Doing the Neuropsychological test is a WASTE OF TIME and MONEY(venting and long)

[Guest guest]

I had a follow up with my neuro today but never saw him and waited an

hour. Then his assistant that knows nothing about me comes in and

tells me the neuropsh test shows the somato whatever which to them

means everything is in my head and I create my illness. Said the

lesion has nothing to do with any neurological and no link. I told

her I was approved for retirement disability which she looked

shocked. Said who diagnosed me with what? I just told her my ENT

wants me to see Dr. Shoemaker and that he is a specialist for illness

due to mycotoxins.

I went by Lowes and Wal-mart before doc appt. b/c I have not been

anywhere but Food Lion and post office in a month. I got the

pins/needles and started shaking. The Assistant ask do I shake like

that all the time and I said only when exposed to mycotoxins or maybe

chemicals. I didn't realize I was all that noticeable but I guess

she thought I was faking all that. I took CSM today also after

feeling the exposure. I can tell that if I go out anywhere, I'm

going to be exposed to something.

So, now my records show all of it is my own created illness due to

long time stress but my ENT has mold toxicity and mentions Dr.

Shoemaker and saying mimics MS but not diagnostic. So funny b/c I

never went to any doctors about this in the past and only seen a

OBGYN for most part of my life so not like I'm a hyprochondriac. I

had my first real scary symptoms near 13 years ago and didn't even go

to a doc when I about blacked out driving and had leg tremors and

then had some more episodes that left me numb and then gradually went

numb all over and still am and had the burn/throb pain before low

dose naltrexone. I mentioned it to one doc long time back that was a

new HMO and he wanted a record on me and only thing he said was I was

past the 5 year mark for progressing MS and I then waited until 2004

to go to a doc b/c I was going downhill rapidly.

The neck pain/pressure has let up after being out of toxic workplace

for a month and hope it stays gone but I have it in my face and

swelling. I find it odd they didn't detect any cognitive or memory

problems and I couldn't remember the drawings but two out of a lot of

them after they asked me later on but I guess they think I'm faking.

Really wish I was faking b/c this cognitive and memory stuff sucks.

The fatigue is bad but I guess I'm faking that too and dropping

things all the time. I guess feeling like blacking out while driving

is me faking too. I'm not looking for attention. They didn't

mention the call I made Jan. 2 about almost blacking out driving and

I mentioned to the first assistant that came in and he didn't say

anything and guess they all know the neuropsyche test results and now

nothing I say means anything. I wasn't even a priority for the neuro

to see today b/c I guess they think I'm faking now. I wish I'd never

got the neuropsycholical evaluation and it surely didnt get me

approved for retirement disability. They must have gone by my ENT

records and he even says neuro damage per Dr. Shomaker's VCS test.

The Assistant to my neuro acted like she had heard about my case of

spending $11,000 on mold remediation etc. and I guess I must be the

Joke of the Neuro's and now they have the test I chose b/c I thought

better than a psychiatrist and really isn't b/c they just say you

created the illness and all in your head.

My life before being poisoned was active with dancing, traveling,

animal rescue, gardening, cooking and entertaining. Why would I want

to give all that up and fake an illness. I do not get why they do

not want to validate mycotoxicosis esp. when I had the Mold in my

face with an contamianted hvac and ducts/crawlspace and contamination

at work with visable mold and hvac and abestos.

Now I worry that the Medical Board will want to review my case again

in a couple years and I won't get retirement disability and be

denied. I guess there is no reason to try SSDI since my records now

show my illness is self created and fake b/c I will be denied.

I won't ever go back to any of those neuro's in Raleigh and still

feel like I need validation for my illness and feels like I do not

have that in my medical records except for mold allergies which can

be deadly themselves.

Rhonda