Need some help

March 25, 2002

Starr,

Start that behavior/diet diary today, without fail. I've kept one for 3

years - mine has one week on a page, and I print out a month at a time of

it on my PC. I put the old months in a binder so I can look back. Some

days and weeks you won't write much, but make sure you write any time you

change ANYTHING in his supplements, any unusual foods or symptoms. And

don't change anything more often than every 3 days. Any new supplement or

change of dosage has some chance of showing you if it's causing a reaction

(bad or good) this way. Some things work slower than this (fatty acids are

the one that comes to mind). We do Brainchild (very happy customers for

over 2 years) and fatty acids and probiotics. Just shoot any specific

questions my way about these things. You'll find way more info on this

list than I know about enzymes, though - I'm still just dabbling with them

- we had actually stopped them in December when my guy had a big behavior

slide, thinking they might be part of the problem, and now have figured out

he actually had yeast and 2 kinds of gut bacteria, which we're still

treating, so I'm planning to start them up again soon.

Terri

mom to Zane, 8yo hfa

At 11:23 AM 3/25/2002 -0400, you wrote:

>Hi,

>I've been lurking and reading for quite some time, and I think I've

>finally soaked up enough information that I need to get some advice on

>how to proceed. I'll start by giving you some info. on my son. Sam

>will be 4 in June. He was diagnosed last August with ASD with no

>specific diagnosis under that umbrella. We had taken him to our family

>doctor around 16 mths. and suspected autism because of lack of pointing,

>joint attention etc., but the doctor said definitely not - he's too

>loving etc. His speech never really developed at all - so he didn't

>regress like some kids do. He is hyperlexic, has been reading for quite

>some time (he's sitting on my lap reading this as I type!) and the first

>things he really said consistently were letters and numbers. I think we

>backed off for a while because we figured if he could read there

>couldn't be anything wrong with him. Now I wish I'd gone with my

>instincts. We started private speech therapy about a year ago and

>through that we were referred and got a diagnosis. The neurologist

>thought the cause was genetic, since my husband and I saw so much of

>ourselves in Sam, but not to the same degree. Sam's bowel's have always

>been loose, not formed, but I wouldn't say that he had diarrhea. Last

>May though he did have about six weeks or so of diarrhea with mucus in

>it and then short episodes off and on since then (My younger NT son has

>also had episodes, but not to the same extent). They've had standard

>stool samples done for parasites with negative results. We started Sam

>on a multivitamin 1.5 years ago and stopped a few times because we

>thought it might be related to the diarrhea, and always thought his

>speech improved when on it (not really sure though). As soon as Sam was

>diagnosed we started a GFCF diet. He has made really good progress, but

>I had a hard time attributing it to the diet, since he was making

>progress before we started the diet. He has never really had major

>sleep problems or aggression etc. so there was nothing major we noticed

>that improved with the diet. We were reluctant to stop though because

>they say the amount of progress he's making isn't typical. Lately we

>have been letting him cheat now and then and have found that he is more

>cranky and not quite as sharp or aware as he had been, but again, we're

>not sure it correlates to the diet. We have decided to go strict

>again. We went to a nutrionist last fall and she recommended a

>probiotic and enzyme - we used Total Flora and Plantzyme from Infinity2

>Nutritionals. Anyone heard of these? We never really saw anything

>noticeable with either, but I have been doing them off and on. We

>haven't done the probiotic in a while and wonder if that might have been

>helping him. He has red cheeks sometimes and dark circles under the

>eyes and I have tried removing major phenols, but again never noticed an

>immediate reaction on introducing them again. I just started Epsom salt

>baths last night so we'll see how that goes. One regret is I haven't

>kept a food/behavior diet and I plan to start that today. Oh, he was on

>his first antibiotic ever in Nov. for impetigo and his stools were

>better than they'd ever been for a while after that. Think there's any

>connection? I'd like to try Houston enzymes, maybe a different

>probiotic, Brainchild and maybe some essential fats. How should I go

>about it and how can I tell what's working when I get no major reactions

>one way or the other. How do I know he wouldn't be making the same

>progress just doing the speech and ABA. I believe in the nutritional

>therapies, but just have a hard time seeing the evidence in Sam. I have

>no access to a DAN doctor, but may be able to get a naturopath who would

>be of help. I really feel that there is something with his bowel's but

>haven't been able to figure it out. He does have a red ring, sometimes

>worse than others, but it doesn't seem to itch - I'm not sure if it's

>yeast or not. I'd also like to try GSE. What should I try first?

