Guest guest Posted October 8, 2008 Report Share Posted October 8, 2008 I have 15 month old boy and he hath Lipomeningomyelocele. Is it here someone who have this same LipoMMC? Sorry my england is not so well, I`am from Finland. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2008 Report Share Posted October 11, 2008 > > I have 15 month old boy and he hath Lipomeningomyelocele. Is it here > someone who have this same LipoMMC? Sorry my england is not so well, > I`am from Finland. > I have the same. Was not diagnosed as a child. I think with an early diagnosis you son may do better. Once permanent nerve damage has set in, surgery won't help. How was he diagnosed? Janine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2008 Report Share Posted October 13, 2008 > > > > I have 15 month old boy and he hath Lipomeningomyelocele. Is it here > > someone who have this same LipoMMC? Sorry my england is not so well, > > I`am from Finland. > > > > I have the same. Was not diagnosed as a child. I think with an early > diagnosis you son may do better. Once permanent nerve damage has set > in, surgery won't help. How was he diagnosed? > > Janine > My son name is Santeri. He catch diagnosed when he born and he was a surgery year ago, 3 month old. Surgery went very well. What proplems you have to LMC? My son doesn`t have nothiong yet. Meiju Quote Link to comment Share on other sites More sharing options...
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