Guest guest Posted May 31, 2008 Report Share Posted May 31, 2008 Hi, My DD is one that had the " hidden " tethered cord. It was hidden in that her MRI looked normal. We got a 2nd opinion from someone with a ton of experience and he said though her MRI was indeed normal the actual spinal cord looked pulled a tiny bit forward instead of centered. But it WAS normal in that it wasn't thickend or fatty and ended in the right spot on the MRI. We chose to have the surgery b/c she was facing kidney damage and when he finally got in there it WAS tethered cord, it was the thickened filum kind. But he didn't know till he was in there. No idea why it didn't show up on MRI for her.... > > > My 2.5 year old dd is having an MRI without and with contrast and a CSF flow study done. > > Are there any after or side effects of having the dye in her spinal cord?? > They whole thing gives me the ebbie geebies! I'm sure it fine, but the thought of dye in her cord creeps me out. > > Also, I read somewhere here that someones baby had TC that was " hidden " on MRI - how was it hidden and how did they finally figure out it was TC???? > > > > ?Jen and Luli - 29 months > Left tort - Right Plagio - Hanger Band Grad - CA > http://www.babiesonline.com/babies/j/jens5th/ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2008 Report Share Posted May 31, 2008 My MRI showed a tether but when they got in there it was actually a double tether and split and extra cord from L1-L4. Which did not show up on the MRI due to where it was conected on the back part of my spine. All the MRI read was thick filum! This message was sent from an iphone and may not display correctly. > Hi, > > My DD is one that had the " hidden " tethered cord. It was hidden in > that her MRI looked normal. We got a 2nd opinion from someone with a > ton of experience and he said though her MRI was indeed normal the > actual spinal cord looked pulled a tiny bit forward instead of > centered. But it WAS normal in that it wasn't thickend or fatty and > ended in the right spot on the MRI. > > We chose to have the surgery b/c she was facing kidney damage and > when he finally got in there it WAS tethered cord, it was the > thickened filum kind. But he didn't know till he was in there. No > idea why it didn't show up on MRI for her.... > > > > > > > > > > My 2.5 year old dd is having an MRI without and with contrast and a > CSF flow study done. > > > > Are there any after or side effects of having the dye in her spinal > cord?? > > They whole thing gives me the ebbie geebies! I'm sure it fine, but > the thought of dye in her cord creeps me out. > > > > Also, I read somewhere here that someones baby had TC that > was " hidden " on MRI - how was it hidden and how did they finally > figure out it was TC???? > > > > > > > > ?Jen and Luli - 29 months > > Left tort - Right Plagio - Hanger Band Grad - CA > > http://www.babiesonline.com/babies/j/jens5th/ > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2008 Report Share Posted May 31, 2008 Lots of tethers and retethers are hidden on MRI, usually because the person looking doesnt have the proper experience, sometimes just super diffiucult to diagnose because of how & nbsp;and/or where it is tethered. & nbsp;Sometimes they resort to surgery because of symptoms alone and when they do they find the cord tethered even though it looked " normal " on MRI. & nbsp; From: Jen & lt;JenandLuli@... & gt; Subject: MRI question To: tetheredspinalcord Date: Saturday, May 31, 2008, 12:27 AM My 2.5 year old dd is having an MRI without and with contrast and a CSF flow study done. Are there any after or side effects of having the dye in her spinal cord?? They whole thing gives me the ebbie geebies! I'm sure it fine, but the thought of dye in her cord creeps me out. Also, I read somewhere here that someones baby had TC that was " hidden " on MRI - how was it hidden and how did they finally figure out it was TC???? ?Jen and Luli - 29 months Left tort - Right Plagio - Hanger Band Grad - CA http://www.babieson line.com/ babies/j/ jens5th/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2008 Report Share Posted May 31, 2008 Good God, you would think THAT would show up on MRI...in hindsight was it on there but they didnt know what they were seeing or did it really just not show up?? & gt; Hi, & gt; & gt; My DD is one that had the " hidden " tethered cord. It was hidden in & gt; that her MRI looked normal. We got a 2nd opinion from someone with a & gt; ton of experience and he said though her MRI was indeed normal the & gt; actual spinal cord looked pulled a tiny bit forward instead of & gt; centered. But it WAS normal in that it wasn't thickend or fatty and & gt; ended in the right spot on the MRI. & gt; & gt; We chose to have the surgery b/c she was facing kidney damage and & gt; when he finally got in there it WAS