 4

> stints to open

> veins and a filter in my chest to keep clots from going to

> my chest or

> head. The serculation in my legs is very poor because of

> the damage the

> clots and dvt's have done. I live on pain pills.

> I've been hospitalized

> 9 times in the last 10 years. Somedays are better then

> others. I'm so

> tired of being in pain all the time. Some days I just want

> to end it

> all. I see a counceler once a week and I like him alot

> pluss all my Dr

> are great. Someone sugested getting online and talking to

> people that

> have to live in pain too. I've just started the paper

> work to get

> disablity. I really hated having to quit my job but I just

> can't do it

> any more. Anyway thats what I get to live with. I know

> there are people

> out there in worse shape then me and I don't know how

> they do it.

November 5, 2008

hi laurie welcome to the group we are all painers here and everbody are a great

bunch of people i never thout i would see a day when i had to depend on a pill

the frist thang i do of i morning is take a pain pill i hert so bad when i get

up my wife calls me a drugaddic because i have to take pain pills we all take

them so dont feel bad because you have to take them how would you feel if you

didnot have them when ever you need to talk somebody is allways here nice to

mete you donnieKY

Subject: New to Forums tired of pain

To: Hugs-N-Pain

Date: Wednesday, November 5, 2008, 12:41 AM

Hi! My name is Laurie and as the topic says I've never joined any kind

of online forum. I live in AZ and have a wonderful husband a son (27)

and 2 dogs. In May of 2000 I got my first DVT. It was about 2 1/2 feet

long in my left leg. I found out I have 3 blood clotting factors protin

S and C defishance and facter 5 lydon (sorry about the spelling I'm not

the greatest). I also have May-thurner syndrom. The veins in my legs

are being smashed by the arterys. The Dr.'s put in 4 stints to open

veins and a filter in my chest to keep clots from going to my chest or

head. The serculation in my legs is very poor because of the damage the

clots and dvt's have done. I live on pain pills. I've been hospitalized

9 times in the last 10 years. Somedays are better then others. I'm so

tired of being in pain all the time. Some days I just want to end it

all. I see a counceler once a week and I like him alot pluss all my Dr

are great. Someone sugested getting online and talking to people that

have to live in pain too. I've just started the paper work to get

disablity. I really hated having to quit my job but I just can't do it

any more. Anyway thats what I get to live with. I know there are people

out there in worse shape then me and I don't know how they do it.

November 7, 2008

Donnie...does your wife even know what addiction is?

I just want to shake these people to get a little sense in their heads!

The drug is NOT the addiction....the addiction is the addiction. The symptoms

may be anything...from drugs to counting telephone poles. I use to treat

addicts and the drug is the easy part. Getting to the core of the addiction

process is the biggy and reprogramming the mind.

My first lesson to addicts is " The mind thinks it can kill you and go on

living " . It's not really very bright. Addiction is very complex and it is not

for anyone to call another an addict that doesn't know it and understand it.

Even doctors have trouble treating it because it's not that well taught in

medical school. The docs I worked with would rather have me do the diagnosis

then themselves.

It takes someone specially trained in it and if your wife is not trained and

certified she cannot call you an addict. I was trained and certified by the

state and nationally certified in psychiatry and until she holds those

certifications...tell 'er to back off.

Lotacats

Express Chronic Pain Awareness

http://www.cafepress.com/lotacatspix/5815010

Lotacatsfunpix.com

http://www.lotacatsfunpix.com/

Deviantart

http://lotacats05.deviantart.com/

>

> Subject: New to Forums tired of pain

> To: Hugs-N-Pain

> Date: Wednesday, November 5, 2008, 12:41 AM

>

> Hi! My name is Laurie and as the topic says I've never

> joined any kind

> of online forum. I live in AZ and have a wonderful husband

> a son (27)

> and 2 dogs. In May of 2000 I got my first DVT. It was about

> 2 1/2 feet

> long in my left leg. I found out I have 3 blood clotting

> factors protin

> S and C defishance and facter 5 lydon (sorry about the

> spelling I'm not

> the greatest). I also have May-thurner syndrom. The veins

> in my legs

> are being smashed by the arterys. The Dr.'s put in 4

> stints to open

> veins and a filter in my chest to keep clots from going to

> my chest or

> head. The serculation in my legs is very poor because of

> the damage the

> clots and dvt's have done. I live on pain pills.