>Thanks so much for any help you can give and for all the info. I've

>already received!

>Starr

>

March 4, 2005

If I were yu, I would take him to both. Just to make sure he gets the check up

from both.

I have a 5 1/2 old with severe apraxia. I wish I would have done every possible

test for her when she was smaller so that we could have catch this earlier.

Regards,

Ana T. Irizarry year

Applications Consultant II

Kronos Inc.

E-mail : anairizarry@... < mailto:anairizarry@...>

FPC Certified

Voice : 561-988-3922

Cel : 954-224-6904

Fax : 954-241-6988

[ ] need some help

Hello all. I live in Warren County, NJ (by NE PA). I'm confused. My son is 2

yrs 9 months and we're looking going to a developmental pediatrician on March

11th. At first I made an appt with a pediatric neurologist who I thought we

could go to for developmental delays. I'M SO CONFUSED. Yesterday, I took

to an ENT & he had another audiological exam, which turned out to be

normal this time. He wants to see him in another 6 weeks just to make sure that

there isn't fluid in his ears again.

my question is this...should I take him to see a development ped or a ped

neurologist???

Thanks.

Priscilla

March 4, 2005

That was going to be my suggestion, too. Especially from an

insurance standpoint. Technically, dev peds are not specialists (ie

there is not code for them) BUT neuros ARE and I just find that the

more evidence you have, the better off you are with the insurance

cos. Plus, from a personal standpoint, if it is impacting more than

speech and you need OT, PT, etc., it's important to get a complete

picture of a child both physically and developmentally.

Good luck - Marina

>

> If I were yu, I would take him to both. Just to make sure he gets

the check up from both.

>

> I have a 5 1/2 old with severe apraxia. I wish I would have done

every possible test for her when she was smaller so that we could

have catch this earlier.

>

> Regards,

>

> Ana T. Irizarry year

> Applications Consultant II

> Kronos Inc.

> E-mail : anairizarry@k... < mailto:anairizarry@k...>

> FPC Certified

> Voice : 561-988-3922

> Cel : 954-224-6904

> Fax : 954-241-6988

>

> [ ] need some help

>

> Hello all. I live in Warren County, NJ (by NE PA). I'm confused.

My son is 2 yrs 9 months and we're looking going to a developmental

pediatrician on March 11th. At first I made an appt with a pediatric

neurologist who I thought we could go to for developmental delays.

I'M SO CONFUSED. Yesterday, I took to an ENT & he had

another audiological exam, which turned out to be normal this time.

He wants to see him in another 6 weeks just to make sure that there

isn't fluid in his ears again.

>

> my question is this...should I take him to see a development ped or

a ped neurologist???

>

> Thanks.

>

> Priscilla

April 4, 2007

What molds are mostly found in buildings in Florida. I am going to be

tested for molds and need the names of these molds here. I got real

sick at work and now they are denying me treatment. I can hardly breath

and get real dizzy. No meds seem to work. Anyone else in south Florida

having the same problem?

April 4, 2007

" jodirego " <jodirego@...>

Anyone else in south

Florida

Jackie I feel for Jodirego I'm in South Florida it's bad all over the state I

see Dr.Robbins@... <Dr.Robbins@...> only I have

Medicare and it's like he say. they don't want to pay for treetment you can hear

Doctor Robbins @ www.wwnnradio.com on Sundays 5 pm to 6 pm call in #

1-888-565-1470 or 561-988-5470 he's a wonderful man I just love him Jodirego go

see him. 420 West Hillsboro Blvd Deerfield Beach east of I95 office #

954-421-1929.

