Re: Problems after surgery

March 20, 2007

Yes. Had trouble after surgery.

I have an artificial heart valve, so I take bloodthinners for it - when I lived

in an apartment with mold in the unit below mine from a sewer pipe leak under

the building, I that three incidents of bleeding, two of which were

post-surgical, the final one became life-threatening.

Had about a zillion issues after the major bleed, including them finding that I

have polycystic kidney disease - about which I found a journal article

suggesting that mold can trigger PKD progression (since we have no known family

history of it).

I've had 'dizzy' spells and episodes of disorientation which I think may be

seizures due to some kind of neruotoxic something or other, and I'm gonna learn

more about that, I hope.

Major loss of balance - fell twice about six months apart back then - walking

one moment, on the ground the next, very strange.

One of my neighbors in the unit below DIED of his exposure, so I know my freaky

experiences were not all in my head.

Oh, and depression and trouble thinking and focusing and burning eyes and...

I'd suggest you tell US your symptoms and see what folks come up with - you may

be surprised.

~Haley

charlesb35 <charlesb35@...> wrote: Have

you had any unusual problems if you had surgery after being

exposed to toxic mold such as difficulty healing or tissue damage? Any

other unusual problems after surgery? We are trying to solve a mystery

so any help would be much appreciated.

~Haley

March 20, 2007

On Tue, 20 Mar 2007 02:14:52 -0000, you wrote:

>Have you had any unusual problems if you had surgery after being

>exposed to toxic mold such as difficulty healing or tissue damage? Any

>other unusual problems after surgery? We are trying to solve a mystery

>so any help would be much appreciated.

On Tue, 20 Mar 2007 02:14:52 -0000, you wrote:

>Have you had any unusual problems if you had surgery after being

>exposed to toxic mold such as difficulty healing or tissue damage? Any

>other unusual problems after surgery? We are trying to solve a mystery

>so any help would be much appreciated.

I had major hip surgery, dislocated my hip. Surgeon put two pins in my

socket. was a three hour operation so had lots of anesthesia and lost

lot's of blood (no transfusions). (dislocated my hip on dirt bike)

Other than not being all there for about three months I healed fine,

and was working full

time again.

That was 6 1/2 years prior to my finally reacting to mold.

Lived in the moldie house for 14 years before I finally became ill.

That was only after wholesale exposure to dursban and possible

herbicides and fungicides used in granular fertilizer applications the

contractor didn't bother to water it in even though the label said

this should be done.

So I believe I would still be living in that moldie house (picture of

what I mean when I say moldie)

http://www.geocities.com/antares40_40/house/house.html

and working 14 hour days if it were not for that lovely person Bob

at progreen who thought it ok to expose me to that type of

hazard without my knowledge or consent, knowing the whole time he

could count on Todd Caudell at the dept of entomology defend his

actions because the label says " should " and not " must " water it in.

And every time I tried to get a copy of Tod's report that showed just

how much of and what I was exposed to he stonewalled me. Until finally

he said he lost it. Very convenient arrangement these " professionals "

have with the regulators that are supposed to keep them in check. Not

to mention all the Dr's that told me I was a phony with a

psychological problem that just happened to be exposed to 30 tons of

pesticides.

So the moral of the story here folks is never doubt these wonderful

caring extremely conscientious " professionals " when it comes to your

safety and your health.

March 20, 2007

Thanks for responding. I can't provide additional details about my

situation, because I don't have any more details. I had surgery and

something went wrong--maybe tissue damage or maybe the toxins are

preventing me from healing. I won't know unless they cut me open

again, and I think that might just make things worse. I was just

hoping that someone else might have an idea that I could pursue

without being cut open again.

Have you had any unusual problems if you had surgery after being

> exposed to toxic mold such as difficulty healing or tissue

damage? Any

> other unusual problems after surgery? We are trying to solve a

mystery

> so any help would be much appreciated.