> I've been hospitalized

> 9 times in the last 10 years. Somedays are better then

> others. I'm so

> tired of being in pain all the time. Some days I just want

> to end it

> all. I see a counceler once a week and I like him alot

> pluss all my Dr

> are great. Someone sugested getting online and talking to

> people that

> have to live in pain too. I've just started the paper

> work to get

> disablity. I really hated having to quit my job but I just

> can't do it

> any more. Anyway thats what I get to live with. I know

> there are people

> out there in worse shape then me and I don't know how

> they do it.

>

November 8, 2008

hi lotacats my wife thank i should just tuck it in and go on with it i tell her

she can count my pills i take them just like the doc tells me to ever now and

then i over doit and have to take a exter one because i am herting tobad it is

hard not to do go places but there is times i have to go to a car show or

something like now my pain level is about a 71/2 i am herting good cant go deer

hunting today it is opening day and i cant get off the couch and she calls me a

drugaddic i was in my new apartment 5 days before she come looking for me and

was crying sead she mist me sead she wanted to talk about 15 into the talk she

called me a drug addic i got up sead i am out of here she sead dont leve she is

treating me good now but how long will it last untill i give the apartment i no

i will never take no abuse off her agean i will be king of my farm even if i

cannot get off the couch lotacat i donot thank she will ever call me one agean

donnieKY

>

> From: Laurie <mlaurielhotmail (DOT) com>

> Subject: New to Forums tired of pain

> To: Hugs-N-Pain@ yahoogroups. com

> Date: Wednesday, November 5, 2008, 12:41 AM

>

> Hi! My name is Laurie and as the topic says I've never

> joined any kind

> of online forum. I live in AZ and have a wonderful husband

> a son (27)

> and 2 dogs. In May of 2000 I got my first DVT. It was about

> 2 1/2 feet

> long in my left leg. I found out I have 3 blood clotting

> factors protin

> S and C defishance and facter 5 lydon (sorry about the

> spelling I'm not

> the greatest). I also have May-thurner syndrom. The veins

> in my legs

> are being smashed by the arterys. The Dr.'s put in 4

> stints to open

> veins and a filter in my chest to keep clots from going to

> my chest or

> head. The serculation in my legs is very poor because of

> the damage the

> clots and dvt's have done. I live on pain pills.

> I've been hospitalized

> 9 times in the last 10 years. Somedays are better then

> others. I'm so

> tired of being in pain all the time. Some days I just want

> to end it

> all. I see a counceler once a week and I like him alot

> pluss all my Dr

> are great. Someone sugested getting online and talking to

> people that

> have to live in pain too. I've just started the paper

> work to get

> disablity. I really hated having to quit my job but I just

> can't do it

> any more. Anyway thats what I get to live with. I know

> there are people

> out there in worse shape then me and I don't know how

> they do it.

>

November 8, 2008

Here...have her do the cloths pin challenge and then ask her to suck it up.

She should let go of the control issue about counting pills etc and let you deal

with it best you can.

My son helps me a lot and does for me what I cannot and I deal with the rest

that I can. He never butts in.

Some people feel very helpless when a loved one has a disability and wish deep

inside it was back the way it was and then they live in denial that all is

well...that you just need to stop the drugs and all the problems go away. They

need a few lessons and understanding that we know they feel the powerlessness.

They need some counceling sometimes to help them let go and live their own

lives...and we need to do the best we can for ourselves and accept help when we

need it.

What so many people can't get a handle on is what it really feels like. When

it's not them...they just can't imagine it....so...we have the CLOTHS PIN

CHALLENGE.

Try it with her.

