Re: Headaches and Joint pain

[Guest guest]

,

Sorry to hear about the pain. Its tough when you cannot break the pain cycle

- either head or back. If you have migraines, that would be my first

suspect, rather than something new in your back causing them. Especially if

the headache feels similar to the migraines you typically have - except this

one just won't quit. When I have headaches (not migraines, but chronic

headaches I have had since I had my first cerebral bleed). But as is common

with migraines is an aura. I don't necessarily " auras, " but when I get

nauseated and cannot find a reason, sometimes I will find out why I was

nauseated when the headache comes on. When I get the headaches, it is common

for me to feel dizzy, photosensitive, sound sensitive and even have problems

speaking. Do you see a neurologist or other MD for your migraines? If your

meds are not working to stop them, I would give them a call and let them

know what is going on. Maybe they can call you in something or work you in

for a visit to evaluate what is going on an how you can stop them.

If the headaches feel different or the MD that treats your headaches isn't

too keen on seeing you, you can always call the MD that sees you for your

back and see if he/she can help you. I used to see a neurologist for my

headaches, but I have been fortunate that my physiatrist that has been

giving me the pain meds I need to treat the headaches when I get one, so I

haven't had to see my neuro in a while, since things haven't changed.

If you have pretty significant changes in your gait b/c of neuro damage from

the TCS, then that could be the source of your leg pain. I would make a

visit to the MD that treats you back and have him her evaluate it. It may be

caused by problems with your gait (putting stress on joints or bones in an

awkward way), or it could be caused by spasticity making you legs tight

(which may further affect your gait), or even neuropathy. A visit to your

MD, should be able to identify the source of the pain and determine the best

course to treat it - meds, bracing (such as AFOs), using crutches (to take

some of the stress off your legs). But I would definitely see your MD, as

changes in your gait can also increase your back pain.

Best of luck,

Jenn

From: tetheredspinalcord

[mailto:tetheredspinalcord ] On Behalf Of

stephanie.wigglesworth

Sent: Wednesday, August 20, 2008 2:46 PM

To: tetheredspinalcord

Subject: Headaches and Joint pain

I have been suffering from these horrid headaches which are a mix

between a hangover and a migraine - i cant shift them - i dont really

know if its related or in my head - so to speak

also i have been getting pains in my ankles and knees - i am guessing

that its due to the fact that walk badley when i do walk but is making

walking harder.

Any suggestions

thanks

stephanie

[Guest guest]

Sorry to hear you having problems . I know this may sound silly but I

sufferred from headaches for years and finally tracked it down to

diet....artificial sweeteners to be exact. I cant even have them in my

toothpaste or gum I am so sensitive to them. I cant have steak sauce or a lot of

marinades either, not sure why, maybe MSG? I have had two episodes in my life

where I wound up in ER with headaches so severe that my BP was like

240/130....they weren't the food allergy headaches...or migraines...in fact they

thought I was stroking but my head scanned clear. After doing research over the

years I think now that they may have been related to a " bleed " in my spinal

cord...if I ever have another one (God forbid) I will have them do a spinal tap

to see if I have blood in my CSF. Anyway, as for the ankle and knee pain, me

too. I can't even get upstairs to my bedroom half the time. I think mine is

related to my gait as well. When we can't walk right it

has to affect our joints

I know that I have to use a cane alot and for sure that messes with my posture

and alignment. Also the neuropathy probably doesn't help. Ask your NS about it

all, do you have Chiari (spelling?) that could certainly cause headaches I would

think...

Well, hope you figure it out, headaches suck Take Care,

Subject: Headaches and Joint pain

To: tetheredspinalcord

Date: Wednesday, August 20, 2008, 6:45 PM

I have been suffering from these horrid headaches which are a mix

between a hangover and a migraine - i cant shift them - i dont really

know if its related or in my head - so to speak

also i have been getting pains in my ankles and knees - i am guessing

that its due to the fact that walk badley when i do walk but is making

walking harder.

Any suggestions

thanks

stephanie

[Guest guest]

sorry to hear, when i was like that my nero. sent me to a nero.surg. and thats

when they found out i have chiari malformation wich is assc. w/tethered cord

[Guest guest]

i have still got the headache - i am pretty sure the leg pain is the

bad walking -

this headaches has been for a few weeks now coming and going i think i

will go to the doc monday as it getting pretty s**t now.

sorry have not kept on top of emails.

will let you know

ta

>

> sorry to hear, when i was like that my nero. sent me to a nero.surg.

and thats when they found out i have chiari malformation wich is assc.

w/tethered cord

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