Elvira

[] Re: Need some help

I lived in S. Florida for several years and I was actually healthier

there. The mold is worse there due to the moisture in the air. We

never had a mold problem in our homes we lived in. We always kept

fresh air coming in through cracking our windows as well as used the AC

to dry the indoor air out. I don't know what kid of molds grow down

there but I would assume most would be the same as they are here. You

can most likely call your county agency or health dept and find out.

>

> What molds are mostly found in buildings in Florida. I am going to be

> tested for molds and need the names of these molds here. I got real

> sick at work and now they are denying me treatment. I can hardly

breath

> and get real dizzy. No meds seem to work. Anyone else in south

Florida

> having the same problem?

>

April 4, 2007

Thanks Elvira!!

I will tune in to that station!! here in SC, we have a horrible mold

problem. I wish I could move!

>

> " jodirego " <jodirego@>

>

> Anyone else in south

> Florida

>

> Jackie I feel for Jodirego I'm in South Florida it's bad all over

the state I see Dr.Robbins@... <Dr.Robbins@...> only I have Medicare

and it's like he say. they don't want to pay for treetment you can

hear Doctor Robbins @ www.wwnnradio.com on Sundays 5 pm to 6 pm call

in # 1-888-565-1470 or 561-988-5470 he's a wonderful man I just love

him Jodirego go see him. 420 West Hillsboro Blvd Deerfield Beach east

of I95 office # 954-421-1929.

>

> Elvira

>

> [] Re: Need some help

>

> I lived in S. Florida for several years and I was actually

healthier

> there. The mold is worse there due to the moisture in the air. We

> never had a mold problem in our homes we lived in. We always kept

> fresh air coming in through cracking our windows as well as used

the AC

> to dry the indoor air out. I don't know what kid of molds grow

down

> there but I would assume most would be the same as they are here.

You

> can most likely call your county agency or health dept and find

out.

>

> --- In , " jodirego " <jodirego@>

wrote:

> >

> > What molds are mostly found in buildings in Florida. I am going

to be

> > tested for molds and need the names of these molds here. I got

real

> > sick at work and now they are denying me treatment. I can

hardly

> breath

> > and get real dizzy. No meds seem to work. Anyone else in south

> Florida

> > having the same problem?

> >

>

April 4, 2007

Well Jackie,

Let's pray I win my case or the lotto I will build something to help those like

you and me my family has land in Northern Florida if I had the right kind of

people to help acres. I'm sure we can get to build on it just need people and

ideas to present to the family it was given to my grandfather 160 acres slave

Land just sitting there.

money does talk and the Land just sit any ideas I'm sure we can get 8 acres my

problem is education that's the reason I didn't want control other wise I may

have never gotten to know about mold are any of my dearest friends here on the

web. things does happen for a reason as the old saying goes let's keep hope

alive.

Elvira

[] Re: Need some help

Thanks Elvira!!

I will tune in to that station!! here in SC, we have a horrible mold

problem. I wish I could move!

> >

> > What molds are mostly found in buildings in Florida. I am going

to be

> > tested for molds and need the names of these molds here. I got

real

> > sick at work and now they are denying me treatment. I can

hardly

> breath

> > and get real dizzy. No meds seem to work. Anyone else in south

> Florida

> > having the same problem?

> >

>

April 5, 2007

Land is great to have!

Don't feel bad, I am the black sheep of my family as well!! I have

grown to like it!

A-Men Jackie A-men I Love it but can get my hands on some of the Land they can't

take that away I just never had any help in that area that's why I wouldn't let

my brother pass it on to me. but it's in safe hands any one wants to get busy

building safe housing for those of us so in need we can come up with some ideas.

to me there's nothing worse than a failure then a failure to try.

let's help ourselves then start helping many others.

Elvira

[] Re: Need some help

Land is great to have!

Don't feel bad, I am the black sheep of my family as well!! I have

grown to like it!