>

> ~Haley

>

March 20, 2007

I hate to hear this , I am faceing sergery on my eyes with out

a doctor that reconizes MCS or mold exposure. my sinuses are so

screwed up and are infected all around my eyes, sinus washing only

helps keep the pressure down. I have headackes with jabbing pains

into the back of my eyes. I cant find out if I might have a reaction

to the plastic lens(because of MCS) they want to put in, and I know

theres more going on with my eyes than just cataracts but I cant get

no one to listen or consider whats even causeing my eye problems. its

bad enough that I even got a good look at it with my fogged up right

eye and no wonder it scared that nurse, it shines green. doctors

admitt it's the worst they've seen but than tottally shut me out when

I bring up what caused it. I'm scared shitless that I'm going to lose

my sight. I just dont know if I can have secess with cataracts

sergery when no one will even consider what caused it and what else

may be going on between my eyes and sinuses and brain. and what MCS

could cause while trying to heal. seems like the sinus infections

should be dealt with before sergery but I cant get a doctor to admitt

it fungal and I need antifungals.

> Have you had any unusual problems if you had surgery after being

> > exposed to toxic mold such as difficulty healing or tissue

> damage? Any

> > other unusual problems after surgery? We are trying to solve a

> mystery

> > so any help would be much appreciated.

> >

> > ~Haley

> >

March 20, 2007

Well, actually, you have LOADS of details - how old you are, how long ago the

procedure was, what it was, what the prognosis was for healing, what are your

signs that it ISN'T healing...

It's often hard to talk about things so personal, but most of us here have been

through stuff that has hit our dignity below the belt, so you may get some

better answers if you feel comfortable sharing a bit more...

~Haley

charlesb35 <charlesb35@...> wrote: Thanks

for responding. I can't provide additional details about my

situation, because I don't have any more details. I had surgery and

something went wrong--maybe tissue damage or maybe the toxins are

preventing me from healing. I won't know unless they cut me open

again, and I think that might just make things worse. I was just

hoping that someone else might have an idea that I could pursue

without being cut open again.

Have you had any unusual problems if you had surgery after being

> exposed to toxic mold such as difficulty healing or tissue

damage? Any

> other unusual problems after surgery? We are trying to solve a

mystery

> so any help would be much appreciated.

>

> ~Haley

>

March 21, 2007

,

Several doctors that I have had my wife to were very reluctant on

any type of surgeries or biopsies. The reason being, because what

she has been exposed to and they were afraid she would not heal

properly. So they did everything to avoid it and recommended I do

the same.

After the last couple of years I believe they were absolutely

correct as far as not healing properly. Simple scratches,

bites,punctures seem to take forever to heal and most of the time

become infected. Many times it had scabed over, but underneath was

infected and we had break it open. The only way we have been able to

help this healing process is to soak whatever in white vinegar.

KC

--- In , " charlesb35 " <charlesb35@...>

wrote:

>

> Have you had any unusual problems if you had surgery after being

> exposed to toxic mold such as difficulty healing or tissue

damage? Any

> other unusual problems after surgery? We are trying to solve a

mystery

> so any help would be much appreciated.

>

March 21, 2007

I had the same fear a few years ago when I underwent abdominal

surgery. I think initially it went pretty well since I was on so

many pain killers that I got loads of sleep which was really

helpful. However now it is three years later and sometimes scar

itches (seemingly from the inside) so I don't think it is even done

healing now!! Usually when I am run down and tired but...??

Hyperbaric oxygen treatment helped heal some pesky smaller sores I

had that would not heal. Perhaps it would help this surgery area

but I have taken a financial break from it while I work on house.

Hyperbaric oxygen treatment takes alot of time, usually three hours

each day I took it, travel time, about an hour to go down and back

up..half hour each way or longer and then an hour once you are down,

so it takes up alot of time.

>

> Well, actually, you have LOADS of details - how old you are, how

long ago the procedure was, what it was, what the prognosis was for

healing, what are your signs that it ISN'T healing...

March 21, 2007

I appreciate everyone's comments. It is hard for me to share the

details, but I will share that the main problem is that I now have a

very hard, jagged lump sticking out. It is painful and it has a

stinging or burning sensation. My surgery was 6 months ago and the

lump showed up a few days after surgery.

> >

> > Well, actually, you have LOADS of details - how old you are, how

> long ago the procedure was, what it was, what the prognosis was for

> healing, what are your signs that it ISN'T healing...

>

March 22, 2007

It doesn't seem right that it showed up after surgery. What does your

doctor say about that? I would investigate that further.