tethered cord, it was the & gt; thickened filum kind. But he didn't know till he was in there. No & gt; idea why it didn't show up on MRI for her.... & gt; & gt; & gt; & gt; & gt; & gt; & gt; & gt; & gt; & gt; My 2.5 year old dd is having an MRI without and with contrast and a & gt; CSF flow study done. & gt; & gt; & gt; & gt; Are there any after or side effects of having the dye in her spinal & gt; cord?? & gt; & gt; They whole thing gives me the ebbie geebies! I'm sure it fine, but & gt; the thought of dye in her cord creeps me out. & gt; & gt; & gt; & gt; Also, I read somewhere here that someones baby had TC that & gt; was " hidden " on MRI - how was it hidden and how did they finally & gt; figure out it was TC???? & gt; & gt; & gt; & gt; & gt; & gt; & gt; & gt; ?Jen and Luli - 29 months & gt; & gt; Left tort - Right Plagio - Hanger Band Grad - CA & gt; & gt; http://www.babieson line.com/ babies/j/ jens5th/ & gt; & gt; & gt; & gt; & gt; & gt; Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2008 Report Share Posted May 31, 2008 It really didn't show up I went to stanly childrens hospital in NYC and there were dumb founded but said the MRI really didn't look that bad compared to when they opened me up This message was sent from an iphone and may not display correctly. On May 31, 2008, at 2:22 AM, Clement <livedream_believe@... > wrote: > Good God, you would think THAT would show up on MRI...in hindsight > was it on there but they didnt know what they were seeing or did it > really just not show up?? > > > > & gt; Hi, > & gt; > & gt; My DD is one that had the " hidden " tethered cord. It was hidden > in > & gt; that her MRI looked normal. We got a 2nd opinion from someone > with a > & gt; ton of experience and he said though her MRI was indeed normal > the > & gt; actual spinal cord looked pulled a tiny bit forward instead of > & gt; centered. But it WAS normal in that it wasn't thickend or fatty > and > & gt; ended in the right spot on the MRI. > & gt; > & gt; We chose to have the surgery b/c she was facing kidney damage and > & gt; when he finally got in there it WAS tethered cord, it was the > & gt; thickened filum kind. But he didn't know till he was in there. No > & gt; idea why it didn't show up on MRI for her.... > & gt; > & gt; > & gt; > & gt; > & gt; & gt; > & gt; & gt; > & gt; & gt; My 2.5 year old dd is having an MRI without and with > contrast and a > & gt; CSF flow study done. > & gt; & gt; > & gt; & gt; Are there any after or side effects of having the dye in > her spinal > & gt; cord?? > & gt; & gt; They whole thing gives me the ebbie geebies! I'm sure it > fine, but > & gt; the thought of dye in her cord creeps me out. > & gt; & gt; > & gt; & gt; Also, I read somewhere here that someones baby had TC that > & gt; was " hidden " on MRI - how was it hidden and how did they finally > & gt; figure out it was TC???? > & gt; & gt; > & gt; & gt; > & gt; & gt; > & gt; & gt; ?Jen and Luli - 29 months > & gt; & gt; Left tort - Right Plagio - Hanger Band Grad - CA > & gt; & gt; http://www.babieson line.com/ babies/j/ jens5th/ > & gt; & gt; > & gt; & gt; > & gt; & gt; Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2008 Report Share Posted May 31, 2008 > > > My 2.5 year old dd is having an MRI without and with contrast and a CSF flow study done. > > Are there any after or side effects of having the dye in her spinal cord?? > They whole thing gives me the ebbie geebies! I'm sure it fine, but the thought of dye in her cord creeps me out. > > Also, I read somewhere here that someones baby had TC that was " hidden " on MRI - how was it hidden and how did they finally figure out it was TC???? > > > > ?Jen and Luli - 29 months > Left tort - Right Plagio - Hanger Band Grad - CA > http://www.babiesonline.com/babies/j/jens5th/ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2008 Report Share Posted June 1, 2008 Hi My daughter has had 2 MRI's with contrast--she had no side effects at all. Be sure to ask for a copy of the scan on a DVD Rom--it helped us to have it to look at after talking to the dr--we could take our time and look through the scan as we learned about Ellie's NTD. Good Luck, Mindy MRI question My 2.5 year old dd is having an MRI without and with contrast and a CSF flow study done. Are there any after or side effects of having the dye in her spinal cord?? They whole thing gives me the ebbie geebies! I'm sure it fine, but the thought of dye in her cord creeps me out. Also, I read somewhere here that someones baby had TC that was " hidden " on MRI - how was it hidden and how did they finally figure out it was TC???? ?Jen and Luli - 29 months Left tort - Right Plagio - Hanger Band Grad - CA http://www.babieson line.com/ babies/j/ jens5th/ Quote Link to comment Share on other sites More sharing options...
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