> > > >

> > > > What molds are mostly found in buildings in Florida. I am

> going

> > to be

> > > > tested for molds and need the names of these molds here. I

> got

> > real

> > > > sick at work and now they are denying me treatment. I can

> > hardly

> > > breath

> > > > and get real dizzy. No meds seem to work. Anyone else in

> south

> > > Florida

> > > > having the same problem?

> > > >

> > >

April 5, 2007

DITTO ELVIRA! dont let anything change who you are. keep wearing that

shirt and fighting. I too have become the black sheep of the family

through the years of this misunderstood illness and thanks to many

misdiagnoses along the way witch has been very hard to try to explain

to family. I've also realized that you dont need doctors who treat

you that way and if they act like that, they won't help you anyway.

who needs more misdiagnoses. it's not right and not fair but stay

deturmined and someday, hopefully soon, we will be heard loud and

clear.

--- In , " elvira52 " <Elvira52@...>

wrote:

>

> Land is great to have!

> Don't feel bad, I am the black sheep of my family as well!! I have

> grown to like it!

>

>>

>

April 5, 2007

You go girl!!

Don't feel you need an education to be your best. Even though I

finished high school and have some college, I could never finish it

all because I just can't learn as well as others. I have 5 sisters

with college degrees who make good money but I could never measure up

to their standards because I don't have what it took in their eyes.

Back in my time, a person like me was considered dumb, stupid or

lazy. Now there are medical terms for learning problems such as I

have. I even have a problem with my hearing that causes me to hear

words different than others so I often cannot pronunce or spell

correctly at times. Heck, I went through both barber and cosmetology

school and I still had a hard time learning that!!! I was OK with

the hands on and creative part but having to learn all of the terms

when we were studying chemistry and skin and scalp diesease, I was

just plain dumb dumb dumb! I worked hard and passed well but I had

to really study. Must people did not even study.

Now that I am older, I am 50, I have learned I have something my

educated sisters don't have. I know what it is like to be different.

I have wisdom about life a person with a professional degree will

never have.

Eviria, you are so full of wisdom that is not gained by an education.

Many of doctors and professionals don't have the wisdom you have.

True wisdom comes from something far greater than books and

education. You have it Elviria! You do what you feel is best for you!

Heck with what the world thinks! Keep up the good work and caring for

others. YOu are priceless!

> > > > >

> > > > > What molds are mostly found in buildings in Florida. I am

> > going

> > > to be

> > > > > tested for molds and need the names of these molds here.

I

> > got

> > > real

> > > > > sick at work and now they are denying me treatment. I can

> > > hardly

> > > > breath

> > > > > and get real dizzy. No meds seem to work. Anyone else in

> > south

> > > > Florida

> > > > > having the same problem?

> > > > >

> > > >

April 5, 2007

Jackie,

Thank You so much many forester kids many lost every one that loved and cared

for them, left to fine for themselves I just pray that one day I can write a

book on trials and tribulations. some are single family my illness and all the

stress of the Mold over and over and not being able to get away from it. I've

lot's every thing under HUD and come very close many times loosing my life

Homeless ill and trying to get my life back on track it's not easy. nights or

worse with the smelling of mold for me and the Chronic pain and the fear of

seeing doctors because of what happen living in HUD housing.

the games they play with others lives get rich quick off the poor and this is

Government workers Judges Landlords Attorneys where do we turn? I can go on but

I'm not feeling well it seem hard to get ride of the gastro viral infection, and

after the doctor wouldn't see me I have to fine another one. I had a test done

and that doctor see something on my womb so he's sending me to get another test

to make sure of what he see. he want me to wait a month to take the test again

he's a baby doctor then the chronic pain and knowing there's a way not to suffer

so much. I just can't fine it but keep trying the took away my Voucher so I do

what I have to and keep hope alive. all I hear is mold is every where not true

if people took care of their property " Who " is one of a kind most people learn

there homes are making them ill get out and rent the place to others?

we know how that goes HUD is the best place for them to use because Landlords

know they can and will get away with it and this is why many want deal with HUD.

I now understand hold heartly thank you all again for understanding.