Awareness At Your Fingertips

For the people in your life who don't understand your Fibromyalgia pain...or

other pains.

http://www.fmaware.org/site/PageServer?pagename=ClothespinChallengeCampaign

Lotacats

Express Chronic Pain Awareness

http://www.cafepress.com/lotacatspix/5815010

Lotacatsfunpix.com

http://www.lotacatsfunpix.com/

Deviantart

http://lotacats05.deviantart.com/

> >

> > From: Laurie <mlaurielhotmail (DOT) com>

> > Subject: New to Forums tired of pain

> > To: Hugs-N-Pain@ yahoogroups. com

> > Date: Wednesday, November 5, 2008, 12:41 AM

> >

> > Hi! My name is Laurie and as the topic says I've

> never

> > joined any kind

> > of online forum. I live in AZ and have a wonderful

> husband

> > a son (27)

> > and 2 dogs. In May of 2000 I got my first DVT. It was

> about

> > 2 1/2 feet

> > long in my left leg. I found out I have 3 blood

> clotting

> > factors protin

> > S and C defishance and facter 5 lydon (sorry about the

> > spelling I'm not

> > the greatest). I also have May-thurner syndrom. The

> veins

> > in my legs

> > are being smashed by the arterys. The Dr.'s put in

> 4

> > stints to open

> > veins and a filter in my chest to keep clots from

> going to

> > my chest or

> > head. The serculation in my legs is very poor because

> of

> > the damage the

> > clots and dvt's have done. I live on pain pills.

> > I've been hospitalized

> > 9 times in the last 10 years. Somedays are better then

> > others. I'm so

> > tired of being in pain all the time. Some days I just

> want

> > to end it

> > all. I see a counceler once a week and I like him alot

> > pluss all my Dr

> > are great. Someone sugested getting online and talking

> to

> > people that

> > have to live in pain too. I've just started the

> paper

> > work to get

> > disablity. I really hated having to quit my job but I

> just

> > can't do it

> > any more. Anyway thats what I get to live with. I know

> > there are people

> > out there in worse shape then me and I don't know

> how

> > they do it.

> >

November 8, 2008

i rented me a apartment i am going back tomarrow she can kiss my you know what i

was gone for about a week it felt good watching cable tv being king of my new

place i hope she leves me alone this time i am leveing my dog she thanks because

the paper work is in her hame he is hers if she wants to take hem i will take my

kitty that is in my name so she will not have a resen to come to my place as

long as we have are cats we are not alone are we lotacats ,lotacats are kittys

are good freands arentthay donnieKY

> >

> > From: Laurie <mlaurielhotmail (DOT) com>

> > Subject: New to Forums tired of pain

> > To: Hugs-N-Pain@ yahoogroups. com

> > Date: Wednesday, November 5, 2008, 12:41 AM

> >

> > Hi! My name is Laurie and as the topic says I've

> never

> > joined any kind

> > of online forum. I live in AZ and have a wonderful

> husband

> > a son (27)

> > and 2 dogs. In May of 2000 I got my first DVT. It was

> about

> > 2 1/2 feet

> > long in my left leg. I found out I have 3 blood

> clotting

> > factors protin

> > S and C defishance and facter 5 lydon (sorry about the

> > spelling I'm not

> > the greatest). I also have May-thurner syndrom. The

> veins

> > in my legs

> > are being smashed by the arterys. The Dr.'s put in

> 4

> > stints to open

> > veins and a filter in my chest to keep clots from

> going to

> > my chest or

> > head. The serculation in my legs is very poor because

> of

> > the damage the

> > clots and dvt's have done. I live on pain pills.

> > I've been hospitalized

> > 9 times in the last 10 years. Somedays are better then

> > others. I'm so

> > tired of being in pain all the time. Some days I just

> want

> > to end it

> > all. I see a counceler once a week and I like him alot

> > pluss all my Dr

> > are great. Someone sugested getting online and talking

> to

> > people that

> > have to live in pain too. I've just started the

> paper

> > work to get

> > disablity. I really hated having to quit my job but I

> just

> > can't do it

> > any more. Anyway thats what I get to live with. I know

> > there are people

> > out there in worse shape then me and I don't know

> how

> > they do it.

> >

November 9, 2008

I have also bad pain and I also have to eat pills to live at all with my

pain.Who is this person telling you are an addict. A person with no pain at all

I think. Do you need her in your life?

Â

Helena Leijd

redaktÃ¶r Â iÂ Argus Lyriska fabrik

Â och i AURORA

Â

info@...

Â

--- Den lÃ¶r 2008-11-08 skrev donnie Gibbs :

FrÃ¥n: donnie Gibbs

Ã„mne: Re: New to Forums tired of pain

Till: Hugs-N-Pain

Datum: lÃ¶rdag 8 november 2008 23.06