--- In , " charlesb35 " <charlesb35@...>

wrote:

>

> very hard, jagged lump sticking out. It is painful and it has a

> stinging or burning sensation. My surgery was 6 months ago and the

> lump showed up a few days after surgery.

March 23, 2007

They (more than 1 doctor who has looked at this) don't know what to

think. It doesn't fit within their " normal/routine " health problems,

so they don't want to be involved. One " expert " told me that I just

have to learn to live with it. I'm sure this sounds familiar to most

of you in this group.

> >

> > very hard, jagged lump sticking out. It is painful and it has a

> > stinging or burning sensation. My surgery was 6 months ago and the

> > lump showed up a few days after surgery.

>

March 24, 2007

A very well known doctor I went to last summer said to " NEVER IGNORE

PAIN " . You should keep seeking an answer to this. Don't let anyone

do anymore cutting though unless you feel 100% there is a good reason

for it. I wouldn't go for exploratory surgery to go in and look at

it. You are a human being not blue cheese, other people must have

experienced this before or there must be some explanation. If it

didn't hurt, I would say leave it alone but pain is your body's way of

asking for help.

--- In , " charlesb35 " <charlesb35@...>

wrote:

>

> very hard, jagged lump sticking out. It is painful and it has a

> stinging or burning sensation. My surgery was 6 months ago and the

> lump showed up a few days after surgery.

>

March 25, 2007

Thanks, Barb. I am scheduled for another test in April. I

definitely don't want another surgery, but I don't want to live with

this nasty, painful lump sticking out. It has been 6 months already,

and I am going to continue to take my time to figure this out.

> >

> > very hard, jagged lump sticking out. It is painful and it has a

> > stinging or burning sensation. My surgery was 6 months ago and

the

> > lump showed up a few days after surgery.

> >

>

May 1, 2008

The last MRI was right before they did the surgery. I wasn't having the pulling

problem until after surgery. I hadn't heard that term before. What can they do

for it?

ellijaygal <ellijaygal@...> wrote: Have you ever had a MRI to see

if your spinal cord is tethered? That

sounds similiar to my problems and my spinal cord is tethered.

I had foraminotomy,

laminectomy and discectomy on 04.18.08 the first

> week went by pretty easily. No real major issues. But this week has

> been rough so far. I have developed a pulling sensation, that to be

> quite frank...hurts like hell. It is not a constant sensation. The

> strangest part is it seems to happen more when I move my neck. I do

> have c-4 and c-5 Rupture as well... but this symptom did not occur

> until just this week. Help? Anyone else had this happen and if so

what

> was going on?

>

> ---------------------------------

> Be a better friend, newshound, and know-it-all with Mobile.

Try it now.

>

May 1, 2008

Thanks for the heads up. Did a little reading and this almost sounds exactly

like what is going on. It is a pulling down my left leg, with pain from the

strain. Almost feels like a pulled tendon or something. Looked up the Tethered

spinal cord and I think you might be right. Needless to say, just called

doctor's office and left message to speak with someone asap.

Doesn't sound like this is a good thing.

How long have you been dealing?

ellijaygal <ellijaygal@...> wrote:

Have you ever had a MRI to see if your spinal cord is tethered? That

sounds similiar to my problems and my spinal cord is tethered.

I had foraminotomy,

laminectomy and discectomy on 04.18.08 the first

> week went by pretty easily. No real major issues. But this week has

> been rough so far. I have developed a pulling sensation, that to be

> quite frank...hurts like hell. It is not a constant sensation. The

> strangest part is it seems to happen more when I move my neck. I do

> have c-4 and c-5 Rupture as well... but this symptom did not occur

> until just this week. Help? Anyone else had this happen and if so

what

> was going on?

>

> ---------------------------------

> Be a better friend, newshound, and know-it-all with Mobile.

Try it now.

>

May 1, 2008

I had my first de-tethering surgery in August of 2006 and I found out yesterday

it is tethered again. The pain/spasms my legs had prior to the first

de-tethering aren't back yet, but I'm sure eventually they will be and I will

have to have the surgery again. Basically, I have dealt with it my entire life.

