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Hi ,

I'm in KS also. Near Wichita. We travel down through your area at least

once a year - though usually around the holidays. Let me know if you ever

head this way. I'd like to meet also. We might want to have a little picnic

or get together this summer if we can find a couple more of us. I think I

know of at least 3 Kansans. Let me know of anyone you know in the area.

Jacque Clifton

Austin's mom (4.5 years CHaRgE)

KS

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Guest guest

Hi . It would be nice to meet you and your family. I'm sure we could

work something out in the future to meet halfway.

Bradley

husband to &

father to Aubrey (8 mo) ChARgE

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  • 3 weeks later...
Guest guest

Hi!

I regretfully must unsubscribe for the summer. I'm not in the office much, so

it has become too much! I look forward to meeting you all in Houston and can't

express my gratitude for all you have taught me! I'll be back in the fall when

school starts.

Thanks--See you in Houston!

Laurie (Secrease) Palesotti

teacher to Katelyn 8 yrs old

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  • 3 weeks later...
Guest guest

,

I really enjoyed the conference as well. Meeting everyone I've talked to

all these months, hearing the speakers, and especially meeting all the lil

ones was fantastic. I was able to go through our local Deaf/Blind program

as well and we are having a " mini " CHARGE conference at the school sometime

in the '99 school year to share our information that we got at the

conference. There are 6 families in the Atlantic Provinces that we know of,

so hopefully they'll all attend!

Thanks to everyone for their hard work in putting together the conference!

As for pictures that I had taken {alot} and planned to scan and send to

folks....well, the & $#*( camera ate my film as it re-wound, I'm trying to be

as calm as possible about it but boy was I MAD!!! Jeanie took a lot of the

same pix as me, and is getting me a double set, so hopefully I'll get most

of them scanned for y'all..:)

Mom to Kennedy 18 mos old CHARGEr, 10, 8, and wife to Graeme

New Brunswick, Canada

Visit the " Weir homepage " at:

http://www.geocities.com/SunsetStrip/Palms/5716

ICQ #1426476

>

>

>

>Hello to All,

> Thanks to all who took the time to attend the conference. I LOVED every

>minute!!! I learned so much and am excited to bring it home and help

>Katelyn grow. She also had a great time. Her sign language skills

>improved. The other kids have been an inspiration to her:-).

> Casey asked that I let you all know that she has taken 70-80 pictures of

>the Conference and will load them on to the computer when she arrives home.

>Casey you are great!!!

> A sincere thank you to all of the individuals that worked so hard putting

>the Conference together. A special thank you to the Minnesota Deafblind

>project . They made if possible for me to attend. Now it is my turn to

>repay mydebt to them. I am planning to educated many of the doctors in the

>area about CHARGE syndrome. I hope they will listen.

> The most touching time for me was the award for Stars of Charge. These

>individuals have been working so hard for so many years. It was a pleasure

>to meet them. Thanks to you , Meg, n and your wonderful late

>husband Lee. I appreciate your hard work!!!!

> Well, I will be in Indianapolis in 2001. I will start my savings

>tomorrow. Hope to see all of you there!

>

> Stevermer & Katelyn-the signing fool (8)

>

>

>

>---------------------------

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  • 3 months later...

Hi Vicki,

I haven't been lurking , what happened my computer went down in sept. and

then it took 6 weeks to fix it. The day it came to the store fixed, I went

in the hospital for 6 days with pneumonia, just getting back a little now. I

see why you would probably doas well with that low dosage on the shots as

opposed to the pump. I have problems with the math also but I hope to get by

bg's down during the next three months for another good ha1c. The blood

sugar was pretty high while I was sick and now they are better as I am

recuperating.

Keep on trucking,

Don and Penguinie, pumper penguin O-

/()\

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  • 9 years later...

hi everbody i hope youall have a less pain christmas i called my wife to wish

where a marry christmas and she bitched me out and i just relised i have nobody

i will be setting this christmas by my self marry christmas everbody i wish i

had somebody in my arms to hold that would be the best cristmas ever donnieKY

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