I had spina bifida when born and after having two children starting having the

leg pain/spasms but wasn't diagnosed for another 18 years....

Shayna <shaynal2003@...> wrote: Thanks for the heads up. Did a

little reading and this almost sounds exactly like what is going on. It is a

pulling down my left leg, with pain from the strain. Almost feels like a pulled

tendon or something. Looked up the Tethered spinal cord and I think you might be

right. Needless to say, just called doctor's office and left message to speak

with someone asap.

Doesn't sound like this is a good thing.

How long have you been dealing?

ellijaygal <ellijaygal@...> wrote:

Have you ever had a MRI to see if your spinal cord is tethered? That

sounds similiar to my problems and my spinal cord is tethered.

I had foraminotomy,

laminectomy and discectomy on 04.18.08 the first

> week went by pretty easily. No real major issues. But this week has

> been rough so far. I have developed a pulling sensation, that to be

> quite frank...hurts like hell. It is not a constant sensation. The

> strangest part is it seems to happen more when I move my neck. I do

> have c-4 and c-5 Rupture as well... but this symptom did not occur

> until just this week. Help? Anyone else had this happen and if so

what

> was going on?

>

> ---------------------------------

> Be a better friend, newshound, and know-it-all with Mobile.

Try it now.

>

May 1, 2008

Wow, Can't believe you had to deal with this kind of pain for that length of

time.

I can't say " I can relate " mine hasn't been that long.

But I do sort of understand.

I can't thank you enough. I had never heard that term before. But, it actually

makes perfect sense. Could be swelling, could be scar tissue, could be anything,

but the symptom is the same.

Sense this didn't develop until after the surgery, I am assuming the doc's

office will just want to wait and see if I am still having the same issue when I

go back to see them in a few weeks. Wouldn't you think?

Are you currently symptomatic?

Barbara Hill <ellijaygal@...> wrote:

I had my first de-tethering surgery in August of 2006 and I found out

yesterday it is tethered again. The pain/spasms my legs had prior to the first

de-tethering aren't back yet, but I'm sure eventually they will be and I will

have to have the surgery again. Basically, I have dealt with it my entire life.

I had spina bifida when born and after having two children starting having the

leg pain/spasms but wasn't diagnosed for another 18 years....

Shayna <shaynal2003@...> wrote: Thanks for the heads up. Did a little

reading and this almost sounds exactly like what is going on. It is a pulling

down my left leg, with pain from the strain. Almost feels like a pulled tendon

or something. Looked up the Tethered spinal cord and I think you might be right.

Needless to say, just called doctor's office and left message to speak with

someone asap.

Doesn't sound like this is a good thing.

How long have you been dealing?

ellijaygal <ellijaygal@...> wrote:

Have you ever had a MRI to see if your spinal cord is tethered? That

sounds similiar to my problems and my spinal cord is tethered.

I had foraminotomy,

laminectomy and discectomy on 04.18.08 the first

> week went by pretty easily. No real major issues. But this week has

> been rough so far. I have developed a pulling sensation, that to be

> quite frank...hurts like hell. It is not a constant sensation. The

> strangest part is it seems to happen more when I move my neck. I do

> have c-4 and c-5 Rupture as well... but this symptom did not occur

> until just this week. Help? Anyone else had this happen and if so

what

> was going on?

>

> ---------------------------------

> Be a better friend, newshound, and know-it-all with Mobile.

Try it now.

>

May 1, 2008

Well I truly hope that isn't what it is and it is something else that is more

easily treated. I am having some symptoms but nowhere near the pain/spasms I had

before my first surgery. If your doctors are at a loss as to what it could be

you may want to ask them if they can do a MRI just to rule it out. Like I said I

dealt with it for YEARS AND YEARS and doctors tried to play it off as

depression, RLS, on and on and on, I have been on so many different medications

over the years before I finally found a good doctor who ordered a MRI and

figured out that it was a tethered spinal cord and that I wasn't just depressed,

had restless leg syndrome, or fibromyalgia. Don't be afraid to speak up and tell

them what the pain is like and point blank ask them if they think it could be

tethered! Good luck.

Shayna <shaynal2003@...> wrote:

Wow, Can't believe you had to deal with this kind of pain for that

length of time.